Dialect Winter 2014

Dialect Newsmagazine of the Saskatchewan Association for Community Living

Val’s Dream Jobpage 7

Outlook’s Buddy Programpage 14

Meet Jordan: Outstanding

Employee and Musician

page 8

Self-Directed Funding for Brodiepage 13

Individuality!

Tracy’sExperience

with Self-Directed

Fundingpage 11

Winter 2014

Dialect

Dialect is owned and published by the Saskatchewan Association for Community Living (SACL). The publisher, authors and contributors reserve their rights in regards to copyright of their work. All articles, stories, interviews and other materials in Dialect are the copyright of Dialect, or are reproduced with permission from other copyright owners. All rights are reserved. No articles, stories, interviews and other materials may otherwise be copied, modified, published, broadcast or otherwise distributed without the prior written permission of the SACL. No person, organization or party should rely or on any way act upon any part of the contents of this publication whether that information is sourced from a website, magazine or related product without first obtaining the advice of a fully qualified person. The publisher, editors, contributors and related parties shall have no responsibility for any action or omission by any other contributor, consultant, editor or related party. The information published in the magazine is believed to be true and accurate but the SACL cannot accept any legal responsibility for any errors or omissions that may occur or make any warranty for the published materials.

WinnerBronze Media AwardCanadian Association for Community LivingMemorial Award,The Media Club of Canada

Certificates of Excellence for Outstanding MediaU.S. Down Syndrome Congress

Dialect is published three times a year by the Saskatchewan Association for Community Living (SACL). The Dialect is funded in part by the Saskatchewan Parks and Recreation Association.

Comments, questions and story ideas are encouraged and welcomed. The views expressed in the articles do not necessarily reflect the official policies of the SACL. Dialect is sent to members of the SACL and other stakeholders.

Cover Photo: Sheila Anderson PhotographyEditing and Layout: Bonnie Cherewyk Printing and Distribution: PrintWest/Mister Print

SACL Provincial Office:3031 Louise StreetSaskatoon, SK S7J 3L1Telephone: 306-955-3344E-mail: [email protected]: www.sacl.org

The Saskatchewan Association for Community Living (SACL) is a non-profit organization that offers support to individuals with intellectual disabilities and their families. Funding for Dialect is provided in part by a grant from the Saskatchewan Parks and Recreation Association. SACL Vision

All individuals are valued, supported and included in all aspects of life.

SACL Mission

Is to ensure that citizens of Saskatchewan who have intellectual disabilities are valued, supported and included members of society and have opportunities and choices in all aspects of life.

SACL Board of Directors

June Avivi Cindy Bartok Juanita BuyakiBluesette CampbellDianne Christianson Doug Conn Jamie EllisNytosha Kober/Sharon Bourdeau Matt Leisle Gloria Mahussier Mike Mahussier Stuart Mason/Greg Plosz Dorothea PehlSusan Quiring Janice RutherfordKim SandagerTed & Loretta SchugmannTami SmithHeather TetzlaffWilda WallaceMargaret Woods

“Individuality means not having to hide who I am because of a fear of not being accepted. It means being happy with who I am and being able to express myself

however I want to.”

- Jennifer Kimball

SACL’s Fashion Show with Flair! page 16

3DIALECT | WINTER 2014

Meet Jordan: Outstanding Employee & Musician- page 8

Val’s Dream Job - page 7 Outlook’s Buddy Program - page 14

Tracy’s Experience with Self-Directed Funding - page 11

Self-Directed Funding for Brodie - page 13

Winter 2014

ALSO INSIDE

4 Message from the SACL President 5 Message from the SACL Executive Director 6 Kids on the Block10 An Update on Self-Directed Funding18 New Mental Health Court Docket in Saskatoon 19 Valley View Centre Transition Update20 FASD Legal Issues Consensus Conference 21 SACL receives sponsorship for Road Map22 Celebrate Inclusion in Your School23 SACL Partners

Message from the SACL President BY GLORIA MAHUSSIERSACL PRESIDENT

“To be yourself in a world that is constantly trying to make you something else is the greatest accomplishment.” Ralph Waldo Emerson

The theme of this issue of Dialect is individuality. When I think about the word’s meaning, my first thought is that without individuality there is no diversity – everyone would be the same. We know that for some, individuals that live with an intellectual disability, individuality is not a reality.

It is difficult for our children to show their individuality as they go through the “systems.” Evaluations, analyses, all put our children in groups rather than looking at their individuality. Unfair as this is, it is our children’s world in order to receive services.

The SACL appreciates the work of agencies that support people with disabilities in our province. We know that if it were not for them, many individuals with an intellectual disability and their families would be faced with very few options and supports. But

there should be more options to choose from.

Things are beginning to change in our Province. With our Government of Saskatchewan’s commitment to make our province the best place in Canada for people with disabilities to live, along with the acceptance of the Valley View Centre Transition Steering Committee’s 14 recommendations, one which includes self-directed funding, I believe that our adult children will have the potential to show their individuality. Self-directed funding is a way to provide financial support directly to individuals with intellectual disabilities. It all starts with developing a person-centred plan with the person’s individuality reflected in their needs and goals. Funds are sent to the individual directly to purchase supports and services. The person, should they wish, can take an active part in the management of the supports and resources, or funds can be delegated to a team that supports the person. It is all about gaining an understanding of the individual’s goals and dreams, and providing the resources, supports and options necessary to make those dreams a reality.

There is no better version of my son Travis than Travis. With self-directed funding, Travis will have the opportunity to make choices so his dreams expressing his individuality can become a reality.

“The things that make me different are the things that make me.” A.A. Milne Individuality.

4 DIALECT | WINTER 2014

THERE IS NO BETTER VERSION OF MY SON TRAVIS THAN

TRAVIS.

INDIVIDUALITY!

“Individuality means tapping into who I really am and not who I project myself to be.

And then expressing that to the world.”

- Megan Wells

“Individuality means being able to focus on goals that mean something to me and those who I am close to in my community. It means being free to offer help and be

helped, to care and be cared for, it means being able to walk, work, participate and just ‘be’ without anyone treating me as different because of who I am. It means it’s ok to walk alone sometimes because

you end up in places you have never been. It means it’s ok to love others, regardless of how they react to me and to quote Jess Scott, ‘When someone loves you, the way they say your name is different. You know

that your name is safe in their mouth.”

- Deb Kwasnica

Photo courtesy of Marcia Vogt.

BY KEVIN MCTAVISHSACL EXECUTIVE DIRECTOR

The SACL continues to embark on new initiatives to better support individuals with intellectual disabilities and their families in Saskatchewan.

We are working to ensure more individuals with intellectual disabilities have the opportunity to receive meaningful, paid employment. In November, the SACL hosted an early celebration of the International Day of Persons with Disabilities with the MLAs at the Saskatchewan Legislature. The theme was “Break barriers, open doors to employment opportunities.” The Kids on the Block puppets emceed the event and welcomed an employer, two teachers and entrepreneur Emmy Barr to speak to the MLAs. We thank the 41 MLAs who attended this important event.

In early December the SACL met with several Saskatchewan Members of Parliament to discuss the Ready, Willing and Able (RWA) initiative being proposed through the Canadian Association for Community Living (CACL). The RWA initiative is a national proposal recognizing that there are approximately 500,000 working-age adults with intellectual disabilities who with the right support, community investment and employer leadership could be employed at a rate similar to other Canadians. If funding is approved this initiative will lead to more individuals with intellectual disabilities working in Saskatchewan.

In this issue of Dialect you will meet Jordan and Val who were both given the opportunity to be successful in meaningful, paid employment and to work alongside you and me.

Northern Saskatchewan has been identified as one of the SACL’s top 10 priorities. It is estimated that approximately 0.5 - 1% of the population has an intellectual disability. In Saskatchewan this suggests 5,000 – 10,000 individuals have an intellectual disability. Given the higher prevalence of disabilities such as FASD in high-risk communities, the rates may be as high as one in five or 7,400 people in northern Saskatchewan

Although the SACL supports individuals and families throughout the province, there is a void for support and access to information for individuals with intellectual disabilities and their families in northern communities. To address this need the SACL is moving forward

Message from the SACL Executive Director


AS YOU READ THROUGH THIS ISSUE CELEBRATE

THE MEANING OF INDIVIDUALITY WITH US AND APPRECIATE DIFFERENCES IN OUR

COMMUNITY.

“Individuality is something that is very important in my life and work, it is the personality or character of an individual

that differentiates them from others. I think it is important to celebrate

differences - like we say to the kids at our Kids on the Block performances: “What would life be like if everyone

were exactly the same? – BORING!!”

- Andrea Young

in securing resources to employ a Community Engagement Director (CED). The CED would work to build community capacity, educate and provide awareness, and work with both the federal and provincial governments to develop new services and supports designed to meet the unique needs of individuals with intellectual disabilities in northern Saskatchewan.

Cameco Corporation has agreed to enter into a partnership with the SACL to support this initiative. To raise additional revenue the SACL will be hosting a Northern Partnerships for Inclusion Luncheon. If this is an initiative you would like to learn more about, or support, please contact me.

The SACL is also moving forward with the government to develop a Self-Directed Funding (SDF) model option

for Saskatchewan families. In this issue you will learn what SDF is and meet two families: one who has accessed a SDF model and one who believes SDF will give their family member individualized support and the best quality of life.

On December 11, the SACL hosted a new event at the Broadway Theatre intended to celebrate individuality and recognize that all individuals have gifts and talents they can contribute to the community. I am proud to say that the 1st Fashion Show with Flair was a huge success and one of the funnest events I have ever attended. I am not alone when I say December 11 was a special and unique event that brought community inclusion to the forefront for everyone there.

As you read through this issue celebrate the meaning of individuality with us and appreciate differences in our community.

SACL Assistant Youth Coordinator Jennifer Kimball (left) and SACL Youth Coordinator Andrea Young (right). Photo courtesy of Sheila Anderson Photography.


Kids on the BlockBY JENNIFER KIMBALLSACL ASSISTANT YOUTH COORDINATOR

“It’s O.K. to be different.”

This is the message that the Kids on the Block spreads to children throughout Saskatchewan. Kids on the Block is an educational puppet show that performs at schools, daycares, parks and events. The show aims to teach children about different topics; including disabilities, multiculturalism, bullying and respect. All of these topics have one main overlying message: inclusion. The Kids are spreading the message that it is okay to be different and still be included in all aspects of life.

Myself, the Assistant Youth Coordinator at the Saskatchewan Association for Community Living, and Andrea Young, the Youth Coordinator, are the puppeteers behind the show. We’ve travelled across the province, from Good Spirit Lake over to the Saskatchewan Landing and up to Birch Hills. The Kids on the Block aims to reach every corner of this province with their message of inclusion. In December, the Kids visited the Children’s Discovery

Museum and the Crisis Shelter at the YWCA in Saskatoon for a couple of free shows to talk about bullying and respect for others.

The Kids have a variety of scripts that they perform in front of audiences. One popular skit called “The ABC’s of Autism” features two brothers named David and Eddy Franklin. When the Franklin brothers move into their new house, they meet their curious neighbour Anna Perry. Anna becomes confused by some of David’s behaviours and asks his brother Eddy about them. Eddy explains to Anna that David has autism, which is why he acted differently than what Anna was used to. However, Eddy also explains that while David may be different from Anna, there are also many things that they have in common. Anna learns that by taking the time to get to know someone that you can find a new friend in anyone.

The scripts are full of humour and information that makes learning fun. The Kids make mistakes and learn from them. They ask their friends questions and gain an understanding about what it’s like to have a disability, dispelling myths in the process. By watching the Kids on the

Block, children can learn from someone that they can relate to. It is easier for a child to ask questions to a puppet that is their age. After watching the shows, children often bring questions to their teachers or families. This sparks more discussion and a greater understanding of disabilities and what it means to be fully included. When children learn at a young age what inclusion is, then they can take that idea with them as they continue on into their teenage and then adult lives.

The Kids received a rewarding experience recently during one of their shows. They were able to make a little girl smile when she learned that she was not alone in having a disability. The Kids were glad they could help her understand and are inspired to keep on making a difference!

For more information about the Kids on the Block or to book a show, contact Andrea or Jennifer at 306-955-3344. Or check the Kids out on Facebook at facebook.com/SACLkidsontheblock.

Val’s Dream JobBY BONNIE CHEREWYKSACL COMMUNICATIONS AND RESEARCH ADVOCATE

Val Hounjet loves shopping and spending time with her family, especially her niece and nephews. Growing up, Val always enjoyed caring for children and knew her dream job would be a career working with children. “I knew before I was 10 that this is what I wanted to do and I was really good at it,” says Val.

To work with children, Val learned she would have to receive her Early Childhood Education (ECE) Level 1. To receive this certificate Val applied through the Saskatoon Trades and Skill Centre’s (STSC) Quick Start Program, but was initially not accepted.

After receiving the letter of denial, Val and her mom Helene Hounjet contacted Sheila Anderson, Employment, Education and Transition Facilitator at the Saskatchewan Association for Community Living (SACL).

Sheila and Val scheduled a meeting with the STSC to see what options were available. “In that meeting we discussed how to prove Val was going to be successful in completing her ECE,” says Sheila.

To show Val could be successful, Sheila wrote a letter to the STSC stating that the SACL would support Val to receive educational accommodations such as tutoring. Sheila also connected Val with the Partners for Workplace Inclusion Program (PWIP). PWIP arranged for Val to receive a work experience placement in a Day Care. Val was so successful at her work experience that the employer chose to write a letter of recommendation to the STSC.

In addition to the letters of support and work experience Sheila helped to prepare Val for her interview with the STSC. In her interview preparation Val said she should be selected because, “I am determined to succeed in the course and in my work. I am passionate about

helping all children and I have experience working with infants, with older children and children with special needs and have enjoyed all of it.”

The day after Val’s interview, the STSC phoned to tell her she was on the short list!

“Val phoned me right after she received the call and she was so excited!” says Sheila. “Both Val and Helene were jumping up and down with excitement.”

Through funding received from the Ministry of the Economy, the SACL provided funding for Val to receive 3 hours of tutoring per day. In addition to the tutoring support, Val received an exam reader and was allocated more time to write her exams. Val was successful. “I didn’t always need the extra time to write my exams,” says Val.

“Val’s educational accommodations worked very well,” says Sheila. “Val was committed to complete her ECE and worked hard throughout it.”

On May 9, 2013 Val graduated with her ECE Level 1.

After graduation Val began her job search with the support of PWIP. “We left my


I AM DETERMINED TO SUCCEED IN THE COURSE AND IN MY WORK. I AM

PASSIONATE ABOUT HELPING ALL CHILDREN AND I HAVE

EXPERIENCE WORKING WITH INFANTS, WITH OLDER

CHILDREN AND CHILDREN WITH SPECIAL NEEDS AND HAVE ENJOYED ALL OF IT.

Val Hounjet presenting her Early Childhood Education certificate. Photo courtesy of Sheila Anderson Photography.

BY BONNIE CHEREWYKSACL COMMUNICATIONS AND RESEARCH ADVOCATE

Jordan Vassell has been working for Motion Fitness in Stonebridge for 3 years. He tells me that he works three mornings per week and the favourite part of his job is all the cleaning he does.

Jordan started working at Motion Fitness through a work experience program at his high school, Holy Cross. Mohammed Akbar, previous Manager of Motion Fitness Stonebridge saw firsthand the contribution Jordan was making to the cleanliness of the gym and decided he wanted to pay him.

“Jordan is extremely hard working and

is very focused when he is working,” says Saqib Khan, current Manager of Motion Fitness Stonebridge. “Jordan is our role model when it comes to how hard working and focused he is.”

I experienced firsthand how focused Jordan is when I went to Motion Fitness to interview Saqib. My co-worker and I wanted to take a picture of Jordan for this


Meet Jordan: Outstanding Employee and Musician

resume everywhere,” says Val.

In August 2013, Val found causal employment with the day care, felix le chat at the Ecole Canadienne francaise.

Val’s job search was so successful she was awarded the Best Job Seeker Award at the PWIP Luncheon this year.

An employment opportunity opened up recently in Vonda, a small town in Saskatchewan where Val went to school. Val decided to apply and was successful!

Her first day was January 6 and it is a

permanent part-time position.

Val is excited to be working in Vonda at La petit jungle at Ecole Providence because she knows the community and has friends in the community. “This will give me a chance to live by myself too,” says Val.

Val’s future goals are to work full-time and live in Vonda independently.

“Sheila has been a great support. Val couldn’t have done it without all the help she received,” says Helene. “It was tremendous.”

To Sheila Val says, “I probably wouldn’t have got in without you.”

Sheila replies, “But Val, you did all the work.”

“The reason we want to share these types of stories is to educate people that individuals that have some learning barriers should have dreams and can in fact accomplish them” says Sheila.

Jordan Vassell at Motion Fitness. Photo courtesy of Sheila Anderson Photography.

article, but he was working so hard, we felt guilty asking him to stop and pose for the photo.

Work experience in high school is instrumental for all students. “The goals of work experience are that it reflects real work and leads to paid employment,” explains Sheila Anderson, Employment, Education and Transition Facilitator. “In this case Jordan’s work experience did meet those goals and has led to meaningful, paid employment for Jordan.”

The Saskatchewan Assoc ia t ion fo r Community Living (SACL) administered funding through the Student Employment Experience Program (SEE) for Jordan to receive a job coach at Motion Fitness. “My role as an Employment, Education and Transition Facilitator is to work with the school team, parents and the student in finding out what sort of accommodations a student needs to be successful in employment,” explains Sheila. “That could be a job coach, training allowance or technical equipment. I met Jordan’s team at the school and found out the only accommodation Jordan needed was a job coach.”

“We had an excellent job coach that went in, worked with him, did some observations, and helped with some of the natural supports within staff,” says Sheila. “The job coach eventually worked her way out of a job, which is the end goal of job coaching.”

“We then proceeded to have a weaning out process where we explained what that would look like to Jordan, his mom and Saqib,” says Sheila.

Saqib admits that he was nervous to begin the process of having the job coach support Jordan less and less. “I was still not 100% sure, but I said let’s try it,” explains Saqib. “The job coach gave me their phone number to call in case anything went wrong.”

From this process Saqib was able to see that Jordan was able to work successfully on his own with no supervision. “The difference in Jordan from when I joined the company 2 years ago and today is huge,” says Saqib. “Two years ago Jordan wasn’t able to work independently. Now Jordan takes the bus to work, does his job, knows when to take his break, and how to submit his hours – all of this Jordan does independently.”

Saqib even tells us of an instance when Jordan helped a coworker navigate which Saskatoon City bus to take.

“To be honest you don’t see students like Jordan work as much as we do,” says Saqib. “Once you do you will be shocked to see how good they are.”

“Jordan is very popular around here with our members,” says Saqib.

“There is a lower turnover rate for students that I support,” explains Sheila. “Individuals with disabilities are committed to their job for the long-term.”

“Jordan’s employment is an example of when a student is given the opportunity and support they can be successful in the workforce” says Sheila. “There are some employers and members of the public who may think that individuals who have disabilities are not capable of employment or if they need an accommodation, they will always need that accommodation. That isn’t the case though. The purpose of the accommodation is to level the playing field and enable individuals to work.”

“It’s invaluable to have employers such as Motion Fitness who recognize the abilities that individuals with intellectual disabilities have” says Sheila.

Lynette Zacharias, a big sister to Jordan has seen him grow since he began working at Motion Fitness. “Motion Fitness has been a great opportunity for him,” says Lynette. “He has grown in his social skills. Before when I would drop him off at home he would jump out of the vehicle and run away. Now he says, ‘Thanks ladies I had a great night you guys have a fun evening.’ His communications has increased and he is willing to speak to

people he is not normally around. He has become more independent, more confident with himself and is definitely excited to have money. He is proud. When we went out to a Blades game Jordan said, ‘Lynette I’m paying for this one!’ Jordan is very happy and satisfied with what he is doing. You never hear him complain.”

Not only is Jordan a committed employee he is also involved in numerous activities such as rowing, track, curling, basketball, swimming, soccer, golf, bowling and bouncy ball.

Jordan is passionate about music and he says, “I play guitar, violin, drums and piano.” Jordan was one of the musical performers at the SACL’s Fashion Show with Flair on December 11, so I was able to see firsthand his ability to sing and play guitar.


HE HAS BECOME MORE INDEPENDENT, MORE

CONFIDENT WITH HIMSELF AND IS DEFINITELY EXCITED

TO HAVE MONEY. HE IS PROUD.

Jordan Vassell performing at the SACL Fashion Show with Flair. Photo courtesy of Sheila Anderson Photography.

BY JUDY HANNAH SACL GRASSROOTS PROJECT COORDINATOR

The SACL has been working for over 7 years to have Self-Directed Funding (SDF) added as an option to the existing menu of services for people with intellectual disabilities. Many families and individuals want to have more choice and control over how they live, and over the supports they need whether for their daytime activities, their home or both. Self-Directed Funding allows both choice and control.

In August 2013, the Minster of Social Services, the Honourable June Draude, accepted 14 recommendations to guide the transition of individuals from the Valley View Centre (VVC) to community based services and supports. Included in these recommendations is direction to Ministry officials to proceed with developing a new standardized Self-Directed Funding (SDF) model for Community Living Service Delivery (CLSD) clients. The SACL and members of the Self-Directed Funding Advisory Table have been working with government to design Saskatchewan’s SDF option.

What is Self-Directed Funding (SDF)?

Self-Directed Funding is:

A funding mechanism that allocates public funding directly to people with disabilities so that they can have choice and control over the variety of supports and services they require to live an inclusive life in their communities.

With Self-Directed Funding, the individual is at the center of their plan. Funding is based on the individual’s needs and the plan they create for their life. The individual and their supporters manage all aspects of their plan including hiring staff.

From the individual’s point of view, SDF means:

• I plan what I want my day to look like

• I decide where and with who I want to live

• I am supported to do all this in a way that makes sense to me

• I select my own staff

• Tell people how I use my money

• Everyone assumes I can make these decisions

• I know how much money I have and the rules that say how I can use my money

• I can make mistakes when I make decisions

(Adapted from In Control Australia)

SDF is grounded in the following Core Principles:

• Self-determination

• Enables individuals to have choice and control of supports and services to meet their needs

• Used in ways that support an individual to achieve his or her own defined quality of life outcomes

• Equitable with respect to resource allocation based on individual needs and plans

• Equivalent to the reasonable cost of providing a conventional service for individuals with similar needs and circumstances

• Aligned with other funding sources and supports and services currently available in Saskatchewan as part of the disability service system

• Accountable for outcomes and resources to both the individual and government

If I wanted SDF, would there be ways I could get support to make my plan a reality and to help me manage my funding?

No one makes decisions on their own. People talk to others about all kinds of decisions they have to make. With SDF, “Support for planning, decision making and the administration of the funding may come from family, friends, support networks, or from formal mechanisms such as a community based organization (CBO) or a micro-board©.” “A micro-board© is a Community Based Organization (CBO) established with the

An Update on Self-Directed Funding


4.3 Develop a strategy to implement Self-Directed Funding (SDF)

Self-directed funding options are proven to work for individuals across a diverse range of needs and are particularly successful in supporting individuals with complex support needs. Many of the individuals at VVC may require supports that are not able to be provided in typical fashions through current funding models. Self-directed funding is able to provide a great deal of personalization of supports in ways that other modes are not able to produce.

Jordan’s mom, Joana tells me how Jordan can sing and play these musical instruments just by listening to someone else. “I never knew he could play violin or piano until I saw him do it,” says Joana. Jordan is currently enrolled in music lessons for voice, guitar, drums and piano.

In addition to working and being involved in extracurricular activities Jordan is enrolled this year in Way to Work – a pre-employment program to help individuals with intellectual disabilities develop their resume and interview skills, and access work experience opportunities. Way to Work is currently supporting Jordan in volunteer work and developing social skills.

purpose of providing support to a specific individual.

Supports may include: assisting the individual to recruit, screen and hire their staff, assistance with financial management and reporting procedure, and assistance with financial accountability requirements. Individuals can also pay a business to help them with payroll for their staff.

In other provinces a Circle of Support is created to provide support. The Circle of Support is an informal group that comes together to support the individual to achieve their goals. The circle can include family, friends and other people such as former teachers or neighbours that the individual chooses to have help them make their plan become a reality.

What if I wanted to use some of the existing services?

This would be possible. Existing services would still be available to you. SDF does not replace existing services – we are only

asking that it be added to the current menu of services for you to choose from.

The SACL will continue to work with the Ministry of Social Services on the development of an SDF option for Saskatchewan. We will provide updates as we move forward.

Tracy Loblaw (left) with mom Gail Loblaw (right) at her apartment in Winnipeg.


Tracy’s Experience with Self-Directed FundingBY BONNIE CHEREWYKSACL COMMUNICATIONS AND RESEARCH ADVOCATE

Tracy Loblaw was one of the first individuals in Manitoba to choose to access a self-directed funding (SDF) model for her supports.

Tracy, her mom Gail Loblaw and dad Jim Loblaw chose to try self-directed funding for Tracy because they believed this option would give Tracy more choice and control over the supports and services she chose to access. They were not disappointed.

Their first step in accessing SDF was to bring a circle of support together that

would guide Tracy’s plan and help Tracy access supports and services. Tracy’s circle of support included 6-8 people who knew Tracy, cared about Tracy, and wanted to be a part of Tracy’s support network. “One member of Tracy’s circle of support was a financial planner who volunteered to take on the responsibility of setting up a budget and helping us manage the funding we received to pay

for services and supports Tracy chose to access,” recalls Gail.

“We were very fortunate, Tracy’s circle of support were so good to her,” says Gail. “You just knew they wanted the best for her in life.”

There was also a resource person hired through a SDF support organization in Manitoba who provided support to Tracy’s plan and to Tracy’s circle of support. “She often directed and guided us, and was our ‘go to person’ if we needed advice or ideas,” says Gail. “This person was necessary, I don’t think you could use the SDF model successfully without this person,” says Jim.

Once Tracy’s circle of support was formed, the group proceeded to complete a PATH for Tracy; an activity that allowed Tracy to identify her own dreams and future goals. “Tracy told the individual facilitating the PATH what she wanted out of life,” says Gail. “Each member of Tracy’s circle of support committed to a different role and each took responsibility for something Tracy identified she wanted to accomplish in her PATH.”

“In Winnipeg she accomplished most of the things she wanted to do,” says Gail. “Some of Tracy’s dreams she accomplished included going to see Celine Dion in Las Vegas and going to Orlando, Florida to visit with her brother and family.”

Another goal identified by Tracy was to have her own apartment. Tracy’s circle of support guided her into being able to move into her own apartment with the necessary supports. At that time she was able to receive funding for 24-hour care, 5 days per week. Tracy then spent weekends visiting her parents.

“She was so excited to have her own place,” recalls Gail. “It made her more independent and proud. The pride on her face just glowed knowing she had a place of her own.”

Tracy also received funding for an agency to support her in daily activities of her choice. “Everything was individualized and based on Tracy’s wants and needs,” explains Gail. “Tracy loves birds, flowers, plants and walking in the park; the individualized nature of her daily support allowed Tracy the flexibility to do those activities she enjoyed.”

“Our role as parents was just to be members of Tracy’s circle,” says Gail. “We never felt like we had to lead or run the circle. We would all meet in Tracy’s living room once per month and talk about Tracy’s plan.”

SDF gave Tracy and her parents the ability to hire a staff person of their choice who would provide the 24-hour care in Tracy’s apartment. “I must admit we did try a few persons who didn’t work out, but after 3 or 4 we did hire a wonderful person who until this day still keeps in touch with Tracy,” says Gail.

One thing both Gail and Jim recommend to other families interested in pursuing a SDF model is to have a professional or resource person attend staff interviews, and help with the hiring process. “We thought we knew people well enough and knew who Tracy would like, but there was an instance where we were wrong in our choice to hire an individual,” explains Gail. “You have to be careful in who you hire to care for your loved one, and having a professional present will only aid in your decision and help you through the process of hiring someone.”

Tracy was empowered through SDF and spoke up for herself when she knew she did not want someone working for her. “Tracy fired two staff persons herself,” recalls Gail. “I am so glad she spoke up because we didn’t know.”

When Gail and Jim decided to move to Humboldt, Saskatchewan, Tracy chose to move with her parents. Gail and Jim both agree that Tracy’s circle of support and SDF model in Winnipeg could have continued without them there, but it was Tracy’s decision.

“It is important for families to know that with a strong support network and circle of support, SDF can continue to work without the parents or primary caregiver there or directly involved,” explains Judy Hannah, SACL Project Coordinator.

In Tracy’s circle of support there was enough accountability within the group to ensure Tracy’s PATH was being followed.

“SDF and Tracy’s circle of support gave Tracy freedom,” says Gail.

“It was her plan based on her wants, her life and her needs,” says Jim. “It wasn’t what we as parents wanted; it was always about what Tracy wanted.”

Tracy was not able to access SDF once she moved to Saskatchewan. “SDF offered Tracy the 1 to 1 support and individualized attention that she wasn’t able to receive through traditional supports. Once we moved to Humboldt she often asked us ‘when am I getting my own apartment again?’ That was very important to her,” explains Gail.

Tracy, Gail and Jim all had a positive experience using the SDF model and are excited that other families in Saskatchewan will also have the opportunity to try SDF.


SHE WAS SO EXCITED TO HAVE HER OWN PLACE. IT MADE HER MORE INDEPENDENT

AND PROUD. THE PRIDE ON HER FACE JUST GLOWED

KNOWING SHE HAD A PLACE OF HER OWN.

“Individuality means to me when an individual has their own beliefs, likes, tastes, preferences, etc. and it is theirs alone and that they don’t switch choices just because someone else says they should like something different.

Individuality is what defines each of us as our own unique person and what separates us individually from everyone else.”

- Kevin McTavish


Self - Directed Funding for BrodieBY BONNIE CHEREWYKSACL COMMUNICATIONS AND RESEARCH ADVOCATE

For Tracy Patterson and her family Self-Directed Funding (SDF) means individualized.

Tracy is a member of the Self-Directed Funding Advisory Table – a committee led by the Saskatchewan Association for Community Living (SACL) that is working with government to introduce a SDF model in Saskatchewan.

Tracy wants to create supports and services that are unique to her 19 year-old son Brodie. “Brodie loves go-karting, golfing and quading,” says Tracy. “These are activities that may not work for everyone, or agencies may not be able to do them because of liability issues. SDF would give Brodie the flexibility and individualized support to continue doing the activities he enjoys.”

Tracy would also like to see Brodie working on daily living skills such as learning to cook. Since Brodie is supported through his school for some of his daily activities he is not able to learn these skills in a home environment. SDF would allow Brodie to learn in the environment of his choice versus an environment permitted through school policy.

Tracy also believes SDF would be a good fit for Brodie because traditional services and supports are not available in Marshall, a small town outside of Lloydminster where Tracy and her family live. “Brodie can go wherever he wants independently in Marshall. In Lloydminster he wouldn’t have that independence,” explains Tracy. “SDF would allow us to hire people to work with us in Marshall and allow Brodie to keep doing the activities he enjoys in Marshall. Yes, he would

still have to travel to Lloydminster to work, buy groceries and access some recreational facilities, but that is the same quality of life as any other resident in Marshall.”

Brodie works 9:00 a.m. – 12:00 p.m. Monday through Friday at Water World, then from 12:00 p.m. – 3:00 p.m. Brodie is supported through his school in Lloydminster. Tracy currently

drives Brodie to Lloydminster for 9:00 a.m. then picks him up at 3:00 p.m. each day. “SDF would support us to hire someone to help out with the driving and free up my time during the day,” explains Tracy.

Tracy and her family are originally from Alberta and know families in Alberta who are currently accessing SDF. “Our friends in Alberta are able to customize their services and supports,” says Tracy. “Some choose to use SDF for daily activity support and some choose to receive that support through an agency. It all depends on the individual and what works best for that individual.”

“I would love to talk to people who want to learn more about SDF,” says Tracy. “SDF is a fabulous thing and more people should get to know and understand what it is. It’s not going to be for everyone, but everyone should know that option is available.”

If you are interested in talking to Tracy, call the SACL Office at 306-955-3344.

“Individuality means different from the crowd, doing things independently, or having original ideas.”

- Peter Kahenya

Brodie Patterson in the Driver’s Seat. Photo courtesy of Bixby Photography.

Brodie and his grad escort Haylee Dayton. Photo courtesy of Bixby Photography.


Outlook’s Buddy ProgramBY BONNIE CHEREWYKSACL COMMUNICATIONS AND RESEARCH ADVOCATE

The Outlook Branch of the Saskatchewan Association for Community Living (SACL) leads and organizes a Buddy Program for participants in Variety Place. The purpose of the Buddy Program is to enrich the lives of adults in the Outlook community who have intellectual disabilities by providing them with a friend who is their own special pal. Their buddies help include them in the life of the community and also help foster positive attitudes in other persons in the Outlook community.

When I joined the group for a Fall BBQ, it was exciting to hear that the Buddy Program has been a part of the Outlook community for 25 years! Helen Campbell, is one of the individuals who helped create the program. She was teaching at the time and was asked to see if some of

her students would volunteer to engage individuals with intellectual disabilities living in a local group home in different activities and events.

Helen did find 4 students who were interested. “People were hesitant at first,” explains Helen. “The community support for this wasn’t initially there. Those 4

students who originally volunteered did a lot to get others interested.” The program has been so successful that it has grown from 4 to 18 volunteers.

I was also impressed to learn that for the 25 years the Outlook Buddy Program has existed it has been 100% volunteer driven! “We are so fortunate to have such wonderful volunteers both student and adult,” says Helen. The time commitment for the volunteers is a minimum of 2 hours each week. Anyone can volunteer for the program, but references are required and each volunteer must have a criminal record check.

Helen Robinson has volunteered for the program for 12 years and very much values the friendships she has formed because of the Buddy Program. She is currently Betty’s buddy and has been for 3 years. “We have become very good friends,” says Robinson. “We enjoy each

THE PROGRAM HAS FOSTERED POSITIVE ATTITUDES

TOWARDS INDIVIDUALS WITH DISABILITIES. PARTICIPANTS IN OUR PROGRAM ATTEND MOST COMMUNITY EVENTS AND WE ARE VISIBLE IN OUR

COMMUNITY AND VERY MUCH A PART OF ITS ‘LIFE.’

Members of Outlook’s Buddy Program.


other’s company and doing activities together.” Betty tells me that her favourite activity is going for lunch and ordering a chicken caesar wrap.

I am also fortunate to meet Kaylee and Cassie. Kaylee is a grade 12 student who has volunteered with the Buddy Program for 3 years. She and Cassie have been buddies for 3 years and have built a very strong relationship. Kaylee tells me that Cassie definitely has a sense of humour, and Cassie agrees. “The best part of this program for the community is everyone seeing the relationships we have and learning from that,” says Kaylee.

Lizette is a friend of Kaylee who is also volunteering for the Buddy Program. Lizette admits, “I was kind of unsure about getting involved because I was scared Fiona wouldn’t like me. Fiona didn’t at first like me, but once I learned more about Fiona and what she does like, we have been able to develop a great relationship.”

Cindy Busse is another dedicated volunteer who was first introduced to the program through her two sons who were

volunteer buddies when they were going to high school. Cindy’s buddy is Chandra who is a former student of Cindy’s. “When Chandra graduated I wanted to stay in touch,” explains Cindy. “So I thought why not volunteer to be a buddy.”

“The greatest benefit of the program is individuals going out and being able to do what other people get to do each day,” says Cindy. “You help the individuals be involved with the community and the community to be involved with the individuals. It’s a natural process. Whenever Chandra and I are out, people are always coming to talk to us. Chandra is a “people person;” she likes to go out and talk to people. Anytime with Chandra is a good memory.”

Each September students or adults are partnered with an individual with an intellectual disability. The Outlook Buddy Program is very individualized in that each buddy pair is able to choose activities that interest them. The main goals are to foster friendships and ensure that each individual is involved in the community.

Activities the buddy pairs engage in include movies, hockey games, going out to eat, baking, volunteering, bowling, BBQs, etc.

Most of the individuals who attend Variety Place are not originally from Outlook and do not have family or friends who live close by. The Buddy Program serves to bridge that gap – getting individuals involved in the community, developing a support network and forming friendships with other people who live in Outlook.

“This program is really good for everybody,” says Helen. “The program has fostered positive attitudes towards individuals with disabilities. Participants in our program attend most community events and we are visible in our community and very much a part of its ‘life’.”

If you are interested in volunteering or becoming a member of the Outlook Branch you can contact Byrdie Zboril by telephone 306-867-9375.

Kaylee (left) and Cassie (right).

16

SACL’s Fashion Show with Flair


On December 11, 2013 the Saskatchewan Association for Community Living’s I CAN Movement held a Fashion Show with Flair at the Broadway Theatre to celebrate individuality. There were approximately 170 people in attendance.

The vision for the fashion show began when a few SACL staff members met to discuss how to better promote our fundraising initiative with Community Living.

“We thought it would be really great to have an empowering experience for people to express their individuality,” says SACL Self-Advocacy Coordinator Megan Wells. “From there I approached self-advocates in Saskatoon about putting on an event of this caliber - they were all very excited.”

“We formed a committee and offered a way for people to be part of the planning,” says Megan. “We all contributed to the vision and direction of the event.”

Two talented and local photographers signed on to support and capture special moments throughout the night: Sheila Anderson Photography and Philip McNeil.

Sheila captures numerous

photos for the SACL and for this we cannot thank her enough. Sheila is extremely talented. In addition to her personal photography, Sheila is an Employment, Education and Transition Facilitator for the SACL.

Philip has been taking photos for 4 years and has been a member of the Saskatoon Camera Club since 2009. Philip is thankful for his mentor and friend Ken Greenhorn. Ken’s expertise has been invaluable to Philip as he develops his photography skills. Philip is a purist photographer and his photos are straight out of camera with no edits. “I like to take photos of sports, nature, still life, landscape, portraits and buildings,” says Philip.

If you are interested in hiring Philip to take photos please contact the SACL office.

The Fashion Show with Flair was not just about celebrating an official talent and brand. “It was an event to celebrate individuality and to recognize individuals who do not necessarily have a defined talent,” explains Megan.

The event featured a number of inspiring individuals. Trish

Cheveldayoff, our emcee for the evening did a fantastic job of leading us through the event and sharing our positive energy. Ryan and Brian, a father and son duo kicked off the evening. They were talented and did a wonderful job of setting the energy before the event started.

Megan and I CAN member Diane Dolan introduced the I CAN Movement, SACL Executive Director Kevin McTavish spoke of the partnership the SACL has with Community Living, and Andrea Young and Jennifer Kimball performed a Kids on

the Block puppet performance for the audience.

Our first round of models hit the stage after these performances and Megan showcased the individuality of everyone who took to the stage.

The first act concluded with a singing and dancing performance by Bradley McVicar and a guitar performance by Jordan Vassell.

Lori Hoffart kicked off the second act singing one of her favourite songs, Santa Claus is Coming to Town. The Self-Advocacy Action Group performed a skit followed by round two of the Fashion Show. The evening concluded with a performance by the Elf and the Owl, a musical duo, and Ryan Hoffer’s air guitar performance of the Beatles, All You Need is Love.

“I was really wrapped up in

DIALECT | WINTER 2014

I FELT CONFIDENT; I FELT THAT IT WAS MY PLACE AND THAT I

BELONGED.


the magic of all of it,” recalls Megan. “The night was special and unlike anything I’ve ever been to. I even made the comment about how my cheeks hurt because I was smiling and laughing so much. When we labeled it the funnest event you will ever go to, we were pretty accurate. I thought it was the funnest event I’ve ever been to!”

The beautiful Brittany Zuleta-Allan is on the cover of this issue of the Dialect. The photo captures her radiance when she walked on the stage at the Fashion Show with Flair. “I felt both excited and nervous,” says Brittany. “I felt confident; I felt that it was my place and that I belonged.”

When I asked Brittany what her favourite part was she tells me “Everything. Everything was great.”

“We held true to the vision of making sure everyone can contribute,” says Megan.

The most powerful part of the night to Megan was the surprises along the way. “When people took to the microphone and expressed how they felt in the moment. That was really powerful because it was unexpected. It was really great to have people choosing to contribute in spontaneous ways,” says Megan.

“When we come together, celebrate together and work on something in such a whole way we are strengthening our

community,” says Megan. “The more often people are able to see us demonstrate the power of our group the better. This is something that people haven’t seen before. I appreciate it for what it was in such a profound way.”

The SACL’s vision is that all individuals are valued, supported and included in all aspects of life; on December 11 this vision was recognized at the Broadway Theatre.

“We are all in environments where we worry about how we are seen, but the I CAN Fashion Show with Flair was an event where you didn’t have to worry,” says Megan. “I felt like an individual, I felt celebrated, and I felt like I was part of something really cool!”

Feedback received from the event include:

• “I feel beautiful.”

• “I feel like a rockstar.”

• “I am really good at planning events, and I am looking forward to doing more of this kind of stuff. The I CAN group is something I really look forward to.”

• “I appreciate so much that I came to the Fashion Show. Thank you for providing me with the opportunity to meet some of the most amazing people I have ever met. I have been aware of your initiative, and I am lucky to have been in the

theatre to bear witness to the magic your group created yesterday. I still feel good today. Thank you.”

• “The world is a better place because of your organization! Thanks to all who played a part in the evening- it was really wonderful!”

• The event was wonderful. We always talk about focusing on abilities. The event was a way for individuals to show their abilities and have them as the focus.”

• “I think the show was a fantastic way of celebrating differences and talents, and promoting the individuals we support and the SACL.”

• “The event was so exciting and it really became the funnest evening I have attended in many years. Paula Blais joined us from Prince Albert. She was very shy but with the positive reinforcement and acceptance by everyone there, she stepped up to the stage and beamed out at the audience. The thrill has not worn off and she has been speaking to everyone she knows about the event. My compliments to Megan and the I CAN team who put this event together! Well done! If there were any glitches that Megan kept worrying about, we certainly did not

notice them. Those who attended were full of joy and wonder - it could be felt in the audience and from the stage as presenters with their awesome talent stepped forward. The mix of activities was an adventure for us as we were constantly shifting our focus to the new area of entertainment or participation. Paula has never been in a fashion show - this event was a highlight of her life.”

• “The entire atmosphere of the event was fun and comfortable. Everyone was celebrating their individuality in a safe

Photos courtesy of Sheila Anderson Photography and Philip McNeil.

BY BLAIR BRAITENBACHCOMMUNICATIONS COORDINATOR, FASD SUPPORT NETWORK OF SASKATCHEWAN

Since November, the Network has been a key stakeholder in an innovative court process dedicated to improving the outcomes of individuals battling mental health issues.

Realizing the need to recognize some of the underlying issues associated with certain criminal activities, the provincial court system has developed a three-phase mental health strategy in Saskatoon which includes the creation of a mental health court, according to the Courts of Saskatchewan website. Primarily a sentencing court for individuals who have already pleaded guilty, the twice-monthly mental health dockets intend to sentence offenders struggling with mental health conditions, FASD and other cognitive disabilities and addictions in ways that will best address their needs and recovery options.

Offenders are referred to the mental health court by a judge and participation is voluntary. According to the Courts of Saskatchewan website, the docket is intended to facilitate:

• Collection of assessments in one place

• Timely assessments

• Consideration of individual health needs and plans for support and supervision in the community

• Monitoring of individual support and supervision plans

• Collection of data for study and planning in the second phase

As the first phase of the strategy, the mental health court was initially spearheaded with a particular focus on individuals living with FASD within the legal system. As a partner and stakeholder in the strategy, the FASD Support Network is involved in the

mental health court in two capacities: to serve as the interim coordinator for the strategy; and to act as the primary contact for FASD specific services. As the primary contact, one of our Family Support Workers attends each bi-monthly court docket to complete brief needs assessments with participants; support participants to self-advocate within the court system; and in some cases refer individuals to receive one-on-one support from the Network’s family support program.

Through the strategy’s interim coordinator role, the Network’s family support worker strives to enhance community partnerships.

Those who are already in custody, are charged with serious offences such as murder or manslaughter and/or potentially facing dangerous or long-term offender status are not eligible for the mental health court.

New Mental Health Court Docket in Saskatoon

SACL Chosen as Centennial’s December 12 in 12 Community

Recipient

Centennial 306 President Arnie Shaw presenting SACL Development Director Sacha Tegenkamp with a $1,000 donation.


environment, where one could get as many cheers for striking a pose on stage as if you were a real model. Everyone was smiling and dancing as they supported their friends and family at this inclusive event. I feel that everyone left the event knowing that they could be themselves and be included at the same time. This event showed those involved that they had the love and support from many people when it came to expressing their individuality.”

• “The Fashion Show was a phenomenal success. Everyone who attended the event was both impressed and enjoyed it thoroughly. The reviews by all were extremely favourable. The Fashion show likely impacted three distinct groups in three different ways. The participants had a great time and an opportunity to perform in various ways from modeling, to entertaining and to acting. Everyone seemed delighted to be part of the production. The audience whether they are knowledgeable about the SACL and the individuals the association supports or not were without a doubt entertained. All the audience can now better appreciate the skills and abilities of Self-Advocates. The next group, the

SACL staff, can once again be proud of the production, how well it went and be pleased with how happy the Self-Advocates were and how enthusiastic and entertained the audience was. A final group is the ones who were not able to attend and for those we are disappointed because they truly missed a night to remember.”

• “I had a lot of fun at the fashion show, it was a very comfortable/relaxed event to do a kids on the block performance, and also as a spectator. There was definitetly a spirit of inclusion in the air, with lots of smiles and laughs as well.”

• “I think the event was awesome and I am glad I was able to attend. Impact is easy…everyone got to showcase their own individuality and be proud of who they are.”

• “The fashion show was a unique event. It was so much more than it was billed to be. A variety night. A spectacular, spectacular! I think the event was a confidence builder for those who participated and those who attended. I heard several comments in the aisle where people said, “Maybe I could get up on stage next time.”

Valley View Centre Transition UpdateBY WANDA JONAS AND NICHOLAS FRASERSACL TRANSITION PLAN ADVOCATE AND SACL HOUSING INITIATIVES AND RESEARCH COORDINATOR

There are currently 189 people who live at Valley View Centre in Moose Jaw. The SACL currently provides direct advocacy supports to 107 individuals, and is indirectly supporting the transition through participation on the Transition Steering Committee, the Transition Team and working groups. As we move through the second year of transition planning and see 2014 upon us, we expect to see people begin to move out of Valley View Centre and into their new home as early as this spring.

Much care and attention is being given to see that a person-centred plan is developed for each person, to ensure

that when they leave the Centre they have a home that is perfect for them; one where they will not just have their needs met, but where they will have the opportunity to develop new relationships in the community, and participate in ways that match their own unique needs and interests. This is being done through following the Comprehensive Personal Planning and Support Policy of Community Living Service Delivery, individual and family engagement, and developing a thorough understanding of the person, their preferences, and their support requirements.

A PATH, which stands for, Planning Alternatives Tomorrow with Hope, is being completed for each person. The PATH consists of a detailed drawing that illustrates the dreams and wishes of the individual, but also identifies the challenges faced by each person. The PATH begins to list the people and actions

that are needed to best accomplish the goals put forward. With each PATH the SACL has participated in the person has been happy to be included and part of the planning, and some individuals are excited about the anticipated outcomes.

There is a feeling of excitement among everyone involved in the PATHs. For some of the people who live at Valley View Centre the days before the PATH are spent deciding what should be discussed, who should be part of the process, and then giving out invitations to attend. Some individuals are becoming excited by the potential that living in the community holds for them.

If it is identified in the PATH and the person-centred plan, trips are arranged to give each person an idea of the choices that could be available to them after leaving Valley View Centre. One such trip involved a young woman,

Serena visiting the Redline Harley-Davidson in Saskatoon.


Serena, who currently lives at Valley View Centre travelling to Saskatoon for a day to re-orient her to the city (her home community). On the trip she started to develop and re-establish personal networks, and ended her day with a successful trip to Redline Harley Davidson in Saskatoon for a tour.

There are 10-15 individuals who attend Ready, Set, Go; a regular meeting to discuss the concerns, hopes and dreams of all those leaving the Centre for their new homes in the community. Everyone

is an active participant and planner of Ready, Set Go. Guest speakers have also come to Ready Set Go, such as Megan Wells who is the SACL Self-Advocacy Coordinator and Tina Friesen, a self-advocate from Regina. It is also regularly attended by Randy Joyner and two of her assistants from the University of Regina; a group that is doing research for a project detailing the journey of some of the people who currently live at Valley View Centre as they move forward in transitioning to their new home.

All of the individuals who visit the SACL office participated in decorating the office for Christmas this year. Jane Whitson, a resident and regular at the SACL office brought a small lighted tree of her own to display; a tree that she will be taking one day with her to her new home in the community. But nothing shined brighter in our office than the happy, smiling faces of the individuals who came to visit us in our small corner at Valley View Centre.

FASD Legal Issues Consensus Conference BY DEB KWASNICASACL ADVOCATE FOR PRINCE ALBERT AND AREA

The conference was a first juried consensus development conference on the legal issues related to FASD, providing a platform to share information and knowledge to enable jury members and delegates to develop a consensus statement on FASD.

The conference was hosted by the Institute of Health Economics of Alberta. It was attended by support and service delegates and provided information based on intervention, awareness and prevention.

Over the three days the jury members heard evidence and scientific findings allowing for the engagement and collaboration of citizens and decision makers in government and the justice system. The Honourable Ian Binnie, C.C., Q.C., former Justice of the Supreme Court of Canada was the Jury Chair leading a panel of 12 distinguished citizens hearing expert evidence from speakers attending the conference from Canada and the United States.

The experts discussed:

• Implications and impact of FASD to society

• Brain development following alcohol exposure

• Prevalence of FASD in the legal system,

• Models of screening and assessment• Connecting courts and diagnostic

clinics• Response of the criminal justice

system• Vulnerability of individuals with FASD

• Reliability of confessions and testimony

• Criminal code reforms• Sentencing• Moral blameworthiness when

sentencing• Navigating the justice system• Support for families• Barriers to service eligibility• Ethical issues

A complete report of the Consensus Statement can be viewed at http://www. ihe .ca/news-events/news/consensus-statement-on-legal-issues-of-fetal-alcohol-spectrum-disorder-fasd-available-/

Further details of the jury members and speakers can be obtained by contacting Deb Kwasnica, Advocate for Prince Albert who attended the conference as a representative for the SACL.

Some areas to highlight for the newly formed coalition in Prince Albert were discussed at this conference. The four digit diagnostic code has been accepted for Canada and also in the judicial system. The 1st edition of the FASD 4-Digit Diagnostic Code was developed by the Washington State FAS Diagnostic and Prevention Network (FAS DPN) in 1997. The 4-Digit Code is a simple, comprehensive, evidence-based method for diagnosing the full spectrum of outcomes observed among individuals with prenatal alcohol exposure. The 4-Digit Diagnostic Code provides more accurate and reproducible diagnoses than the gestalt method due to its use of quantitative, objective measurement scales, and specific case-definitions (http://depts.washington.edu/fasdpn/htmls/4-digit-code.htm)

Cofactors are also needed to be considered by the multidisciplinary team making the assessment. The mystery and complexity around brain damage includes physical impairment and many social behavioral problems. Often this becomes apparent at ages between six and ten. No single discipline is fully trained to evaluate for FAS thus requiring a multidisciplinary team. The first one was formed in Seattle followed by training in North America and several other countries. Canada now has 35 teams with a capacity to assess 2,000 cases per year. Currently about half of these slots are used, mainly for children. Generally adults are assessed by court order when facing charges at a cost between $3,000-4,000 for the services of a psychiatrist and psychologist.

A team at the University of Alberta has discovered a biomarker detectable with MRI (magnetic resonance imaging) to enable diagnosis, treatment planning and intervention.

It is difficult to determine the number of persons living with FASD/FAS. Alberta has estimated 36,000 are affected in their province and 11% of women who are pregnant consume alcohol.

In 2010, there were appromixately 14,978 births in Saskatchewan, but the number of individuals born with FASD is unknown.

It is recognized that significant numbers of the population in the penal system in Canada live with the effects of brain damage in utero, a completely preventable condition.

Alcohol damage to the brain in utero affects the frontal lobe, impacting executive function. Emotional functioning


The SACL receives sponsorship from TD and Saskatoon CO-OP to publish a new edition of Road Map to the Future: A Financial Planning

Guide for Families of People with Disabilities

is also impacted as is short and long term memory. There is no indication of improvement with age. An implication to legal issues is the impact to source memory as the individual may not be able to relate to the court where information came from or how it was learned. This then becomes a consideration for responsibility of actions, understanding consequences, punishment and achieving an ability to make healthy choices in future. Recidivism remains high.

The coalition formed in Prince Albert will begin to bring this information together and examine ways to work in the community with justice, prevention, education, assessments, areas of research and legislation. The pilot Mental Health Courts in Saskatoon and Regina will also be followed as the judges develop this new courtroom process.

The coalition group has formed action committees which will be developed in 2014 with the assistance of Reg Beardsworth, our facilitator. Given the fact that participants attended from multiple backgrounds with a wealth of experience it is reasonable to state that many are anxious to begin working on this issue in our community. Interest has been expressed from Cognitive Disability Strategy, Foster Care, Probation, Grand Council, Justice, Catholic Family Services, Mental Health, Saskatchewan Early Childhood Association, the Indian Metis Friendship Centre of Prince Albert, Coop Health Clinic, Addictions Services, Kids First, Family Futures, the HUB, Mobile Crisis, Early Childhood Intervention Programs, COSA (Circles of Support and Accountability), Film maker/Healer Elder.

Since July, 2013 We have been expertly

guided with the facilitation skills of Reg Beardsworth who has received his training from the Canadian Institute of Cultural Affairs. We are grateful for his ability to keep us focused during our many round table discussions.

We are hopeful that the future will provide easily accessible healthy options and supports for those affected by addictions and those living with FASD/FAS in our community.

Report compiled by Deb Kwasnica from the IHE Conference publications.

Robin Chapman (left) and Kara Dale from TD presenting SACL President Gloria Mahussier, SACL Treasurer Matt Leisle and Karen Cherwoniak (right) a cheque.


The Saskatchewan Association for Community Living (SACL) would like to recognize the support received from TD and Saskatoon CO-OP to publish a new edition of Road Map to the Future: A Financial Planning Guide for Families of People with Disabilities.

The last edition of Road Map was published in 2003. Since 2003, there have been two significant developments that facilitate

a better financial future for people with disabilities: the Registered Disability Savings Plan (RDSP) and the Saskatchewan Assured Income for Disability (SAID).

The SACL has contracted Dr. Rita McLeod, the author of the 2003 edition to update Road Map. Significant research and updates have already been conducted. The SACL anticipates the new edition to be available for families this fall.

Thank you TD and Saskatoon CO-OP for making a new edition of Road Map possible. We very much appreciate your support.


“Individuality to me means everyone having their own uniqueness – everyone having the right to choose to look however they want, wear what they want and feel comfortable in it. Everyone is different and unique which equals individuality.”

- Kim Hague


Nomination Deadline is April 28, 2014

Celebrate Inclusion in Your SchoolFebruary is National Inclusive Education Month in Canada. Let’s celebrate by highlighting all the many positive examples of inclusive classrooms and schools across our province. For some teachers and schools, meaningful inclusion of students with intellectual and other disabilities is the norm. Together with parents, students and community members, they figure out ways to make it happen.

The Saskatchewan Association for Community Living believes that meaningful inclusion is always the “best practice,” and we want to offer parents, peers, students and community members the opportunity to nominate either an individual teacher or a whole school to receive the Inclusion Teacher or Inclusion School of the Year Award.

Nomination Criteria:

An individual, team, organization (teachers, school, administrators, departments) that goes above and beyond what is expected in their role to initiate, inspire, promote, implement, support, advocate, develop or create unique opportunities that result in

the enriched inclusive educational experiences of students with and without disabilities.

How do you know if a school or teacher is achieving inclusion? Ask these questions:

Are all children:

• Using the same facilities, rooms, resources as typical students? (no separate places)

• Attending a neighbourhood school, learning side by side with peers in a regular classroom?

• Encouraged and supported to build friendships?

• Appearing in the yearbook and class photos?

• Given a locker in a typical location?

• Expected to arrive at school jobs and responsibilities with typical students?

INCLUSION TEACHER OF THE YEAR

Presented by the SACL Education Committee

This honour recognizes up to three teachers (south, central and north) whose classroom inclusion strategies model inclusion – “best practices.” Award winners will have demonstrated leadership in taking innovative, concrete inclusion actions that can be transferred to other schools. The submission must clearly demonstrate the impact of their work. The Education Committee will approve the final selection(s).

INCLUSION SCHOOL OF THE YEAR

Presented by the SACL Education Committee

This honour recognizes up to three schools (south, central and north) that have successfully developed and implemented school-wide inclusion strategies. Award winners will have demonstrated leadership in modeling inclusion best practices in all aspects of the community life of the school. The submission must clearly demonstrate the strategies developed and the impact of their implementation. The Education Committee will approve the final selection(s).

If you know of an individual, or a team of people deemed worthy of this award for making a positive contribution to inclusive education in Saskatchewan and would like to make a nomination, please contact Kim Hague at the SACL for the criteria and conditions of participation. This will also include the complete nomination package.

Contact Information: [email protected] or 306-955-3344

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