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Educating Practices in Community Integrated Care for Children with Special Health Care Needs
Pennsylvania Chapter, AAPA Medical Home Initiative
of the MCHB
EPIC-Integrated Care
Community Integrated Care for Children with SHCN
Federal MCHB Medical Home Initiative
EPIC-IC Education/QI Program Demonstration Projects Advocacy
Pennsylvania DOH Program Support EPIC-IC Care Coordination Demonstration
Projects Child Care Education about children
with SHCN
EPIC-Integrated Care
Other EPIC Programs
Immunization Education Stop Child Abuse Now (SCAN) Smoking Cessation
EPIC-Integrated Care
Why should you care about children with SHCN?
Increasing numbers of children with SHCN--time, cost
Opportunity for improvement Health care system built around acute
care, not chronic care Families want more involvement in care
process More care provided in the home and
community Primary care practice staff want to provide
the best care possible
EPIC-Integrated Care
Take Home Message
Primary care practices can
Develop patient/family centered care Identify and monitor children with SHCN Improve coordination of care and communication Improve documentation to enhance coding and
reimbursement. Improve how the primary care practice team
provides chronic care through systems change Facilitate patient access to services in practice and
community
EPIC-Integrated Care
Community Integrated Care for Children with SHCN
Who are “Children with SHCN”?
What is a “Medical Home”?
Where should we focus?
How does this relate to our
practice?
How can we improve our practice?
EPIC-Integrated Care
Who are children with special health care needs?
“Children with Special Health Care Needs are those who have or are at increased risk for a chronic physical, developmental, behavioral, or emotional condition and who also require health and related services of a type or amount beyond that required by children generally.” (Maternal and Child Health Bureau ’95)
EPIC-Integrated Care
Children with Special Health Care Needs
Chronic Conditions, 30%, 21,540,000
Special Health Care Needs, 18%, 12,608,000
Limitation of Activity, 7%, 4,711,000
Limitation Activities of Daily Living, 0.2%,
149,000Long Term Care, 0.1%, 92,000
0
5
10
15
20
25
30
35600
360
140
4
2
EPIC-Integrated Care
Epidemiological Statistics of Children with Special Health Care Needs (1994)
18% of Children or 12.6 million (0-18 years of age)*
Avg. Annual School Absences 7.4 2.8 3.6 % with Health Insurance 88.8 86.4 86.8 % with Usual Source of Care 94.4 93.2 93.4 % not Satisfied with Care 17.9 13.6 14.7 % with Unmet health Needs 12.9 6.4 7.6 Avg. Annual Physician Contacts 6.4 2.6 3.3 Avg. Annual Hosp.Days/1000 691 122 225
*Newacheck et al. Pediatrics, Vol 102, No. 1, July. 1998, pp 117-121
CwSHCN Typical Avg.
EPIC-Integrated Care
Annual Cost of Medical Care for Children with SHCN
Specialists14%
DME5%
Primary Care5%
Other15%
Hospitalization61%
HealthPartners/Institute for Health and Disability 2/97"Other" includes therapies, pharmaceuticals, outpatient lab, ED, disposables
EPIC-Integrated Care
A Medical Home Is an approach and process to
providing care Is not a building Is a partnership with the child, family
and practice care staff Emphasizes the primary care
practice as the “home” where the family and child Feel recognized and supported Find a centralized base for medical care Find connection to other medical and
non-medical community resources
EPIC-Integrated Care
Components of Care in a Medical Home Family-Centered Accessible Comprehensive Continuous Coordinated Compassionate Community-Based Culturally-Competent Provided in an Environment of Trust
and Mutual Responsibility
EPIC-Integrated Care
Identifying Challenges to Medical Home Care
TIME, TIME, TIME (and reimbursement) Organized systems of care Adequate parent-professional
partnerships Knowledge Communication Coordination Medical staff turnover Awareness of community resources
and programs
EPIC-Integrated Care
Physicians’ and Parents’ Ranking of Services
RankingService Physicians Parents
Respite care 1 9
Day care 2 21
Parent support groups 3 3
Help with behavior problems 4 10
Financial information or help 5 2
After-school child care 6 20
Assistance with physical
household changes 7 15
Vocational counseling 8 6
Psychological services 9 5
Homemaker services 10 22
Recreational opportunities 13 4
Information about
community resources 14 1
Dental treatment 16 8
Summer camp 19 7
EPIC-Integrated Care
Benefits to the Practice
Increased professional satisfaction
Improved coordination of care Efficient use of limited
resources Streamlined office procedures Compensation for the
additional care provided
EPIC-Integrated Care
Benefits to Patient/Family
Increased quality of care Increased patient and family
satisfaction Improved communication with
physician and staff
EPIC-Integrated Care
Benefits to the Community
Improved coordination of care Increased integration of
CSHCN into schools and extracurricular activities
EPIC-Integrated Care
Community Services for Children with SHCN and Their Families
Role of Primary Care Practice in Community Services Child Welfare Social Services Early Childhood Services Education Mental Health Community Based Therapies Public Health Family Support Spiritual Support
EPIC-Integrated Care
Changing a primary care practice is like trying to change the tire on a bicycle while you are riding it
EPIC-Integrated Care
Getting Started
Identify the team within the practice
Evaluate practice Identify the CSHCN in the
practice Select a parent advisor Share concepts and goals with
practice staff
EPIC-Integrated Care
Identifying the Team
A practice team includes Primary care clinician Nurse manager/care
coordinator Office manager Parent advisor
EPIC-Integrated Care
Identifying CSHCN Utilize severity scoring tools available Define chronic conditions within the
practice Use ICD-9 codes and Flu shot list to
identify Review utilization reports to determine
those children seeing > 1 specialist on a regular basis
Determine how to identify the chart i.e., using color coded charts, stickers, and binders
EPIC-Integrated Care
Select a Parent Partner
Identify potential parent advisors who will provide effective input
Communicate role and responsibilities of parent advisor
Be open to constructive feedback regarding practice policies and procedures
EPIC-Integrated Care
Share Concepts/Goals With Practice Staff
Present the broad, general topics of the medical home and role of parent advisors to all members of your practice
Meet with your practice team to choose and plan your first improvement project
Implement practice wide Review with your practice team
What worked What did not
Celebrate your success
EPIC-Integrated Care
Key Factors for Success
Unifying leadership Common goal Thorough planning Staff buy-in Communication plan Small steps first Learn from your mistakes
EPIC-Integrated Care
Practical Applications
Scheduling Use a telephone script for all
schedulers to easily identify those children requiring extra time
Parent Advisors Develop Tips sheet for parents Act as a resource for other families of
CSHCN Provide community resource
information for the practice
EPIC-Integrated Care
Practical Applications
Coordination of Care Complete care plans or summaries
for each child with SHCN. One copy for chart, one for family.
Fax back forms being used to facilitate communication with subspecialists
Develop flow sheets for specific diseases that providers and staff will use for care
EPIC-Integrated Care
Practical Applications
Reimbursement Conduct coding sessions for
staff to understand correct coding for CSHCN
Update encounter forms to include CPT and ICD9 codes that reflect the population seen
Develop progress note templates to ensure accurate documentation
EPIC-Integrated Care
Coding for Children with Complex Medical Needs
No specific code exists for additional time and effort required
Use appropriate E & M code following documentation guidelines
Remember if it’s not documented it didn’t happen
EPIC-Integrated Care
Coding for Children with Complex Medical Needs
Preventative medicine service codes (99381-99397) [with the use of E/M codes (99201-99215) and the –25 modifier]
Counseling and/or risk factor reduction codes (99401-99412)
Team conferences (99361-99362) Telephone calls (99371-99373)
EPIC-Integrated Care
Coding for Children with Complex Medical Needs
Care plan oversight services (99375-99376)
Prolonged physician service (99354-99359)
Office or other outpatient service codes (99201-99215)
Consultations (99241-99245) Modifier –21/09921
EPIC-Integrated Care
Summary
This is introductory material; a starting point to create an ongoing process to: Develop a
patient/family--physician/practice relationship of care
Improve how the primary care practice team provides chronic care
Integrate comprehensive care of the child with the community
EPIC-Integrated Care
Other EPIC IC Trainings Available
Family Centered Care Care Coordination Practice Management/Care Design Transition
EPIC-Integrated Care
Where Do We Go From Here?
Develop the infrastructure, develop the process
Start with a few small steps Recognize that change needs to be
gradual Implement medical home strategies one
at a time After strategies have been implemented
for a few months, evaluate progress
EPIC-Integrated Care
Contact Information
EPIC IC Program: (800) 414-7391 Email at [email protected]
Helpful Websites