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MIAMI CTSI

Community Engagement and Cultural Diversity (CECD)

Program LeadershipOlveen Carrasquillo, M.D., M.P.H.Professor of Medicine & Public Health SciencesChief, Division of General Internal MedicineDirector, Health Services Research & Policy

Erin Kobetz, Ph.D., M.P.H.Assoc. Prof., Dept. of Public Health SciencesDirector, Disparities & Community Outreach, SCCCDirector, Jay Weiss Institute for Health Equity, SCCC

Aim #1

Foster long-term participatory academic-community collaborations & assist UM investigators, students &

community partners in conducting community-based and culturally

competent research

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Aim 1: Foster long-term participatory academic-community collaborations

Progress to date

150 discrete events of support by CECD Core to UM Faculty, partners

8 local partners with strong engagemento Health Choice Network-FL: research collaborations (U54, RO1, GE, FL-DOH), training

Community Health Workers (CHW) for research/community partnershipso Health Council of South Florida (HCSF): bi-directional boards, reviewer of K12

applications, conferenceso Miami-Dade Health Action Network (MD-HAN): recruitment of minorities into

clinical trials/research, co-lead CHW Workgroup and annual regional symposiao Area Health Education Center: Boards, DOH CRC screening and provider of

smoking cessation siteso FL Community Health Workers Coalition: co-lead group, provided panel

presentationso FL Health Equity Research Institute (HERI): reviewed applications, provided

program planning, training and presentationso San Juan Bosco Clinic: provided CHW core competency trainings and is a participant

recruitment site for a K12 investigator

o Connect Familias: provided teaching support to 1 of 3 national evaluation site on diabetes (NDEP-CDC)

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Funding SUCCESS Stories• UM

– Neurology: U54 Stroke Disparities Center, MDR01– Psychology: K23, recruitment component– CTSI: K12, recruitment component

• Community Partners– Miami Dade Area Health Education Center

• OMH: CRC FIT, over 1,000 screened

– Health Choice Network • GE (Cervical Cancer), Bristol-Meyers (DM), PCORI-CDRN

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T4 SUCCESS Stories• Created certification for new health (and research)

worker category in Florida– Community Partners: Clinical Services– Research: Recruitment and Retention– Led statewide CHW Coalition / federal, OMH – Technical assistance, curriculum, training and

leadership for both clinical and research settings – FL. Certification Board approval of CHW Certification!!

• 17th state in US to do so

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RFA: Recruitment Innovation Centers

• RICs promote innovation and efficiency in participant recruitment into multi-site studies

• Use of the EMR at subsets of CTSA hubs to estimate the number of potential participants who meet the trial entry criteria

• Development of recruitment tools and strategies that can support connecting participants with potential trial opportunities

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CEDC Strengths• Expertise in recruitment minorities into clinical

trials (and the population!)• Leadership and expertise in using CHWs to recruit

patients from community and clinic settings • Consolidated UM webpage for recruitment into

UM clinical trials (in Spanish!!)– www.miamictsi.org/pacientes

• Community based infrastructure for guidance, input, oversight and finding dissemination for clinical trials

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Community Leadership BoardAmerican Cancer Society

The Beautiful Gate Cancer Resource CenterCancer Support Community Greater Miami

Catalyst MiamiCitrus Health Network

Community Health of South Florida (CHI)ConnectFamilias

Center for Haitian StudiesFIU Stempel School of Public Health and Social Work

Florida Breast Cancer FoundationFlorida Health -Miami Dade County

Florida Society of Oncology Social WorkersHealth Choice Network of FloridaHealth Council of South Florida

Leukemia and Lymphoma SocietyLiberty City Development Corporation

Liberty Square Resident CouncilLiga Contra el Cancer

Miami Dade Area Health Education Center (AHEC)Miami Dade College School of Nursing

Miami Gardens Commission for WomenMujer, Inc.

Opa Locka Community Development CorporationPlanned Parenthood of South Florida & Treasure

CoastSembrando Flores Compassionate Care Ministry

St. John Bosco ClinicSouth Florida Cancer Association

Univ. of Miami AHECYWCA of Greater Miami

Liberty City CABThe Beautiful Gate

Belafonte TACOLCY CenterCurley’s House Hope Relief & Food Bank

Empower UFIU Stempel School of Public HealthFlorida Health Miami Dade County

God’s Amazing Grace Outreach MinistriesJessie Trice Community Health Center

Liberty City TrustLiberty Square Resident Council

New Horizons Comm. Mental Health CenterProject Hope, Inner City Youth

Little Haiti CABCenter for Haitian Studies

Edison Adult Education ProgramFanm Ayisyen Nan Miyami

Haitian American Nurses Assn. of FloridaLespi Enterprises.

Little Haiti Health CenterMemorial Highway Baptist Church

Miami-Dade College School of NursingPlanned Parenthood of Greater MiamiSant La Haitian Neighborhood Center

Voodoo Association in Miami

Hialeah CABAmerican Cancer Society

Citrus Health NetworkCity of Hialeah, Parks Department

Lions Club of HialeahHealth Choice Network of FloridaHialeah Chamber of Commerce

Miami Dade SchoolsSalvation Army

South Dade CABCatholic Charities of America

Community Health of South Florida (CHI)Goulds Coalition of Ministers & Lay People

Health Choice Network of FloridaPlanned Parenthood of South Florida

Sembrando Flores Compassionate Care MinistriesWest Perrine Christian Association

Local & State PartnershipsConsortium for a Healthier Miami Dade

Florida Community Health Worker CoalitionFlorida Cancer Control & Research Advisory Board

Florida Cancer Plan CouncilMiami Dade Health Action Network

Southeast Florida Cancer Control Collaborative

Community Advisory Network

Overtown Wellness CoalitionOvertown Community Oversight Board

Overtown Neighborhood Enhancement Team Overtown Optimist Club

Community Work Training Program, Inc. Urgent, Inc.

Miami-Dade Public Library Miami Kitchen Gardens

Urban GreenWorks Happy Children of Overtown

Lotus House Shelter Overtown Youth Center

Touching Miami With Love

Rev 12/9/14

EMR Identifiers

• Race and ethnicity identifier fields in the Electronic Medical Record using NIH criteria

I’M IN: Recruitment of Minorities

Multi-Stakeholder campaign to improve health by increasing diversity in clinical trial participation Pharma and National minority quality

forum With HCSF coordinate County wide events

I’m IN: community engagement

• Coordinated two county community stakeholders meetings • Speakers: Marisel Losa/HCSF, Dr. Salvo Alesci PhRMA, and Dr. J Wright,

CTSI• Print: Miami Herald article on recruitment Hispanics into diabetes trials• Radio interview: Cadena Azul 1550 AM to share the importance of the I’m In

campaign, recruitment of Latinos in clinical trials.

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Findings Dissemination: HCHS-SOL

• Outreach, co-hosted events at Latino health fairs• Radio Spanish interviews on study results and translation into

community needs • Dissemination of HCHS-SOL findings Community and Patient

Booklet (bilingual) • Working on CEU module for CHWs/promotores based on SOL

data from JAMA articles, simple fact sheets

CEDC Opportunities

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• Partnership of UM, UF, FSU, and HCN to facilitate conduct of statewide pragmatic and implementation science clinical trials

• Placement of limited EMR datasets from patients in select clinical sites into a One Florida Data Trust using an honest broker system

• Interface queries for linkages to other data– e.g. Medicaid, cancer registry

• Consent2Share: Pts willing be contacted to be enrolled in clinical trials

• Conduct multi site smoking cessation study using this infrastructure

Ideas/ Thoughts UM as a RIC?

• Promote innovation and efficiency in use of EMRs for participant recruitment into multi-site studies

• Innovative recruitment tools and strategies

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