MonthlyUpdateAugust 2015

Serving New York City, Long Island, Westchester County, Hudson Valley, and Northern & Central New Jersey42 Broadway, Suite 1724, New York, NY 10004 • (212) 619-1400

www.ALS-NY.org • Facebook.com/ALSofGNY • Twitter - @ALSofGNY

AUGUST SUPPORT GROUPSNASSAU COUNTY, NYSunday, August 2nd - 1 to 3 pmNorth Shore LIJ - Plainview Hospital888 Old Country Rd., Plainview, NY 11803(Downstairs)Contact: Cindy Keyser-Posner, LMSW(631) 416-2767Topic: Open DiscussionNext month’s support group will not meet dueto Labor Day Holiday Sept. 6th

SUFFOLK COUNTY, NYTuesday, August 4th - 6 to 8 pmStony Brook UniversityDepartment of Neurology179 N. Belle Meade RoadEast Setauket, NY 11733Contact: Cindy Keyser-Posner, LMSW(631) 416-2767Topic: Open DiscussionNext month’s support group meets: Sept. 1st.

HUDSON VALLEY/FISHKILL, NYTuesday, August 4th - 6:30 to 8:30 pmAmbulatory Surgery CenterBuilding C, 3rd Floor200 Westage Business CenterFishkill, NY 12524Contacts: Helen Mayer, RN,(845) 520-0952Nancy Brenner, LCSW,(914) 406-3513Topic: Open DiscussionNext month’s support group meets: Sept. 1st.

WESTCHESTER, NY/WHITE PLAINSTuesday, August 11th- 6 to 8 pmBurke Rehabilitation Center785 Mamaroneck Avenue, Building 7White Plains, NY 10601Contacts: Helen Mayer, RN (845) 520-0952Nancy Brenner, LCSW (914) 406-3513Topic: Open DiscussionNext month’s support group meets: Sept. 8th.

NORTHERN NJ/SADDLE BROOKThursday, August 13th - 7 to 9 pmSplit Group: PALS & Caregivers willmeet separately from 7-8pmKessler Institute for Rehabilitation300 Market Street, Saddle Brook, NJ 07663Contacts: Debbie Schlossberg, LMSW(732) 710-8832Mary Ann Mertz, RN, (908) 552-5573Topic: Open Discussion Next month’s support group meets: Sept. 10th.

CENTRAL NJ/NEW BRUNSWICK Saturday, August 15th - 1:30 to 3:30 pmRobert Wood Johnson Fitness & Wellness Ctr.100 Kirkpatrick StreetNew Brunswick, NJ 08901Level 2Community Education RoomContacts: Debbie Schlossberg, LMSW(732) 710-8832Mary Ann Mertz, RN (908) 552-5573Topic: Open DiscussionNext month’s support group meets: Sept. 18th.

MANHATTAN, NYTuesday, August 18th - 6 to 8 pmMt. Sinai Beth Israel HospitalPhillips Ambulatory Care Center10 Union Square East (b/w 14th & 15th Sts.)New York, NY 10003Neurology Department, 5th Floor Conf. RoomContact: Jody Wiesel, PhD, (917) 699-9751Topic: The importance of nutritionfor the ALS patientGuest Speaker: Eileen Kapeler, RD NutritionistNext month’s support group will not meet dueto Rosh Hashanah Sept. 15th.

TELEPHONE SUPPORT GROUPSPatient group: Every Friday from 2:30 to 3:30 pmCaregivers group: Every Friday from 4 to 5 pmContact: Sue Zimmerman, LCSW(212) 720-3050.Topics include: Open discussions orMeditation and Guided Imagery forStress Reduction*Please Note: On Friday, Aug. 14,Telephone Support Groups will not be held.

Saturday, August 1st – Hudson Valley Walk to Defeat ALS Kick Off. Walkway Over the Hudson, Poughkeepsie, NY. Contact Sarah Pattison at (212) 720-3042 or spatti-son@als-ny.org for info.Thursday, August 6th – 8th Annual Carl S. Levine ALS Fundraiser from 8-11pm at The World Bar, NYC. For info: Sarah Pattison at (212) 720-3042 or spattison@als-ny.org.Saturday, August 15th – Joe Berry Memorial Softball Tournament. West Nyack, NY. Contact John Luther at digitdodger@aol.com for more info.Wednesday, August 19th – Pizza in the Park; LI Canvassing Day. Eisenhower Park, East Meadow, NY. For info: Kristen Cocoman at Cocoman@als-ny.org or (212) 720-3048.Saturday, August 29th – Hudson Valley Renegades ALS Awareness Night. Dutchess Stadium, Wappingers Falls, NY. Contact Kristen Cocoman at Cocoman@als-ny.org or (212) 720-3048 for info.SAVE THE DATE: Sunday, September 27th -“Ask the Experts” Research Update. Long Island. Contact Kim Peters at (212) 720-3054 or kpeters@als-ny.org for info.

Upcoming Events

Long Island, NYSaturday, Sept. 19

Hudson Valley, NYSunday, Oct. 18

2015 Walk Dates

WWW.ALSWALKS.ORG

(212) 720-3042

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If you took the ALS Ice Bucket Challenge last year then you were a part of a worldwide phenomenon that changed the game when it comes to the search for a cure for ALS. The Challenge was inspired by the Senerchia, Quinn, and Frates families and generated more than $100 million for The ALS Association to fund our key mission priorities of Research, Patient Services, and Advocacy. Amazingly, 17 million videos were posted on Facebook, with 10 billion views and 440 million people engaged as a result of the grassroots campaign. According to Google, more people searched for information about ALS last August than in the entire last decade.

It’s time to do it again!

The ALS Ice Bucket Challenge is now an annual event to raise awareness and funds to find treatments and a cure for ALS. The challenge will take place this August and every August until there is a cure. We’ve provided a refresher on the ALS Ice Bucket Challenge below.

Do I have to donate if I take the challenge?

No, by participating in the ALS Ice Bucket Challenge you’re already raising awareness of the disease. Making a donation, however, will help drive forward the search for treatments and a cure for ALS by funding cutting-edge research and supporting people living with the disease. So by participating and donating you can make a real difference.

Who started the ALS Ice Bucket Challenge?

The ALS Ice Bucket Challenge existed in the sporting world and had been used with other causes in the past. It started with a professional golfer named Chris Kennedy, who challenged his cousin, Jeanette Senerchia from Pelham, NY. Jeanette’s husband

Anthony has ALS. Through Facebook, one of her friends was connected to Pat Quinn from Yonkers, NY, who was connected to Pete Frates from Boston. Pat and Pete are also young men battling the disease and their social networks blasted the ALS Ice Bucket Challenge out of the Northeast to places across the country and the globe. Watch co-founders of the ALS Ice

Bucket Challenge talk about it here.

When will it start this year?

The founders of the ALS Ice Bucket Challenge kicked things off in a big way at the end of July so that people can include the ALS Ice Bucket Challenge in their summer activities during the entire month of August. It will again be a fun and exciting way for you, your family and friends to get involved in supporting a very worthy cause.

This August and Every August Until There is a Cure! For more information please contact John Nolan at (212) 720-3051 jnolan@als-ny.org or visit our website at www.als-ny.org.

The ALS Ice Bucket Challenge Is Back!

1. ACCEPT - Accept the challenge

2. RECORD - Take a video of yourself dumping a bucket of ice water over your head to increase awareness of ALS

3. UPLOAD - Upload your video to social media, tagging/challenging at least three of your friends

4. GIVE - Make a donation to the ALS Association Greater New York Chapter (als-ny.org) to support research and care services..

How do I participate in the ALS Ice Bucket Challenge?