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2019 Annual Report
2019 AnnualReport
Employer ID Number: 59-3577101Consumer Certificate of Exemption Number: 85-8012540376C-3
Solicitation Number: CH-11013
A non-profit, charitable, tax-exempt organization, the Alzheimer's Family Organization,
Inc. serves the West Central Florida area in the following counties: Hillsborough,Pinellas, Pasco, Hernando, Citrus, Lake,
Sumter, and South Marion.
Our Board Of DirectorsPresident: Lori Wilson Treasurer: Rob Mustachie
Vice President: Bill Tuttle Secretary: Terri Osteen
Members: Michael Benetto, Ron Frances, Tyler Borowski, Alexander Powell, BobbieMiller, Peg Pickett, Sharon Doncourt, Attorney Ed Spinks, Dr. Mary Stedman,
Mary Darling
Served in 2019: Deb Selsavage, Helayne Celano, Lori Felber, Glen Scharfeld, Cindy Reed,Angie DiMura, Dawnmarie Ciappetta, Dr. Stan Giannet
Our StaffExecutive Director: Kathleen M. Winters, MS, LN
Administrative Manager: Alicia Vegerano Community Liaison: Teresa Haver The Villages Community Educator: Jackie Kuhn-Damron Lake Community Educator: Jamilya Rahming
Mission StatementTo provide educational programs, support services and assistance to caregivers,
families, and individuals with Alzheimer’s disease and other dementia.
Vision StatementAll those with Alzheimer’s or other forms of dementia, and their caregivers, will have a
better quality of life.
2
2
3
Wanderer’s Reunification Program The objective of the Wanderer's Reunification Program is to identify and reunite aloved one with Alzheimer's disease or other form of dementia with their caregiver asquickly and as safely as possible, thus reducing the time of separation and trauma to
the loved one. We have expanded this program by adding a Human Scent Kit. Anadditional part of this program is ID jewelry, which provides contact information linking
the loved one back to their caregiver.
HUMAN SCENT PRESERVATION KIT: Using the human scent preservation kit, aloved one with the disease can be located more quickly and in a more cost-effectivemanner than dispatching a helicopter with heat seeking equipment or multiple manhours for foot searches. Using a scent pad that has been correctly preserved within asealed sterile jar reduces contamination of the sterile scent article. It ensures that theK9 team is trailing the targeted person's unique scent. This is a free to anyone in need.
The purchase of the kits came through a grant in Hernando County.
Respite Care Financial Reimbursement Assistance Program The Respite Care Financial Reimbursement Assistance Program
provides financial reimbursement to paid members of the organization once in a 12-month period to those that have been approved for the program.
Total Funds
Citrus, LakeHillsborough,
Marion, Pinellas
County Number ServedHernando
Pasco
Sumter
2
2
2
0
$1,125.00($1,875 in 2018)
County Jewelry Requested Kits Requested
Citrus
Hernando
Hillsborough
Lake
Pasco
Pinellas
Sumter
Marion
1 17
17
14
11
10
0
0
20
Out of service area
TOTAL
6
69
2
0
0
2
0
0
2
13
20
4
COMPANION NEWSLETTER16,000 copies continue to be distributed annually. After a significant cost analysis of The
Caregiver’s Companion, the AFO Marketing Sub-committee presented to the Board to bringthe development of the publication in-house, changing to color copies and to be printed on
better quality paper. The Marketing & Media Specialist has the qualifications to take thisproject on and was also able to find a print company at a significantly lesser rate. We are
excited about the changes that are coming!
SUPPORT GROUPSSupport groups are for family members, professional caregivers and others interested inlearning more about Alzheimer’s disease and dementia as well as managing the journey
through the disease. The meetings are free, and everyone is welcome. A significantnumber of individuals attended in 2019. As we work to improve reporting with leaders,we will have a more solid count in the future. The number we were able to accurately
track in 2019 was 3,002 times a caregiver attended an AFO support group. * not all leaders have turned in sign in sheets.
Support Groups Held Health Fairs
County County NumberNumber of Groups
Citrus
Hernando
Hillsborough
Lake
Pasco
Pinellas
Sumter
The Villages
Total
Citrus
Hernando
Hillsborough
Lake
Pasco
Pinellas
Sumter
The Villages
Total
30
101
36
216
168
144
36
12
743(497 in 2018)
14
7
1
26
8
18
2
2
78(66 in 2018)
5
SpeakersDeb Selsavage, Owner, Coping with Dementia, LLC. Eileen Poiley, USF/Byrd InstituteSarah Ellyman, Esq., Absolute Law GroupHillary Dube Don Stoute, Dept. of Veterans AffairsTony Graham, Dept. of Veterans AffairsBill TuttleKathleen WintersDenise Moloney, Hernando County Sheriff’s OfficeLee Alexander, Citrus County Sheriff’s OfficeDetective Matt Brewer, Pasco County Sheriff’s OfficeDetective Sergio Soto, Pasco County Sheriff’s Office Deputy Sean O’Brien, Pinellas County Sheriff’s Office Kelly Straub, CaregiverKris Smythe, CaregiverShannon Mulkey, Esq., Bullard & Mulkey, PAEd Spinks, Esq., Spinks Law FirmBobbie Miller, The Special Place for SeniorsJosh Freitas, CERTUSLisa Honka, Your Key to Senior Living Options
2019 Caregiver Learning EventsCounty Held ParticipantsScheduled
Citrus
Hernando
Marion
Lake
Pasco
Pinellas
Sumter
Total
3
2
1
1
2
1
2
12
3
2
2
1
13
2
1
2
44
52
52
16
45
360
12
139
Location
Citrus Memorial Hospital (VDT) Brentwood ALF & Senior Helpers
Residences at Timber Pines (VDT)Atria Evergreen Woods (VDT)
FUM Church ClermontWaterman Village Mount Dora (CXL)
Elliott Center
ST. Matthews Church - Atria Host (VDT)Keystone at Terra Bella (VDT)
Atria Countryside
The Villages NCUMCThe Villages/ Trinity Springs ALF
(395 in 2018)
6
Number
SUPPORT GROUP LEADER TRAINING & IN-SERVICETraining is provided to individuals interested in becoming a support group leader to ensure that groups
run effectively and ethically. Support is provided to current leaders along with monthly tips forcaregiver’s to be shared at support groups.
County New LeadersParticipantsScheduled
Citrus
Hernando
Lake
Hillsborough
Marion
Pasco
Pinellas
The Villages
3
11
3
11
0
2
7
12
2
5
1
7
4
0
2
3
3
11
3
11
0
12
2
7
Total 4924 49(52 in 2018)(52 in 2018)(30 in 2018)
SPEAKER’S BUREAUAlzheimer’s Family Organization members, Board of Director’s and staff are available to
speak to community groups, clubs, and organizations about Alzheimer’s disease.
County
Citrus
Hernando
Hillsborough
Lake
112
27
6
26
5
Total 237(218 in 2018)
Marion
Pasco
Pinellas
Sumter
The Villages
7
Number
22
6
26
County
Speaker's Bureau Presentations
7
Source
Fundraising Events
Total
Alzheimer's FamilySupport Walk
Hernando BowlingChallenge
Alberta's FashionShow
Citrus Walk Aware 2Day Event
Holiday Pallooza
Fundraising in thename of AFO
EVENT COUNTY INCOME EXPENSE PROFIT
The Villages
Hernando
Pasco
Citrus
Hernando
All Counties
$47,808.00
$18,845.00
Cancelled Cancelled Cancelled
$24,554.46
$2,510.00
$24,757.31
$118,474.77
$7,517.55
$1,333.96
$40,290.45
$17,511.04
8+
$2,231.37 $22,323.09
$1,224.00 $1,286.00
$24,757.31
$106,167.89$12,306.88
$0
($101,893.13 in 2018) ($20,215.41 in 2018) ($81,677.72 in 2018)
*These figures do not reflect the salary for the hours the staff devoted to these events
Other IncomeSource Amount
Annual Appeal
Donations
Memberships
Memorials
Grants
Newsletter Ads
Caregiver Learning
Informational Books
ADRD Training
Investment Income
Wander's Reunification $249.20
$7059.56
$775.00
$110.00
$6,225.00
$7,837.00
$12,300.00
$3,545.00
$8,535.00
$193,958.52
$2,480.00
Other $26,393.05
Total $269,468.04($72,079.84 in 2018)
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Source
Volunteer Hours
Type of Service Number of Hours
Board of Directors Meetings
Caregiver Learning Events
Educational Speaking Events
AFO Sub-Committee Meetings
Fundraising Events & meetings
Support Group Leaders
Respite Care- The Villages
Newsletter Article Contribution
General Office Service
Community Service (4) 120
320
130
3,456
2,432
1,723
408
1,820
208
168
Total 10,425(10,702 in 2018)
VOLUNTEERSThe Alzheimer’s Family Organization relies heavily on the very generous volunteers thathave dedicated themselves to the organization. Volunteers support the organization in a
variety of ways such as; serving on our Board of Directors, committees, fundraisingactivities, speaking at our educational events, Respite Care, development, and distribution
of The Companion as well as general office duties.
*These are close estimate numbers, as not all volunteer hours have been captured accurately.
Facebook Live Presentation – 1 (Kathleen/Deb)Newspaper Articles - 24 (Citrus County Chronicle, The Villages Daily Sun, HernandoNature Coaster)The Caregiver’s Companion – 16,000 in total (4,000 copies, quarterly)Facebook
Additional Sources of ExposureWe invested funds this year into updating all marketing materials. We also had additional
exposure in the following areas:
9
461 Mariner BoulevardSpring Hill, Florida 34609
Office: (352) 616-0170 • Fax: (352) 616-0174
www.alzheimersfamily.org •
@AlzFamilyOrg @AlzFamilyOrgfacebook.com/AFO.FL
