Dr Nikki Allorto

Specialist Burn Surgeon

Head Pietermaritzburg Metropolitan Burn Service

President SA Burn Society

Founder Burn Care Trust

Need for data

• Describing the spectrum of disease – funders/government

• Quality improvement / audit

• Benchmarking

• Strategic planning

• Prevention initiatives

• Economic objectives

• Research purposes

Registry versus Electronic Record

Registry:

• A medical registry is a systematic collection of a clearly defined set of

health and demographic data, held in a central database for predefined

purposes

Electronic medical record:

• Information captured through electronic means, and which may or may not

have a paper record to back it up.

Burn Registries

• National Burn Repository (US)

• Burns Registry of Australia and New Zealand

• UK National Burn Injury Database

• Data capturers / nurses

• Additional to clinical work and hospital records

• iBER is a medical registry

• Also standardized electronic medical record that facilitates data collection

• It serves the following purposes

• An epidemiological tool to describe the burden of disease and used for strategic planning

• As a quality improvement tool

• To facilitate local research

iBER features

• Web based cloud storage of data

• Basic set of data collected plus flexibility for individual needs

• Practically orientated

• Follows clinical flow

• Entered by clinicians

• Reports & log books generated automatically every month

• Export data in excel eg. to contribute to WHO surveillance registry

• Way forward - mobile phone version

Concerns

• Standard internet security certificates

• Your hospital data belongs to your hospital

• Protected access

• Research possibilities

• Individual access to all ‘own’ data on local ethics approval for a project

• Combined research as agreed amongst parties, also ethical approval

• Collaborative work

Registration

Data Entry

Print outs

Reports

What do you need

• Local ethics approval

• Internet access

• Computer & printer

• Commitment to get the data entered

Summary

• Established a hybrid EMR/Registry

• Data entered by clinicians

• Generates necessary paperwork

• Admission/Discharge/Theatre notes

• Simple monthly reports

• Logbook for surgeons

• Capability larger audits/research

• Flexible

• Web based with offline capacity

nikkiallorto@gmail.com