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Transition for Urban Youth with Disabilities
Leaving Secondary Education
By Lisa S. Cushing and Michelle Parker-Katz
EXECUTIVE SUMMARY
Urban youth with disabilities face
complex uncertainties as they
move from high school to life
beyond, whether that ispostsecondary education, joining
the workforce, and/or determining
living arrangements. Given such
problems, federal and state
policies have increasingly focused
on developing and strengthening
the transition services available to
students; that is, services aimed at
improving the academic and
functional achievement of
children with disabilities to facilite
their movement from school topost-school, including
postsecondary education,
employment, and independent
living. However, transition services
are often poorly and inconsistently
implemented in practice,
particularly because these services
are not grounded in a coordinated,
transparent, and coherent system
that spans across federal, state,
and local levels. As such,
individuals with disabilities and
their families often cannot acquire
the information to successfully
navigate the labyrinth of possibleprograms and services and then
piece them together for a cohesive,
individualized transition that
builds toward maximum
independence in adulthood. To
best meet the needs of youth with
disabilities and their families,
current policies should be
modified to faciliate the (1)
formation of a coordinated
interagency system, (2) formation
of new partnerships amongfederal, state, and local
institutions and agencies, (3)
extension of services further
beyond high school, and (4)
development of cross-entity
personnel training programs.
education.uic.edu/ruep
ABOUT THE AUTHORS
Lisa S. Cushing is anAssociate Professor inthe Special Educationdepartment in theCollege of Educationat the University ofIllinois at Chicago.
Michelle Parker-Katz
is a Clinical Professor
who teaches masters
and doctoralstudents, coordinates
masters programs in
Special Education at
UIC, and publishes
research related to
teacher education
and learning.
policyBRIEFUIC Research on Urban Education Policy Initiative
January 2013
Vol. 1, Book 3
7/29/2019 RUEPI Transition for Urban Youth
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UIC Research on Urban Education Policy Initiative
INTRODUCTION
Urban youth with disabilities face
complex uncertainties as they move
from high school to life beyond,whether that is postsecondary
education, joining the workforce,
and/or determining living
arrangements. They are often ill
prepared to plan for and make
choices amongst existing
postsecondary possibilities.1 The
situation is particularly bleak for
youth with disabilities who are also
youth of color or poverty. They are
the most likely group to drop out of
high school, and many find
themselves incarcerated,
underemployed, or becoming
young parents.2When they are in
school, the range and quality of
resources, such as specially trained
personnel to assist with transition,
specialized curricular offerings, and
technology, vary greatly and are
inequitably distributed.3When
youth with disabilities leave school,
they also leave behind access toschool-based mandated services.
With the loss of those services,
students and their families must
locate services and supports with
little, if any, guidance.4
Given such problems, federal and
state policies have increasingly
recognized this significant period of
life as transition, and focused ondeveloping and strengthening
transition services available to
youth and young adults; that is,
services aimed at improving
academic and functional
achievement to facilitate
movement from high school to
post-school, especially
postsecondary education,
employment, and independent
living. Federal legislation, such as
the Individuals with DisabilitiesEducation Act (IDEA), No Child Left
Behind (NCLB), and Social Security
Act have increasingly focused on
enhancing transition services, and
states have interpreted and
responded to such legislation in a
range of ways. The emphasis on
transition services represents an
important step in the right
direction. As research
demonstrates, high quality
transition services are critical for
ensuring that youth with
disabilities finish high school and
succeed in whatever they choose to
do as adults. However, transition
services are often poorly and
inconsistently implemented,
particularly because they are not
grounded in a coordinated,
evidence-based, and transparentsystem that spans across federal,
state, and local levels. Individuals
with disabilities and their families
accordingly find it difficult to
acquire the information needed for
successfully navigating the
labyrinth of possible programs and
services and then piecing them
together for a cohesive
individualized transition that builds
toward maximum independence in
adulthood.
This brief examines the policy
landscape governing transition
services in the U.S., with specific
attention to the major challenges
associated with the incoherence
and incongruence of transition
policy. In particular, this brief
reviews the state of the transition
policy landscape, major problems
of policies governing transition,
and research on transition, andconcludes by offering
recommendations for improving
transition policies.
policyBRIEF
1 Mary E. Morningstar, Kyeong-Hwa Kim, and Gary M. Clark, Evaluating a Transition Personnel Preparation Program: Identifying TransitionCompetencies of Practitioners, Teacher Education and Special Education31, no. 1 (2008): 47. doi: 10.1177/08884064080310010.
2 Lynn Newman, Mary Wagner, Renee Cameto, and Anne-Marie Knokey, The Post-High School Outcomes of Youth with Disabilities up to 4 Years AfterHigh School. A Report of Findings from the National Longitudinal Transition Study-2 (NLTS2) (NCSER 2009-3017) (Menlo Park, CA: SRIInternational, 2009); Mary Magee Quinn, et al., Youth with Disabilities in Juvenile Corrections: A National Survey, Exceptional Children, 71 no. 3(2005): 339 345; Melissa Sickmund,Juvenile Offenders and Victims: National Report Series Bulletin(Washington, DC: U.S. Department of Justice,2004); Mary Wagner, Characteristics of Out-of-School Youth with Disabilities, inAfter High School: A First Look at the Postschool Experiences ofYouth with Disabilities. A Report from the National Longitudinal Transition Study-2, eds. Mary Wagner, et al., (Menlo Park, CA: SRI International,2005); Mary Wagner and Maryann Davis, How Are We Preparing Students with Emotional Behavior Disturbances for the Transition to YoungAdulthood? Findings from the National Longitudinal Transition Study-2,Journal of Emotional Behavioral Disorders14, no. 2, (2006): 86-98.
3 Susan Aud, et al., The Condition of Education 2011 (NCES 2011-033), (Washington, DC: U.S. Government Printing Office, 2011); Sheryl BurgstahlerDO-IT: Helping students with disabilities transition to college and careers, Research to Practice Brief: Improving Secondary Education andTransition Services through Research, 2, no. 3, 2003, Retrieved October 18, 2010 from www.ncset.org/publications/viewdesc.asp?id=1168; WilliamErickson, Camille G. Lee, and Sarah von Schrader, 2008 Disability Status Report: the United States, (Ithaca, NY: Cornell University RehabilitationResearch and Training Center on Disability Demographics and Statistics, 2009); U.S. Office of Special Education Programs, Facts from OSEPsNational Longitudinal Studies: Minorities among Children and Youth with Disabilities, (Menlo Park, CA: SRI International, August 2002), Retrievedon October 16, 2010 from www.nlts2.org/fact_sheets/nlts2_fact_sheet_2002_08.pdf; Audrey A. Trainor, et al., Marginalized to MaximizedOpportunities for Diverse Youths With Disabilities: A Position Paper of the Division on Career Development and Transition, Career Developmentfor Exceptional Individuals, 31, n. 1 (2008): 56- 64, doi:10.1177/0885728807313777.
4 Burgstahler , DO-IT: Helping students with disabilities transition to college and careers.
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THE TRANSITION POLICY
LANDSCAPE
Attention to transitions for youth
with disabilities has grown in
research and policy since the 1980s.
In 1984, U.S. Assistant Secretary of
Education for Special Education and
Rehabilitation, Madeleine Will, issued
a report highlighting the high
unemployment rates for adults with
disabilities, the lack of community
services and supports for these
individuals, and the segregation of
supports for those who were
receiving services. In this report, Willdefined transition as a bridge
between the security and structure
offered by the school and the risks of
life.5 In 1985, educational researcher
Andrew Halpern proposed a broader
definition of transition by drawing
attention to successful living in a
community as the major goal of
transition.6While maintaining an
emphasis on employment and
services that Will had proposed,
Halpern reasoned that successful
transition was affected by additional
elements. Halpern underscored the
importance of community
integration of persons with
disabilities and proposed a dynamic
model in which three components
interacted and contributed to
successful transition: residential
environment, social and
interpersonal networks, and
employment.
With the 1990 reauthorization of the
IDEA, transition emerged as an
important concept in federal
legislation.7 The 1990 and
subsequent reauthorizations of
IDEA in 1997 and 2004 mandatedtransition services and stated that
transition:
[is a process targeted at
improvement of] the academic and
functional achievement of the child
with a disability to facilitate the
childs movement from school to
post-school activities, including
post-secondary education,
vocational education, integrated
employment (including supportedemployment); continuing and adult
education, adult services,
independent living, or community
participation; (b) is based on the
individual childs needs, taking into
account the childs strengths,
preferences, and interests; and (c)
includes instruction, related
services, community experiences,
the development of employment
and other post-school adult living
objectives, and, if appropriate,
acquisition of daily living skills and
functional vocational evaluation.8
In the 2004 reauthorization of the
IDEA, Congress mandated that
Individualized Education Plans
(IEPs), written documents required
for all students with disabilities to
guide the services they receive,
include measureable postsecondary
goals in education and training,employment, and independent
living skills when appropriate.9
Furthermore, the 2004 IDEA
5 Madeline Will , OSERS Programming for the Transition of Youth with Disabilities: Bridges fromSchool to Working Life(Washington, DC: Office of Special Education and Rehabilitation Services,1984): 1.
6 Andrew S. Halpern, Transition: A Look at the Foundations, Exceptional Children51, no. 6(1985): 479.
7 The IDEA was originally passed as the Education for All Handicapped Children Act (EACHA) in1975. The 1990 reauthorization of the EACHA renamed the law as the IDEA.
8 34 CFR 300.43 (a); 20 U.S.C. 1401(34).9 34 CFR 300.320(b) and (c); 20 U.S.C. 1414 (d)(1)(A)(i)(VIII).
Transition for Urban Youth with Disabilities
policyBRIEF
As research
demonstrates, high
quality transition
services are critical
for ensuring that
youth with
disabilities finish
high school and
succeed in
whatever they
choose to do as
adults.
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reauthorization required IEPs to
identify particular transition services
that are needed for students, which
potentially include acquiring thehelp of a representative from an
outside agency to assist with the
transition of services from the
school setting to the out-of-school
setting upon graduation.
Within the last two decades, federal
funding has also supported post-
school transition services under
programs administered by various
federal agencies. These agencies
include the U.S. Department ofEducation, U.S. Department of
Health and Human Services (HHS),
U.S. Department of Labor, and
Social Security Administration (SSA).
For example, the Office of Special
Education Programs (OSEP) in the
U.S. Department of Education has
supported technical centers like the
National Center on Secondary
Education and Transition and the
National Secondary Transition
Technical Assistance Center(NSTTAC) that provide transition
related resources and up-to-date
research and data. OSEP currently
supports the funding of fifteen
personnel preparation grants for
training teachers in transition at a
total of $21 million.10 Moreover, the
U.S. Department of Education under
the Obama administration has
added $2 billion to Trade
Adjustment Assistant Grants that
assist career readiness11 and, in April
2012, released A Blueprint for
Transforming Career and Technical
Education, a proposal forreauthorizing the Carl D. Perkins
Career and Technical Education Act
of 2006.12According to this
blueprint, the Obama
administration proposed to add
significant investments to the
Community College Career Fund
and subsidize high school students
to participate in career academies.
Several federal funding sources also
support research about transition,
including the National Center forSpecial Education Research and the
Institute for Education Sciences, the
research arm of the U.S. Department
of Education. Outside the field of
education, the National Institute on
Disability and Rehabilitation
Research (NIDRR) provides
significant funding for centers such
as the VR Rehabilitation Research
and Training Center.
Despite the significant attention andresources devoted to developing and
implementing transition services for
youth with disabilities, we continue
to see a disturbing picture for youth
with disabilities in transition. The
following section examines the
problems raised by policies aimed at
developing and enhancing
transition services, and the
challenges that youth with
disabilities continue to confront.
10 Office of Special Education & Rehabilitation Services, Office of Special Education Programs,Application for New Grants under the IDEA Act: Personnel Preparation in Special Education,Early Intervention and Related Services (CFDA 84.325K)(Washington, DC: U.S. Department ofEducation, 2011).
11 Office of Vocational and Adult Education, Summary of Investing in Americas Future: A Blueprintfor Transforming Career and Technical Education, (Washington D.C: U.S. Department ofEducation, 2012).
12 Carl D. Perkins Vocational and Technical Education Improvement Act of 2006, Pub. L. No. 109-597; Office of Vocational and Adult Education, Investing in Americas Future: A Blueprint forTransforming Career and Technical Education, (Washington D.C.: U.S. Department ofEducation, 2012).
policyBRIEF
UIC Research on Urban Education Policy Initiative
Despite the
significant attention
and resources
devoted to
developing and
implementing
transition services
for youth with
disabilities, we
continue to see a
disturbing picture
for youth with
disabilities in
transition.
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Transition for Urban Youth with Disabilities
policyBRIEFDILEMMAS OF SUCCESSFUL
TRANSITION
The policies aimed at developing
and enhacing transition services
entail several interrelated problems
that ultimately result in significant
challenges faced by youth and young
adults with disabilities as they move
from high school to postsecondary
life. The lack of a cohesive federal
framework to support transition age
youth is the most fundamental of
these problems. The current system
remains highly fragmented because
transition-related programs areadministered by many different
agencies. Due in part to the
problems of such fragmentation, the
Government Accountability Office
(GAO) acknowledged the need for
systemic change at the federal level
as early as 1997.13 Moreover,
highlighting the inefficiency,
ineffectiveness, and economic waste
in disability programs that stem
from such problems, the federal
government has placed disabilityprograms on a high risk list that it
publishes annually.14
The fragmented federal framework
is marred by redundant and
incompatible practices that
obfuscate the processes that youth
with disabilities must navigate to
effectively take advantage of
transition services. For example,
both the SSA and Vocational
Rehabilitation Administration (VRA)under the U.S. Department of Labor
fund programs directed at
employment and training for
individuals with disabilities. Those
programs, however, have different
eligibility requirements, applicationprocesses, and types of services.
Ironically, the requirements
established by VRA, aimed at helping
people with disabilities obtain
employment, often make individuals
ineligible for programs offered
through SSAindividuals may
become ineligible for additional
monetary support from the SSA if
they demonstrate their ability to
work.15 Moreover, the lack of
coordination and clarity on roles
and responsibilities for providing
services to people with disabilities
can result in confusion as to which
agency is responsible for funding
specific services.
Making the transition policy
landscape even more complex, each
agency is governed by its own
statutory requirements set forth by
several pieces of legislation.
Examples of legislation with
transition components include:
Assistive Technology Act 1994,
Developmental Disabilities
Assistance and Bill of Rights Act 2000,
Higher Education Act of 1965; IDEA;
Rehabilitation Act 1973; Social
Security Act; and, the Workforce
Investment Act of 1998. Yet, this
collection of legislation has left
several significant gaps in the policy
structures governing transition.Nowhere is that more evident than in
the breakdown between protections
The lack of a
cohesive federal
framework to
support transition
age youth is the
most fundamental
of these problems.
13 Government Accountability Office [GAO], People with Disabilities: Federal Programs Could WorkTogether More Efficiently to Promote Employment(Washington, DC: Government Printing Office,1997).
14 Government Accountability Office [GAO], Students with Disabilities: Better Coordination CouldLessen Challenges in the Transition from High School(Washington, DC: Government PrintingOffice, 2012).
15 Valerie Brooke and Jennifer T. McDonough, The Facts Maam, Just the Facts: Social SecurityDisability Benefit Programs and Work Incentives, TEACHING Exceptional Children, 41, no. 1,(2008): 58-65; GAO, Students with Disabilities: Better Coordination Could Lessen Challenges inthe Transition from High School.
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for students with disabilities under
the IDEA when they are in school and
protections under the range of
federal laws that apply to youngadults with disabilities when they exit
school.16 If a student is found to have
a disability when in school, an IEP
must identify all areas of need,
provide supports and services to
meet those needs, and support the
students school progress. Depending
on when a student becomes eligible
for support under the IDEA, that
student may receive up to 13 years of
documented specialized education
supports and services. The onus ofdelivering those services falls to the
school, and the school essentially
becomes a one-stop-shop for
managing the students specialized
needs.
However, when youth with
disabilities leave school, they enter a
world in which a range of services
are offered by several different
providers that operate under
different governance structures andutilize different processes for serving
individuals. The various federal
agencies that serve adults with
disabilities generally rely on state
and local community entities (each
with their own set of guidelines for
interpreting federal law) to impart
funding and implement supports
and services. Thus, the lack of a clear
and coherent federal framework
directly impacts the ability of stateand local service providers to
communicate and coordinate with
each other, ultimately impairing
effectiveness and efficiency.17
Mirroring what occurs at the federal
level, state and local agencies
responsible for implementing
transition services often find
themselves at odds about agency
roles and expectations as well as
funding. Responsibilities for servicesfor postsecondary education and
training, employment and
independent living are often
provided inconsistently with respect
to the quality, intensity and duration
of services. What accounts for such
variance? In some cases, adult
agencies turn individuals with
disabilities who are 22 or younger
away because these youth can still
receive IDEA funding.18 In other
instances, when providers determinethat youth with disabilities are
eligible to receive services, some
services previously afforded may
cease, leaving the person with the
disability to do without or to pay out
of pocket for what they may find
necessary to succeed.19 For example,
UIC Research on Urban Education Policy Initiative
policyBRIEF
Nowhere is that
more evident than in
the breakdown
between protections
for students with
disabilities under
the IDEA when they
are in school and
protections underthe range of federal
laws that apply to
young adults with
disabilities when
they exit school.16 Kimberly Moherek Sopko, Preparation for Postsecondary Life for Students with Disabilities, In
Forum, June 2010, www.projectforum.org/docs/PreparationforPostsecondaryLifeforStudentswithDisabilities.pdf; Office for Civil Rights, Students with Disabilities Preparing for
Postsecondary Education: Know Your Rights and Responsibilities(Washington D.C: U.S.Department of Education, 2004).17 Kelli Crane, Meredith Gramlich, and Kris Peterson, Putting Interagency Agreements into
Action, Issue Brief: Examining Current Challenges in Secondary Education and Transition, 3, no2. 2004, Retrieved December 10, 2010 from www.ncset.org/publications/viewdesc.asp?id=1689.
18 Autism Speaks, Transition Information: Michigan, available at: www.autismspeaks.org/docs/family_services _docs/transition/MI.pdf; GAO, Students with Disabilities: Better CoordinationCould Lessen Challenges in the Transition from High School, 2012.
19 Debra Hart, Karen Zimbrich, and Teresa Whelley, Challenges in Coordinating and ManagingServices and Supports in Secondary and Postsecondary Options, Issue Brief 1, no. 6, 2002,Retrieved December 10, 2010 from www.ncset.org/publications/viewdesc.asp?id=1689; Sopko,Preparation for Postsecondary Life for Students with Disabilities; Office for Civil Rights,Students with Disabilities Preparing for Postsecondary Education: Know Your Rights andResponsibilities; Robert A Stodden, People with Disabilities and Postsecondary Education-Position paper, September 15, 2003. Retrieved October 18, 2010 fromwww.ncd.gov/newsroom/publications/education.html.
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many students with Autism
Spectrum Disorders require social
and behavioral supports to
accommodate social andcommunication deficits. Such
supports are rarely offered in
postsecondary institutions, leaving
those students socially isolated. Who,
where, and when such support
services are offered remain unclear.
These ambiguous expectations and
roles among agencies effectively keep
students with disabilities in high
school longer rather than helping
them transition beyond high school
because it is the only way forstudents to receive needed services.
Providers of transition services also
face challenges in working with
transition age youth with disabilities.
While proposals to more strongly link
K-12 education to postsecondary
education and employment at the
provider level are underfoot, such
efforts have been slow to emerge.20
The lack of longitudinal evidence of
what works obscures serviceproviders effectiveness, causing
providers to operate with little
guidance with respect to the quality,
length and intensity of services. For
example, under the IDEA, outside
adult agencies identified on the
students IEP are required to be
invited to participate in a students
IEP/transition planning meeting.
However, those outside agencies are
not required to attend the meetings,
and more often than not, outside
personnel do not participate.21 The
lack of coordination, clarity of roles,
and fragmentation of work and
funding, function as strong barriers
to collaborative work. Within such
uncharted territory, informationdissemination breaks down. What is
left is a set of proposed practices
through legislation with structures
that are ill conceived, disparate, and
disconnected.
When youth exit high school, the
obligation thus falls to them as
adults to negotiate myriad funding
agencies, determine which services
are available, and determine if they
meet the criteria for eligibility. Issuesassociated with access to
information and resources, legal
requirements, and services provided
when moving from protections
under different laws and regulations
add up to a significant change to
meet the needs of postsecondary
education, employment, and/or
independent living. This is a major
adjustment for youth with
disabilities because they suddenly
must assume responsibility for
managing all aspects of their
disabilityfrom navigating and
applying to all appropriate funding
agencies, notifying an institution or
employer of their disability, and
advocating for specific supports and
services they will require.22
These problems have resulted in
poor postsecondary education,
employment and independent living
outcomes for many of the 2.2 million
transition-age youth and young
adults with disabilities.23 Nationally,
policyBRIEF
Transition for Urban Youth with Disabilities
The lack of a clear
and coherent
federal framework
directly impacts the
ability of state and
local service
providers to
communicate and
coordinate with
each other,
ultimately impairing
effectiveness and
efficiency.
20 Office of Special Education and Rehabilitative Services, Office of Policy and Planning, TransitionActivities in the Office of Special Education and Rehabilitative Services, 2011 (Washington, D.C.:U. S. Department of Education, 2011).
21 Crane, Gramlich, and Peterson, Putting Interagency Agreements into Action; Office of SpecialEducation and Rehabilitative Services, Office of Policy and Planning, Transition Activities in theOffice of Special Education and Rehabilitative Services, 2011.
22 Sopko, Preparation for Postsecondary Life for Students with Disabilities.23 GAO, Students with Disabilities: Better Coordination Could Lessen Challenges in the Transition
from High School.
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only 72 percent of youth with
disabilities (ranging from 56 percent
of youth with emotional behavioral
disorders to 95 percent youth withvisual impairments) complete high
school.24A mere 27 percent of youth
with disabilities attend any kind of
school after high school.25Although
still considered to be an under-
represented population in
postsecondary education, the
percent of students with disabilities
attending higher education has
tripled in the past 30 years from 3
percent to 10 percent.26 However, a
paltry 50 percent of youth withdisabilities graduate with a degree.27
In addition to postsecondary
education, employment rates of
individuals with disabilities remain
abysmal. In August 2012,
employment rates were three times
higher for people without disabilities
than with disabilities.28 Echoing
national statistics, employment rates
among working age individuals with
disabilities in Illinois are less than
half of that for people without
disabilities.29While researchers
continue to tout the importance of
integration of individuals in ones
community30
, Illinois pays anaverage per capita cost of $142,533 a
year to state institutions for
individuals with developmental
disabilities to support over 2,000
people.31 In contrast, the state pays
an average $53,291 per-person to
approximately 200 community-
based organizations that service
nearly four times the number of
people with disabilities.32 So,
reforming the ways in which
transition services are provided iscritical for the 2.2 million youth with
disabilities in the U.S., Illinois, and
the nation more broadly.
RESEARCH
Research on youth and adults with
disabilities points to several ways in
which transition policies can be
productively restructured to support
the movement from high school to
adult life. First, building from Will
UIC Research on Urban Education Policy Initiative
policyBRIEF
A mere 27 percent
of youth with
disabilities attend
any kind of school
after high school.
24 Institute of Education Sciences, Facts from NLTS2: High School Completion by Youth withDisabilities, last modified November 2005,www.nlts2.org/fact_sheets/nlts2_fact_sheet_2005_11.pdf; Newman, Wagner, Cameto, and Knokey, The Post-High School Outcomes of Youth withDisabilities up to 4 Years After High School. A Report of Findings from the National LongitudinalTransition Study.
25 Institute of Education Sciences, Facts from NLTS2;Newman, Wagner, Cameto, and Knokey, ThePost-High School Outcomes of Youth with Disabilities up to 4 Years After High School. A Report ofFindings from the National Longitudinal Transition Study-2 (NLTS2).
26 Stodden, People with Disabilities and Postsecondary Education-Position Paper.27 Stodden, People with Disabilities and Postsecondary Education-Position Paper.28 Office of Disability Employment Policy, August 2012 Employment Statistics, last modified
September 2012, www.dol.gov/odep.29 Chicago Community Trust (CCT),A Quest for Equality: Breaking the Barriers for People withDisabilities. A Call to Action for Illinois Leaders, (Chicago, IL: Chicago Community Trust, 2010).
30 Leena Jo Landmark, Song Ju, and Dalun Zhang, Substantiated Best practices in Transition:Fifteen Plus Years Later, Career Development for Exceptional Individuals, 33, no.3, (2010): 165176, doi: 10.1177/0885728810376410; Frank R. Rusch and David Braddock, Adult Day Programsversus Supported Employment (19882002): Spending and Service Practices of MentalRetardation and Developmental Disabilities State Agencies, Research and Practice for Personswith Severe Disabilities, 29, (2005): 237242; David W. Test, et al., Evidence-Based SecondaryTransition Predictors for Improving Postschool Outcomes for Students with Disabilities, CareerDevelopment for Exceptional Individuals, 32, no. 3, (2009): 160-181, doi:10.1177/0885728809346960.
31 Chicago Community Trust (CCT),A Quest for Equality: Breaking the Barriers for People withDisabilities. A Call to Action for Illinois Leaders.
32 Chicago Community Trust (CCT),A Quest for Equality: Breaking the Barriers for People withDisabilities. A Call to Action for Illinois Leaders.
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predictive of success in employment
and postsecondary education.39 The
remaining five were linked with
improved outcomes inemployment.40 Research findings
over the last decade show how a
focus on future employment,
education and independent living in
high-school and beyond can help
youth with disabilities to succeed.
Thus, policies should infuse such
findings into comprehensive
frameworks and associated
practices.
STRUCTURE TRANSITION
AS A DYNAMIC AND
INDIVIDUALIZED PROCESS
The research also indicates that
transition should be considered a
dynamic and individualized process
that changes over time. As the
student ages, goals, services, and
supports accordingly should change.
For example, the types of supports
(e.g., employment such as jobshadowing versus job coaching, post
secondary education such as help
choosing training programs), the
timing of services, and the intensity
of supports should vary in direct
relation to the needs of individualpersons going through the
transition.41 Given this view of
effective transition, some
researchers have suggested that the
public high schools should contract
with postsecondary agencies while
particular students move through
high school.42 Thus, as students age,
increasingly more postsecondary
agencies would provide services
alongside school-based supports.
Ultimately, by age 22, high schoolsupports would be replaced by
supports and services in the adult
arena, allowing for a seamless
transition. A related suggestion is to
change policies at the federal level to
make them mimic services
individuals with disabilities receive
under IDEA.43 This move would
create a continuous system of
supports that does not cease once a
person turns 22 years old and/orleaves school. It would also better
reflect the diverse needs of people
0 UIC Research on Urban Education Policy Initiative
policyBRIEF
Research findings
over the last decade
show how a focus
on future
employment,
education and
independent living
in high-school andbeyond can help
youth with
disabilities to
succeed.
39 Test et al., Evidence-Based Secondary Transition Predictors for Improving PostschoolOutcomes for Students with Disabilities, 160.
40 Test et al., Evidence-Based Secondary Transition Predictors for Improving PostschoolOutcomes for Students with Disabilities, 160.
41 Erik W. Carter et al., Availability of and Access to Career Development Activities for Transition-Age Youth with Disabilities, Career Development for Exceptional Individuals33, no. 3. (2010):13, doi:10.1177/0885728809344332; Erik W. Carter, et al., Exploring School-BusinessPartnerships to Expand Career Development and Early Work Experiences for Youth withDisabilities, Career Development for Exceptional Individuals32, no. 3 (2009): 145,doi:10.1177/0885728809344590; Ellen S. Fabian, Urban Youth with Disabilities: FactorsAffecting Transition Employment, Rehabilitation Counseling Bulletin, 50 no. 3 (2010): 130, doi:1-.1177/0343552070500030101; Audrey A. Trainor et al., Perspectives of Adolescents withDisabilities on Summer Employment and Community Experiences,Journal of SpecialEducation45 no. 3 (2011): 157, doi: 10.1177/022466909359424.
42 Nicholas J. Certo et al., Seamless Transition and Long-Term Support for Individuals with SevereIntellectual Disabilities, Research and Practice for Persons with Severe Disabilities, 33, no. 3(2008): 85.
43 Nicholas J. Certo et al., Seamless transition and long-term support for individuals with severeintellectual disabilities, 85; Nicholas J. Certo et al., Review and Discussion of a Model ofSeamless Transition to Adulthood, Education and Training in Developmental Disabilities, 38,no. 1 (2003): 3; Carolyn Hughes, Postsecondary Outcomes in the 21st centuryA Change IsGonna Come? Research & Practice for Persons with Severe Disabilities, 33, no. 3 (2008): 100;Frank R. Rusch and Pamela Wolfe, When Will Our Values Finally Result in the Creation of NewPathways for ChangeChange that We Can Believe In? Research & Practice for Persons withSevere Disabilities, 33, no. 3 (2008): 96; James R. Thompson et al., Integrating supports inassessment and planning, Mental Retardation, 40, no. 5, (2002): 390-405.
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policyBRIEF
Transition for Urban Youth with Disabilities
44 Nicholas J. Certo et al., Seamless transition and long-term support for individuals with severeintellectual disabilities, 85; Hughes, Postsecondary Outcomes in the 21st CenturyA ChangeIs Gonna Come?,100; Thompson et al., Integrating Supports in Assessment and Planning, 390.
45 Mary E. Morningstar and Gary M. Clark, The Status of Personnel Preparation for TransitionEducation and Services: What is the Critical Content? How Can it be Offered, CareerDevelopment for Exceptional Individuals, 26, no. 2 (2003): 227. doi:10.1177/088572880302600208.
46 David R. Johnson et al., Current Challenges Facing Secondary Education and Transition: WhatResearch Tells Us, Exceptional Children, 58 no. 4 (2002): 519.
with disabilities by providing long
terms supports to those who require
it.44 Thus, policies could be
reconfigured to reflect the individualdifferences in the duration and
intensity of transition services.
TRAIN PERSONNEL TO
IMPLEMENT EVIDENCE-
BASED PRACTICES
Putting into action research-based
frameworks and specific practices
falls to personnel who work in
schools, adult service agencies and
government organizations that serve
youth, and adults with disabilities.
Given the incoherence in the
transition policy landscape, the roles
and work responsibilities for persons
in each location vary. In a school, for
instance, a range of people provides
counseling, teaches, provides
therapeutic services, and oversees
the overall coordination and
management of transition supports
and services. In adult services,personnel expectations vary in
relation to the agency focus. Some
personnel may work in college or
university or trade schools, and they
may assume roles as counselors,
disability analysts, administrators, or
teachers. Others adult service
providers may be charged with
employment supports that could
include recruiting businesses to
offer jobs, setting up job coaching,
or evaluating job success. Still, other
adult service personnel may be
focused on determining youth
interests or independent living
arrangements.
To address such problems,
researchers have identified core
competencies required for all
secondary educators to implement
best practices for transition.45 The
competencies include knowledge of
(1) specific curriculum and
instruction, (2) student focused
planning and assessment, (3) family
involvement, (4) accountability and
post-school outcomes, and (5)
interagency collaboration. In each
area, educators can gain informationabout best supports and services for
all students, specialized supports
and services for diverse students,
and supports and specific transition
services. A similar training profile
exists for adult service personnel.46
Such training would remedy the
current focus on teaching discreet
skills to a service provider to do a
particular job, rather than
identifying the comprehensive goals
of each individual and directingpersonnel to connect and
coordinate services with other
agencies and organizations.
RECOMMENDATIONS
There are several possible ways that
are grounded in research to improve
transition policies. The most
important step for improving
transition policies is implementing a
systems approach in which
governmental departments,
community agencies, schools, and
As the student
ages, goals,
services, and
supports
accordingly should
change.
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2 UIC Research on Urban Education Policy Initiative
personnel work cohesively and
collaboratively to improve transition
for youth with disabilities and
families. As the GeneralAccountability Office recently
recommended, the U.S.
Departments of Education, HHS,
Labor and SSA could form an
interagency coalition to focus on (1)
operating toward common outcome
goals for transitioning youth; (2)
increasing awareness of available
transition services; and (3) assessing
the effectiveness of their
coordination efforts. All four
agencies agreed with therecommendation.47 This federal
initiative could open venues for
additional joint work toward the
alignment of requirements that have
traditionally differed under various
federal jurisdictions. An excellent
example of such alignment is how
NCLB and the 2004 reauthorization
of IDEA coalesced. With the 2004
reauthorization of the IDEA,
statutory text and regulations of
both laws began to borrow from and
reference the other.
Legislative and regulatory alignment
is particularly needed between IDEA
policies that guide transition in
schools and policies that govern
adult services under the VRA. Adult
service policies such as the
Developmental Disabilities
Assistance and the Bill of Rights Act
for People with Disabilities should
mimic entitlement services
delineated in the IDEA.48 This move
would allow individuals with
intellectual disabilities access to
supported employment services and
long term supports. Similarly, IDEA
and adult disability policies shouldbe connected in ways that offer
seamless support to youth with
disabilities as they exit school. Adult
disability policies could use
language and definitions consistent
in the IDEA.49 This consistency
would help to ensure that all youth
receiving services under IDEA would
continue to be supported. By
simplifying the transition process,
this reform would also ease the
burden on youth with disabilitiesand families as they enter the adult
service sector. Rather than merely
aligning such policies, the entire
constellation of transition policies
should be systematically revamped
so as to provide consistency in type,
duration, and intensity of transition
services.
Such reconfiguring of policies would
require the creation of new
partnerships across federal, state,and local institutions and
organizations. These partnerships
should focus primarily on improving
information and access to resources
for transition services to students,
families, and service-providers. The
elimination of redundancies in
services would result in greater
coordination and articulation of
expectations, responsibilities and
outcomes, and allow funding to be
stretched across greater numbers of
youth with disabilities. Partnerships
should also focus on enabling
policyBRIEF
The most important
step for improvingtransition policies is
implementing a
systems approach
in which
governmental
departments,
community
agencies, schools,
and personnel work
cohesively and
collaboratively.
47 GAO, Students with Disabilities: Better Coordination Could Lessen Challenges in the Transitionfrom High School; Office of Special Education and Rehabilitative Services, OSERS TransitionData Fact Sheet, last modified May 2012, from www2.ed.gov/about/offices/list/osers/products/transition/transition-datasheet-2011.pdf.
48 Nicholas J. Certo et al., Seamless transition and long-term support for individuals with severeintellectual disabilities, 85.
49 Nicholas J. Certo et al., Seamless transition and long-term support for individuals with severeintellectual disabilities, 85; Rusch and Wolfe, When Will Our Values Finally Result in theCreation of New Pathways for ChangeChange that We Can Believe In?, 96.
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Transition for Urban Youth with Disabilities
transition service providers to
discover, plan, implement and
assess transition particular to
individuals interests and capacities.Drawing on research-based
frameworks and practices to
structure these partnerships should
strengthen outcomes as well.
In addition to creating formal
partnerships, transition policies
should be modified to facilitate the
implementation of promising
programs and services that provide
supports to individuals with
disabilities over time and well intoadulthood. One excellent example is
the one-stop career centers in
which a wide array of clients can be
served. The 1998 Workforce
Investment Act (WIA) mandated
One-Stop Career Centers in order to
bring together federally funded
employment and training programs
with those seeking jobs.50 Currently
there are 1760 comprehensive one-
stop centers and close to 1000
affiliated centers in the U.S., which
can be found via a zip code to locate
local services.51 The state of
Michigan provides another example
of how policies can be modified to
provide support over time. The state
requires schools to educate students
in some disability categories to age
26, instead of to age 22 as required
by federal law.52
Partnerships between service
providers and higher education
should also play a critical role in
enhancing the coordination of
transition services between federal,state, and local organizations and
institutions. For example, the
Institute on Disability/UCED,
housed at the University of New
Hampshire, is aimed at providing a
coherent university-based focus for
the improvement of knowledge,
policies, and practices related to the
lives of persons with disabilities and
their families.53 The Institute on
Disability recently initiated a three-
year funded project through the U.S.
Centers for Disease Control and
Prevention to examine health
disparities for persons with
disabilities in New Hampshire. Such
work is further echoed in 27 U.S.
TPSID grants worth over $10.9
million that were awarded in 2010 to
two- and four-year institutions of
higher education to fund programs
for helping persons with intellectual
disabilities transition to post-secondary education programs.54 In
addition to federal, state and local
affiliations, the program requires the
integration of other key players,
such as businesses and higher
education institutions, in ways that
enable a mixing of community
resources to set joint aims and
challenges and create beneficial
processes for implementing the
work.
policyBRIEF
Partnerships
between service
providers and
higher education
should also play a
critical role in
enhancing the
coordination of
transition services
between federal,
state, and local
organizations and
institutions.
50 U.S. Department of Labor, Employment and Training, Administration 20 CFR Part 652 andParts 660 through 671, Federal Register65, no. 156 (August 11, 2000).
51 Career One Stop, Americas Service Locator, last modified 2012, www.servicelocator.org/onestopcenters.asp.
52 Autism Speaks, Transition Information: Michigan, available at: www.autismspeaks.org/docs/family_services_docs/transition/MI.pdf.
53 Institute on Disability, About the Institute on Disability, last modified 2011, www.iod.unh.edu.54 Office of Postsecondary Education, The Model Comprehensive Transition and Postsecondary
Programs for Students with Intellectual Disabilities (TPSID). Grant Announcement. 84.407A,last modified July 8, 2011 www2.ed.gov/programs/tpsid/index.html.
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4 UIC Research on Urban Education Policy Initiative
Lastly, higher education institutions
should become a key partner of
federal, state, and local institutions
and organizations for improving thetraining of transition personnel.
University faculty should engage in
an ongoing process of conducting
research and sharing research
findings with transition personnel.
From the data, researchers should
present analyses and help lead
conversations amongst federal,
state, and local partners to create
training program curricula.
Moreover, policy should support
higher education in designing andimplementing evaluation and
research to assess the outcomes of
such partnerships.
CONCLUSION
Taken together, transition services
for youth and adults with disabilities
are slowly beginning to change in
aims, structures, processes, and
outcomes. Forming a coordinated
interagency system, inviting new
partners to the coalition who
traditionally have not been part ofconversations, extending services by
beginning earlier and lasting longer
depending on who shows a need,
and developing cross-entity
personnel training programs should
comprise key elements of a
framework that connects disparate
agencies and organizations and
ultimately supports the 2.2 million
transition age youth with disabilities
and their families. Finally,
supporting strong research toconduct evaluation of such work,
processes, and effects should
facilitate a final important
component to transition reform:
integrating ideas for change from
not only all providers, but also the
direct recipients of servicesthe
youth and adults with disabilities
and their families.
policyBRIEF
Such reconfiguring
of policies would
require the creation
of new partnerships
across federal,
state, and localinstitutions and
organizations.
The contents of this policy brief were developed in part from funds under a grant fromthe US Department of Education, #H325K110509. However, those contents do notnecessarily represent the policy of the US Department of Education, and you should notassume endorsement by the Federal Government. Project Officer, Corinne Weidenthal.
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ABOUT US
The Research on Urban Education Policy Initiative (RUEPI) is an education policy research project based in
the University of Illinois at Chicago College of Education. RUEPI was created in response to one of the most
significant problems facing urban education policy: dialogue about urban education policy consistently fails
to reflect what we know and what we do not about the problems education policies are aimed at remedying.
Instead of being polemic and grounded primarily in ideology, public conversations about education should
be constructive and informed by the best available evidence.
OUR MISSION
RUEPIs work is aimed at fostering more informed dialogue and decision-making about education policy in
Chicago and other urban areas. To achieve this, we engage in research and analysis on major policy issues
facing these areas, including early childhood education, inclusion, testing, STEM education, and teacher
workforce policy. We offer timely analysis and recommendations that are grounded in the best available
evidence.
OUR APPROACH
Given RUEPIs mission, the projects work is rooted in three guiding principles. While these principles are not
grounded in any particular political ideology and do not specify any particular course of action, they lay a
foundation for ensuring that debates about urban education policy are framed by an understanding of how
education policies have fared in the past. The principles are as follows:
Education policies should be coherent and strategic
Education policies should directly engage with what happens in schools and classrooms
Education policies should account for local context
RUEPI policy briefs are rooted in these principles, written by faculty in the University of Illinois at Chicago
College of Education and other affiliated parties, and go through a rigorous peer-review process.
Learn more at www.education.uic.edu/ruepi
policyBRIEF
Transition for Urban Youth with Disabilities
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CONTACT US
education.uic.edu/ruepi
facebook.com/ruepi
FOLLOW US
policyBRIEFUIC Research on Urban Education Policy Initiative
1040 West Harrison StreetChicago, Illinois 60607