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ISPOR A Resource for Medical Writers and Editors€¦ · pharmacoeconomics (health economics) and...

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ISPOR A Resource for Medical Writers and Editors Nancy S. Berg CEO/Executive Director DRAFT
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Page 1: ISPOR A Resource for Medical Writers and Editors€¦ · pharmacoeconomics (health economics) and outcomes research. The goal of the meetings is to bring together experts in the field

ISPOR – A

Resource for

Medical Writers

and Editors

Nancy S. Berg

CEO/Executive Director

DRAFT

Page 2: ISPOR A Resource for Medical Writers and Editors€¦ · pharmacoeconomics (health economics) and outcomes research. The goal of the meetings is to bring together experts in the field

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Page 3: ISPOR A Resource for Medical Writers and Editors€¦ · pharmacoeconomics (health economics) and outcomes research. The goal of the meetings is to bring together experts in the field

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Page 4: ISPOR A Resource for Medical Writers and Editors€¦ · pharmacoeconomics (health economics) and outcomes research. The goal of the meetings is to bring together experts in the field

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Page 5: ISPOR A Resource for Medical Writers and Editors€¦ · pharmacoeconomics (health economics) and outcomes research. The goal of the meetings is to bring together experts in the field

How ISPOR can help?

Stay abreast of guidelines and standards for HEOR

Maximize publications plans

Be a part of the most useful journals and scientific

meetings for my HEOR and Market Access data

Be your resource for scientifically credible content

Get involved in something significant (and not just

successful)

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Page 6: ISPOR A Resource for Medical Writers and Editors€¦ · pharmacoeconomics (health economics) and outcomes research. The goal of the meetings is to bring together experts in the field

ISPOR Priorities

Continuing to globalize… respond to the reality that most of the growth of interest in outcomes research and economic analysis is taking place outside of North America and Europe;

Working together with payers demanding greater evidence of value; to establish what is feasible, given data, costs and the science, and to improve methods, the evidence base, and decision making, over time.

Continuing to raise HEOR scientific standards;

Supporting the next generation of researchers, by providing forums and opportunities both for learning and for exchanging important new ideas and approaches.

Adrian Towse, MA, Mphil, ISPOR President (2014-2015), Director Office of Health Economics, London, UK

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Page 7: ISPOR A Resource for Medical Writers and Editors€¦ · pharmacoeconomics (health economics) and outcomes research. The goal of the meetings is to bring together experts in the field

MissionThe mission of ISPOR is to increase the efficiency, effectiveness,

and fairness of health care to improve health.

ScopeThe ISPOR scope and sphere of influence includes outcomes

researchers, health technology developers and assessors,

regulators, health economists, health care policy makers, payers,

providers, patients, populations, and society as a whole.

ISPOR is a non-profit 501(c)(3) public organization for educational and scientific purposes, as defined by the US IRS.

Page 8: ISPOR A Resource for Medical Writers and Editors€¦ · pharmacoeconomics (health economics) and outcomes research. The goal of the meetings is to bring together experts in the field

Education,

Information &

RESOURCES

Global

NETWORKING

Member

ENGAGEMENT

Dialogue with

DECISION

MAKERS

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Page 9: ISPOR A Resource for Medical Writers and Editors€¦ · pharmacoeconomics (health economics) and outcomes research. The goal of the meetings is to bring together experts in the field

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Page 10: ISPOR A Resource for Medical Writers and Editors€¦ · pharmacoeconomics (health economics) and outcomes research. The goal of the meetings is to bring together experts in the field

ISPOR

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Page 11: ISPOR A Resource for Medical Writers and Editors€¦ · pharmacoeconomics (health economics) and outcomes research. The goal of the meetings is to bring together experts in the field

Vision 2020

Research– Promote access, appropriate use, and an understanding of

opportunities for and limitations of health care data to inform health care decisions.

– Foster the ongoing development of rigorous outcomes research methods and tools.

Education– Create a global comprehensive development plan for

expanding capacity in outcomes research.– Build the workforce in the multiple disciplines of outcomes

research through educational programs that advance skills and knowledge.

Communication– Empower members to be effective communicators of

outcomes research results and their implications to diverse audiences.

– Collaborate with others to facilitate the translation of outcomes research findings to promote widespread understanding and use in health care decisions.

– Provide networks to facilitate communication and collaboration among members.

– Expand venues for disseminating outcomes research findings.

VISION 2020

Areas of Focus

Influence

Collaboration

Integrity of Science

Global Growth

Communication

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Page 12: ISPOR A Resource for Medical Writers and Editors€¦ · pharmacoeconomics (health economics) and outcomes research. The goal of the meetings is to bring together experts in the field

ISPOR Membership

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10000

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Full

Members

Chapter

Members

Page 13: ISPOR A Resource for Medical Writers and Editors€¦ · pharmacoeconomics (health economics) and outcomes research. The goal of the meetings is to bring together experts in the field

ISPOR Global Network

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Page 14: ISPOR A Resource for Medical Writers and Editors€¦ · pharmacoeconomics (health economics) and outcomes research. The goal of the meetings is to bring together experts in the field

Collaborating

With Members

With Organizations

With Decision Makers

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Page 15: ISPOR A Resource for Medical Writers and Editors€¦ · pharmacoeconomics (health economics) and outcomes research. The goal of the meetings is to bring together experts in the field

Member Engagement

Through collaboration, global networking, and

education activities, ISPOR members gain

knowledge and a competitive advantage.

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9,500 Members

from 114 Countries

ISPOR Member Benefits

Access to high quality peer-reviewed research,

good practice guidelines, and new tools and

resources in multiple languages;

Opportunities to hear, discuss, and present

research in highly influential publications

and events;

Global networking and the opportunity to

contribute to strategic discussions with payers,

governments, policy bodies, and thought

leaders through ISPOR Global Groups such

as Councils, Special Interest Groups and Task

Forces, as well as via Regional Consortia,

Networks, and Chapters (Regional and

Student);

Education programs offering learning and

teaching opportunities including short courses,

distance learning, and webinars.

Page 16: ISPOR A Resource for Medical Writers and Editors€¦ · pharmacoeconomics (health economics) and outcomes research. The goal of the meetings is to bring together experts in the field

Collaboration with like-minded groups

Page 17: ISPOR A Resource for Medical Writers and Editors€¦ · pharmacoeconomics (health economics) and outcomes research. The goal of the meetings is to bring together experts in the field

Dialogue with Decision Makers

ISPOR Roundtables

– HTA Roundtables in Europe, North America,

Asia/Pacific and Latin America provide a forum

to discuss, debate, and share information and

health technology issues as well as bridge the

gap between HTA agencies, health care decision

makers.

– The Patient Representatives Roundtables in

Europe and North America provide patient

representatives the opportunity to learn and

discuss with other stakeholders how they can

participate in the assessment of a new health

technology (drug, medical device, diagnostics,

biopharmaceutical, vaccines) and increase their

involvement in health policy decision making.

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Page 18: ISPOR A Resource for Medical Writers and Editors€¦ · pharmacoeconomics (health economics) and outcomes research. The goal of the meetings is to bring together experts in the field

Dialogue with Decision Makers

ISPOR Councils

– The ISPOR HTA Council provides a ‘network’ for

ISPOR regional HTA Roundtables and Networks to

share health technology assessment issues and

provide guidance in the translation of outcomes

studies to optimize health care decisions.

– The ISPOR Health Science Policy Council

reviews and evaluates good practices for outcomes

research proposals submitted by ISPOR members

for ISPOR Task Force development.

– The ISPOR Institutional Council promotes the

development, informed application, and

communication of health economics and outcomes

research resulting in global standards that impact

health care decision making.

– The ISPOR Student Chapter Faculty Advisor

Council, a network of academicians within ISPOR,

provides valuable information and advice on the

educational needs and issues in the field.

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Page 19: ISPOR A Resource for Medical Writers and Editors€¦ · pharmacoeconomics (health economics) and outcomes research. The goal of the meetings is to bring together experts in the field

Education, Information Sharing and Resources

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Page 20: ISPOR A Resource for Medical Writers and Editors€¦ · pharmacoeconomics (health economics) and outcomes research. The goal of the meetings is to bring together experts in the field

Education and Information Sharing

ISPOR Short Course Program– A series of 4 and 8 hour live training sessions presented in conjunction with ISPOR’s meetings

worldwide. The program has been utilized by nearly 30,000 participants from 20 countries.

ISPOR Distance Learning Program (iDLP)

– An online educational tool that provides a valuable resource for new professionals, as well as

those individuals in countries where the use of HEOR in health technology assessment is still

emerging. In addition to English, select iDLP modules are offered in Bosnian, Chinese-Simplified,

Portuguese, Spanish, Turkish, and Ukrainian.

ISPOR Educational Webinar Series– A monthly webinar program based on the ISPOR Good Practices for Outcomes Research reports

and other ISPOR methodology tools. Open only to ISPOR members, participants have the opportunity to hear from the authors about best methodology practices for outcomes research and to engage with experts directly.

ISPOR Educational Video Series on Health Policy & Research

– A collection of recordings from past ISPOR meetings focusing on trending pharmacoeconomic topics from leading health care experts

ISPOR Educational Directory

– The ISPOR Educational Directory at the ISPOR website is a listing of academic and other institutions worldwide that provide degree programs, non-degree programs, and fellowships in HEOR.

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ISPOR Education Programs

ISPOR is committed to providing education for new and experienced professionals in the field and offers

the following educational programs.

Page 21: ISPOR A Resource for Medical Writers and Editors€¦ · pharmacoeconomics (health economics) and outcomes research. The goal of the meetings is to bring together experts in the field

Short Course Program

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Page 22: ISPOR A Resource for Medical Writers and Editors€¦ · pharmacoeconomics (health economics) and outcomes research. The goal of the meetings is to bring together experts in the field

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Distance Learning Program

Page 23: ISPOR A Resource for Medical Writers and Editors€¦ · pharmacoeconomics (health economics) and outcomes research. The goal of the meetings is to bring together experts in the field

Value in Health

Established in 1998, Value in Health (ViH) is the Society’s premier scientific peer-reviewed journal,

publishing economic evaluations, patient-reported outcomes, preference-based assessments,

comparative effectiveness research, health technology assessment, and health policy analysis from

leading experts in the field.

Value in Health Regional Issues

Launched in 2012, Value in Health Regional Issues’ (ViHRI) unique value resides in covering

emerging health research topics from a wide range of geographic, socioeconomic, and health care

settings. Three issues are published each year, each focusing on one of the following regions: Asia,

Latin America, or Central & Eastern Europe, Western Asia, and Africa.

Value and Outcomes Spotlight

Value and Outcomes Spotlight (VOS) is a new key publication for the communication of news and

ideas to the ISPOR membership. Value and Outcomes Spotlight provides enhanced content on health

policy and methodological issues of relevance to members through independent contributions from the

field, the scientific program of the ISPOR meetings, and global ISPOR news items.

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ISPOR Publications

Page 24: ISPOR A Resource for Medical Writers and Editors€¦ · pharmacoeconomics (health economics) and outcomes research. The goal of the meetings is to bring together experts in the field

Value in Health

Significantly increasing impact factor

Rigorous peer review

32% increase in impact factor since 2012

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Value in Health

Ranking

Category

6th

of 76 Health Economics & Sciences

20th

of 322 Economics

9th

of 70 Health Policy & Services

Page 25: ISPOR A Resource for Medical Writers and Editors€¦ · pharmacoeconomics (health economics) and outcomes research. The goal of the meetings is to bring together experts in the field

ISPOR Publications

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ISPOR Books

– ISPOR outcomes research books are products of ISPOR Special Interest Groups (SIGs). These books are excellent resources for health care outcomes researchers and decision makers.

Page 26: ISPOR A Resource for Medical Writers and Editors€¦ · pharmacoeconomics (health economics) and outcomes research. The goal of the meetings is to bring together experts in the field

ISPOR Tools

Tools for Decision Makers

Tools for Researchers

Tools for Patients

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Page 27: ISPOR A Resource for Medical Writers and Editors€¦ · pharmacoeconomics (health economics) and outcomes research. The goal of the meetings is to bring together experts in the field

ISPOR Tools

ISPOR Tools for Health Care Decision Makers

– Pharmacoeconomic Guidelines Around the World provides an overview of pharmacoeconomic (health economic)

guidelines for 38 countries, as well as a guide for designing and conducting studies, and templates for evaluating

economic study reports or the preparation of studies included in reimbursement applications.

– ISPOR Global Health Care Systems Road Maps provide information on country / region-specific decision-making

processes for coverage, reimbursement, and pricing, including pharmaceuticals, medical devices, and diagnostics.

– The Assessing the Evidence for Health Care Decision Makers interactive questionnaire gives decision makers the

ability to provide greater uniformity and transparency in the evaluation and use of evidence for coverage and health care

decision making.

ISPOR Tools for Researchers

– The ISPOR Guidelines Index for Outcomes Research is a web-based compendium of methodology guidelines used in

generating and synthesizing health care evidence, and using evidence in health care decision making.

– ISPOR Good Practices for Outcomes Research Reports provide guidance standards on clinical, economic, and patient

reported outcomes and their use in decision making. These reports are developed by experts representing the diverse

range of stakeholders, work environments, and international perspectives.

– The ISPOR Scientific Presentations Database is a public database containing more than 25,500 abstracts of the clinical

outcomes, economic outcomes, patient-reported outcomes, health policy, or methodological research papers presented at

ISPOR meetings worldwide.

ISPOR Tools for Patients

– Patient Roundtables in Europe and North America.

– Educational videos.

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Page 28: ISPOR A Resource for Medical Writers and Editors€¦ · pharmacoeconomics (health economics) and outcomes research. The goal of the meetings is to bring together experts in the field

Tools for Decision Makers

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Page 29: ISPOR A Resource for Medical Writers and Editors€¦ · pharmacoeconomics (health economics) and outcomes research. The goal of the meetings is to bring together experts in the field

Assessing the Evidence Tool

Public online interactive questionnaires to evaluate

modeling, observational, and network meta-

analysis/indirect treatment comparison studies.

Their use provides greater uniformity and transparency

for the evaluation and use of evidence for coverage and

health care decision making.

Assessment tools are based on ISPOR Good Practices

for Outcomes Research Reports published in 2014.

Collaborative effort between ISPOR, AMCP and NPC

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Page 30: ISPOR A Resource for Medical Writers and Editors€¦ · pharmacoeconomics (health economics) and outcomes research. The goal of the meetings is to bring together experts in the field

Tools for Researchers

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Page 31: ISPOR A Resource for Medical Writers and Editors€¦ · pharmacoeconomics (health economics) and outcomes research. The goal of the meetings is to bring together experts in the field

Tools for Patients

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Page 32: ISPOR A Resource for Medical Writers and Editors€¦ · pharmacoeconomics (health economics) and outcomes research. The goal of the meetings is to bring together experts in the field

Global Networking

ISPOR Meetings – Three Each Year– ISPOR Meetings are a forum for discussion and dissemination of information surrounding the science of

pharmacoeconomics (health economics) and outcomes research. The goal of the meetings is to bring together

experts in the field to share innovative research methods and health policy developments and to provide an

opportunity to learn from each other to advance the science. The diversity in work environments and

international scope of attendance provide excellent networking opportunities and stimulating discussions and

debate. ISPOR Meetings also include small group meetings of policy makers, patient groups, and other specific-

interest groups from ISPOR’s global membership.

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ISPOR 20th Annual

International Meeting

May 16-20, 2015

Philadelphia, PA, USA

ISPOR 5th Latin

America Conference

6-8 September 2015

Santiago, Chile

ISPOR 18th Annual

European Congress

7-11 November 2015

Milan, Italy

Page 33: ISPOR A Resource for Medical Writers and Editors€¦ · pharmacoeconomics (health economics) and outcomes research. The goal of the meetings is to bring together experts in the field

ISPOR Meeting Attendance

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Page 34: ISPOR A Resource for Medical Writers and Editors€¦ · pharmacoeconomics (health economics) and outcomes research. The goal of the meetings is to bring together experts in the field

20th International Meeting-Philadelphia

May 16-20, 2015

Mix of introductory and advanced education sessions

Decision-maker, payer and patient meetings

Critical networking

Key topic workshops

Issue Panels

Edgy Plenary sessions– Taking Stock in the Learning Healthcare System—What have we achieved

and why does it matter?

– Cost-Effectiveness and Clinical Practice Guidelines—Have we reached a tipping point?

– Big Data, Big Systems, Better Evidence: What progress?

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Page 35: ISPOR A Resource for Medical Writers and Editors€¦ · pharmacoeconomics (health economics) and outcomes research. The goal of the meetings is to bring together experts in the field

ISPOR 20th Annual International Meeting

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Page 36: ISPOR A Resource for Medical Writers and Editors€¦ · pharmacoeconomics (health economics) and outcomes research. The goal of the meetings is to bring together experts in the field

eJOBS for Employers and Job Seekers

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Page 38: ISPOR A Resource for Medical Writers and Editors€¦ · pharmacoeconomics (health economics) and outcomes research. The goal of the meetings is to bring together experts in the field

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Page 39: ISPOR A Resource for Medical Writers and Editors€¦ · pharmacoeconomics (health economics) and outcomes research. The goal of the meetings is to bring together experts in the field

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Page 40: ISPOR A Resource for Medical Writers and Editors€¦ · pharmacoeconomics (health economics) and outcomes research. The goal of the meetings is to bring together experts in the field

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Page 41: ISPOR A Resource for Medical Writers and Editors€¦ · pharmacoeconomics (health economics) and outcomes research. The goal of the meetings is to bring together experts in the field

…because we are all patients

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Page 42: ISPOR A Resource for Medical Writers and Editors€¦ · pharmacoeconomics (health economics) and outcomes research. The goal of the meetings is to bring together experts in the field

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Page 43: ISPOR A Resource for Medical Writers and Editors€¦ · pharmacoeconomics (health economics) and outcomes research. The goal of the meetings is to bring together experts in the field

Thank you.

Nancy S. Berg

[email protected]

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Page 44: ISPOR A Resource for Medical Writers and Editors€¦ · pharmacoeconomics (health economics) and outcomes research. The goal of the meetings is to bring together experts in the field

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Working Groups

WorldWide Meetings

ISPOR Publications

Global Network Educational

Videos

Education

Tools for Researchers,

Decision Makers and

Patients

Online Resources

Join the Discussion

Page 45: ISPOR A Resource for Medical Writers and Editors€¦ · pharmacoeconomics (health economics) and outcomes research. The goal of the meetings is to bring together experts in the field

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Page 46: ISPOR A Resource for Medical Writers and Editors€¦ · pharmacoeconomics (health economics) and outcomes research. The goal of the meetings is to bring together experts in the field

Value in Health

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Page 47: ISPOR A Resource for Medical Writers and Editors€¦ · pharmacoeconomics (health economics) and outcomes research. The goal of the meetings is to bring together experts in the field

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