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2010 Hematopoietic and Lymphoid Neoplasm Project
Registry Operations and the SEER
Program
HP-L Registry Operations Outline and Objectives:
Incorporating hematopoietic database and rules into registry operations
Casefinding Sequencing Case linkage and consolidation Death clearance
HP-L Registry Operations Integrating the Hemato DB and
casefinding: E-Path/CAS Disease Indices Pathology and lab report review Physician office Handling obstacles
HP-L Registry Operations Newly reportable histology terms
and codes 33 new codes and terms 3 newly reportable diseases
• Previously were /1 now /3
Case ascertainment Completeness
HP-L Registry Operations E-Path/CAS considerations:
Incorporate new codes into casefinding and screening algorithms• Refer to Tables D1a, D1b, D2
Use ICD-O-3 tables for upload Hemato DB text files can be uploaded
HP-L Registry Operations Disease Indices
ICD-O-3 code list ICD-9-CM code list ICD-10 code list Code list text files can be uploaded
• Refer to “Display Codes”
HP-L Registry Operations
HP-L Registry Operations
HP-L Registry Operations Path and lab report review
Identifying new terms and synonyms ICD-O-3 list Table of new terms (D1a and D1b) Newly reportable terms (D2) Electronic search tool
HP-L Registry Operations Clinic and physician office reports
Manual review of appointment logs• Apply path review methods
Electronic patient records• Apply E-Path methods• Incorporate reportable ICD-9-CM codes and
terms (Hemato DB)
HP-L Registry Operations Implementation delays:
Software upgrade/IT support delays Table of new WHO codes
• Table 1 SEER*Abs Generator
• http://seer.cancer.gov/seerabs/index.html
HP-L Registry Operations Case linkage and consolidation
Use new terms and codes Determination of new primaries/sequencing is
changed Incorporate new codes into matching
algorithms Implement and execute new edits (NAACCR
v12 metafile)• http://www.naaccr.org/StandardsandRegistry Operati
ons/VolumeIV.aspx
HP-L Registry Operations Case linkage and consolidation
Increase vigilance when reviewing various documents to determine reportability and sequencing
Document unusual/complex cases well May be an increase in follow-back
requests
HP-L Registry Operations Case consolidation example:
12/2009 diagnosis: primary cutaneous follicle center lymphoma
No ICD-O-3 code, hence coded to 9560 (NHL, NOS)
Returns to facility in 2010; codes 9597 Do Not change codes for <2010 Dx Do Not sequence as new primary
Danger of sequencing errors
HP-L Registry Operations Hemato DB and case consolidation:
Consider rules, codes - including suggested primary, multiple primary calculator
Review all documents for required data items, ie: Dx date, diagnostic confirmation, immuno-phenotyping
HP-L Registry Operations
HP-L Registry Operations Case consolidation and quality
improvement: Review site, histology, CSv2, SSFs, Rx Specific histology terms and codes Track changes and edits Notify CTR of any changes to previously
submitted cases
HP-L Registry Operations Conclusions
Incorporate new terms and codes Apply coding rules and database Become skilled with database & manual Increase visual editing
HP-L Registry Operations Death Clearance
ICD-10 list incorporated into CTR database includes updated codes
Follow-back requests may be revised for specific hematopoietic and lymphoid neoplasms
Little to no significant impact suspected
HP-L Registry Operations Questions?
This work was supported by Contract HHSN26120000024C between the National Cancer Institute and the Connecticut Department of Public Health.