HIT Policy CommitteeConsumer Empowerment Workgroup
Listening Session on Patient-Generated Health Data
July 18, 201310:00 AM– 12:00 PM Eastern
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Agenda
• Welcome • HIPAA Privacy Rule: Right to Amend – David
Holtzman, OCR• NORC: Pilot Study on Patients’ Input to Their
Record – Praschila Dullabh, NORC• Preliminary Results From Provenance Project –
Joy Pritts, ONC• Report From Technical Expert Panel on PGHD –
Jonathan Wald, RTI• Public comment
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Discussion Questions
• What policies are needed to support the flow and use of PGHD by providers, including acceptance of PGHD and expectations of provider review?
• How can we best support inclusion of PGHD for Stage 3 MU to accelerate opportunities for consumers to share data back with providers?
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HIPAA Privacy Rule: Right to AmendDavid Holtzman, OCR
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NORC: Pilot Study on Patients’ Input to Their Record
Praschila Dullabh, NORC
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Preliminary Results From Provenance Project Joy Pritts, ONC
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Report From Technical Expert Panel on PGHD Jonathan Wald, RTI
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Public Comment