Parkinson's Disease Foundation Annual Report '09

Annual Report 2009

DISEASE FOUNDATION

The mission of the Parkinson's Disease Foundation® (PDF®) is two-fold: to understand and find the cure to Parkinson's disease and related

movement disorders; and, for as long as this search continues, to ensurethat those individuals and families who live with Parkin son's are able

to achieve and maintain the best possible quality of life.

Funded $5 million through our diverse research programs to support the best scientific invest-ments in Parkinson’s, including

three leading Parkinson’s research centersand 24 individual investigators.

Continued our commitment totraining future leaders in Parkinson’sthrough our Fellowship and CareerDevelopment Programs, which

supported 42 fellowships for researchers, clinicians and students.

Advised, through our NationalHelpLine and Ask the Expert service,thousands of people with Parkin-son’s, family members and health

care professionals on issues relating to diagnosis, treatment, caregiving and more.

Awarded $300,000 in emergencybridge funding to four leadingParkinson’s disease scientists andsupported the promising Longi-

tudinal and Biomarker Study in PD (LABS-PD) Project.

Prepared our next class of 38people with Parkinson's to become clinical research advo-cates through our Second

Clinical Research Learning Institute.

Launched a new series of onlineeducational programs to ensurethat all people with Parkinson’shave access to the latest informa-

tion from the leaders in the field.

Celebrated our fourth year workingwith the People with Parkinson’sAdvisory Council, a group of 13individuals who advise PDF on

its programs.

Distributed 50,000 free educationalpublications to people around the US and around the world, to ensurepeople with Parkinson’s disease are

armed with the facts and resources theyneed to live well.

Recommitted ourselves to our financial assistance program(established in 2008 with an annual $50,000 grant to the Melvin

Weinstein Parkinson's Foundation) to tem-porarily cover needs of people with PD.

Received a Four-Star Rating fromCharity Navigator, making PDF theonly Parkinson’s charity to receiveboth this award and the Charity

Seal of Approval from the Wise Giving Al-liance of the Better Business Bureau (BBB).

PDF Advances in 2009

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66

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99 10

PDF Annual Report 2009

2 Letter from Leadership

4 Advancing Research

12 Advancing Education

14 Advancing Advocacy

16 Financial Reports

18 Events that Support PDF

22 Recognition of Donors

Table of CONTENTS

Dear Friend of the Parkinson’s Disease Foundation:

With pleasure, we present to you this report of the work that the Parkinson’sDisease Foundation (PDF) was able to undertake — with your help — during 2009.

If there is a single common theme that runs through our work on behalf ofthe Parkinson’s community during the year — beginning with the “Top TenList” presented on the inside cover of this report — it is the role of PDF inproviding a dynamic and productive link between the science of Parkinson’sand the people who live with it.

A prime example can be found in our programs of information and educa-tion. From the heavily-used Parkinson’s Information Service to the innova-tive and popular PD ExpertBriefings online educational series, we arecommitted to transmitting authoritative scientific information from leadingresearchers directly to people who live with Parkinson’s and their families,in this country and around the world.

To ensure that all people with Parkinson’s have access to this information,we use a variety of communication channels — from the voices and key-boards of scientific authorities; to in-person educational events; to writtenmaterials; to the Internet. Whatever may be the particular medium that weuse, our goal is the same: to share the most important science with its mostdeserving audience— the people who live every day with Parkinson’s.

Another example of this link between science and people is the work we doin helping to advance new treatments for Parkinson’s. This includes our in-novative Clinical Research Learning Institute, through which 62 leaders ofthe lay community — selected competitively through a nationwide applica-tion process — have been prepared to serve as advocates within the clinicalresearch process. They are sharing their message in communities aroundthe United States.

LetterF R O M L E A D E R S H I P

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Robin Anthony ElliottExecutive Director

Lewis P. Rowland, M.D.President, Board of Directors


This link between science and people is evident even in the financial support weprovide to programs of scientific research. A special focus of our scientific grantsprogram is to prepare scientists early in their careers— many of whom go on to become leaders of the Parkinson’s research community, in the US and beyond — to undertake investigations that will advance our understanding of Parkinson’sscience and prepare and strengthen the infrastructure for the development of new treatments.

In all of these initiatives — from the post-residency Fellows whom we supportthrough PDF’s major research centers and professional associations, to the scientificand clinical grant proposals that are submitted under our International ResearchGrants and Fellowships Programs — the two watchwords of our approach are excellence, as attested to by the rigorous standards of professional peer review, and relevance to understanding and treating Parkinson’s.

We are proud of what we have been able to accomplish over the past year. It has not been easy; many thousands of non-profit organizations have felt the pinchof what has become known as the Great Recession, and PDF has not escaped this experience. But because of the resilient generosity of thousands of our donors during this difficult period, for whom Parkinson’s is such an important cause,we were able to maintain the quality, number and diversity of our programs.

For this, we thank you, and we hope that you will find in this report of our achievements during 2009 solid reason both for your trust of us in the past, and for your continuing confidence in us to serve the Parkinsons’ community in the future.

Sincerely yours,

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4

For more than a half century, the Parkinson's Disease Foundation (PDF) has remained committed to funding research of the highest caliber. The stories that follow demonstrate PDF’s unique capacity to be a consistent supporter of dedicatedParkinson’s disease (PD) programs, while also remaining nimble and responsive tonew opportunities. These efforts are guided by PDF’s Scientific Advisory Commit-tee, a group of leading, international Parkinson's researchers that is headed byStanley Fahn, M.D., PDF’s Scientific Director. Total expenditures on scientific research in 2009 reached almost $5.7 million, 57 percent of our total budget.

Investing in Leading Parkinson’s Research CentersThrough its Center Grants

Program, PDF provides funding

to select groups of scientists who

are committed to understanding

and solving Parkinson’s. Center

Grants allow a strong group of

talented scientists, working on

separate but related Parkinson’s

projects, the flexibility necessary

to collaborate and advance our

understanding of Parkinson’s

disease. PDF’s Research Centers are funded based on continuing excellent performance, as

attested to by peer review. In 2009, the Center Grants program accounted for more than

$3.2 million — more than 50 percent of our total research budget.

Currently, PDF awards Center Grants to the clinical and basic science research programs

at three prestigious institutions — Columbia University Medical Center in New York; Rush

University Medical Center in Chicago; and Weill Cornell Medical Center in New York.

Scientists Discover Most Common Genetic Risk Factor for Parkinson’s

Lorraine N. Clark, Ph.D., and Karen Marder, M.D., M.P.H., two scientists supported

through PDF’s Center Grant to Columbia University, have collaborated with a team led by

Ellen Sidransky, M.D., of the National Human Genome Research Institute, to create one of

AdvancingR E S E A R C H

Parkinson's disease is a progressive neurodegenerative disease in which neurons, like the one pictured here, die over time. This tissue from a part ofthe brain affected by Parkinson's, the substantia nigra, has been stained tohelp separate healthy neurons (golden yellow) from those that are dying (dark pigment).

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“Our results reflect theachievements of a teamof bright scientists, atvarious stages of theircareers, all intently focused on Parkinson’s.Their shared knowledge,creativity and collabora-tion advances our understanding of thedisease. I am grateful to PDF for helping tomake this possible.”

— Dr. Lloyd A. Greene, Columbia University Medical Center

Microscope slide containing brain slices from a transgenic mouse that carries a mutated form of the gene LRRK2. Because mutations in this gene can cause Parkinson's disease for some people, scientists hope to use this transgenic mouse as a new tool to understand the cause and progression of the disease.

the largest clinical investigations of the genetics

of Parkinson’s ever undertaken.

Results of the study, published in the New

England Journal of Medicine, demonstrated that

people who carry a mutation in a gene known as

GBA have a significantly increased risk — over

five-fold — for developing Parkinson’s. (Muta-

tions in the GBA gene have also been shown to

cause Gaucher’s disease.) This makes the newly

identified genetic risk factor for Parkinson’s the

most common among the dozen or so genetic

factors that have been identified to date. Mu ta -

tions in the GBA gene most likely increase suscep-

tibility to PD, which when combined with other

factors, results in disease. The mechanisms by

which this happens are not yet understood and

require further research.

New ToolWill Improve Testing of New Treatments

In PDF-funded labs at Weill Cornell Medical

Center and Columbia University Medical Center,

M. Flint Beal, M.D., and Robert Burke, M.D.,

have made progress in finding a new and power-

ful tool for testing new Parkinson’s therapies and

studying the underlying causes of the disease.

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Advancing RESEARCH

Working with Chenjian Li, Ph.D., at Weill Medical College and Tinmarla Francis Oo at

Columbia University, Drs. Beal and Burke have created a unique “mouse model” that ex presses

a mutated form of the LRRK2 gene — the gene most commonly implicated as a cause of Par -

kinson’s. Their results were published in Nature Neuroscience. Their model will help scientists

to create and test new Parkinson’s treatments in the lab.

Prior to this development, progress in Parkinson’s had been hampered because scientists

did not have a model that accurately mimicked the natural course of PD in humans.

Using MRI to Better Understand Cognitive Impairment

Cognitive impairment is a common and troublesome nonmotor complication in Parkin-

son’s that can range from mild dysfunction to advanced dementia. The impact of cognitive

impairment is felt both by people living with Parkinson’s and their care partners.

Jennifer Goldman, M.D., M.S., of Rush University Medical Center has developed a

research program that uses Magnetic Resonance Imaging (MRI) to examine whether there

are changes in the structure of the brain that may accompany mild cognitive impairment and

As a member of the group funded by PDF’s Center Grant to

Columbia University, Lloyd A. Greene, Ph.D., and his team are focused on under-standing both how neurons die in Parkinson’sdisease and how to prevent the process.

Recently, this team examined tens of thou-sands of genes in a laboratory model of Parkin-son’s and found that one gene — RTP801 —appeared more commonly than any of the oth-ers. They also noted that excess levels of thisgene blocks the activity of Akt, a key cellularenzyme, from doing its job of protecting neu-rons. At this point, their research intersectedwith that of their Columbia colleague Dr. RobertBurke, who found that in animals with a form ofAkt that was resistant to the actions of RTP801,

neurons were protected — even from a toxinthat mimics Parkinson’s. The convergence ofthese two pathways demonstrates the impor-tance of Akt as a target for PD therapeutics.

In related work with their Columbia col-leagues Serge Przedborski, M.D., Ph.D., and Vernice Jackson-Lewis, Ph.D., the team foundthat rapamycin, an immunosuppressant drugused to treat kidney transplant recipients,blocks RTP801 and protects dopamine neu-rons in experi mental animal models of Parkin-son’s. Although this approach may not bepractical as a PD therapy because rapamycinseverely compromises a person’s immunesystem, scientists hope that understandinghow rapamycin works may open the door to exploring other potential treatments.

FOCUS ON Research Synergiesthrough Center Grants

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Gammon Earhart, Ph.D., P.T.Washington University School of Medicine

David Park, Ph.D.University of Ottawa, Toronto

Hardy Rideout, Ph.D.Biomedical Research Foundation, Academy of Athens

Antonio Strafella, M.D., Ph.D., F.R.C.P.C.Centre of Addiction and Mental Health, Toronto

Peter Teismann, Ph.D.University of Aberdeen, Scotland

Christian Wider, M.D.Mayo Clinic Jacksonville

Cyrus Zabetian, M.D., M.S.University of Washington

International Research Grants Awardees

Fellowship Awardees

dementia in Parkinson’s. With PDF’s support,

she conducted a pilot study of 30 people with

Parkinson’s. Among those individuals who had

the greatest cognitive impairment, she found a

shrinkage in the brain regions that are implicated

in memory function.

By helping to identify those individuals

who are most at risk for developing dementia,

Dr. Goldman's research may provide leads to

developing new therapeutic interventions for

these people.

Supporting the Work of Individual Investigators

Through its external grants program,

PDF supports the work of promising scientists

throughout the world. One initiative is our

International Research Grants Program (IRGP),

which awards grants to scientists with novel

“high risk/high reward” proposals. These

awards allow scientists to test the feasibility of

their ideas, while generating the critical prelimi-

nary data that will lead to future funding from

major institutions such as the National Institutes

of Health.

In 2009, PDF increased the size of these

grants and doubled their duration from one to

two years. In all, $1.15 million was committed

to support the work of seven Parkinson’s

research scientists. The grant recipients were

chosen from a group of nearly 160 applicants by

members of PDF’s grants review subcommittee

led by Dr. Robert Burke of Columbia University

Medical Center.


Roy Alcalay, M.D.Columbia University Medical Center

Alessandra Chesi, Ph.D.University of Pennsylvania School of Medicine

Nancy Diaz, M.D.Columbia University Medical Center

Era Hanspal, M.D.Columbia University Medical Center

Navneet Ammal Kaidery, Ph.D.Weill Medical College of Cornell University

Sachin Kapur, M.D.Rush University Medical Center

Oren Levy, M.D.Columbia University Medical Center

Leila Maybodi, M.D.Columbia University Medical Center

Amie L. Peterson, M.D.Oregon Health Sciences UniversityPDF/PSG Mentored Clinical Research Award

Markos Poulopoulos, M.D.Columbia University Medical Center

Stefan Sandberg, Ph.D.University of Washington

Daniel Schneider, M.D.Columbia University Medical Center

Pedro Soldado, Ph.D.University of California, San Francisco

Aleksandar Videnovic, M.D., M.Sc.Northwestern UniversityPDF/AANF Clinician-Scientist Development Award

Ryan Walsh, M.D., Ph.D.University of Alabama at Birmingham

Tao Xie, M.D.Columbia University Medical Center

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Advancing RESEARCH

Creating a South American Genetics Consortium on Parkinson's Disease

Scientists have recently identified several genes that, when mutated, cause rare inherited

forms of Parkinson’s disease. However, most of these studies have been conducted in the US

and other economically-developed countries. Few large-scale Parkinson’s genetic studies have

been carried out among people from developing nations.

With IRGP funding, Cyrus Zabetian, M.D., M.S., of the University of Washington in

Seattle is creating a Latin American Research Consortium on the Genetics of Parkinson’s

Disease, which will include five institutions in Argentina, Brazil, Peru and Uruguay.

Dr. Zabetian and his colleagues are aiming to collect blood specimens for DNA extraction

as well as demographic, clinical, and environmental exposure data from 1,750 people with

Parkinson’s and 1,650 people without the disease. The samples and data, held in a consor-

tium coordinating center at the Seattle Institute for Biomedical and Clinical Research in

Washington state, will provide a unique resource for future genetic research on Parkinson’s.

Bridging Research Funding Gaps

As part of its efforts to support the best science, PDF remains nimble and responsive to the

needs of the research community. In 2009, PDF awarded one-time grants of $75,000 each to

four scientists whose grants were terminated when the source of their funding collapsed. This

bridge funding ensured that promising research would not be put on hold.

These researchers included J. Timothy Greenamyre, M.D., Ph.D., of the University of

Pittsburgh; Virginia M.-Y Lee, Ph.D., of the University of Pennsylvania; David Sulzer, Ph.D.,

of Columbia University; and D. James Surmeier, Ph.D., of Northwestern University.

Each project is pursuing a novel avenue of research that may shed light on new ways of

treating Parkinson’s. For example, Dr. Lee, along with John Q. Trojanowski, M.D., Ph.D., is

focused on drug discovery that targets the misfolding, or clumping, of a protein called alpha-

synuclein. This clumping is believed to contribute to the cell death that leads to Parkinson’s.

Clinical center locations for the Latin American Research Consortium on the Genetics of Parkinson’s Disease.

9

Their team will test a variety of known com-

pounds to determine if any are effective in

preventing the protein clumping and will exam-

ine the most promising candidates for their

potential not only to treat Parkinson’s, but also,

theoretically, to slow its progression.

Supporting the Training of Young Scientists, Future Leaders

PDF’s mentored fellowships, training

opportunities and career development awards

generate interest in Parkinson’s research and

patient care among basic scientists and clinicians.

In the longer term, this can lead many of these

young scientists and clinicians to devote their

talents to the study of Parkinson’s for years, even

for their entire careers. In 2009, these awards

to 42 researchers totaled $1.2 million.

Understanding the Possible Impact of Vitamin D on Balance

Through the Parkinson’s Disease Founda-

tion/Parkinson Study Group (PSG) Mentored

Research Award, new investigators are funded

for a one-year project in patient-oriented

research in Parkinson’s under the mentorship of

an experienced investigator. Amie L. Peter son,

M.D., of Oregon Health Sciences University, the

2009 Award recipient, is focusing her fellowship

on an element of Parkinson’s that is troublesome

and risky to many living with the disease, but is

as yet underexplored: problems with falls,

strength and balance.

These issues can become serious in later-stage

Parkinson’s, yet no intervention has been found to


“With PDF’s help, we will be able to continue our research,the ultimate goal ofwhich is to expand the ‘pipeline’ of promising compoundsfor novel Parkinson’s disease therapies.”

— Dr. Virginia M.-Y Lee,University of Pennsylvania

successfully address them. And although research has shown that use of vitamin D supplements

may cause a decrease in falls among elderly people in general, this issue has not been looked at in

persons with Parkinson’s.

To address this under-studied area, Dr. Peterson began her research project, “A Pilot

Study of Balance and Vitamin D in Persons with Parkinson's Disease,” under the mentor-

ship of Jay Nutt, M.D., and Fay Horak, Ph.D. They are working with 40 people with

Parkinson’s and are measuring balance and vitamin D levels in each person.

Dr. Peterson will compare these levels in people who tend to fall versus those who do not

to see if there is any correlation between the two. She hopes that this study, if conclusive, will

lay the groundwork for a future study, investigating whether people who take a vitamin D

supplement find an improvement in balance and strength, and a decrease in their falls.

Investigating the Function of a Parkinson's Disease Gene

Scientists have identified several genes that, in rare cases, lead to an inherited form of

Parkinson's. One of these genes is called PARK9. Because yeast have a gene, called YPK9,

that is analogous to human PARK9, research into the function of this gene in yeast can have

direct implications for understanding the role of PARK9 in human health.

As a recipient of one of PDF’s Postdoctoral Fellowships for Basic Scientists, Alessandra Chesi,

Ph.D., and colleagues at the University of Pennsylvania School of Medicine dis cov ered last year

that the YPK9 protein neutralizes the toxicity of another protein — alpha-synuclein — that

builds up to toxic levels in the dopa mine neurons of people with Parkinson’s. YPK9 also

helped protect cells from environmental damage due to exposure to the metal manganese.

In humans, manganese exposure is linked to a Parkinson's-like syndrome.

This team is now investigating the mechanism through which this protection comes about,

beginning with studies in yeast and then expanding to mammalian cells. The scientists hope

that these studies will shed light on the interaction between genetic and environmental risk

factors for Parkinson's.

10

Advancing RESEARCH

Yeast with a mutant PARK9 gene die when grown in the presence of manganese.

11

Accelerating Research from “Bench to Bedside”Each year, PDF’s Advancing Parkinson’s Treatments (APT) Innovations Grant is awarded to novel

programs that attempt to remove the barriers that prevent treatments from reaching people with Parkin-

son’s. In 2009, $250,000 was allocated to this initiative.

Uric Acid and the Progression of Parkinson’s Disease

Uric acid, the chemical that at high levels can cause gout and kidney stones, may turn out to be a

“marker” for the progression of Parkinson’s. With funding in part from PDF, investigators led by Al-

berto Ascherio, M.D., Dr.P.H., and Michael Schwarzschild, M.D., Ph.D., at Harvard University analyzed

samples of blood and cerebrospinal fluid (the body fluid that bathes the brain) that had been collected

from nearly 800 people with early-stage Parkinson’s in the 1980s as part of another clinical trial.

The investigators observed that people with PD who had high to normal levels of uric acid had a

slightly reduced risk of needing to take levodopa for their Parkinson’s than those individuals with lower

uric acid levels, suggesting that they may have a slower rate of Parkinson’s progression.

The relationship between uric acid and Parkinson’s progression is not yet fully understood. Many

researchers believe that oxidative stress plays a role in Parkinson’s and uric acid is a natural antioxidant

found in the body. Researchers suspect that uric acid could not only be a specific marker for the pro-

gression of Parkinson’s but may also alter the course of the disease. These hypotheses need further ex-

ploration. A clinical trial is now underway to examine the safety of inosine, a dietary supplement which

the body converts into urate, and its ability to elevate urate levels in the blood.

Finding a Biomarker for Parkinson's Disease

Doctors do not currently have the tools either to definitively establish a Parkinson’s diagnosis or to

measure the pace at which Parkinson’s develops. These challenges prompted the creation of the Longi-

tudinal and Biomarker Study in PD (LABS-PD). The goals of this study, under the auspices of the PSG

and supported by PDF, are to better understand the natural course of Parkinson’s motor and nonmotor

symptoms and to provide a database for the development of biomarkers — that is, chemical tests and

imaging technologies that track not only the progression of the disease but may also predict the risk for

developing it.

LABS-PD has nearly 600 participants — all of whom have previously participated in a clinical

trial — and is designed to enroll future participants from other completed trials and studies. Scientists

hope that this data will yield insight into progression of Parkinson’s symptoms, rate of progression and

connection between symptoms. More importantly, researchers will compare these findings to the bio-

logical samples they collect, tracking over time how any change in the body (as shown by the samples)

relates to changes in a person’s symptoms. By doing so, they hope to identify biomarkers, which could

lead to better individualized treatment of people living with Parkinson’s.


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Through its innovative educational programs, PDF remains a trusted source of accurate, accessible information about Parkinson’s disease. In 2009, PDF allocated $1.9 million or 18 percent of its total budget towards these efforts that ensure that the Parkinson’s community receives the information needed to better understand and manage the disease.

Offering the Community First-Hand Access to Parkinson's Experts PD ExpertBriefings, a six-part interactive online educational series that participants can

view from the comfort of their home, was launched in 2009. Each 60-minute ExpertBriefing

is presented by a leader in the field of Parkinson’s research and care. The online seminars

offer practical advice for living with Parkinson’s — on issues such as care partner support,

employment, nutrition and more — and discuss the latest scientific findings in Parkinson's.

Each seminar is archived for viewing on the PDF website for one year.

The series began in September 2009 and is scheduled to run on an every-other-month basis

until June 2010. More than 2,000 individuals participated in the first two events.

Developing a Centralized Source of Parkinson's ResourcesIn 2009, PDF produced the Parkinson's Disease Resource List, a 114-page print publica-

tion that provides information about more than 650 organizations, books and websites for the

Parkinson's community. Also available online, it includes national and local resources that

address employment concerns, insurance issues, financial assistance, legal matters and more.

The concept for the Resource List developed from conversations with PDF’s People with

Parkinson’s Advisory Council (PPAC), which asked us to put together a centralized resource

that would compile information from all sources that may be useful for people with Parkin-

son's, at all ages and stages of the disease.

Over 20,000 copies of this publication were distributed to individuals in all 50 states

and 18 countries around the world in 2009.

Answering the Community’s Questions About Parkinson's DiseaseThe introduction of new promotional tactics helped us to increase the reach of our na-

tional toll-free HelpLine and Ask the Expert online service of the Parkinson’s Information

AdvancingE D U C A T I O N

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Service (PINS). Almost 8,000 people with

Parkinson’s, care partners, allied health profes-

sionals and doctors throughout all 50 states used

these services in 2009.

A significant percentage of inquiries to PINS

involved requests for financial assistance. PDF

was pleased to be able to direct these individuals

to the Helen M. Lynch Direct Aid Fund of the

Parkinson’s Disease Foundation and the Melvin

Weinstein Parkinson’s Foundation. This fund,

which was established in 2008 with the help of a

private gift, offers assistance to cover such costs

as home healthcare and the purchase of medical

equipment for individuals who meet certain eligi-

bility requirements. In 2009, this fund served

114 people in 31 states.

Educating the Community on the Importance of Clinical Trials

It is estimated that less than one percent of

people with Parkinson's participate in clinical

trials — far fewer than are needed to discover

new ways to treat symptoms or find a cure for

the disease.

As the lead organization of the PDtrials na-

tional clinical studies education and awareness

campaign, PDF recently developed the PDtrials

Partners in Progress Toolkit in collaboration with

clinical research coordinators and people with

Parkinson's. Designed for motivated leaders like

the graduates of PDF’s Clinical Research Learning

Institute and the facilitators of support groups, the

toolkit’s multi-media resources provide the means

to raise awareness of the importance of Parkin-

son’s clinical research as well as offering informa-

tion on studies that are taking place locally.


“I signed on for thefirst two in your six-part series of PD ExpertBriefings and I want to thank you for this extremely educational and supportive program. I have learned so muchfrom this series andwill certainly sign on for the rest.”

– Barbara M.,Care Partner,Atlanta, GA

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Through its programs of public advocacy, PDF partners with people with Parkin-son’s, their families and care partners on initiatives that move the cause forward.In 2009, these efforts accounted for $495,000, or five percent of our budget.

Training Clinical Research Advocates In October 2009, 38 people living with Parkinson’s disease from around the country

participated in PDF’s second Clinical Research Learning Institute.

The three-day training educated participants about the ways in which people who live

with Parkinson’s can contribute to the development of new treatments and a cure for the

disease by becoming advocates within the clinical research process — that stage of science in

which potential therapies are tested in humans. The training included educational sessions

and break-out workshops directed by leading clinical researchers, study coordinators, govern-

ment and industry representatives and former Learning Institute graduates. Following the

training, ongoing educational and networking opportunities have allowed graduates to

regularly share knowledge and compare best practices.

More than 60 advocates from both graduating classes are now working in their commu-

AdvancingA D V O C A C Y

Carolyn Weaver, a 2008CRLI graduate, is taking herhome state of Michigan bystorm by initiating a campaignthat highlights the importance ofclinical research. Working withthe Michigan Parkinson Founda-

tion (MPF), Ms. Weaver is reaching out to 50support groups about the basics of clinical re-search, resources and tips for making informeddecisions about research participation. Accord-ing to Debby Orloff, CEO of MPF, “It is incredibleto see what she has accomplished in one year ineducating people about clinical research.”

James R. Wong, Ph.D.,a 2009 CRLI graduate, isusing his background as acell biologist and his experi-ence as an advocate to edu-cate others about clinicaltrials. As a member of theCalifornia Parkinson's Group, Dr. Wong speaks at events throughout thestate about the role people with Parkinson'scan play in the clinical research process. Dr. Wong has also been appointed as the first patient representative on the steering com-mittee of the PDF-funded Longitudinal Assess-ment and Biomarkers Study (LABS-PD), underthe auspices of the PSG.

Carolyn Weaver

James R. Wong, Ph.D.

The Advocate Report:Michigan & California

15

nities to increase knowledge of Parkinson’s clini-

cal research and study participation; to provide

the perspective of a person with Parkinson's in

the clinical research process (e.g., by giving input

to research sponsors and investigators on trial

design, implementation and evaluation) and to

provide a pool of participants for clinical re-

search review and advisory panels such as Insti-

tutional Review Boards and Data Safety

Monitoring Boards.

Supporting Washington, DC AdvocatesPDF’s grant of $200,000 in 2009 to the

Parkinson’s Action Network (PAN), the Wash-

ington-based public policy voice of the Parkin-

son's community, helped to support PAN

advocates in their efforts to address Parkinson’s-

related issues on a national level.

Their accomplishments included securing

$25 million in funding for the Neurotoxin Expo-

sure Treatment Parkinson's Research (NETPR)

program of the Department of Defense. In addi-

tion, advocates worked closely with US Military

Veterans with Parkinson's Disease to ensure that

Vietnam veterans who were exposed to Agent

Orange could receive needed benefits. PAN ad-

vocates also secured support of the National MS

and Parkinson's Disease Registries Act, a bill

which would create a Parkinson's registry in the

US. Finally, advocates worked to ensure that the

Cures Acceleration Network (CAN) Act of 2009,

introduced by Senator Arlen Specter with the

aim of speeding the development of new drugs

and therapies, was included in health care

reform legislation.

“I think the Clinical Research Learning Institute made it clear that we — people with Parkinson’s,doctors, researchers —are all on the same team. We all want to cure Parkinson's.”

– Claire Henchcliffe, M.D., D.Phil,Clinical Research Learning Institute Faculty


16

AssetsCash and cash equivalents

Contributions and other receivables

Other current assets

Investments, at fair value

Fixed assets, net

Other noncurrent assets

Investments — restricted as to use

Total assets

Liabilities and net assets

Accounts payable and accrued expenses

Grants payable

Deferred compensation plan

Total liabilities

Net assets

Unrestricted

Temporarily restricted

Total net assets

Total liabilities and net assets

$4,717,558

99,234

70,689

12,621,826

515,787

326,331

320,466

$18,671,891

$810,680

1,484,622

320,466

2,615,768

14,273,908

1,782,215

16,056,123

$18,671,891

$1,992,176

251,186

107,168

10,863,814

426,072

296,540

211,854

$14,148,810

$921,696

1,759,079

211,854

2,892,630

9,857,981

1,398,199

11,256,180

$14,148,810

June 30

20082009

Statement of Financial Position

In 2009, PDF was awarded both a four-star rating from Charity Navigator and the Charity Seal of Approval from the Wise Giving Alliance of the Better Business Bureau (BBB).

FinancialR E P O R T S

17

$1,178,996

-

-

-

(444,569)

734,427

-

-

-

-

-

-

-

$734,427

$6,168,203

7,026,187

465,748

720,000

-

14,380,138

5,961,509

2,327,566

8,289,075

576,549

1,441,925

2,018,474

10,307,549

$4,072,589

$4,500,280

2,729,727

298,439

780,000

-

8,308,446

5,734,045

2,406,201

8,140,246

549,159

1,423,220

1,972,379

10,112,625

($1,804,179)

$4,989,207

7,026,187

465,748

720,000

444,569

13,645,711

5,961,509

2,327,566

8,289,075

576,549

1,441,925

2,018,474

10,307,549

$3,338,162

$347,648

-

-

-

(731,664)

(384,016)

-

-

-

-

-

-

-

($384,016)

$4,152,632

2,729,727

298,439

780,000

731,664

8,692,462

5,734,045

2,406,201

8,140,246

549,159

1,423,220

1,972,379

10,112,625

($1,420,163)

Year ended June 30, 2008

Year ended June 30, 2009

UnrestrictedTemporarilyRestricted TotalUnrestricted

TemporarilyRestricted Total

Contributions

Bequests

Special events revenue — net

Budgeted drawdown from investments

Net assets released from restrictions

Total operating support and revenue

Operating expenses:

Program services:

Research

Public information/patient informationand referral services

Total program services

Supporting services:

Management and general

Fundraising

Total supporting services

Total operating expenses

Change in net assets

Statement of Activities

Operating support and revenue:

80%

Research

57

%

Adm

inistration

& Fundraising

20

%

Advocacy

5%

Education

18

%

HOW Our Funds Were Spent

2009Percentage of dollars spent

on our mission


Note: The statement of activities does not include actual investment results.

18

The Parkinson's Disease Foundation’s generous volunteers, who remain steadfast in their commitment to fighting Parkinson’s, helped to raise more than $845,000 in2009 through special events to support PDF’s programs of research, education and public advocacy.

Bal du Printemps Celebrates Philanthropists and MovementOn May 12, 2009, PDF welcomed over 300 guests to its annual gala, Bal du Printemps, at

New York City’s Pierre Hotel. Themed a ‘Celebration of Movement,’ the event honored long-

time PDF supporters, Evan and Sandra Stern and their children — Mark, Russell, Doug, Kyle

and Anna — with the 2009 Page and William Black

Humanitarian Award and raised over $700,000.

As noted by PDF Chairman, Page Morton Black,

“The tireless commitment, leadership and philan-

thropic efforts demonstrated by the Stern Family for

more than a decade has been invaluable to PDF and

has touched every aspect of our work.”

PDF thanks the 2009 gala leadership for making

this event possible: Honorary Co-Chairs: Page

Morton Black, Amy Goldman and Judith Sulzberger, M.D.; Gala Co-Chairs: Karen Burke

Goulandris, M.D., Ph.D., Isobel Robins Konecky and Arlene Levine; Dinner Co-Chairs:

Margo Catsimatidis and Stephanie Goldman-Pittel; Master of Ceremonies, Len Berman;

and the Drury Design Group.

Young New Yorkers Celebrate SpringOn April 23, more than 425 guests joined

PDF and the Young New Yorkers for the Fight

Against Parkinson’s committee for the second

annual Celebrate Spring event at New York

City’s Hudson Terrace. The event raised

$77,000, which was directed to a research

program identified by Lucien Côté, M.D., of

Columbia University.

Events thatS U P P O R T P D F

Stephanie Goldman-Pittel (left) and Margo Catsima-tidis (second from left) present the Page and WilliamBlack Humanitarian Award to Sandra and Evan Stern.

Celebrate Spring leadership and sponsors (left to right): WilliamB. Sheehan, G. Pennington Egbert III, Missy Egbert Sheehan,Georgina B. Schaeffer, Greg Romero and John Romero.

19

Co-chairs G. Pennington Egbert III, Missy Eg-

bert Sheehan and Georgina B. Schaeffer led the

event for the second year in a row, along with their

committee of nearly 100 New Yorkers dedicated

to advancing a cure for Parkinson’s.

The co-chairs, whose fathers both lived with

Parkinson’s, noted that their work over the past

two years has involved more than raising funds

for research. “The experience of having a loved

one with Parkinson’s is what brought our group

together and Celebrate Spring makes us realize

just how many lives are touched by this disease,”

observed Mr. Egbert.

PDF Raises the Stakes for ResearchOn November 11, 2009, more than 300 peo-

ple joined PDF for Raising the Stakes at New York

City’s Capitale. Honorary Chair Annie Duke,

poker icon and runner-up on NBC’s hit show

“Celebrity Apprentice”, started the night off with a

rousing speech dedicated to the nearly one million

people in the US who live with Parkinson’s disease.

The evening included dancing, dinner, cocktails,

casino games and prizes and raised nearly $70,000.

PDF thanks event co-chairs Jose Cruz, Peter

Dorn and Doug Stern and the host committee for

their hard work in making this event a success.


The Parkinson’s DiseaseFoundation is very grateful to the manysupporters and friendswhose generositymakes our advance-ments in PD research,education and publicadvocacy possible.

Honorary Chair Annie Duke, with event Co-Chairs JoseCruz (left) and Doug Stern (right), before playing a fewhands of poker that raised funds for PD research.

20

Community Fundraising in ActionPDF Champions are the dedicated individuals — people with Parkinson's as well as their

friends, family and colleagues — who give their time and energy to raise awareness for Parkin-

son's and funds for PDF in their local communities. In 2009, PDF Champions raised over

$278,000 by organizing bake sales, running marathons, participating in bike rides and walk-

a-thons, and more!

Pottery for Parkinson’s

For Ali Shapiro Cudby, art has been a big part of her family tradition. When she decided

to do something to honor both her mother Leslie Shapiro, a painter who lives with Parkinson’s

disease, and her late grandfather, who also lived with Parkinson’s for many years, she chose to

host an art show using 100 pieces of her own pottery. The event raised over $5,500!

Ms. Cudby emphasized that it is the impact

that Parkinson’s disease has had on two generations

of her family, that has made her passionate about

contributing to the cause.

She said, “My family has the unique perspective

of seeing the amazing progress we have made over

the years in treatments for Parkinson’s, from the

time my grandfather was alive until now. This is

why I believe it’s so important to raise funds for Parkinson’s research — to improve treatments

and find a cure not just for my mom, but for other people living with Parkinson’s across the US.”

Running for Parkinson’s

For Jennifer Iaccarino, the decision to run the 2009 New York

City Marathon as a PDF Champion came after witnessing the im-

pact that the disease had on several close friends who lived with it.

A former professional fundraiser, Jennifer worked hard to get

the word out by sending emails and letters to friends, family and

neighbors. Through her personal fundraising webpage on PDF’s

website, she raised over $3,500!

As she tells us, “I am amazed at how people have responded to

my outreach with such generosity. Everyone has realized just how badly

we need a cure for this disease and with donations from family and friends, I have far surpassed

my original goal. I hope my contributions bring us closer to beating Parkinson’s.”

Pottery for sale at PDF Champion Ali Shapiro Cudby’s Pottery for Parkinson’s Art Show.

Events that SUPPORT PDF

PDF Champion, Jennifer Iaccarinoand her family, after she completedthe 2009 ING NYC Marathon.

21


Champions In Action

Samantha AdamsAnn AffinitoPump It Up for Parkinson’s

Priscilla AguilaMatthew ArendtTara ArnoldVittoria d’Aste-SurcoufVittoria & Bam’s Wedding

Bob BenjaminLight of Day Concerts

Angela BerktoldLaura BishopCoral BrooksLaurel BurrillBig Mountain Run for Dad

Jerry CagleChristopher CastaldoCastaldo Walk

Elizabeth CollinsJohn ConsolazioChicago Marathon

Robbin CouchDanielle CrumplerAli CudbyPottery for Parkinson’s

Leslie DavidsonRoss DeJongDrucilla DornLauren DrakePancakes for Parkinson’s

Darla DudleyJeri DulaneyJocelyn FloresBrandi ForbesTom Forbes’ Memorial Fund

Linda A. GagnerCortney GawronLisa GermainSkate For Parkinson’s

Brian GilbartChicago Marathon

Linda Giorgilli (Rice)Clara GordonTerri HelregelDonald HennShelly HornerJennifer IaccarinoNew York City Marathon

Randi JacobsBruce JaggardCity of Oaks Marathon

Katherine JaggardCity of Oaks Marathon

Robin JumperGrand Gala Opening for Celebrate Creativity Art Show

Lindsay KaldorMiami Marathon

Elizabeth KeshishKatie LinehanMeghan LortieBoston Marathon

Jill MarkeyHolly Masters-StantonJames McDermottDavid MelilloZwick Pro Am Golf Tournament

Patty MikutisJennifer MillerAdam MitchinsonNew York City Marathon

Donna MondaniRobert MoneganGlam Divas Show

James MooreChicago Marathon

Kim MooreChicago Marathon

Robert and Jennifer Moore

Quinn MorlockThe Run for Parkinson’s

Charles NeelyJoseph NovelloPunch Out Parkinson’s

Elizabeth O’ConnorBoston Marathon

Charles O’DonnellJeff OppenheimJoseph OrtonShannon ParryJacqueline PaulNew York City Marathon

Crystal PenneyMaryJoan PiconeTom PieriniGreat Colorado Run

Vera RamacittiChristopher RappChip ReweyMolly RiddickPancakes for Parkinson’s

Sarah RobinsonRoy RodenSpin-a-Forge-a-thon

Craig RunnelsMashers Against Parkinson’s Golf Tournament

Marc RutherfordStephanie SchaeferJuan SerratoPablo’s Run for a Cause Marathon

Julie SilvaThomas SilverBerlin Marathon

Lani SkelleyNew Day New Hope Dance Show

Lauren SmithAlanna Steffen-Nelson

Carolyn StephensonLinda StorbeckFlip Flop Walk

Larry StraussSharon TariffMaisie TuckerSally Tumas-SkoricAnthony TumoloPamela WarfordDana WashingtonMelanie WebbDebbie WeberBig “M” Run

Cindi WeissblattAudrey WinthropParkinson’s Open Road Race

Gillian WoodsThomas ZackRockin’ on the River

The Parkinson's Disease Foundation applauds our grassroots fundraisers, whose efforts from July 1, 2008 to December 31, 2009 not only helped PDF to fund promising research, but also served to raise awareness in communities around the US about the impact of this disease.

22

Irving and Lorraine AaronColman and Nancy AbbeRobert W. AbelsRichard and Patricia AboiaLenora AbramowitzNorman and Mary AbramsMartin AbschutzStephen and Marsha Ackerman

Carol H. AdragnaMark A. AhlemannRichard and Sue AhlvinMr. and Mrs. Robert M. Aiken

Mr. and Mrs. Roger E. Ailes

Richard S. Aldrich, Jr.Thomas and Ann Alexander

Timothy AlexanderEthel Strong AllenGeorge and Jodie AllenGreg AllenHoward W. AllenRon Alterman, M.D.Mr. and Mrs. Jefferson Amacker

Paul AmidonMr. and Mrs. Richard Anastasi

Terry AncelJanet S. AndersenGary AppelGigi ArledgeDaniel ArmstrongFrederick W. ArndtJeffrey and Shari AronsonWalter E. ArpsJohn and Anne AthertonDr. Thomas AtkinsSharon BakerEvelyn S. BalikDr. and Mrs. Walter Ballinger

Roslyn BarashTerry Barnes

Thomas BarrPatricia BarrsRichard F. Barry, IIISamuel BarstSandi BartelDoris BatoPeter and Emily BauerLee and Dorothy Baumgarten

Sandra BealJohn and Virginia BeamanTeresa BeasleyMichael and Marcia BeckRonald BeckerBernie Beiser and Wendy Beiser

Frank M. and Ranlet BellAlfonso and Hilda BellancaDr. Gardner and Mrs. Patricia Bemis

Mr. and Mrs. Don BenderSusan BenedettoStephen BenjaminElizabeth and Robert Bennett

M. Sloan BentleyAlan BercowPaul and Michelle BergerJames and Suzanne Bergoffen

Mr. and Mrs. Melvin Berlin

Deborah Berman and Bruce Greenberg

Josh BernsteinPhilip BertoleDavid and Carol BerwindMr. and Mrs. David Bescherer

Louis BiglianiAndrea BillhardtDr. Maurice and Ms. Sarah Birdwell

Lewis BlackKyle BlackmonDavid and Mary Blair

Cliff and Arlene BlakerJames and Carol BlannSteven R. BlockSean and Rosanne Bloodwell

Theodore and Flora Blumenthal

James and Helen BoboBrian BockschRichard BohlenBenjamin and Betty BohrEdward and Patricia BoothCharles A. Bordner, Jr.Diana and Garrett BoutonDierdra BowditchRoger M. BowmanMr. and Ms. Paul C. BoydJohn BradyHelen P. BrennemanMichael and Tracess Brenner

Ruth and Martin BresslerRobert and Diane BroganArthur and Nancy BrollMichael BronderAngela and David BrownJoanna Welty BrownWilliam and Sally BrownVivienne BruckmanBunyan BryantAmy and Arthur BuckmanKlaus and Robyn Burckhardt

Dr. Robert Burke and Dr. Sharon Wardlaw

Kimberly L. Fehrle BurnsJames and Debbie BurrowsKaren J. BushawJudy BuyanMargery ByersRobert and Patricia Caldwell

William CameonMr. and Mrs. Peter Campbell

Mr. and Mrs. Joaquin Campo

Lourdes and Jose CamponJeff and Dieta CaoRobert and Mary CapaldiNorma M. CardinalJohn and Margo Catsimatidis

Marie CecilBernard and Linda ChalfinRaymond M. Champion, Jr.Adam ChasnowLois A. ChazenMr. and Mrs. Thomas Cherner

Charles ChernickSusan CherryMr. and Mrs. William B. Chiasson

Doris ChristmanRichard ChurchillAnthony and Patricia Cilluffo

Carol C. Clark, Ph.D. and Charles Parkhurst

Aaron and Wendy ClaytonMarlynn ClaytonA. Peter ClemRalph ClineTom CochranDayl CohenMendel CohenMichael and Eileen CohenRobert CohenGerard and Joan ColeKenneth ColemanJosephine CollinsRuth G. ConklinRobert and Keri CooneyAllan and Carey CooperArlene and Walter CooperKarl CooperThomas A. CooperKatharine T. CorneliusNorman and Helen Coulson

Individuals

The following are the names of individuals, families, foundations and corporations who have made cumulative gifts of $500 or more between July 1, 2008 and December 31, 2009.

Recognition of DONORS

Carol A. CowanJohn and Judith CraigDave and Andy CrossRev. Carol C. CruikshankJose R. CruzJudi and Gene CurryJohn CzarneckiDavid D’AmicoPhilip Danley and Mary Lahm

John DanstromBeverly DashevskyArthur and Patricia Davidson

Jeffrey and Louise DavisKenneth DavisMichael DavisMonty and Martha DavisNeil Davis and Judy Karver

Phyllis and CamillusDeCinces

Dr. Linton DeckThomas G. DeconcilisPatricia DegeorgesAnthony and Theresa Del Gatto

Guido D’eliaWilma DemlingDr. Opal M. DenekeRoberta B. DenningWalter DennisMr. and Mrs. Al DePaceMelissa DerflerDavid DeutschJerry DiamondsteinHorace L. Dickens, Jr.Mark DickinsonKevin DieterichE. Scott and Mary DillonDavid M. Dines, M.D., P.C.

Aida S. DishmanMichael and Barbara Ditzian

Thomas Doenitz

John F. Donahue, Jr.Barry DorfPeter J. DornTammy DoughertyChristine A. DoyleDavid and Lynette DrayChris and Jill DruryLuke and Ulana DubasBruce DummerAlfred and Joanna DunkleeJames DunnRoger C. DunnTerry DutcherScott EadsLeah EatonBrian and Karen EckhartMartha and Arthur Eldestein

W. EdwardsMrs. George P. Egbert, Jr.G. Pennington Egbert, IIISoral EglowsteinRoberta and Milton EhreDr. N. J. and Mrs. Elaine Ehrenkranz

Frances EhrlichHeather EileringCharlotte and Alan Einstein

Stafford N. EliasRobin A. Elliott and Dr. Sheila C. Gordon

Ernest EllisonRuss and Shirley EnnsGeorge EnsenatKathryn ErnstMr. and Mrs. Steven ErreraJeffrey and LeeAnn Ettinger

Uzi and Anat EvronMr. and Mrs. Terry EwardDr. Stanley and Mrs. Charlotte Fahn

Sal and Dolores FalcigliaJohn P. FalkSteven Farber

Joan E. FaroKenneth H. FastLeonard and Gloria FazioAnn FergusonGeorge FeskoDavid and Linda FinkCatherine FischerMr. and Mrs. Stanley Fishfader

Joseph H. FlomStephen and Cynthia FloodAnthony ForgioneAlan and Tatyana FormanJack FortinskyMargaret and Keith FowlerDr. Robert and Mrs. Carla Fox

Ronald and Donna FrankJonathan FranzenFamily of Thom and Carol Frazier

Avram and Rhoda Freedberg

Joan FreitasBarbara and Robert FremontAnne Fribourg, Ph.D.Diane D. FriebeWilliam and Sylvia FriendElizabeth FriouMr. and Mrs. Otto W. FritzCapt. Sam Gagliano and Carole Gagliano

Jeffrey GallinDavid H. GambrellSarah Belk GambrellRenee GantAlan and Marion GarfieldRamon and Elaine Garfinkel

Diane GarrettJeanne K. GersonAnthony GiambroneG.S. Beckwith GilbertRobert M. GilhooleyChristopher GillockAnthony and Susan Gilroy

Robert and Gail GinsbergCatherine and Mariano Giordano

Richard and Sally GiulianiBetty Glass and Max Rohrlich

Isabel GlassTeresa GlodeckMorton and Claire GoetzJeffrey GoldbergMichael and Anne GoldenReynold S. Golden, M.D.Amy GoldmanDavid GoldmanSteven GoldmanBenjamin and Susan Gomez

Jill S. GoodmanRichard GoodmanDr. Robert and Mrs. Sarah Goodman

Hon. Roy GoodmanMr. and Mrs. Robert Goodrow

George and Christine G. Goon

Allan GordonJames and Ann GordonKaren Burke, M.D., Ph.D., and Peter J. Goulandris

Thomas and Anne GraceStephen L. GraessleEllen M. GrafJoan GrahamFrances GranlundDr. Michael GranofJames GrayPhilip Green, Jr. and Dona Green

Mr. and Mrs. Alan C. Greenberg

Mr. and Ms. Nicholas P. Greville

Anne and J. Scott GriffinPete and Emily GrossD. G. GumpertzGeoffrey Gund

23


Sharyn and Charles Gunderson

Shelly GuoGene GurkoffJon and Stevi GurkoffAndrew GustinLydia GustinProf. Irene A. GutheilMark GuzziFrancis and Lois A. GwinnPaul and Lorrene HaasAlyce C. HalchakJohn and Athena HalkiasJeffrey HamerNorma HammondMr. and Mrs. Adam Handwerker

J. Alan and Karen HardingDr. Marion J. HardwickMarcia L. Mac HargWilliam HarlanSteven G. Harper, M.D.William H. HarrisonHenrietta H. HartPaul F. Hastall and Elaine Sclavos

Glenn and Sharon HawkinsMark and Jill HawkinsJimmie and Kurt HayekMarc HayesRear Admiral Kenneth G. Haynes, US Navy (Ret.)

Donald B. HeadleyArthur HeardJohn and Jean Kenna HeinsLois HeinsLewis and Madalyn Helfstein

John HeroldB. Lynn HerringtonStuart HerschMarvin HerskowitzHenry G. HerzingSteven and Sherry C. Hibshman

William and Mary Hicks

Richard HildboldLaura and Lane HillSara HillPaul J. HillmanAmanda and Bret HirshWanda HizerGeorge HobergBryan HockmanMonty HoefleinTerence HoganStephen and Margot Holland

Hon Family FundKatherine HopkinsSandy and Bruce HornRichard and Marie Hornstein

Elliot HorowitzDr. David HowardEdna F. HowellTimothy P. HubarttThomas and Anne Hubbard

Deborah and Alan HuberHarold Huberfeld and Pamela Berry

Helen HudgensSeth HuhnerkochNancy J. Huntsman, Ph.D.J. A. HutchisonDr. Sonia W. HymanRalph and Barbara ItalieAndrew IturbeWilliam and Judith JacksonMr. and Mrs. Albert Jacobowitz

Donald P. JacobsRandi S. JacobsSelwyn and Marjorie Jacobs

William and Ellen JenningsArthur and Joan JentoftCarlos JerdenDonald and Marian Johnson

Michael D. Johnson

Crandall D. JonesDavid and Carolyn JonesKristin and Lewis JonesNathaniel and Judith JonesPaul JonesEleanor N. JordanJames JordanJames E. JordonSheryl and Robert Josephson

Glenn and Jean JungTimothy KacmarLeslie KahnBeryl KammererAlan and Sharon KaneDaniel KanePatrick KaneZelma KangasWilliam and Joann KansierHenry and Rita KaplanGary and Rosalind KarlitzGeorge KarnoutsosRichard and Jane KarpHerbert KatzPaul KebabianMr. and Mrs. ChristopherKeber

David and Nell-Ann KellDr. David KellerElaine P. KendRobert and Elizabeth Kennedy

Arthur and Nancy Kesselhaut

Earl and Dolores KesslerDaniel M. KeyesDr. and Mrs. Karl KieburtzMary and Franklin KilgoreScott and Mary Beth KilreaAlbert Q. KingPhyllis KingLinda S. KinzelbergMark and Lisa KirbyNicholas and Lynda KisselCarol and Foster Kivel

Mary KiyonagaJoyce KleinStephen E. KleinSuzanne and Robert KleinDr. David L. Klionsky and Ms. Eva Youshock

Marlene R. KnowlandBryan KobelElaine KoenigsbergEdgar and Eileen KoernerMr. A. and Mrs. Barbara Kohn

Emanuel and Athena Kokkinakis

Bruce and Noreen KolmanRonald and Isobel KoneckyMr. and Mrs. William Konecky

William KorthHenry and Mary KramerJanet P. KramerRebecca KramerSeymour and Arline Kreshek

James KressJudie KrestonMark Kristof and Beth WardGloria KronenbergMichael KronenbergRhett KrullaDiane L. KurtzJin Kwock and Ngan Su Lee

Barbara KyseMr. and Mrs. John LabarLeonard La MannaCecelia LanceDiane LanconAlan and Linda LandisMark LaneSheila LangDon and April LangeDr. Nancy C. LankfordManuel LarramendiDr. and Mrs. Timothy Larson

Individuals

24


Robet O. LavenSarah Le SueurJeffery R. LeakeGene G. LearyPauline M. LecomteJin LeePrice M. LeeSo Young LeeSuzanne and Robert Leggett

Mark and Gaby LehrerMr. and Mrs. Michael LeinJill LeinbachLaurie Leiner and Morton Katz

Walter and Wilma LeinhardtSally W. LeungDr. Ilan and Dr. Barbara Levi

Dina L. LevinJerome and Arlene LevineJoe and Phyllis LewisMr. and Mrs. Adolf C. Lichtenstein

Mr. and Mrs. John LiguoriRuth V. LilleyWilliam and Marilyn Lindstaedt

Cara LipshieThe Liro-Hill Family FundMr. and Mrs. Joe LissMr. and Ms. William Lockeretz

Mary Ann LockhartPeggy and Marshall LoebRobert M. LofbergJudy LongMr. and Mrs. Robert LongCommander and Mrs. Phillip Lorber

Family of Clover LovellJean LovettW. Wilson Lowery, Jr.Leonard and Rita LowyKevin LynchJ. W. and Emily Maallister

Bruce and Joanne MacCallum

John MacDonaldDr. Leonard MadesHoward N. MagillGeorge and Linda Mahoney

William B. MahoneyKathi and Frank MaisanoWilliam MakinenBrian J. MalisonBurton and Marcia Mallory

Lawrence and Janis Malone

William and Cathrine Mandi

Ellen ManianLeo and Claire ManiattyAdam MargolisLinda MarkeloffLucille MarquezDr. Philip A. MarracciniTheresa and John MarranHomer and Kathy Martinson

Mary Ann and Dale Masher

Floyd and Yvonne MasonGeorge and Priscilla MatoukWilliam and Gail MattsonMichael and Jessica Mayerson

J. Robb MayoCharles and Anita McCarthy

Mary B. McCaskeyRobert and Marsha McClearySusanna McColleyMichael and Cynthia McConnell

Ellice and Rosa McDonaldPollie McFarlandMr. and Mrs. Thomas F. McGarry

John and Helen McGrath

Austin McGrealGerald McLaughlinGordon McLeanMichael McLindenJohn and Carolyn McMichael

W. McMillinMalcolm and Sandra McNeil

Angus and Mary McPhieIris M. McQuistionPeter M. McVeyMary MeehanPaulette Z. MeiselasMichael MelnickMary A. MerowMary MeyersAndres MezaStephen and Jeanette Mihaly

Robert and Gail MilhousDoug and Marcia MillarAlfred A. MillerDr. David MillerJoseph H. MillerRichard and Lois MillerRichard and Phyllis MillerMark MilsteinEugene and Barbara Miltenberger

Stuart and Linda MirvisDeanna L. MitchellGeorge P. MitchellEna E. Mocega, M.D.Gina ModicaAnita and Arlan MoffattElena MondiniMr. and Mrs. Joseph Monteleone

Christopher and Ruth Montgomery

William J. MontgorisGeorge and Mary MooreHoward and Ginger Morgan

Kip and Marie Morgan

Audrey MorrisFlorence MorrisRobert MorrisseyJay B. MorrowMatthew and MarthaMueller

Dr. Ramazwamy Murai and Ms. Christianna Strohbeck

Michael and Nicole Murphy

Frances F. MusserJean MyersJohn B. MyersGary M. NathPaul and Marcy NathanRichard and Marty NealonJames and Alison NeislossDennis Nelson, M.D. and Marybeth Nelson

June NewmarkDr. Neil and Carol NiadMrs. Magda NieuweboerGary Nigon and Melodee Johnston

Agnes E. NixonJames and Marla NockEdward J. NohaMelissa Van Meter NorenRobert S. NorthingtonSabato NotoJoseph NovelloEugene and Joellen NowellLawrence and Melanie Nussdorf

A. R. O’ConnellThomas and Patricia O’Donnell

Mary C. O’NeillDonald and Marion OlivaRobert OlshanskyJohn and Marnie OlsonLuke O’NeilRichard and Harriet Orkand

James OrsiniNeal Ortenberg


25

26

Tim and Debra OsburneMrs. Robert Paglia and Family

Arthur PalikTony PallagrosiMr. and Mrs. Ted ParkeMichael PasuitKathy PatrickMelba PearlsteinDr. Timothy PedleyGlenn PennyHarvey and Irene PessarMrs. Virginia W. PetersFrank and Mary PetittiGeorge PetrasJames Philbin IIIHarry PhillipsSusan G. PhillipsStephen and Patricia Pickering

Donna PickettDonald and Grace PierceAlan and Elisa PinesLouise PiperNina PlattGary PodellEugene A. PoelAnne L. PoirierDrs. John and Susan Pollack

Richard and Anita PollakWilliam and Carol PollakMr. and Mrs. Henry A. Pope, Jr.

Louisa and Henry PorterRoxanne PoveromoDr. Matthew PowerArjun PrabhuFrederick PrinceGail and Ephraim ProppRonald ProvostKerry PyrchThomas and Susan Racobaldo

W. Matt and Amelia RallsGerald and Barbara Ranzal

Cathy RaphaelJohn RaphaelCheryl RappTerrie L. RayMichael Reed and Kristin Toner Reed

Jonathan S. ReevesThomas RegerRuth A. ReiderRalph and Barbara ReisSamuel RensinLlewelyn RentelAsher W. ReshThe Revoir FamilyRichard and Ellen RichmanLaurose and Burton Richter

Mr. and Mrs. Robert Riefstahl

Karen RiemWilliam F. RingierRalph N. Robbins, D.D.S.Dana RobertsEleanor L. RobertsMr. and Mrs. Jeffrey Roberts

Thomas Brenda RobertsAndrew and Harriet Rockefeller

Betty RodgersRaymond RodgersRichard RoemerRobert and Elise RokoseRobert and Heddie Romanoff

The Romero FamilyPaul and Joan RomitiMr. and Mrs. Edward Rosenblum

Lyn RosensweigMelvin S. RosenthalDr. Robert RosenthalMr. and Mrs. David Rosinus

Stephen RossDr. Harley and Mrs. Sara Rotbart

Stanley and Patricia RothSteven and Linda RourkeDr. and Mrs. Lewis P. Rowland

Drs. Stephen and Marie Rozan

Hedda RublinCarrie E. RuleNatalie RuleDr. and Mrs. James RussellThomas and Esther Safranske

Marshal and Janet SalantBetsy B. SalingerSaul and Evelyn SalkaDr. and Mrs. Henry D. Salter III

Donn and Pauline SamuelsonBetty SandfordHellyn L. Sarek and Barbara Davis

Mr. and Mrs. Ron SargentEmil and Barbara SarpaDonald and Marian SavageJohn and Deborah ScanlonRobert and Heather Schaefer

Mr. and Mrs. Roy L. Scharer

Sheryl R. Martin and Anton Schermer

William S. SchermanKeith E. SchilderSusan SchindlerSchlauch-Jen Family FundGregory SchlegelDuane and Shirley Schleiger

Carole SchlessingerMrs. Burke L. SchlossLinda SchoenhalsPaul and Esther SchragCharles and Kathren Schreck

Blair SchrumEdward SchulerBrian and Kathy Schultz

Sue SchultzJeff and Iris SchwartzMartin SchwartzNancy and Max SchwartzMr. and Mrs. Sherwood Schwartz

Mr. and Mrs. Frederick E. Schwarzmann

Thelma and Robert ScottJoel and Kathy SegallRuth L. SeidmanEthel SeifeEdward and Cynthia Seretan

Vincent D. Sexton, Jr.Emily Eileen ShanksRonald and Evelyn ShapiroTheodore and Joanna Shapiro

Stephen E. ShayMissy Egbert Sheehan and William B. Sheehan

Sidney and Lorraine Sheinberg

Dr. Sam ShelanskiDavid H. SheltonPauline and Alex ShenderRoger and Ewanna Sherburne

Cindy ShermanJack and Paula ShermanJennifer ShotwellMichael ShrimmerRose L. ShureStanley SidelC. M. Sigmon, Jr.Dr. Sandra and Arthur SilerMr. and Mrs. Andrew SilverDavid SilvermanPaul SilvermanLawrence and Renee Simmons

Joseph and Jean SimonetMichael D. SimonetJ. and Linda SimsPhilip and Karen SirianniSamuel and Beverly Sirota

Individuals


Basil G. SkalkeasHerbert and Arline SlepoyJohn F. SlusserDr. Bernard and Mrs. Sheila Small

Shirley SmallAlexa SmithBrian SmithJames SmithKevin Smith and Laurel Johnson-Smith

Leland and Marion SmithLori and James SmithYoland SmithWallace SnipesFrank SnopkoEdwina SnowB. and Mary SnyderGlenn SnyderIra and Lisa SnyderPaul and Anna May SnyderDr. Babs SollerBenjamin and Joyce Solomon

Dr. and Mrs. Marvin Solomon

Douglas SpaniolJeffrey SpenceRuth R. SpoerriGary and Carol StackhousePatrick StanleyKenneth and Alice StarrEdward StebbinsCarol SteginkJoanna SteichenRita R. SteinbergPaul SteinerNormand and Elizabeth Steisel

Thomas and Eunice StephensDouglas and Lisa SternEvan and Sandra SternJonathan and Sydney SternMark and Elle SternJennifer and David StockmanPaul and Gayle Stoffel

Marie StrebelScott StricklandWarren and Frances StricoffJo Anna K. StrizicLynda Ann and Alberto Strulovic

Christopher and Mary Jo Studwell

Arthur SuekoffCharles and Vivian SukenikJames and June SwartzEdward SwensonHope F. SyversonJonathan TaitCharles TalcottGordon TannuraTerri TarinCarol and Melvin TaubMary TaylorLouis TeitelmanDavid A. TepperAnne TernesNancy and Paul TerragnoMary K. ThomasThomas P. ThomasAnn ThompsonWilliam and Nancy Thompson

Lars and Susanne ThomsenZane and Frances ToddMaureen TokarRhonda and Phil Tomashefsky

Betty TrullingerMarshall and Gloria Tucker

Jodie and Brian TunisFrancine TurkMark and Andrea UlinskiDr. Richard and Mrs. Gail Ullman

Johanna M. Merson UtrechtRussell and Whitney Van Nuis

Meredith VanderwarkerLeslie VanmeirCraig Varrelman

Richard VaughanRobert VerkerkRenzo VescioMarina ViardoEdward M. VietorGeorge and Fran VillereFernando VivancoJoseph and Wanda VolkJules and Florine WachterDoris C. WagesKaren WaisathAlan and Sadye WaldenbergBenjamin WallMary WardellAudrey WarfieldRaymond P. WarrellGeorge and Elizabeth Watkins

Mr. and Mrs. Malcolm R. Wattman

Eliot R. WaxBridget and John WeaverElizabeth WeberThomas WeberEvelene and Robert WechslerMr. and Mrs. Harlan J. Wechsler

Audrey and John WeeMarshall and Sherre WeeksJames and Pamela WeichertJudith and Daniel WeidenthalKenneth and Susan WeilNatalia WeinrebAndrew WeinrichHerbert and Judith Weintraub

Sally W. WeintraubArthur and Bernice WeisJack and Jane WeiselbergEdward and Betty Weisenfeld

Dr. James WeissRaymond WeissMarvin WeitzMrs. Aloah Welp and FamilyH. Frederick and Suzanne Wessler

J. B. White, D.V.M.Lawrence and Susan WhiteLeonard H. WhiteNell R. WhiteLisa A. WickhamMary WiebkeMr. and Mrs. Craig WierdaRobert and Carol WilderJeffrey and Lise WilksJames S. WilliamsMr. and Mrs. Kenneth Williams

Wendy WilliamsJames and Angela Williamson

Mr. and Mrs. George E. Willis

Kenneth R. WilsonRoy WilsonDorothy WinkeyA. T. WinterfieldAnn WolfeFred and Mary WoodliefJoe and Virginia WoodsMr. and Ms. James WuWayne WuJerome and Selma YagudaThomas and Joanne YatesHenry Y. YinBeverly YoderJeffrey YostSusan and Nathan YostBarbara YouderianLarry YoungPeter and Kelly YoungGordon M. YoungerJed and Brenda ZachsEdward and Gertie ZajacJames D. ZankelSam and Edythe ZaroLouis ZimmermanCynthia ZirinskyDonald and Lynn ZuckerDr. Howard and Mrs. Patricia Zusman

Susan Zwick

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A. G. FoundationAbbott LaboratoriesAdvantage Testing, Inc.Aetna Giving CampaignKenneth Aidekman Family Foundation

Airtex Design Group, Inc.The Shana Alexander Charitable Foundation

Allay Home & Hospice, Inc.Allstate Giving CampaignThe Allyn Foundation, Inc.Amgen PAC Amicus TherapeuticsArcher Daniels Midland Company

Artisan Industries, Inc.The Atmos FoundationBank of AmericaBarish Family FoundationAlvin H. Baum Family Fund

Berner Charitable and Scholarship Foundation

Bernstein Foundation, Inc.The Mary Duke Biddle Foundation

Big Y Foods, Inc.Bisgeier Family FoundationPage & William Black Foundation

The David H. & Mary B. Blair Charitable Fund

Bloomberg L.P.Blum Family FoundationBoehringer Ingelheim Pharmaceuticals, Inc.

Bonner Family Private Foundation, Inc.

Borsky Wiesenfeld FundBoucher Charitable Foundation

Bowman, Monaco & Black, P.C.

BP Matching Fund Programs

Broadbridge Securities Processing Solutions, Inc.

Brown Charitable Foundation

The Elsie A. Brown Fund, Inc.

Cagney Insurance Network, Inc.

Campbell, Inc.Canata Family FoundationCardinal Health FoundationThe Carefree FoundationCaribbean Enterprises, Inc.Cars Helping America, L.L.C.Cassady, Schiller and Associates, Inc.

James & Nancy Casty Charitable Foundation

Cemex, Inc.Ceregene, Inc.The Dr. Lloyd & Kay Chapman Charitable Foundation

Charles River Ventures, Inc.Charlotte Pipe and Foundry Company

The Chase Fund, Inc.The Cimino Group, Inc.Citizens BankClayton Family Charitable Gift Fund

Louis & Virginia Clemente Foundation, Inc.

Coca-Cola Enterprises, Inc.Elizabeth Knight Cochran Fund of The Greater Cincinnati Foundation

The Betsy and Alan Cohn Foundation, Inc.

Columbia University Department of Neurology Endowment for Parkinson’s

Compass Wire Cloth Corp.Barbara Fatt Costikyan Fund

Karn Couzens and Associates, Inc.

Cox Communications, Inc.Jonathan C. S. Cox Family Foundation

The Cox Family Foundation

William and Sally Cross Charitable Fund

CSX CorporationEdna Williams Curl & Myron R. Cur

Customized Energy Solutions

Daffy’sDana and Jesse Lehman Foundation

Datacert, Inc.Deloitte & ToucheDeloitte ConsultingDeutsche Bank Americas Foundation

Dextra Baldwin McGonagle Foundation, Inc.

Diamantine Family Foundation, Inc.

Harriet Ford DickensonFoundation

Dinz, L.L.C.The Dopkin-Singer-Dannenberg Foundation, Inc.

Kenneth Douglas Foundation

Dreiseszun Family Foundation

Dupont Systems, Inc.Dyson FoundationEchlin FoundationEli Lilly & Company Foundation, Inc.

Elias Charitable FoundationElija Holdings, Inc.Elmwood Charity Fund, Inc.Epic Systems CorporationErnst Foundation, Inc.Essex OncologyExxon Mobil CorporationExxon Mobil FoundationFairchild Martindale Foundation

Arthur & Eve Fastenberg Philanthropic Fund

FBC Holdings, Inc.Edward J. Feiman, Ch.F.C., C.L.U. & Associates

Fercat Holdings, Inc.Feuerring FoundationMarian & Leon Finkle Foundation, Inc.

Firstgiving, Inc.Fisher Landau Center for ArtFocus On A CureForest Family FoundationThe Foundation – To Life, Inc.

Fox Family Charitable Trust

The Fremont FoundationGap, Inc.GE FoundationGerson & Gerson, Inc.Gilmon Holdings, Inc.GivingExpress Program from American Express

Ruth and Jack Glantz Family Foundation Inc.

Glencore, Ltd.Glickenhaus FoundationGolden Family Charitable Fund, Inc.

Jerome & Molly Goldstein Philanthropic Fund

The Samuel and Grace Gorlitz Foundation

Lee Gottlieb Fund, Inc.The Tom & Bonnie Grace Family Foundation

Grand Council Cryptic Masons

Eugene & Emily Grant Foundation

Greenberger Family Fund of the Jewish Communal Fund

Gwendolyn Halsey-Albertson Foundation

HarperThe Harte Auto GroupPhilip M. Hogan Family Fund

Foundations/Corporations/Organizations


Philip Holzer & Associates, L.L.C.

Syde Hurdus FoundationSheila & Milton Hyman Foundation

I Do FoundationInsurance Programmers, Inc.Isermann Family Foundation

Jack’s Glass, Inc.Jaffee FoundationJoel & Carol Jankowsky Foundation

Johnson & Johnson Family of Companies

J.P. Morgan & Co.The Kandell FundThe Max & Rose Katz Foundation, Inc.

The Kaufman FoundationHarry L. Kavetas Family Fund

The Kellogg Collection, Inc.

Kelly Family FoundationGeoffrey D. Kimball FundKit Kat Club, Inc.Sam W. Klein Charitable Foundation

The Max D. & Cecelia Knell Family Foundation

The Kohn-Claar Family Foundation

The Kortschak Family Foundation

The Kosher NoshDavid B. Kriser Foundation, Inc.

Dana and Jesse LehmanWilliam Lehrer Charitable Fund

The Leonida Family Foundation

Charles & Margaret Levin Family Foundation, Inc.

The Leon Levine FoundationToni Lieberman Family Charitable Trust

The Light of Day Foundation, Inc.

Litterman Family FoundationLitwin Foundation, Inc.Lawrence Livermore National Laboratory

Loeb & Loeb, L.L.P.Jane P. Long Fund of New York Community Trust

Lovinger Family Foundation

Lowenstein Sandler, P.C.M5, L.L.C.Mace / Mechanical Contractors, Inc.

Mahoney Donor FundAnn S. & Albert L. Maltz Foundation

Matich CorporationSamuel F. McCormack Co., Inc.

Meadors Charitable FundMedtronic, Inc.Merck Partnership For Giving

Merrill Lynch & Company Foundation

Microsoft, Inc.Midwest Groundcovers, L.L.C.The Harvey L. Miller Family Foundation

The Mirapaul FoundationEd Mobley Sunday School Class

Jeffrey Modell Foundation, Inc.

Morgan StanleyMotorola FoundationMuze, Inc.Isidore C. Myers-Joseph A. Erickson

Natcity Investments, Inc.Thomas Neal Foundation, Inc.

The Netter Foundation, Inc.New England Brokerage Company

THE JAMES PARKINSONLEGACY SOCIETYWe thank the following members ofthe James Parkinson Legacy Societywho have included PDF in their estate plans or have established acharitable gift annuity with us.

Edith Perman-AllenGertrude S. BellAila G. DaweJean DewdneyGuy EstesElizabeth A. GeiserMatilda GoodmanHarold F. JaegerAnnette KornViola B. MarshallMarie D. SchwartzMr. and Mrs. Robert W. SmithCharles L. ThomasJames B. Wittrock

29


If you have made estate plans whichinclude PDF or wish to establish a charitable gift annuity which provides you with income for life,please contact Eddie Pelto, Directorof Development at (800) 457-6676.

30

New York Times, Inc.George Harte NissanNovartis Pharmaceuticals Corporation

R. A. Novia & Associates, L.L.C.

The Calvin Flavia Oak Foundation, Inc.

Thomas P. & Patricia A. O’Donnell Foundation

Orange County Community Foundation

Richard & Harriet Orkand Charitable Foundation

The Parkinson Alliance, Inc.Parkinson’s Unity Walk, Inc.

Fred & Mabel R. Parks Foundation, Inc.

Hyman & Bessie Passman Family Charitable Foundation, Inc.

Pfizer FoundationP.G. & E. CorporationPolevoy Family FoundationThe Portmann Family Charitable Fund

Powmat, Ltd.The David C. & Jeannie Price Fund

Prince Charitable TrustsPropp Foundation, Inc.Prudential FoundationQuadel Consulting Corp.QualcommR. C. Bigelow, Inc.Raimonde Drilling Corporation

Ralph J. Duffie, Inc.Rashman CorporationRed Apple GroupThe Donald Reich Family Charitable Fund

The Robbins Family Foundation

Robert A. Romanoff Family Philanthropic Fund

Joseph Rosen Foundation

The Irene Herbert Ross & Harper Grant Ross Foundation

Royal Neighbors of America

Leon Rubach Family Foundation

SAD FoundationEdmond J. Safra Foundation

Sanky Communications, Inc.Santa Barbara FoundationSchering-Plough Corporation

Schoolhouse Records, L.L.C.The Jean & Thomas SchreiberPhilanthropic Fund

Arnold & Marie Schwartz Fund

The Ron Shapiro Charitable Foundation

Alexander Shashaty Family Foundation

Sherman Oaks Woman’s Club, Inc.

The Shubert Organization, Inc.

The Sidewater Family Foundation

Fred Siegel FoundationSiegel, O’Connor, O’Donnell & Beck, P. C.

Skadden, Arps, Slate, Meagher & Flom, L.L.P.

Snyder Watchorn Foundation, Inc.

Solvay Information Technologies, Inc.

The Spurlino FoundationSt. Lawrence NYSARCFrank & Domna Stanton Foundation, Inc.

STAR Sharing Time & Resources

John W. & Laura S. Stewart Foundation

The Dorothy Strelsin Foundation

The Sulzberger Foundation, Inc.

SVM FoundationAlexandra & Martin Symonds Foundation, Inc.

Sy Syms FoundationHenry & Marilyn Taub Foundation

Judy & Warren Tenney Foundation

Teva Neuroscience, Inc.The Ellen M. Violett & Mary P.R. Thomas Foundation

Thurston Foods, Inc.Tides FoundationTobias Bros., Inc.Toshiba America Information Systems, Inc.

Trudeau Institute TruistThe Trukenbrod Family Foundation

U.M.R. FoundationUCB, Inc.The Ullmann Family Foundation

United Refining CompanyVorst Family FoundationWachoviaWasily Family FoundationWeeds, Inc.Eric W. Weinmann Charitable Foundation

J. Weinstein Foundation, Inc.

Wellpoint Associate Giving Campaign

Wells Fargo Community Support Campaign

Wellspeak, Dugas & KaneShirley Waldbaum Witkin Foundation, Inc.

Diane & Howard Wohl Family Foundation

Mary & George H. Zimmerman Foundation

Zoe’s Best Friend, Inc.Zola Family Fund of the Community Foundation of New Jersey

Josephine AlbrechtMarie S. AtkinsThelma BeckerEmilia M. BittlesAdele S. BlankOpal E. BossHelen D. BusherLillian ColbertVera Gauthier DidierNelson C. Donald, Jr.Mary M. DuboisC. Edward DufresneJane C. DunnMargaret DuttonIrene E. FinkGeorge S. FlemisterLouise C. FruehlingErnest C. GeigerMatilda GoodmanMildred Ruth HarrellEmily M. HennerMary A. HrebicekDorothy Bauer JochemStephen KrutyFonda KurtzFlorence N. LiflandMary Helen LinderAshok MalhotraViola B. MarshallIrene M. MattoMary J. MeglinoFaith E. MessickLucille L. MillerMarga I. MooreEleanor NewmanMariano NofriDaniel F. NorthIsabel Perez TrustAnne S. RennieL. Millard RichmonJoann SchwartzHarry H. SpiegelEmerson M. WallaceCarla U. Wilkinson

Foundations/Corporations/Organizations


Estates

SUPPORT PDFThe Parkinson’s Disease Foundation (PDF)is a leading national presence in Parkinson’sdisease research, education and public advocacy. We are work ing for the nearlyone million people in the US living withParkin son’s by funding promising scientificresearch and supporting people with Parkin-son’s, their families and caregivers througheducational programs and support services.

Since its founding in 1957, PDF has fundedover $85 million worth of scientific research in Parkinson’s disease, supportingthe work of leading scientists throughoutthe world.

There are many ways in which individualscan support PDF’s es sential work.

We welcome:

• Online donations made with a credit cardon our secure website at www.pdf.org;

• Contributions by fax, phone or mail tothe PDF office at 1359 Broad way, Suite1509, New York, NY 10018;

• Tribute gifts to remember a per son whohas passed away or to honor a friend orloved one;

• Gifts of stock, bonds and mutual funds;

• Planned gifts, including be quests, chari - table trusts and charitable gift annuities;

• Monthly giving through a recurring giftautomatically charged to your credit card;

• Vehicle donation through Car ProgramL.L.C.;

• Workplace giving through Com munityHealth Charities;

• Fundraising events through PDFCham pions.

For more information on ways to give toPDF, please call (800) 457-6676 or visitwww.pdf.org.

31

Evelien Auerhamer TrustSatia Jenkins Bernen Revocable Trust

Bessemer TrustDorothy M. Booth Charitable Trust

Gladys S. Borrus TrustDorothy E. Bradford TrustElizabeth Butterworth TrustRaymond W. Carlin Family Trust

Goerge J. Chute Living TrustGus DuBois Living TrustGladys Field Charitable Lead Annuity Trust

Robert T. Follic Revocable Trust

Margaret C. Glosser Irrevocable Trust

Miriam C. Goldman TrustSol Goldman Charitable Trust

Golub Charitable TrustHal Headley TrustHel Lyn TrustMary C. Holman TrustHortley G. Leblang Charitable Trust

Hudston Charitable TrustBetty J. Ingledew TrustFrances H. Katz TrustJane E. Kerbey TrustRobert W. Knight TrustRuth M. Kroon TrustAdolph Kutner Inter Vivos Trust

Ken Larson TrustThe May F. Leeds Revocable Trust

Toni Lieberman Family Charitable Trust

Margaret D. Lienemann Charitable Trust

Minow Charitable Lead Trust

Betty Mueller TrustReva H. Newman Irrevocable Trust

The Melba M. O’Connell Trust

Isabel Perez TrustElizabeth J. Rasmussen Revocable Trust

Regions Morgan Keegan Trust

Edith Reichman TrustEsther Ruddick TrustLuxcille D. Sloan TrustThe David Tepper Charitable Lead Annuity Trust

Sophia Tomich Living TrustEric W. Weinmann Charitable Trust

Roger I. Wilkinson TrustEugenia V. Winward Revocable Trust

Woodstra Family TrustEsther Wright Trust


Trusts

OfficersPage Morton Black

Chairman

Lewis P. Rowland, M.D.President

Timothy A. Pedley, M.D.Vice President

Stephen AckermanTreasurer

Isobel Robins KoneckySecretary

Stanley Fahn, M.D.Scientific Director

DirectorsConstance Woodruff Atwell, Ph.D.Karen Elizabeth Burke, M.D., Ph.D.

Margo CatsimatidisBarbara CostikyanPeter Dorn

George Pennington Egbert IIIStephen B. Flood, Esq.Sarah Belk GambrellDaniel Gersen, Esq.Arlene LevineMarshall Loeb

Howard DeWitt MorganMarie D. Schwartz

Domna Stanton, Ph.D.Sandra Feagan Stern, Ed.D.

Melvin S. TaubMartin Tuchman

BOARD OF DIRECTORS

Carey ChristensenJoy Dryfoos

David Eger, Ph.D.Melinda Hermanns, Ph.D.

Rhona JohnsonDaniel Kiefer, J.D.

Jo-Anne Lazarus, Ph.D.Meredith Mucha, M.D. Michael O'LearyLillian Snyder

Joanna Steichen, M.S.W. Bruce Talbot Ann Wasson

Executive DirectorRobin Anthony Elliott

PEOPLE WITH PARKINSON'SADVISORY COUNCIL

J. Timothy Greenamyre, M.D., Ph.D.Oleh Hornykiewicz, M.D. J. William Langston, M.D. G. Frederick Wooten, M.D. Anne B. Young, M.D., Ph.D.

SCIENTIFIC ADVISORYCOMMITTEE

The artwork included in this publication was created by people with Parkinson’s disease and is part of PDF’s Creativity and Parkinson’s Project. This initiative seeks toexplore the therapeutic value of creativity in Parkinson’sdisease. Additional artwork from over 250 people with Parkinson’s can be viewed at www.pdf.org/en/creativity.

Main Office1359 Broadway, Suite 1509New York, NY 10018P: (212) 923-4700F: (212) 923-4778

Columbia University Office710 West 168th StreetNew York, NY 10032

Artwork Credits: Cindy DeLuz; Carol Blann; Lewis Gordon: Cover; Joseph Dawley: p. 5; Steve Retterer: p. 16

Photo Credits: Courtesy of Dr. Robert Burke: p. 4; Janet Charles: p. 5;

Courtesy of Dr. Lloyd Greene: page 6; Courtesy of Dr. Alessandra Chesi: p. 10; Janet Charles: p. 12; Patrick McMullan Company: p. 18 (top and bottom);

Janet Charles: p. 18 (center); Ricky Cheung: p. 19

© 2010 Parkinson’s Disease Foundation

(800) 457-6676 | [email protected] | www.pdf.org

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Parkinson's Disease Foundation Annual Report '09

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