Oulun yliopisto

Data Driven

healthcare

‒ Nordic Model

Moderator: Maritta Perälä-Heape

Centre for Health and Technology,

University of Oulu,

Oulu, Finland

The status of big data solutions in the healthcare in Nordic countries

1. The activities already in place or are in planning phase

Nard Schreurs, CEO IKT Norway Claus Duedal Pedersen, CIO, Odense University Hospital , DenmarkJaana Sinipuro, Senior Lead, Sitra, Finland Patrik Georgii-Hemming, MSci, MD, PhD, CMIO, SLL,

Sweden

2. Work shop: What are our needs and expectations for big data in healthcare3. Results of the work shop to create the Nordic vision for the Data driven healthcare

Big Data awaits transformation into biomedical knowledge

From a static health system to a learning one that improves individual, community and population health

Big Health Data

Genomic knowledge will Transform the daily practices of medicine Change medicine and make it far more precise and

individualized

Consumer-driven medicine Direct-to-consumer tests From population cohorts to participatory medicine

Eric Topol (an American cardiologist, geneticist and digital medicine researcher; Scripps Translational Institute, San Diego):”Deep personal data from an individual is a comprehensive picture of health”

Future genomics medicine

Modernisation of data channels Data privacy (security and data portability)Data qualityCross sectorial data governanceCross broder data governance

Is there a Big Health Data strategy in place ?

Coordination of careVirtual human centric care modelCross sectorial patient pathwaysPatient information flow across choice of hospital/ region/country

Data as a fuel of future digital eServices

Data protection: Personal data legislation will be unified by the general data protection regulation of EU:Data portability :The right for an individual to have access to one’s respective data in a digital formInto power on the 28th of May, 2018

Personal Data as a source

My Data: Empowering All Americans with Personal Data Access

"Because we want every American ultimately to be able to securely access and analyze their own health data, so that they can make the best decisions for

themselves and for their families." - President Barack Obama

January 30, 2015

"People’s right to decide about and monitor their personal information will be enhanced, while ensuring the smooth

transfer of data between the authorities." - Strategic Programme of Prime Minister Juha Sipila’s Government

May 29, 2015

The status of big data solutions in the healthcare in Nordic countries

1. The activities already in place or are in planning phase

Nard Schreurs, CEO IKT Norway Claus Duedal Pedersen, CIO, Odense University Hospital , DenmarkJaana Sinipuro, Senior Lead, Sitra, Finland Patrik Georgii-Hemming, MSci, MD, PhD, CMIO, SLL,

Sweden

2. Work shop: What are our needs and expectations for big data in healthcare3. Results of the work shop to create the Nordic vision for the Data driven healthcare

What we are expecting from big data

To identify the patient at risk

To provide specific diagnostics tests and treatment recommendations,

To aggregate data of patient demographics, medication lists, lab data, allergies, etc

To find problems in routine processes

Future of genomic medicine

Population health management

New forms of clinical trials

Crownd sourcing for drug development

Opportunities

Rich data

• Longitudinal record

• Self- generated data

•Holistic view of thedata

Risk evaluation

•New care models: Proactive intervention

•New dignostic tools: Predictive analytics

Diseasemanagement

•Better quality of care

• Lower cost

•Treatment plans

•Decision support

•Precision medicine

Research

•Next generation of drug development & clinical trials

•Personalized medicine

Big data

Healthcare

lvm.fi

Assesing

measures to

attract R&D

funding

Horizon2020

Assessing

regulation

affecting

data value

chain

Promoting the

availability

and use of

personal data

Models for

MyData

development

Government

proposal for

Transport-

code

3rd phase

Big data action areas

Internationalization

of services

ehealth strategiesR&D cooperation

Data collaborationand sharing

Common practicesEU Data protection

regulation

MyDataHuman-centric

data management Personal data

operating models

Directives,National legislation,

Standards,Deregulation

Developing

peer network

activities

Practices for

data

management

lvm.fi

The aim is to increase the understanding on data-driven healthcare opportunities

Cross

broader

cooperation

and R&D of

data-based

healthcare

solutions

Strategic

principles on

big data usage

impact

assessment

MyData – a model for human-centered personaldata management and processing

Images from Poikola, Kuikkaniemi & Honko 2015: http://urn.fi/URN:ISBN:978-952-243-455-5

MyData Principles

● Human Centric: right to data, individual in control,

privacy

● Usability of Data: machine readable, open formats,

APIs, standards

● Transparent relationship management

● Open Business Environment: interoperability,

possibility to change services without “data locks”

MyData vs. Current Models