MyData in FinlandMaritta Perälä-Heape, Director,

Centre for Health and Technology (CHT),OuluHealth

Centre for Health and Technology (CHT)1. Manages multidisciplinary R&D&I cooperation on personalized health and health technologies in Ouluhealth ecosystem (Oulu, Finland)

2. Supports ecosystem members in progressing solution closer to market and deployment

3. Promotes the innovation capacity by developing agile innovation processes

4. Facilitates strategic cooperation through international innovation networks and partnerships

cht.oulu.fi

OIA partners and ecosystems:- City of Oulu –Attractive active city- University of Oulu-Industry 2026- VTT Technical Research Centre of Finland- ICT and digitalization- Oulu University of Applied Sciences-Agile commercialization- Oulu University Hospital (OYS)-OuluHealth- Technopolis-business park- LUKE (Natural Research Institute Finland)- The Oulu Region Joint Authority for Education (Osekk)

OuluHealth focus areas: - Personalized health and wellbeing- Effective health and social care services and products- World´s smartest university hospital

Oulu Innovation Alliance (OIA) is a strategic cooperation agreement

Building blocks of OuluHealth ecosystem

Innovation platforms:

‒ match-making events

‒ testing and piloting platforms

‒ digital co-creation platforms

‒ biobanks & cohorts

Innovation capacity building:

‒ national and international innovation networks

‒ agile innovation process

R&D&I management:

‒ new strategic spare heads

‒ thematic and multidisciplinary R&D&I

‒ Solutions closer to market

2009 2010 2011 2012 2013 2014 2015 2016 2017 2018

I N N O V A T I O N C A P A C I T Y B U I L D I N G

OIA agreement

Data driven healthcare

Person centricityMyData

Big Data &

cognitive systems

CHTOuluHealth

Future HospitalOuluHealth Labs

Co-creation

Service housing

READiIndico DHR DOB

MIDASYSIWILLE

Regional eHealth strategies in EU

INKA

Big Data strategy

in EU

Need for change in the management of personal data

Antti Poikola, Kai Kuikkaniemi

My Data Principles

Human Centric:

individual in control, transparency to personal data usage, privacy, trust

Usability of Data:

guarantee data portability, machine readable, open formats, APIs, standards

Open Business Environment:

interoperability, possibility to change services without “data locks”

Source: Human Centric Approach for organizing Personal Data; Ministry of Transport & Communication, Finland

MyData and research projects • PDMP

• HIIT, KTK, ETLA. Personal Data Management Platforms. Policy recommendations.

• sMall (EIT):• MyData and Mobility. HIIT ja FVH

• Trusted Cloud HII• Led by F-Secure EIT project

• Digital health Revolution• Large strategic research project in health care sector led by CHT

• Datasta bisnestä ja oivalluksia, • WP:Good long life led by CHT; 6aika

• MIDAS, Meaningful Integration of Data, Analytics and Services; • MyData policy in EU, (VTT, THL, CHT from Finland);H2020

HEALTHCARE TODAY

• Disease management

• Similar services for everybody

• Reactive

• Provider centric

Drivers for the future data driven health care solutions-Selling care vs. selling health

FUTURE HEALTH AND CARE

• Preventive

• Personalized

• Predictive

• Participatory

Governmental programme and answering to the digital challenge in the health field

"People’s right to decide about and monitor their personal information will be enhanced, while ensuring the smooth transfer of data between the authorities." - Finland´s Governmental Strategic Programme May 29, 2015

MyData principles have been considered in national strategies, namely ICT2015 (by Ministry of Employment and the Economy) and Secondary Use of Own Health Related Data (by Ministry of Social Affairs and Health)

Ministry of Socials Affairs and Health strategy: - Information to support well-being and service renewal. eHealth and eSocial Strategy 2020.

Ministry of Transport and Communications: - MyData principles- MyData Whitepaper: https://

www.lvm.fi/documents/20181/859937/MyData-nordic-model/2e9b4eb0-68d7-463b-9460-821493449a63?version=1.0

We willcontribute to the change in the control of data in favor of

the individual explore health-related data from genomics to digital

footprintdevelop successful personal data movement across

systems and servicesbuild pilots/service scenarios of new service concepts study the business logics and consumer involvement invite actors to join the Mydata ecosystem

Digital Health Revolution (DHR)Unique approach to develop future MyData based health services

Digital Health Revolution

Human-centric health care

New tools for development of personalized health and wellbeing solutions

MAKING VALUE OF PERSONAL ANALYTICS

CONNECTING DATA TO SERVICES

LIBERATING DATA

MYDATA

www.digitalhealthrevolution.fi

Digital Health Revolution - main research tracks

Riitta Sallinen, FIMMDHR pilotriitta.sallinen@helsinki.fi

Minna Pikkarainen, UO/VTTServices and Businessminna.pikkarainen@oulu.fi

Harri Honko,TUTTechnology and Regulationharri.honko@tut.fi

Maritta Perälä-Heape, CHT/OuluHealthManagement maritta.perala-heape@oulu.fi

Antti Poikola,HIITMyData Ecosystem Wideningantti.poikola@gmail.com

Olli Kallioniemi, FIMMDHR pilotolli.kallioniemi@helsinki.fi

HEALTH CHECK-UP 1.0

Next generation HEALTH CHECK-UP 2.0 and WELL-BEING PLAN

MEDICAL HISTORY LAB TESTSDOCTOR’S APPOINTMENT

• Blood samples• Possible other tests based on the

known medical history

Form• Health history based on

customer’s memory • Health self-assessment

Analysing & processing the risk factors

• Laboratory results• Physical health• Ergonomics

Wellbeing trainer

view

Health nurse view

Health care provider invites customer for a visit when risk levels rise Early intervention

Continuous feedback and guidance

HEALTH ACCOUNT

Building the showcases, infrastructure tools & demos for MyData transformation

MyD

ata

Prin

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Tool

s fo

r Dem

onst

ratio

n

MyD

ata

Tran

sfor

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Human centric control of dataPortable dataOpen business environmentCo-creation

Technological DemosKnow how in Regulation Business frameworkMyData clinicMyData Alliance

Use casesDHR pilotCustomer journeysModelling the business ecosystemModelling the service ecosystem

MYDATA CLINIC

STEP 1 – INTRODUCTION TO MYDATA

STEP 2 – END USER AND BUSINESS VALUE ANALYSIS

STEP 3 – TECHNICAL AND REGULATORY ANALYSIS

STEP 4 – TOWARDS MYDATA ECOSYSTEM

CONTENT

MYDATA BASED SERVICE REALISATION AND VERIFICATION

• MyData principles• Ideas, needs and

capabilities of the company / organisation

• Deepening customer understanding

• Defining MyData based service scenarios

• Value creation networks and business models

• Technical specification• Defining data

management from regulative point of view

• Iterative development of the final concept, testing and co-creating with the users of the service

OUTCOMES

• Understanding of the possibilities of a MyData based solution

• Understanding of the main customers and stakeholders

• Customer journey• Value network analysis• Business model canvas

• MyData compliant technical architecture draft

• Identified barriers

Finalised:• Service concept• Technical architecture• Prototype• Business model

Digital Health Revolution – pilot study:Next Generation Health Check-Up and Systems Monitoring for Personalized Wellness

Prof. Olli KallioniemiRiitta Sallinen, Anu Kiuru, Timo Miettinen et al.

• How to collect digital health and wellness data?

• How to analyze such data?• How to return key actionable data to

people in order to coach individuals towards better health?

Healthquestionnaire

Health check-up

Clinicallab tests(blood, urine)

Feces samples→ 16S rDNA

Quantified selfmeasurements: Withings, Moves,RescueTime

Digitalfootprints:S Group, K-Plus

Saliva samples→ cortisol

100 participants (age 25-59)

GenomicsProteomicsMetabolomicsTranscriptomics

Prof. Olli KallioniemiRiitta Sallinen, Heidi Virtanen

Prof. Leroy Hood (the Institute of Systems biology, Seattle):

”Medicine gets up close and personal if personal health data is fed back to participants via life coaches”

MyData approach changes the service design and role of care givers

Lisää tarvittaessa alatunnisteteksti

Personal health accounts and on line health profiling tools:• To support, motivate and encourage a more healthy lifestyle or more

healthy choices

• To assist in learning from past situations

• Easy access

Actionable data in the citizen’s everyday situations

Illustrate MyData use cases through concepts, designs and demos

20

Augmented reality view to MyData

Dual-sided tablet for doctor patient interaction

MyData future dentist

Prof. Jonna Häkkilä/

MyData operator

Data sources:Health check-ups (taken

samples);Self taken samples;

Activity and sleep measurements;

Digital footprint data;Work time (computer time);

Fitness tests

Data source:eQuestionnaires

Data sink:Personal Health account (Terveystili UI)Data sink:Biobank

Harri Honko/

Case: Data management via MyData operator

Current ’consent scene’ in Hämeenlinna

Taltioni

Duodecim EBMeDS

(Processor)Kanta

Consent flow

Data flow

Source

Data usingService

End-user account

Minunterveyteni.fi Alusta

W2E

Elisaetämittaus

Taltioni Uoma App

Duodecim STAR

eOmahoito

Omakanta

Effica

Polar, etc.

iOS Health App

ConsentManager

MyData-consent management model in Finland

National- EHR- Kanta

Minunterveyteni.fi

LocalPTJ

Omakanta + PHR

Self managemnt

services

ElisaHome

monitoring

Biobanks, Genome center, data sinks, and analytics

Third sector, private sector

Polar, etc.

MyData Operator

MyHealth on-line services...

Consent flow

Data flow

Source

Data usingService

End-user account

ConsentManager

Public sector

SERVICE HOUSING

COLLECTIONDATA

INTEGRATION ANALYTICS

DATAPREPARATION VISUALISATION Midas

Secure Interoperable Data Architecture

Platform

Member State Policy Makers & Citizens

Member State Policy Makers & Citizens

cht.oulu.fi

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