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    Transition for Urban Youth with Disabilities

    Leaving Secondary Education

    By Lisa S. Cushing and Michelle Parker-Katz

    EXECUTIVE SUMMARY

    Urban youth with disabilities face

    complex uncertainties as they

    move from high school to life

    beyond, whether that ispostsecondary education, joining

    the workforce, and/or determining

    living arrangements. Given such

    problems, federal and state

    policies have increasingly focused

    on developing and strengthening

    the transition services available to

    students; that is, services aimed at

    improving the academic and

    functional achievement of

    children with disabilities to facilite

    their movement from school topost-school, including

    postsecondary education,

    employment, and independent

    living. However, transition services

    are often poorly and inconsistently

    implemented in practice,

    particularly because these services

    are not grounded in a coordinated,

    transparent, and coherent system

    that spans across federal, state,

    and local levels. As such,

    individuals with disabilities and

    their families often cannot acquire

    the information to successfully

    navigate the labyrinth of possibleprograms and services and then

    piece them together for a cohesive,

    individualized transition that

    builds toward maximum

    independence in adulthood. To

    best meet the needs of youth with

    disabilities and their families,

    current policies should be

    modified to faciliate the (1)

    formation of a coordinated

    interagency system, (2) formation

    of new partnerships amongfederal, state, and local

    institutions and agencies, (3)

    extension of services further

    beyond high school, and (4)

    development of cross-entity

    personnel training programs.

    education.uic.edu/ruep

    ABOUT THE AUTHORS

    Lisa S. Cushing is anAssociate Professor inthe Special Educationdepartment in theCollege of Educationat the University ofIllinois at Chicago.

    Michelle Parker-Katz

    is a Clinical Professor

    who teaches masters

    and doctoralstudents, coordinates

    masters programs in

    Special Education at

    UIC, and publishes

    research related to

    teacher education

    and learning.

    policyBRIEFUIC Research on Urban Education Policy Initiative

    January 2013

    Vol. 1, Book 3

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    UIC Research on Urban Education Policy Initiative

    INTRODUCTION

    Urban youth with disabilities face

    complex uncertainties as they move

    from high school to life beyond,whether that is postsecondary

    education, joining the workforce,

    and/or determining living

    arrangements. They are often ill

    prepared to plan for and make

    choices amongst existing

    postsecondary possibilities.1 The

    situation is particularly bleak for

    youth with disabilities who are also

    youth of color or poverty. They are

    the most likely group to drop out of

    high school, and many find

    themselves incarcerated,

    underemployed, or becoming

    young parents.2When they are in

    school, the range and quality of

    resources, such as specially trained

    personnel to assist with transition,

    specialized curricular offerings, and

    technology, vary greatly and are

    inequitably distributed.3When

    youth with disabilities leave school,

    they also leave behind access toschool-based mandated services.

    With the loss of those services,

    students and their families must

    locate services and supports with

    little, if any, guidance.4

    Given such problems, federal and

    state policies have increasingly

    recognized this significant period of

    life as transition, and focused ondeveloping and strengthening

    transition services available to

    youth and young adults; that is,

    services aimed at improving

    academic and functional

    achievement to facilitate

    movement from high school to

    post-school, especially

    postsecondary education,

    employment, and independent

    living. Federal legislation, such as

    the Individuals with DisabilitiesEducation Act (IDEA), No Child Left

    Behind (NCLB), and Social Security

    Act have increasingly focused on

    enhancing transition services, and

    states have interpreted and

    responded to such legislation in a

    range of ways. The emphasis on

    transition services represents an

    important step in the right

    direction. As research

    demonstrates, high quality

    transition services are critical for

    ensuring that youth with

    disabilities finish high school and

    succeed in whatever they choose to

    do as adults. However, transition

    services are often poorly and

    inconsistently implemented,

    particularly because they are not

    grounded in a coordinated,

    evidence-based, and transparentsystem that spans across federal,

    state, and local levels. Individuals

    with disabilities and their families

    accordingly find it difficult to

    acquire the information needed for

    successfully navigating the

    labyrinth of possible programs and

    services and then piecing them

    together for a cohesive

    individualized transition that builds

    toward maximum independence in

    adulthood.

    This brief examines the policy

    landscape governing transition

    services in the U.S., with specific

    attention to the major challenges

    associated with the incoherence

    and incongruence of transition

    policy. In particular, this brief

    reviews the state of the transition

    policy landscape, major problems

    of policies governing transition,

    and research on transition, andconcludes by offering

    recommendations for improving

    transition policies.

    policyBRIEF

    1 Mary E. Morningstar, Kyeong-Hwa Kim, and Gary M. Clark, Evaluating a Transition Personnel Preparation Program: Identifying TransitionCompetencies of Practitioners, Teacher Education and Special Education31, no. 1 (2008): 47. doi: 10.1177/08884064080310010.

    2 Lynn Newman, Mary Wagner, Renee Cameto, and Anne-Marie Knokey, The Post-High School Outcomes of Youth with Disabilities up to 4 Years AfterHigh School. A Report of Findings from the National Longitudinal Transition Study-2 (NLTS2) (NCSER 2009-3017) (Menlo Park, CA: SRIInternational, 2009); Mary Magee Quinn, et al., Youth with Disabilities in Juvenile Corrections: A National Survey, Exceptional Children, 71 no. 3(2005): 339 345; Melissa Sickmund,Juvenile Offenders and Victims: National Report Series Bulletin(Washington, DC: U.S. Department of Justice,2004); Mary Wagner, Characteristics of Out-of-School Youth with Disabilities, inAfter High School: A First Look at the Postschool Experiences ofYouth with Disabilities. A Report from the National Longitudinal Transition Study-2, eds. Mary Wagner, et al., (Menlo Park, CA: SRI International,2005); Mary Wagner and Maryann Davis, How Are We Preparing Students with Emotional Behavior Disturbances for the Transition to YoungAdulthood? Findings from the National Longitudinal Transition Study-2,Journal of Emotional Behavioral Disorders14, no. 2, (2006): 86-98.

    3 Susan Aud, et al., The Condition of Education 2011 (NCES 2011-033), (Washington, DC: U.S. Government Printing Office, 2011); Sheryl BurgstahlerDO-IT: Helping students with disabilities transition to college and careers, Research to Practice Brief: Improving Secondary Education andTransition Services through Research, 2, no. 3, 2003, Retrieved October 18, 2010 from www.ncset.org/publications/viewdesc.asp?id=1168; WilliamErickson, Camille G. Lee, and Sarah von Schrader, 2008 Disability Status Report: the United States, (Ithaca, NY: Cornell University RehabilitationResearch and Training Center on Disability Demographics and Statistics, 2009); U.S. Office of Special Education Programs, Facts from OSEPsNational Longitudinal Studies: Minorities among Children and Youth with Disabilities, (Menlo Park, CA: SRI International, August 2002), Retrievedon October 16, 2010 from www.nlts2.org/fact_sheets/nlts2_fact_sheet_2002_08.pdf; Audrey A. Trainor, et al., Marginalized to MaximizedOpportunities for Diverse Youths With Disabilities: A Position Paper of the Division on Career Development and Transition, Career Developmentfor Exceptional Individuals, 31, n. 1 (2008): 56- 64, doi:10.1177/0885728807313777.

    4 Burgstahler , DO-IT: Helping students with disabilities transition to college and careers.

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    THE TRANSITION POLICY

    LANDSCAPE

    Attention to transitions for youth

    with disabilities has grown in

    research and policy since the 1980s.

    In 1984, U.S. Assistant Secretary of

    Education for Special Education and

    Rehabilitation, Madeleine Will, issued

    a report highlighting the high

    unemployment rates for adults with

    disabilities, the lack of community

    services and supports for these

    individuals, and the segregation of

    supports for those who were

    receiving services. In this report, Willdefined transition as a bridge

    between the security and structure

    offered by the school and the risks of

    life.5 In 1985, educational researcher

    Andrew Halpern proposed a broader

    definition of transition by drawing

    attention to successful living in a

    community as the major goal of

    transition.6While maintaining an

    emphasis on employment and

    services that Will had proposed,

    Halpern reasoned that successful

    transition was affected by additional

    elements. Halpern underscored the

    importance of community

    integration of persons with

    disabilities and proposed a dynamic

    model in which three components

    interacted and contributed to

    successful transition: residential

    environment, social and

    interpersonal networks, and

    employment.

    With the 1990 reauthorization of the

    IDEA, transition emerged as an

    important concept in federal

    legislation.7 The 1990 and

    subsequent reauthorizations of

    IDEA in 1997 and 2004 mandatedtransition services and stated that

    transition:

    [is a process targeted at

    improvement of] the academic and

    functional achievement of the child

    with a disability to facilitate the

    childs movement from school to

    post-school activities, including

    post-secondary education,

    vocational education, integrated

    employment (including supportedemployment); continuing and adult

    education, adult services,

    independent living, or community

    participation; (b) is based on the

    individual childs needs, taking into

    account the childs strengths,

    preferences, and interests; and (c)

    includes instruction, related

    services, community experiences,

    the development of employment

    and other post-school adult living

    objectives, and, if appropriate,

    acquisition of daily living skills and

    functional vocational evaluation.8

    In the 2004 reauthorization of the

    IDEA, Congress mandated that

    Individualized Education Plans

    (IEPs), written documents required

    for all students with disabilities to

    guide the services they receive,

    include measureable postsecondary

    goals in education and training,employment, and independent

    living skills when appropriate.9

    Furthermore, the 2004 IDEA

    5 Madeline Will , OSERS Programming for the Transition of Youth with Disabilities: Bridges fromSchool to Working Life(Washington, DC: Office of Special Education and Rehabilitation Services,1984): 1.

    6 Andrew S. Halpern, Transition: A Look at the Foundations, Exceptional Children51, no. 6(1985): 479.

    7 The IDEA was originally passed as the Education for All Handicapped Children Act (EACHA) in1975. The 1990 reauthorization of the EACHA renamed the law as the IDEA.

    8 34 CFR 300.43 (a); 20 U.S.C. 1401(34).9 34 CFR 300.320(b) and (c); 20 U.S.C. 1414 (d)(1)(A)(i)(VIII).

    Transition for Urban Youth with Disabilities

    policyBRIEF

    As research

    demonstrates, high

    quality transition

    services are critical

    for ensuring that

    youth with

    disabilities finish

    high school and

    succeed in

    whatever they

    choose to do as

    adults.

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    reauthorization required IEPs to

    identify particular transition services

    that are needed for students, which

    potentially include acquiring thehelp of a representative from an

    outside agency to assist with the

    transition of services from the

    school setting to the out-of-school

    setting upon graduation.

    Within the last two decades, federal

    funding has also supported post-

    school transition services under

    programs administered by various

    federal agencies. These agencies

    include the U.S. Department ofEducation, U.S. Department of

    Health and Human Services (HHS),

    U.S. Department of Labor, and

    Social Security Administration (SSA).

    For example, the Office of Special

    Education Programs (OSEP) in the

    U.S. Department of Education has

    supported technical centers like the

    National Center on Secondary

    Education and Transition and the

    National Secondary Transition

    Technical Assistance Center(NSTTAC) that provide transition

    related resources and up-to-date

    research and data. OSEP currently

    supports the funding of fifteen

    personnel preparation grants for

    training teachers in transition at a

    total of $21 million.10 Moreover, the

    U.S. Department of Education under

    the Obama administration has

    added $2 billion to Trade

    Adjustment Assistant Grants that

    assist career readiness11 and, in April

    2012, released A Blueprint for

    Transforming Career and Technical

    Education, a proposal forreauthorizing the Carl D. Perkins

    Career and Technical Education Act

    of 2006.12According to this

    blueprint, the Obama

    administration proposed to add

    significant investments to the

    Community College Career Fund

    and subsidize high school students

    to participate in career academies.

    Several federal funding sources also

    support research about transition,

    including the National Center forSpecial Education Research and the

    Institute for Education Sciences, the

    research arm of the U.S. Department

    of Education. Outside the field of

    education, the National Institute on

    Disability and Rehabilitation

    Research (NIDRR) provides

    significant funding for centers such

    as the VR Rehabilitation Research

    and Training Center.

    Despite the significant attention andresources devoted to developing and

    implementing transition services for

    youth with disabilities, we continue

    to see a disturbing picture for youth

    with disabilities in transition. The

    following section examines the

    problems raised by policies aimed at

    developing and enhancing

    transition services, and the

    challenges that youth with

    disabilities continue to confront.

    10 Office of Special Education & Rehabilitation Services, Office of Special Education Programs,Application for New Grants under the IDEA Act: Personnel Preparation in Special Education,Early Intervention and Related Services (CFDA 84.325K)(Washington, DC: U.S. Department ofEducation, 2011).

    11 Office of Vocational and Adult Education, Summary of Investing in Americas Future: A Blueprintfor Transforming Career and Technical Education, (Washington D.C: U.S. Department ofEducation, 2012).

    12 Carl D. Perkins Vocational and Technical Education Improvement Act of 2006, Pub. L. No. 109-597; Office of Vocational and Adult Education, Investing in Americas Future: A Blueprint forTransforming Career and Technical Education, (Washington D.C.: U.S. Department ofEducation, 2012).

    policyBRIEF

    UIC Research on Urban Education Policy Initiative

    Despite the

    significant attention

    and resources

    devoted to

    developing and

    implementing

    transition services

    for youth with

    disabilities, we

    continue to see a

    disturbing picture

    for youth with

    disabilities in

    transition.

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    Transition for Urban Youth with Disabilities

    policyBRIEFDILEMMAS OF SUCCESSFUL

    TRANSITION

    The policies aimed at developing

    and enhacing transition services

    entail several interrelated problems

    that ultimately result in significant

    challenges faced by youth and young

    adults with disabilities as they move

    from high school to postsecondary

    life. The lack of a cohesive federal

    framework to support transition age

    youth is the most fundamental of

    these problems. The current system

    remains highly fragmented because

    transition-related programs areadministered by many different

    agencies. Due in part to the

    problems of such fragmentation, the

    Government Accountability Office

    (GAO) acknowledged the need for

    systemic change at the federal level

    as early as 1997.13 Moreover,

    highlighting the inefficiency,

    ineffectiveness, and economic waste

    in disability programs that stem

    from such problems, the federal

    government has placed disabilityprograms on a high risk list that it

    publishes annually.14

    The fragmented federal framework

    is marred by redundant and

    incompatible practices that

    obfuscate the processes that youth

    with disabilities must navigate to

    effectively take advantage of

    transition services. For example,

    both the SSA and Vocational

    Rehabilitation Administration (VRA)under the U.S. Department of Labor

    fund programs directed at

    employment and training for

    individuals with disabilities. Those

    programs, however, have different

    eligibility requirements, applicationprocesses, and types of services.

    Ironically, the requirements

    established by VRA, aimed at helping

    people with disabilities obtain

    employment, often make individuals

    ineligible for programs offered

    through SSAindividuals may

    become ineligible for additional

    monetary support from the SSA if

    they demonstrate their ability to

    work.15 Moreover, the lack of

    coordination and clarity on roles

    and responsibilities for providing

    services to people with disabilities

    can result in confusion as to which

    agency is responsible for funding

    specific services.

    Making the transition policy

    landscape even more complex, each

    agency is governed by its own

    statutory requirements set forth by

    several pieces of legislation.

    Examples of legislation with

    transition components include:

    Assistive Technology Act 1994,

    Developmental Disabilities

    Assistance and Bill of Rights Act 2000,

    Higher Education Act of 1965; IDEA;

    Rehabilitation Act 1973; Social

    Security Act; and, the Workforce

    Investment Act of 1998. Yet, this

    collection of legislation has left

    several significant gaps in the policy

    structures governing transition.Nowhere is that more evident than in

    the breakdown between protections

    The lack of a

    cohesive federal

    framework to

    support transition

    age youth is the

    most fundamental

    of these problems.

    13 Government Accountability Office [GAO], People with Disabilities: Federal Programs Could WorkTogether More Efficiently to Promote Employment(Washington, DC: Government Printing Office,1997).

    14 Government Accountability Office [GAO], Students with Disabilities: Better Coordination CouldLessen Challenges in the Transition from High School(Washington, DC: Government PrintingOffice, 2012).

    15 Valerie Brooke and Jennifer T. McDonough, The Facts Maam, Just the Facts: Social SecurityDisability Benefit Programs and Work Incentives, TEACHING Exceptional Children, 41, no. 1,(2008): 58-65; GAO, Students with Disabilities: Better Coordination Could Lessen Challenges inthe Transition from High School.

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    for students with disabilities under

    the IDEA when they are in school and

    protections under the range of

    federal laws that apply to youngadults with disabilities when they exit

    school.16 If a student is found to have

    a disability when in school, an IEP

    must identify all areas of need,

    provide supports and services to

    meet those needs, and support the

    students school progress. Depending

    on when a student becomes eligible

    for support under the IDEA, that

    student may receive up to 13 years of

    documented specialized education

    supports and services. The onus ofdelivering those services falls to the

    school, and the school essentially

    becomes a one-stop-shop for

    managing the students specialized

    needs.

    However, when youth with

    disabilities leave school, they enter a

    world in which a range of services

    are offered by several different

    providers that operate under

    different governance structures andutilize different processes for serving

    individuals. The various federal

    agencies that serve adults with

    disabilities generally rely on state

    and local community entities (each

    with their own set of guidelines for

    interpreting federal law) to impart

    funding and implement supports

    and services. Thus, the lack of a clear

    and coherent federal framework

    directly impacts the ability of stateand local service providers to

    communicate and coordinate with

    each other, ultimately impairing

    effectiveness and efficiency.17

    Mirroring what occurs at the federal

    level, state and local agencies

    responsible for implementing

    transition services often find

    themselves at odds about agency

    roles and expectations as well as

    funding. Responsibilities for servicesfor postsecondary education and

    training, employment and

    independent living are often

    provided inconsistently with respect

    to the quality, intensity and duration

    of services. What accounts for such

    variance? In some cases, adult

    agencies turn individuals with

    disabilities who are 22 or younger

    away because these youth can still

    receive IDEA funding.18 In other

    instances, when providers determinethat youth with disabilities are

    eligible to receive services, some

    services previously afforded may

    cease, leaving the person with the

    disability to do without or to pay out

    of pocket for what they may find

    necessary to succeed.19 For example,

    UIC Research on Urban Education Policy Initiative

    policyBRIEF

    Nowhere is that

    more evident than in

    the breakdown

    between protections

    for students with

    disabilities under

    the IDEA when they

    are in school and

    protections underthe range of federal

    laws that apply to

    young adults with

    disabilities when

    they exit school.16 Kimberly Moherek Sopko, Preparation for Postsecondary Life for Students with Disabilities, In

    Forum, June 2010, www.projectforum.org/docs/PreparationforPostsecondaryLifeforStudentswithDisabilities.pdf; Office for Civil Rights, Students with Disabilities Preparing for

    Postsecondary Education: Know Your Rights and Responsibilities(Washington D.C: U.S.Department of Education, 2004).17 Kelli Crane, Meredith Gramlich, and Kris Peterson, Putting Interagency Agreements into

    Action, Issue Brief: Examining Current Challenges in Secondary Education and Transition, 3, no2. 2004, Retrieved December 10, 2010 from www.ncset.org/publications/viewdesc.asp?id=1689.

    18 Autism Speaks, Transition Information: Michigan, available at: www.autismspeaks.org/docs/family_services _docs/transition/MI.pdf; GAO, Students with Disabilities: Better CoordinationCould Lessen Challenges in the Transition from High School, 2012.

    19 Debra Hart, Karen Zimbrich, and Teresa Whelley, Challenges in Coordinating and ManagingServices and Supports in Secondary and Postsecondary Options, Issue Brief 1, no. 6, 2002,Retrieved December 10, 2010 from www.ncset.org/publications/viewdesc.asp?id=1689; Sopko,Preparation for Postsecondary Life for Students with Disabilities; Office for Civil Rights,Students with Disabilities Preparing for Postsecondary Education: Know Your Rights andResponsibilities; Robert A Stodden, People with Disabilities and Postsecondary Education-Position paper, September 15, 2003. Retrieved October 18, 2010 fromwww.ncd.gov/newsroom/publications/education.html.

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    many students with Autism

    Spectrum Disorders require social

    and behavioral supports to

    accommodate social andcommunication deficits. Such

    supports are rarely offered in

    postsecondary institutions, leaving

    those students socially isolated. Who,

    where, and when such support

    services are offered remain unclear.

    These ambiguous expectations and

    roles among agencies effectively keep

    students with disabilities in high

    school longer rather than helping

    them transition beyond high school

    because it is the only way forstudents to receive needed services.

    Providers of transition services also

    face challenges in working with

    transition age youth with disabilities.

    While proposals to more strongly link

    K-12 education to postsecondary

    education and employment at the

    provider level are underfoot, such

    efforts have been slow to emerge.20

    The lack of longitudinal evidence of

    what works obscures serviceproviders effectiveness, causing

    providers to operate with little

    guidance with respect to the quality,

    length and intensity of services. For

    example, under the IDEA, outside

    adult agencies identified on the

    students IEP are required to be

    invited to participate in a students

    IEP/transition planning meeting.

    However, those outside agencies are

    not required to attend the meetings,

    and more often than not, outside

    personnel do not participate.21 The

    lack of coordination, clarity of roles,

    and fragmentation of work and

    funding, function as strong barriers

    to collaborative work. Within such

    uncharted territory, informationdissemination breaks down. What is

    left is a set of proposed practices

    through legislation with structures

    that are ill conceived, disparate, and

    disconnected.

    When youth exit high school, the

    obligation thus falls to them as

    adults to negotiate myriad funding

    agencies, determine which services

    are available, and determine if they

    meet the criteria for eligibility. Issuesassociated with access to

    information and resources, legal

    requirements, and services provided

    when moving from protections

    under different laws and regulations

    add up to a significant change to

    meet the needs of postsecondary

    education, employment, and/or

    independent living. This is a major

    adjustment for youth with

    disabilities because they suddenly

    must assume responsibility for

    managing all aspects of their

    disabilityfrom navigating and

    applying to all appropriate funding

    agencies, notifying an institution or

    employer of their disability, and

    advocating for specific supports and

    services they will require.22

    These problems have resulted in

    poor postsecondary education,

    employment and independent living

    outcomes for many of the 2.2 million

    transition-age youth and young

    adults with disabilities.23 Nationally,

    policyBRIEF

    Transition for Urban Youth with Disabilities

    The lack of a clear

    and coherent

    federal framework

    directly impacts the

    ability of state and

    local service

    providers to

    communicate and

    coordinate with

    each other,

    ultimately impairing

    effectiveness and

    efficiency.

    20 Office of Special Education and Rehabilitative Services, Office of Policy and Planning, TransitionActivities in the Office of Special Education and Rehabilitative Services, 2011 (Washington, D.C.:U. S. Department of Education, 2011).

    21 Crane, Gramlich, and Peterson, Putting Interagency Agreements into Action; Office of SpecialEducation and Rehabilitative Services, Office of Policy and Planning, Transition Activities in theOffice of Special Education and Rehabilitative Services, 2011.

    22 Sopko, Preparation for Postsecondary Life for Students with Disabilities.23 GAO, Students with Disabilities: Better Coordination Could Lessen Challenges in the Transition

    from High School.

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    only 72 percent of youth with

    disabilities (ranging from 56 percent

    of youth with emotional behavioral

    disorders to 95 percent youth withvisual impairments) complete high

    school.24A mere 27 percent of youth

    with disabilities attend any kind of

    school after high school.25Although

    still considered to be an under-

    represented population in

    postsecondary education, the

    percent of students with disabilities

    attending higher education has

    tripled in the past 30 years from 3

    percent to 10 percent.26 However, a

    paltry 50 percent of youth withdisabilities graduate with a degree.27

    In addition to postsecondary

    education, employment rates of

    individuals with disabilities remain

    abysmal. In August 2012,

    employment rates were three times

    higher for people without disabilities

    than with disabilities.28 Echoing

    national statistics, employment rates

    among working age individuals with

    disabilities in Illinois are less than

    half of that for people without

    disabilities.29While researchers

    continue to tout the importance of

    integration of individuals in ones

    community30

    , Illinois pays anaverage per capita cost of $142,533 a

    year to state institutions for

    individuals with developmental

    disabilities to support over 2,000

    people.31 In contrast, the state pays

    an average $53,291 per-person to

    approximately 200 community-

    based organizations that service

    nearly four times the number of

    people with disabilities.32 So,

    reforming the ways in which

    transition services are provided iscritical for the 2.2 million youth with

    disabilities in the U.S., Illinois, and

    the nation more broadly.

    RESEARCH

    Research on youth and adults with

    disabilities points to several ways in

    which transition policies can be

    productively restructured to support

    the movement from high school to

    adult life. First, building from Will

    UIC Research on Urban Education Policy Initiative

    policyBRIEF

    A mere 27 percent

    of youth with

    disabilities attend

    any kind of school

    after high school.

    24 Institute of Education Sciences, Facts from NLTS2: High School Completion by Youth withDisabilities, last modified November 2005,www.nlts2.org/fact_sheets/nlts2_fact_sheet_2005_11.pdf; Newman, Wagner, Cameto, and Knokey, The Post-High School Outcomes of Youth withDisabilities up to 4 Years After High School. A Report of Findings from the National LongitudinalTransition Study.

    25 Institute of Education Sciences, Facts from NLTS2;Newman, Wagner, Cameto, and Knokey, ThePost-High School Outcomes of Youth with Disabilities up to 4 Years After High School. A Report ofFindings from the National Longitudinal Transition Study-2 (NLTS2).

    26 Stodden, People with Disabilities and Postsecondary Education-Position Paper.27 Stodden, People with Disabilities and Postsecondary Education-Position Paper.28 Office of Disability Employment Policy, August 2012 Employment Statistics, last modified

    September 2012, www.dol.gov/odep.29 Chicago Community Trust (CCT),A Quest for Equality: Breaking the Barriers for People withDisabilities. A Call to Action for Illinois Leaders, (Chicago, IL: Chicago Community Trust, 2010).

    30 Leena Jo Landmark, Song Ju, and Dalun Zhang, Substantiated Best practices in Transition:Fifteen Plus Years Later, Career Development for Exceptional Individuals, 33, no.3, (2010): 165176, doi: 10.1177/0885728810376410; Frank R. Rusch and David Braddock, Adult Day Programsversus Supported Employment (19882002): Spending and Service Practices of MentalRetardation and Developmental Disabilities State Agencies, Research and Practice for Personswith Severe Disabilities, 29, (2005): 237242; David W. Test, et al., Evidence-Based SecondaryTransition Predictors for Improving Postschool Outcomes for Students with Disabilities, CareerDevelopment for Exceptional Individuals, 32, no. 3, (2009): 160-181, doi:10.1177/0885728809346960.

    31 Chicago Community Trust (CCT),A Quest for Equality: Breaking the Barriers for People withDisabilities. A Call to Action for Illinois Leaders.

    32 Chicago Community Trust (CCT),A Quest for Equality: Breaking the Barriers for People withDisabilities. A Call to Action for Illinois Leaders.

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    predictive of success in employment

    and postsecondary education.39 The

    remaining five were linked with

    improved outcomes inemployment.40 Research findings

    over the last decade show how a

    focus on future employment,

    education and independent living in

    high-school and beyond can help

    youth with disabilities to succeed.

    Thus, policies should infuse such

    findings into comprehensive

    frameworks and associated

    practices.

    STRUCTURE TRANSITION

    AS A DYNAMIC AND

    INDIVIDUALIZED PROCESS

    The research also indicates that

    transition should be considered a

    dynamic and individualized process

    that changes over time. As the

    student ages, goals, services, and

    supports accordingly should change.

    For example, the types of supports

    (e.g., employment such as jobshadowing versus job coaching, post

    secondary education such as help

    choosing training programs), the

    timing of services, and the intensity

    of supports should vary in direct

    relation to the needs of individualpersons going through the

    transition.41 Given this view of

    effective transition, some

    researchers have suggested that the

    public high schools should contract

    with postsecondary agencies while

    particular students move through

    high school.42 Thus, as students age,

    increasingly more postsecondary

    agencies would provide services

    alongside school-based supports.

    Ultimately, by age 22, high schoolsupports would be replaced by

    supports and services in the adult

    arena, allowing for a seamless

    transition. A related suggestion is to

    change policies at the federal level to

    make them mimic services

    individuals with disabilities receive

    under IDEA.43 This move would

    create a continuous system of

    supports that does not cease once a

    person turns 22 years old and/orleaves school. It would also better

    reflect the diverse needs of people

    0 UIC Research on Urban Education Policy Initiative

    policyBRIEF

    Research findings

    over the last decade

    show how a focus

    on future

    employment,

    education and

    independent living

    in high-school andbeyond can help

    youth with

    disabilities to

    succeed.

    39 Test et al., Evidence-Based Secondary Transition Predictors for Improving PostschoolOutcomes for Students with Disabilities, 160.

    40 Test et al., Evidence-Based Secondary Transition Predictors for Improving PostschoolOutcomes for Students with Disabilities, 160.

    41 Erik W. Carter et al., Availability of and Access to Career Development Activities for Transition-Age Youth with Disabilities, Career Development for Exceptional Individuals33, no. 3. (2010):13, doi:10.1177/0885728809344332; Erik W. Carter, et al., Exploring School-BusinessPartnerships to Expand Career Development and Early Work Experiences for Youth withDisabilities, Career Development for Exceptional Individuals32, no. 3 (2009): 145,doi:10.1177/0885728809344590; Ellen S. Fabian, Urban Youth with Disabilities: FactorsAffecting Transition Employment, Rehabilitation Counseling Bulletin, 50 no. 3 (2010): 130, doi:1-.1177/0343552070500030101; Audrey A. Trainor et al., Perspectives of Adolescents withDisabilities on Summer Employment and Community Experiences,Journal of SpecialEducation45 no. 3 (2011): 157, doi: 10.1177/022466909359424.

    42 Nicholas J. Certo et al., Seamless Transition and Long-Term Support for Individuals with SevereIntellectual Disabilities, Research and Practice for Persons with Severe Disabilities, 33, no. 3(2008): 85.

    43 Nicholas J. Certo et al., Seamless transition and long-term support for individuals with severeintellectual disabilities, 85; Nicholas J. Certo et al., Review and Discussion of a Model ofSeamless Transition to Adulthood, Education and Training in Developmental Disabilities, 38,no. 1 (2003): 3; Carolyn Hughes, Postsecondary Outcomes in the 21st centuryA Change IsGonna Come? Research & Practice for Persons with Severe Disabilities, 33, no. 3 (2008): 100;Frank R. Rusch and Pamela Wolfe, When Will Our Values Finally Result in the Creation of NewPathways for ChangeChange that We Can Believe In? Research & Practice for Persons withSevere Disabilities, 33, no. 3 (2008): 96; James R. Thompson et al., Integrating supports inassessment and planning, Mental Retardation, 40, no. 5, (2002): 390-405.

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    policyBRIEF

    Transition for Urban Youth with Disabilities

    44 Nicholas J. Certo et al., Seamless transition and long-term support for individuals with severeintellectual disabilities, 85; Hughes, Postsecondary Outcomes in the 21st CenturyA ChangeIs Gonna Come?,100; Thompson et al., Integrating Supports in Assessment and Planning, 390.

    45 Mary E. Morningstar and Gary M. Clark, The Status of Personnel Preparation for TransitionEducation and Services: What is the Critical Content? How Can it be Offered, CareerDevelopment for Exceptional Individuals, 26, no. 2 (2003): 227. doi:10.1177/088572880302600208.

    46 David R. Johnson et al., Current Challenges Facing Secondary Education and Transition: WhatResearch Tells Us, Exceptional Children, 58 no. 4 (2002): 519.

    with disabilities by providing long

    terms supports to those who require

    it.44 Thus, policies could be

    reconfigured to reflect the individualdifferences in the duration and

    intensity of transition services.

    TRAIN PERSONNEL TO

    IMPLEMENT EVIDENCE-

    BASED PRACTICES

    Putting into action research-based

    frameworks and specific practices

    falls to personnel who work in

    schools, adult service agencies and

    government organizations that serve

    youth, and adults with disabilities.

    Given the incoherence in the

    transition policy landscape, the roles

    and work responsibilities for persons

    in each location vary. In a school, for

    instance, a range of people provides

    counseling, teaches, provides

    therapeutic services, and oversees

    the overall coordination and

    management of transition supports

    and services. In adult services,personnel expectations vary in

    relation to the agency focus. Some

    personnel may work in college or

    university or trade schools, and they

    may assume roles as counselors,

    disability analysts, administrators, or

    teachers. Others adult service

    providers may be charged with

    employment supports that could

    include recruiting businesses to

    offer jobs, setting up job coaching,

    or evaluating job success. Still, other

    adult service personnel may be

    focused on determining youth

    interests or independent living

    arrangements.

    To address such problems,

    researchers have identified core

    competencies required for all

    secondary educators to implement

    best practices for transition.45 The

    competencies include knowledge of

    (1) specific curriculum and

    instruction, (2) student focused

    planning and assessment, (3) family

    involvement, (4) accountability and

    post-school outcomes, and (5)

    interagency collaboration. In each

    area, educators can gain informationabout best supports and services for

    all students, specialized supports

    and services for diverse students,

    and supports and specific transition

    services. A similar training profile

    exists for adult service personnel.46

    Such training would remedy the

    current focus on teaching discreet

    skills to a service provider to do a

    particular job, rather than

    identifying the comprehensive goals

    of each individual and directingpersonnel to connect and

    coordinate services with other

    agencies and organizations.

    RECOMMENDATIONS

    There are several possible ways that

    are grounded in research to improve

    transition policies. The most

    important step for improving

    transition policies is implementing a

    systems approach in which

    governmental departments,

    community agencies, schools, and

    As the student

    ages, goals,

    services, and

    supports

    accordingly should

    change.

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    2 UIC Research on Urban Education Policy Initiative

    personnel work cohesively and

    collaboratively to improve transition

    for youth with disabilities and

    families. As the GeneralAccountability Office recently

    recommended, the U.S.

    Departments of Education, HHS,

    Labor and SSA could form an

    interagency coalition to focus on (1)

    operating toward common outcome

    goals for transitioning youth; (2)

    increasing awareness of available

    transition services; and (3) assessing

    the effectiveness of their

    coordination efforts. All four

    agencies agreed with therecommendation.47 This federal

    initiative could open venues for

    additional joint work toward the

    alignment of requirements that have

    traditionally differed under various

    federal jurisdictions. An excellent

    example of such alignment is how

    NCLB and the 2004 reauthorization

    of IDEA coalesced. With the 2004

    reauthorization of the IDEA,

    statutory text and regulations of

    both laws began to borrow from and

    reference the other.

    Legislative and regulatory alignment

    is particularly needed between IDEA

    policies that guide transition in

    schools and policies that govern

    adult services under the VRA. Adult

    service policies such as the

    Developmental Disabilities

    Assistance and the Bill of Rights Act

    for People with Disabilities should

    mimic entitlement services

    delineated in the IDEA.48 This move

    would allow individuals with

    intellectual disabilities access to

    supported employment services and

    long term supports. Similarly, IDEA

    and adult disability policies shouldbe connected in ways that offer

    seamless support to youth with

    disabilities as they exit school. Adult

    disability policies could use

    language and definitions consistent

    in the IDEA.49 This consistency

    would help to ensure that all youth

    receiving services under IDEA would

    continue to be supported. By

    simplifying the transition process,

    this reform would also ease the

    burden on youth with disabilitiesand families as they enter the adult

    service sector. Rather than merely

    aligning such policies, the entire

    constellation of transition policies

    should be systematically revamped

    so as to provide consistency in type,

    duration, and intensity of transition

    services.

    Such reconfiguring of policies would

    require the creation of new

    partnerships across federal, state,and local institutions and

    organizations. These partnerships

    should focus primarily on improving

    information and access to resources

    for transition services to students,

    families, and service-providers. The

    elimination of redundancies in

    services would result in greater

    coordination and articulation of

    expectations, responsibilities and

    outcomes, and allow funding to be

    stretched across greater numbers of

    youth with disabilities. Partnerships

    should also focus on enabling

    policyBRIEF

    The most important

    step for improvingtransition policies is

    implementing a

    systems approach

    in which

    governmental

    departments,

    community

    agencies, schools,

    and personnel work

    cohesively and

    collaboratively.

    47 GAO, Students with Disabilities: Better Coordination Could Lessen Challenges in the Transitionfrom High School; Office of Special Education and Rehabilitative Services, OSERS TransitionData Fact Sheet, last modified May 2012, from www2.ed.gov/about/offices/list/osers/products/transition/transition-datasheet-2011.pdf.

    48 Nicholas J. Certo et al., Seamless transition and long-term support for individuals with severeintellectual disabilities, 85.

    49 Nicholas J. Certo et al., Seamless transition and long-term support for individuals with severeintellectual disabilities, 85; Rusch and Wolfe, When Will Our Values Finally Result in theCreation of New Pathways for ChangeChange that We Can Believe In?, 96.

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    Transition for Urban Youth with Disabilities

    transition service providers to

    discover, plan, implement and

    assess transition particular to

    individuals interests and capacities.Drawing on research-based

    frameworks and practices to

    structure these partnerships should

    strengthen outcomes as well.

    In addition to creating formal

    partnerships, transition policies

    should be modified to facilitate the

    implementation of promising

    programs and services that provide

    supports to individuals with

    disabilities over time and well intoadulthood. One excellent example is

    the one-stop career centers in

    which a wide array of clients can be

    served. The 1998 Workforce

    Investment Act (WIA) mandated

    One-Stop Career Centers in order to

    bring together federally funded

    employment and training programs

    with those seeking jobs.50 Currently

    there are 1760 comprehensive one-

    stop centers and close to 1000

    affiliated centers in the U.S., which

    can be found via a zip code to locate

    local services.51 The state of

    Michigan provides another example

    of how policies can be modified to

    provide support over time. The state

    requires schools to educate students

    in some disability categories to age

    26, instead of to age 22 as required

    by federal law.52

    Partnerships between service

    providers and higher education

    should also play a critical role in

    enhancing the coordination of

    transition services between federal,state, and local organizations and

    institutions. For example, the

    Institute on Disability/UCED,

    housed at the University of New

    Hampshire, is aimed at providing a

    coherent university-based focus for

    the improvement of knowledge,

    policies, and practices related to the

    lives of persons with disabilities and

    their families.53 The Institute on

    Disability recently initiated a three-

    year funded project through the U.S.

    Centers for Disease Control and

    Prevention to examine health

    disparities for persons with

    disabilities in New Hampshire. Such

    work is further echoed in 27 U.S.

    TPSID grants worth over $10.9

    million that were awarded in 2010 to

    two- and four-year institutions of

    higher education to fund programs

    for helping persons with intellectual

    disabilities transition to post-secondary education programs.54 In

    addition to federal, state and local

    affiliations, the program requires the

    integration of other key players,

    such as businesses and higher

    education institutions, in ways that

    enable a mixing of community

    resources to set joint aims and

    challenges and create beneficial

    processes for implementing the

    work.

    policyBRIEF

    Partnerships

    between service

    providers and

    higher education

    should also play a

    critical role in

    enhancing the

    coordination of

    transition services

    between federal,

    state, and local

    organizations and

    institutions.

    50 U.S. Department of Labor, Employment and Training, Administration 20 CFR Part 652 andParts 660 through 671, Federal Register65, no. 156 (August 11, 2000).

    51 Career One Stop, Americas Service Locator, last modified 2012, www.servicelocator.org/onestopcenters.asp.

    52 Autism Speaks, Transition Information: Michigan, available at: www.autismspeaks.org/docs/family_services_docs/transition/MI.pdf.

    53 Institute on Disability, About the Institute on Disability, last modified 2011, www.iod.unh.edu.54 Office of Postsecondary Education, The Model Comprehensive Transition and Postsecondary

    Programs for Students with Intellectual Disabilities (TPSID). Grant Announcement. 84.407A,last modified July 8, 2011 www2.ed.gov/programs/tpsid/index.html.

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    4 UIC Research on Urban Education Policy Initiative

    Lastly, higher education institutions

    should become a key partner of

    federal, state, and local institutions

    and organizations for improving thetraining of transition personnel.

    University faculty should engage in

    an ongoing process of conducting

    research and sharing research

    findings with transition personnel.

    From the data, researchers should

    present analyses and help lead

    conversations amongst federal,

    state, and local partners to create

    training program curricula.

    Moreover, policy should support

    higher education in designing andimplementing evaluation and

    research to assess the outcomes of

    such partnerships.

    CONCLUSION

    Taken together, transition services

    for youth and adults with disabilities

    are slowly beginning to change in

    aims, structures, processes, and

    outcomes. Forming a coordinated

    interagency system, inviting new

    partners to the coalition who

    traditionally have not been part ofconversations, extending services by

    beginning earlier and lasting longer

    depending on who shows a need,

    and developing cross-entity

    personnel training programs should

    comprise key elements of a

    framework that connects disparate

    agencies and organizations and

    ultimately supports the 2.2 million

    transition age youth with disabilities

    and their families. Finally,

    supporting strong research toconduct evaluation of such work,

    processes, and effects should

    facilitate a final important

    component to transition reform:

    integrating ideas for change from

    not only all providers, but also the

    direct recipients of servicesthe

    youth and adults with disabilities

    and their families.

    policyBRIEF

    Such reconfiguring

    of policies would

    require the creation

    of new partnerships

    across federal,

    state, and localinstitutions and

    organizations.

    The contents of this policy brief were developed in part from funds under a grant fromthe US Department of Education, #H325K110509. However, those contents do notnecessarily represent the policy of the US Department of Education, and you should notassume endorsement by the Federal Government. Project Officer, Corinne Weidenthal.

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    ABOUT US

    The Research on Urban Education Policy Initiative (RUEPI) is an education policy research project based in

    the University of Illinois at Chicago College of Education. RUEPI was created in response to one of the most

    significant problems facing urban education policy: dialogue about urban education policy consistently fails

    to reflect what we know and what we do not about the problems education policies are aimed at remedying.

    Instead of being polemic and grounded primarily in ideology, public conversations about education should

    be constructive and informed by the best available evidence.

    OUR MISSION

    RUEPIs work is aimed at fostering more informed dialogue and decision-making about education policy in

    Chicago and other urban areas. To achieve this, we engage in research and analysis on major policy issues

    facing these areas, including early childhood education, inclusion, testing, STEM education, and teacher

    workforce policy. We offer timely analysis and recommendations that are grounded in the best available

    evidence.

    OUR APPROACH

    Given RUEPIs mission, the projects work is rooted in three guiding principles. While these principles are not

    grounded in any particular political ideology and do not specify any particular course of action, they lay a

    foundation for ensuring that debates about urban education policy are framed by an understanding of how

    education policies have fared in the past. The principles are as follows:

    Education policies should be coherent and strategic

    Education policies should directly engage with what happens in schools and classrooms

    Education policies should account for local context

    RUEPI policy briefs are rooted in these principles, written by faculty in the University of Illinois at Chicago

    College of Education and other affiliated parties, and go through a rigorous peer-review process.

    Learn more at www.education.uic.edu/ruepi

    policyBRIEF

    Transition for Urban Youth with Disabilities

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    CONTACT US

    [email protected]

    education.uic.edu/ruepi

    facebook.com/ruepi

    FOLLOW US

    policyBRIEFUIC Research on Urban Education Policy Initiative

    1040 West Harrison StreetChicago, Illinois 60607


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