Headway – the brain injury association

MIND OF INFORMATION 3

St James Park, Newcastle – 29th Feb 2012

HEADWAY – the brain injury association

Aims to:-

promote understanding of all aspects of brain injury

provide information, support and services to people with brain injury, their families and carers.

FACTS & FIGURES

Every year, more than a million people attend hospital A&E departments in the UK following a head injury.

In 2007, 88,835 people were admitted to hospital each year as a consequence of traumatic brain injury.

Head injury is the foremost cause of death and disability in young people.

Approximately 50% of deaths in people under 40 are due to head injury.

Males are two or three times more likely to have a brain injury than females. This increases to five times more likely in the 15 - 29 age range.

NORTH EAST FACTS & FIGURES

North East Population Figures 2006 - 2.577m

Incidence of admission to hospital for brain injury in England for 2006 - 88,835

North East Admission Figures in 2006

4472!!

NORTH EAST FACTS & FIGURES

HIGHEST INCIDENT - NORTH EAST PCT CLUSTERS IN 2006

Co Durham - 876

Northumberland - 542

Sunderland - 491

Newcastle - 473

North Tyneside - 341

WHAT IS AFFECTED BY BRAIN INJURY?

Perception MemoryConcentration/Attention

Information Processing

Movement

Co-ordination/Balance

Stamina/Tiredness

Sensory Perception

Speaking

Language SkillsMotivationAwareness/Insight

Relationships

Personality

Mood/Emotions

Inhibition/Impulsivity

Tolerance

Executive SkillsPlanning, Organising

Causes of Brain Injury….

Mainly traumaticRTA – 40% Falls/Domestic Accidents – 20%

Assaults – 10% Work/Sports Accidents – 5%

Non Trauma - 25%

Stroke

Brain hemorrhage

Infection

Lack of oxygen

Drug and alcohol abuse

Over three quarters of people feel they have a hidden disability

76%

BRAIN INJURY IN THE UK

9 out of 10 people believe their injury has changed them as a person

89%

78% have seen at least one relationship break down

78%

68% believe they are discriminated against

68%

Statistics based on nationwide survey commissioned by Headway and University of Exeter

Carer’s Role

Home Front

Chief Domestic

Main Provider

Education Link

Main decision maker

Information Gatherer

Partner/Parent/Friend

Risk Management

Personal & Medical Care

Peg Changing

Change of dressing

Physio exercises

Incontinence Management

Drug Management

Legal Aspects

Liaison with Personal Injury Solicitors

Liaison with Receivers

Attendance at hearings

Advocacy

Liaison Officer for Social Services

Physical Disabilities Section

Housing

Equipment Services

Adaptations

Welfare Benefits/Direct Payments/Individual Budgets

Case Managers

Involved with goal setting

Implementation of care plans

Risk Management

Support Worker Recruitment

Liaison Officer for NHS

Clinical Psychologist

Speech & Language

Physiotherapist

GP

Neuro Rehab/Medicine Consultant

Occupational Therapist

Counsellors

HEADWAY UK

Headway is a charity set up to give help and support to people affected by brain injury with a network of 110 local Groups and Branches throughout the UK offering a wide range of services, including rehabilitation, carer support, social re-integration, community outreach and respite care. The services available vary, depending on local needs and resources.

Headway UK provides support to the local Groups and Branches and helps to deliver high quality services through guidance on policies, procedures, standards and training. Additionally:

We operate a UK Helpline We produce a range of booklets containing information about aspects of brain injury for those directly affected, plus professionals, employers and members of the public.We promote understanding of brain injury and its effects We lobby for better support and resources to be made available by statutory health and social care providers. We campaign for measures that will reduce the number of brain injuries

HEADWAY IN THE NORTH EAST

Headway North Northumberland

Headway Tynedale

Headway Newcastle & North Tyneside

Headway Gateshead & South Tyneside

Headway Durham & Chester Le Street

Headway Teesside

Headway Central Northumberland

Headway Wearside

North East Developments….

Developing Headway Darlington & District

Funding the post of Community OT in the Middlesbrough area

Brain Injury Co-ordinator post @ JCUH

Recruitment of Community Development Officer for Headway Teesside

New Business Strategy for Headway GST

Look Ahead in the North 2012

Headway Gateshead & South Tyneside

Community Development Officer Appointed 19th April 2010 with the remit of developing

services for people affected by brain injury.

Increase in membership

Re-vamp of current website

Photography project

Raised monies of activities and transport

Community initiatives in place – volunteering/health trainers/timebank (volunteering scheme)/community allotment

Headway Gateshead & South Tyneside

The Youth Group will:provide much-needed social contact for young people aged between seventeen to twenty-eight, including an informal ‘buddy’ systemcreate a precedent in the North East region; a self-governing group of and for young adults with Acquired Brain Injurypromote independence, focussing on skill-sets such as travel, shopping, social interaction, and communicationincrease self-confidence and esteem in members through learning and consolidating new proficiencies as well as the through the autonomous running of the group

Me, me, me, me, me!

Representation on various commitees NABIFNorthern Neurological AllianceTowards Inclusive Living ProjectHITS Clinical Trial/STITCH Trial

Brain Injury Awareness Sessions delivered to local community groups/care homes(!)Advocacy (e.g. representation welfare benefits tribunals)Educational Sessions for schoolsEducational material for Police/Duty SolicitorsLook Ahead in the North (Residential Weekend 25-27th Mar 2011 at The Calvert Trust - Kielder)

Look Ahead in the North

Specific Residential Weekend for people with Brain injury and their Carers from the NE and North Cumbria.

87 people in attendance

Calvert Trust Activities

Holistic Therapies

Brain injury workshops

Ceiledh Dance

Best thing was the chance to meet with others in similar situations – peer support!

Thank You For Listening