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GLOBAL GENES RARE PATIENT ADVOCACY SUMMIT 2019 SPONSORSHIP PROSPECTUS #2019GGSummit SEPTEMBER 18 - 20, 2019 SHERATON SAN DIEGO MARINA HOTEL SAN DIEGO, CALIFORNIA
GLOBAL GENES RARE PATIENT ADVOCACY SUMMIT2019
SPONSORSHIP PROSPECTUS
#2019GGSummit
SEPTEMBER 18 - 20, 2019SHERATON SAN DIEGO MARINA HOTELSAN DIEGO, CALIFORNIA
TABLE OF CONTENTS
2019 Summit Sponsors & Partners
2018 Summit Statistics
2019 Summit Champion Sponsorship Level
2019 Summit Presenting Sponsorship Level
2019 Summit Title Sponsorship Level
2019 Summit Platinum Sponsorship Level
2019 Summit Gold Sponsorship Level
2019 Summit Silver Sponsorship Level
2019 Sponsorship Matrix
2019 A La Carte Sponsorship
2019 A La Carte Sponsorship Matrix
2019 Exhibitor Details
2019 Advocacy Support
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2019 RARE PATIENT ADVOCACY SUMMITSPONSORS & PARTNERS
CHAMPION SPONSOR
TITLE SPONSOR
EXHIBITOR PAVILION SPONSOR
PRESENTING SPONSOR
PLATINUM SPONSORS
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2019 RARE PATIENT ADVOCACY SUMMITSPONSORS & PARTNERS (con’t)
SILVER SPONSORS
GOLD SPONSORS
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2018 RARE PATIENT ADVOCACY SUMMITSTATISTICS
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2019 RARE PATIENT ADVOCACY SUMMITCHAMPION - $150,000(One available)
PRE-EVENT MARKETING• Premium logo on conference website• Included within pre-conference email with
other sponsors promoting the RARE Patient Advocacy Summit
• Included in press release
BRANDING• Premium logo on onsite signage• Premium big screen logo recognition• Logo included on step and repeat• Inside front and back cover ad in the
printed conference guide
SOCIAL MEDIA PROMOTION• Promotion on Global Genes social media
networks
CONFERENCE MOBILE APP• Logo in mobile app• Company description in mobile app• 2 dedicated push notifications within the
mobile app
REGISTRATION• 12 conference passes• 12 advocate scholarships
EXHIBIT• Premium (10’ x 20’) exhibit booth
ADDITIONAL ITEMS• Hotel airport shuttle wrap• Elevator clings• Day 1 reception• Mobile app banner ad
HOTEL AIRPORT SHUTTLE WRAPDisplay your company logo on the hotel shuttles which pick up and drop off from the Sheraton to the San Diego International Airport daily. Three shuttles will be branded for the duration of the Summit with the company logo on screens within the shuttle.
ELEVATOR CLINGSPlace your logo on the elevator doors within the hotel.
DAY 1 RECEPTIONKick off registration day with a welcome reception for all attendees in the exhibit hall. You will receive branding on cocktail napkins and signage.
MOBILE APP BANNER AD Display your banner advertisement at the top of the mobile app screen. Banners are placed in rotation and displayed to all attendees when they use the app.
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Sponsored by Horizon
This event was hands down the best conference I have ever been to, and as a regular presenter at conferences and summits, I have seen many. The thinking, energy, effort, honour and pride this event oozed, was magnificent. They engaged deeply with everyone present- from first time attendees, to biotech companies, pharmaceutical companies, corporate sponsors, technical professionals, family members, parents, children, advocates, supporters, presenters... there was so much for everyone present to gain inspiration, knowledge and actionable tools to enable positive change. This is a truly special community and it is being lead by an amazing group of people. There is so much hope, for a better world in Rare Disease.
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Rachel CallanderSpeaker, Author, Trainer, Artist
2019 RARE PATIENT ADVOCACY SUMMITPRESENTING - $100,000
PRE-EVENT MARKETING• Premium logo on conference website• Included within pre-conference email with
other sponsors promoting the RARE Patient Advocacy Summit
• Included in press release
BRANDING• Premium logo on onsite signage• Premium big screen logo recognition• Full page ad in the printed conference
guide
SOCIAL MEDIA PROMOTION• Promotion on Global Genes social media
networks
CONFERENCE MOBILE APP• Logo in mobile app• Company description in mobile app• 1 dedicated push notification within the
mobile app
REGISTRATION• 10 conference passes
EXHIBIT• Premium (10’ x 20’) exhibit booth
ADDITIONAL ITEMS• Track sponsor (four available)• Opportunity to host the RARE Champion of
Hope Awards Dinner• Event livestream and on demand
TRACK SPONSOR (FOUR AVAILABLE)As a track sponsor, your brand is affiliated with session content, and a representative from your company will provide opening and closing remarks for your track. Your representative will also introduce each session and session speaker to both the live and virtual audiences.
RARE CHAMPION OF HOPE AWARDS DINNERBe the host of a wonderful celebration honoring members of the rare disease community for their notable efforts in advocacy, teen advocacy, science, collaboration, and medical care and treatment. Sponsoring companies will be acknowledged in the agenda and program as well as on the screen during the event.
EVENT LIVESTREAM AND ON DEMANDHelp the conference “go global” by sponsoring the event livestream and on–demand recordings that have the potential to be watched by thousands of advocates virtually, wherever they reside.
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Select from one of the below (based on availability):
(Six available)
Sponsored by Takeda
Sponsored by Eversana
2019 RARE PATIENT ADVOCACY SUMMITTITLE - $75,000
PRE-EVENT MARKETING• Premium logo on conference website• Included within pre-conference email with
other sponsors promoting the RARE Patient Advocacy Summit
• Included in press release
BRANDING• Premium logo on onsite signage• Premium big screen logo recognition• Half page ad in the printed conference
guide
SOCIAL MEDIA PROMOTION• Promotion on Global Genes social media
networks
CONFERENCE MOBILE APP• Logo in mobile app• Company description in mobile app• 1 dedicated push notification within the
mobile app promoting sponsored reception or track
REGISTRATION• 8 conference passes
MOBILE APPHelp attendees connect and engage through a customized conference app. The tool will allow attendees to search the attendee list from their smartphone and be able to direct message other attendees, facilitating connections. The app will also promote the conference agenda, hotel map and meeting rooms with just a click of a button. Sponsorship of the mobile app provides your company placement on the startup splash screen to display each time the app is opened, one banner ad with premium rotation, a premium sponsor icon and listing, and one push notification.
WIFISponsor the conference Wi-Fi and customize the network name and password with your company name or name of your choice. Keep your name in front of the attendees throughout the event every time they log into the Wi-Fi network.
RARE CHAMPION OF HOPE AWARDS COCKTAIL RECEPTIONWind down the evening festivities by having your company sponsor the RARE Champion of Hope Awards cocktail reception. Your brand will be featured in the RARE Champion of Hope program on cocktail napkins and coasters.
GENERAL SESSION KEYNOTE Don’t miss the opportunity to introduce our keynote speaker Susannah Cahalan, acclaimed journalist and New York Times bestselling author of Brain On Fire: My Month of Madness at the opening General Session of the summit. Cahalan reveals her personal journey from a promising young writer with a clean bill of health to a restrained hospital patient descending into madness. Employing her award-winning journalistic skills, Cahalan uncovers valuable insight into the human brain and incites important discussion around mental illness and the power of human resilience. Company logo to be displayed on agenda and on site signage.
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Select from one of the below (based on availability):
Sponsored by Mallinckrodt
Sponsored by Retrophin
2019 RARE PATIENT ADVOCACY SUMMITPLATINUM - $50,000
PRE-EVENT MARKETING• Standard logo on conference website• Included within pre-conference email with
other sponsors promoting the RARE Patient Advocacy Summit
• Included in press release
BRANDING• Standard logo on onsite signage• Standard big screen logo recognition• Quarter page ad in the printed conference
guide
SOCIAL MEDIA PROMOTION• Promotion on Global Genes social media
networks
CONFERENCE MOBILE APP• Logo in mobile app• Company description in mobile app
REGISTRATION• 6 conference passes
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CHARGING STATIONSGet noticed by having your company logo branded on the charging stations available for all attendees throughout the conference area.
BRANDED ATTENDEE CONFERENCE BAGSAll attendees will be carrying your brand with them throughout the entire event with branded conference bags. You are able to include one promotional piece to be inserted into conference bags. The insert must be pre-approved and provided by the sponsor.
CONFERENCE T-SHIRTBe the exclusive t-shirt sponsor with your company logo included on the back of each shirt.
HOTEL KEY CARDSYour company’s brand will be visible to every attendee with placement on the hotel room key cards distributed to every guest at check-in at the host hotel.
Select from one of the below (based on availability):
Sponsored by Genentech
Sponsored by Sanofi-Genzyme
Sponsored by Illumina
Sponsored by Gilead
Global Genes plays a very important role in the rare disease advocacy space. While most organizations are focused on specific diseases, Global Genes is focused on supporting all of those advocacy groups, empowering them to better serve their own missions, as well as increasing awareness about rare disease in the public. The leadership has a visionary as well as a capable, experienced executive team. They are highly respected in the healthcare industry and have made a tremendous impact in the relatively short time they’ve been in existence. I strongly recommend this organization.
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Kristin KellerExecutive Vice PresidentVIVO AGENCY
2019 RARE PATIENT ADVOCACY SUMMITGOLD - $25,000
PRE-EVENT MARKETING• Standard logo on conference website• Included within pre-conference email with
other sponsors promoting the RARE Patient Advocacy Summit
• Included in press release
BRANDING• Standard logo on onsite signage• Standard big screen logo recognition
SOCIAL MEDIA PROMOTION• Promotion on Global Genes social media
networks
CONFERENCE MOBILE APP• Logo in mobile app• Company description in mobile app
REGISTRATION• 4 conference passes
BRANDED ATTENDEE WATER BOTTLESHelp attendees stay hydrated during the conference. Be the exclusive sponsor of the Summit water bottles.
WINE SPONSORThursday night RARE Champion of Hope cocktail reception and dinner wine sponsor.
DAY 1 LUNCH SPONSORSponsor the attendee lunch and your company will be branded on the agenda and at the food stations with signage. Your company can also provide branded napkins, cups, and plates for use (as permitted by hotel).
DAY 2 LUNCH SPONSORSponsor the attendee lunch and your company will be branded on the agenda and at the food stations with signage. Your company can also provide branded napkins, cups, and plates for use (as permitted by hotel).
SUMMIT CONFERENCE BOOK The RARE Patient Advocacy Summit guide is the key book to which attendees will turn for information on conference schedules, session descriptions, and speaker bios. It is a must-keep resource for every attendee. Sponsorship includes branded visibility within the guide.
THUMB DRIVEYour company’s brand will be placed on a thumb drive given out to attendees at the Summit.
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Select from one of the below (based on availability):
con’t on next page
Sponsored by Novelion
Sponsored by Daiichi Sankyo
Sponsored by Pfizer
Sponsored by Akcea
Sponsored by Abeona
Sponsored by Avexis
2019 RARE PATIENT ADVOCACY SUMMITGOLD - $25,000 (con’t)
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ATTENDEE NETWORKING LOUNGESponsor our attendee networking lounge where attendees can rest, relax, and engage with others throughout the busy schedule.
INFO BOOTHYour company’s brand will be placed on the help desk/info booth at the Summit.
HOTEL FLAGPOLE BRANDINGYour company’s brand will be placed on flagpoles at the Summit.
SUNGLASSESYour company’s brand will be placed on sunglasses at the Summit.
SUNSCREENYour company’s brand will be placed on sunscreen bottles at the Summit.
EVENT REGISTRATIONThe exclusive sponsor of registration will have the logo on the registration website and on the iPads attendees use to check-in on-site. The logo will also be featured in front of the registration counters.
SOCIAL WALL Your company can be the official provider of the social wall located inside the general session and throughout the conference foyer. The social wall displays a live feed of Summit coverage from social media.
QUIET ROOMTake a break from all the fun to relax and rejuvenate in the quiet room. Enjoy a coloring book, relaxing music and a comfortable place to sit.
REGISTRATION BADGE LANYARDSHave the attendees wearing your brand throughout the event with customized lanyards.
The opportunity to network and talk with people doing the same things you are, or plan to work on is invaluable. Our stories maybe
different but our journey's very much the same.
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Blynda KillianPresidentCYCLIC VOMITING SYNDROME ASSOCIATION
Sponsored by Alnylam
Sponsored by BridgeBio
Sponsored by Ipsen
Sponsored by Biogen
Sponsored by Amicus
Sponsored by Biomarin
2019 RARE PATIENT ADVOCACY SUMMITSILVER - $15,000
PRE-EVENT MARKETING• Small logo on conference website• Included within pre-conference email with
other sponsors promoting the RARE Patient Advocacy Summit
BRANDING• Small logo on onsite signage• Small big screen logo recognition
CONFERENCE MOBILE APP• Logo in mobile app• Company description in mobile app
REGISTRATION• 2 conference passes
BLUE DENIM GENES RIBBON CARD WITH LOGO The Blue Denim Genes Ribbon is the symbol of hope for the rare disease community. Show your support by branding the informational ribbon card with your logo.
HOTEL AND LOCAL AREA MAPKnow where to go! Logo on maps of the city and hotel for attendees to reference throughout the event. Maps will indicate important meeting locations and will be distributed at the help desk/info booth for the duration of the conference.
EXPERIENCE #SELFIESPOTSponsor a unique opportunity to create a memorable experience and #selfie for conference attendees. Your logo will be branded on a #selfiespot on the lawn for the duration of the conference. Conference attendees will be encouraged to take photos in this designated spot and share on social media.
RARE CHAMPION OF HOPE AWARDS PROGRAMThe RARE Champion of Hope Awards program allows attendees to follow the evening award presentation agenda and learn more about those being honored in the rare community. By sponsoring, your company will be featured inside the program as well as on event signage.
PENSBranding opportunity with visibility to all conference attendees.
HAND SANITIZERHave your logo on hand sanitizer that will be in every conference room.
CORD TACOSHave your logo on cord tacos at the conference.
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Select from one of the below (based on availability):
Working in the area of rare disease therapeutic research and development, the need to align collaboratively to identify end to end solutions - from drug discovery to reimbursement of new therapeutics- for patients is greatly apparent to truly make transformative changes and accelerate finding cures. Global Genes/RARE Project not only brings patients and patient advocates together, supporting them in finding solutions in the now, but also brings together clinical and industry thought leaders to determine the transformative changes needed to truly make a difference through advocacy, education and research. The team and the community surrounding this organization is unparalleled in its determination and commitment in making a dramatic impact on patient lives.
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Christina Waters, PhD, MBASenior Vice President and General ManagerGLOBAL RARE DISEASE PROGRAM AT WUXI NEXTCODE
con’t on next page
Sponsored by Recordati
Sponsored by Agios
Sponsored by Sobi
Sponsored by PTC Therapeutics
Sponsored by Spark
Sponsored by Sangamo
Sponsored by Audentes
2019 RARE PATIENT ADVOCACY SUMMITSILVER - $15,000 (con’t)
DAY 1 AM BREAKSponsor an attendee break and your company will be branded on the agenda and at the food stations with signage. Your company can also provide branded napkins, cups, and plates for use (as permitted by hotel).
DAY 2 AM BREAKSponsor an attendee break and your company will be branded on the agenda and at the food stations with signage. Your company can also provide branded napkins, cups, and plates for use (as permitted by hotel).
DAY 1 PM BREAKSponsor an attendee break and your company will be branded on the agenda and at the food stations with signage. Your company can also provide branded napkins, cups, and plates for use (as permitted by hotel).
DAY 2 PM BREAKSponsor an attendee break and your company will be branded on the agenda and at the food stations with signage. Your company can also provide branded napkins, cups, and plates for use (as permitted by hotel).
WELCOME COFFEE BREAKSponsor a warm welcome as conference attendees arrive to the Sheraton Hotel and Marina. Your company logo will be on signage at a refreshment station in the hotel lobby the first day of the conference. Your company can also provide branded napkins and cups for use (as permitted by hotel).
NOTEPADSBranding opportunity with visibility to all conference attendees.
SPEAKER READY ROOMProvide a comfortable meeting space for our summit speakers as they prepare their presentations.
DAY 1 BREAKFAST SPONSORSponsor an attendee breakfast and your company will be branded on the agenda and at the food stations with signage. Your company can also provide branded napkins, cups, and plates for use (as permitted by hotel).
DAY 2 BREAKFAST SPONSORSponsor an attendee breakfast and your company will be branded on the agenda and at the food stations with signage. Your company can also provide branded napkins, cups, and plates for use (as permitted by hotel).
ALL DAY BEVERAGES DAY 1Keep the attendees hydrated and refreshed by sponsoring the all-day beverage station available throughout the conference.
ALL DAY BEVERAGES DAY 2Keep the attendees hydrated and refreshed by sponsoring the all-day beverage station available throughout the conference.
YOGAWhat better way to help attendees prepare for the day by sponsoring a yoga session?
VOLUNTEER T-SHIRT Have your logo on the move during the Summit! Your logo can be visible throughout the Summit on the t-shirts worn by volunteers throughout the event as they assist with registration, greet attendees and provide directions.
POSTER PRESENTATIONSupport patient organizations, researchers, health care professionals and industry partners share their work that is creating solutions for the evolving needs of rare disease by presenting posters on their research and programs.
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Sponsored by Intercept
Sponsored by Blueprint Medicines
Sponsored by Leadiant
Sponsored by AllianceRx
Sponsored by Ultragenyx
Sponsored by Novartis
Sponsored by Aldevron
Sponsored by UCB
Sponsored by Ionis
Sponsored by AvroBio
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2019 RARE PATIENT ADVOCACY SUMMITSPONSORSHIP MATRIX
CHAMPION
$150,000
Twelve (12) Ten (10) Eight (8) Six (6) Four (4) Two (2)
Premium Premium Premium Standard Standard Small
Yes Yes Yes Yes Yes Yes
No
No
No
No
No
No
No
No
No
No
Yes Yes Yes Yes Yes
Premium Premium Premium Standard Standard Small
Premium Premium Premium Standard Standard Small
Inside Front & Back cover full page Full Page
No
Half Page
No
Quarter Page
No
No
NoNo
Yes
Yes Yes Yes Yes Yes
Yes Yes Yes Yes Yes Yes
Yes Yes Yes Yes Yes Yes
Yes Yes Yes
Yes Yes
Yes Yes Yes Yes Yes Yes
PRESENTING
$100,000
TITLE
$75,000
PLATINUM
$50,000
GOLD
$25,000
SILVER
$15,000
Full Conference Passes
Logo on Conference Website
Pre-Conference Email Promotion
Logo on Onsite Signage
Ad in the Printed Summit Guide
Big Screen Logo Recognition
Logo included on Step and Repeat
Social Media Promotion
Logo in Mobile Event App
Company Description in Mobile Event App
One Push Notification
Premium Exhibit Booth (10’ x 20’)
One Level Item (Based on availability)
Inclusion in Press Release
2019 RARE PATIENT ADVOCACY SUMMITA LA CARTE SPONSORSHIP
EMAIL PROMOTION BANNER$5,000 EACHDisplay your company logo on one of the many summit e-mails that will be sent to over 20,000 potential attendees. This will be a high visability opportunity.
SUMMIT CONFERENCE BOOK ADVERTISEMENT FULL PAGE$5,000 EACHAdvertising opportunities are available in the printed program guide distributed to attendees.
SUMMIT CONFERENCE BOOK ADVERTISEMENT HALF PAGE$3,000 EACHAdvertising opportunities are available in the printed program guide distributed to attendees.
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EXHIBIT PAVILION$125,000 (One Available)Be the host of the Summit Exhibit Pavilion with over 80 exhibiting opportunities and have your name in the official title of the pavilion. The pavilion sponsorship package includes:
• 10 conference passes• 10’ x 20’ exhibit booth• Welcome reception in exhibit pavilion• Stage/programming during exhibiting hours• Entrance unit branding with logo • Logo in conference book, app, signage, etc.
Sponsored by PRA Health Sciences
2019 RARE PATIENT ADVOCACY SUMMITA LA CARTE SPONSORSHIP (con’t)
MOBILE APP PUSH NOTIFICATIONS$2,000 EACH Want to send a message!? Create a custom push notification to alert Summit attendees of a meeting, event or special announcement.
HOTEL ROOM GIFT DROP$5,000 EACHWelcome conference attendees back to their room after a long day with a sweet gift. The sponsor is responsible for purchase and production of gift item.
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MOBILE APP BANNER AD$5,000 EACHDisplay your banner advertisement at the top of the mobile app screen. Banners are placed in rotation and displayed to attendees when they use the app.
REGISTRATION BAG INSERT$4,000 EACHYou can provide one promotional item to be inserted into the tote bags given to every Summit attendee. The item must be pre-approved and provided by the sponsor, so production costs are not included in the sponsorship.
As a first time attendee I was very impressed with the setup, speakers and how well the entire summit was organized. I met so many wonderful people and learned so many great things to take back to my community. I look forward to staying involved and follow the progress of so much research that will shape our healthcare in the future.
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Ken TaylorVice PresidentINTERNATIONAL PAIN FOUNDATION
2019 RARE PATIENT ADVOCACY SUMMITA LA CARTE SPONSORSHIP MATRIX
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SPONSORSHIP AVAILABLE SPONSORS PRICE
10 $5,000 eachEmail Promotion Banner
Unlimited $5,000 eachSummit Conference Book Advertisement Full Page
Unlimited $3,000 eachSummit Conference Book Advertisement Half Page
5 $5,000 eachMobile App Banner Ad
1 $125,000Exhibitor Pavilion
Unlimited $2,000 eachMobile App Push Notifications
2 $5,000 eachHotel Room Gift Drop
5 $4,000 eachRegistration Bag Insert
2019 RARE PATIENT ADVOCACY SUMMITEXHIBITOR DETAILSRESERVE YOUR SPACE 2019The Global Genes annual RARE Patient Advocacy Summit is the largest educational event for rare disease patients, advocates and throught leaders worldwide. Attendees gather to learn, share, become educated, and be inspired. The average number of attendees over the last four years was upwards of 800, and we experienced an increase year-over-year of 11% from 2017 to 2018. In addition, the number of exhibitors increased by 20% from 2017 to 2018 at the Summit.
This year at the 2019 RARE Patient Advocacy Summit, hosted at the San Diego Sheraton Hotel and Marina we have the potential to host over 1,000 attendees and over 80 exhibitors showcasing their rare goods and services. We have continued to evolve and develop a robust array of planned educational, advocacy, collaborative and networking opportunities that will enhance and expand your rare reach.
We invite you to take advantage of the opportunity to exhibit and secure your place at the 2019 RARE Patient Advocacy Summit.
LOCATIONPavilion
PRELIMINARY EXHIBIT HOURS AND DATES (times subject to change based on final agenda)
PRICING
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Wednesday, September 183:00 pm open 6:00 pm - 9:00 pm WelcomeReception with exhibitors
Thursday, September 199:30 am open 2 coffee breaks with exhibitors 6:00 pm close
Friday, September 209:30 am open 2 coffee breaks with exhibitors 3:00 pm close
Premium Booth (CA/FA member)
Corporate
$1,000
$5,000
Corporate Alliance Member (CA)
Premium Booth
Foundation Alliance Member (FA)
Foundation
$500
$4,000
$7,500
$6,000
*One member from your company or foundation will be required to be present a the booth at all times during exhibiting hours.
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2019 RARE PATIENT ADVOCACY SUMMITEXHIBITOR DETAILS (con’t)
• 10’ x 10’ booth space• 8’ high back wall drape and 3’ high rail• 7” x 44” identification sign• 6’ draped table and two chairs• Wastebasket• Company description listed in conference mobile app • Listing as an exhibitor in the printed Summit guide, website and onsite exhibit pavilion signage • A service kit will be available to order additional furnishings.• One complimentary conference pass. All additional exhibit conference passes will need to be purchased
at the conference registration rate at the time. All conference passes allow entrance to all tracks, meal functions and events.
EXHIBIT BOOTH WILL INCLUDE THE FOLLOWING:
Priority in space assignment will be made according to a point-based system. Previous exhibitors will receive one point for each year of exhibiting. After companies with points have made their selections by April 1, 2019, booths are sold on a first-come, first-served basis. Exhibit booth floorplan will be available to view in March.
Interested in exhibiting? Please contact the event planning team at [email protected].
I thought that the exhibit hall was perfect size, very organized, loved the hours and layout. Loved that food and drinks were provided in there which brought more people into interact with t he exhibitors. Great variety of exhibitors.
Really, really, really great exhibits and opportunities to meet the exhibitors. Very well done! A major highlight.
2019 RARE PATIENT ADVOCACY SUMMITADVOCACY SUPPORT
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SPONSORSHIP LEVELS
EACH SCHOLARSHIP WORTH $600 (DOMESTIC) OR $2,000 (INTERNATIONAL)
EDUCATE
$54,000
90 60 45 30 20 10
$36,000 $27,000 $18,000 $12,000 $6,000
INSPIRE ENGAGE CONNECT HOPE CARE
# of Patient Scholarships
SUPPORT OPPORTUNITYProvide rare disease patients and advocates the opportunity to attend the 2019 RARE Patient Advocacy Summit by helping them offset their travel and lodging costs. Through this sponsorship patients will learn, connect, and engage with key stakeholders in rare disease.
388 589 681 814
266 380 398 506
91 Totalling $44,044 148 Totalling $104,750 171 Totalling $102,600 154 Totalling $160,500
$484 $708 $600 $1,042
1,000
700
250 Totalling $200,000
$1,042
2015 2016 2017 2018 2019
0 200 400 600 800 1000
2018
2019
2017
2016
PROJECTED
Number of Attendees
TRAVEL SCHOLARSHIP SUPPORT BREAKDOWN *Projected
You wouldn't expect to meet so many people who radiate positivity, joy and generosity at a rare disease conference where so many families need
treatments and support. But go to the Global Genes Patient Advocacy Summit and you will meet many who exude all of these qualities who are buoyed by
hope, who wear many hats and strive to bridge the gap.
“ ”
Blair VanBruntDirector of Community DevelopmentTREND COMMUNITY
SEPTEMBER 18 - 20, 2019SHERATON SAN DIEGO MARINA HOTELSAN DIEGO, CALIFORNIA
