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Training Caregivers Via Telehealth Technologies Dorothea C. Lerman, Ph.D., BCBA-D
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Page 1: Training Caregivers Via Telehealth Technologiesmargaretmurphycenters.org/download/telehealth_challenges... · 2019. 10. 25. · Comparison of FA and FCT data Participants from Houston

Training Caregivers Via

Telehealth Technologies

Dorothea C. Lerman, Ph.D., BCBA-D

Page 2: Training Caregivers Via Telehealth Technologiesmargaretmurphycenters.org/download/telehealth_challenges... · 2019. 10. 25. · Comparison of FA and FCT data Participants from Houston
Page 3: Training Caregivers Via Telehealth Technologiesmargaretmurphycenters.org/download/telehealth_challenges... · 2019. 10. 25. · Comparison of FA and FCT data Participants from Houston

WE CAN SAVE THE WORLD WITH BEHAVIOR ANALYSIS!

Page 4: Training Caregivers Via Telehealth Technologiesmargaretmurphycenters.org/download/telehealth_challenges... · 2019. 10. 25. · Comparison of FA and FCT data Participants from Houston

HIPAA-Compliant Software

• Vidyo

• Vsee

• Zoom

Page 5: Training Caregivers Via Telehealth Technologiesmargaretmurphycenters.org/download/telehealth_challenges... · 2019. 10. 25. · Comparison of FA and FCT data Participants from Houston

2 0 0 0 2 0 0 5 2 0 1 0 2 0 1 5

0

1 0 0 0

2 0 0 0

3 0 0 0

4 0 0 0

5 0 0 0

EBSCO Search – “Telehealth” or “Telemedicine”

Peer-viewed articles

Num

ber

of P

ublis

hed A

rtic

les

Page 6: Training Caregivers Via Telehealth Technologiesmargaretmurphycenters.org/download/telehealth_challenges... · 2019. 10. 25. · Comparison of FA and FCT data Participants from Houston

◼ Functional Analysis of Problem Behavior

◼ Functional Communication Training

The Pioneer of Telehealth ABA Services

(2006 - )

David Wacker, Ph.D

University of Iowa (recently retired)

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THE WILD WEST

Page 10: Training Caregivers Via Telehealth Technologiesmargaretmurphycenters.org/download/telehealth_challenges... · 2019. 10. 25. · Comparison of FA and FCT data Participants from Houston
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◼ Comparison of Behavioral Assessments Using Telehealth

for Children with Autism (NIH Grant with University of Iowa

and Emory/Marcus)

Our Current & Recently Completed Projects

Page 13: Training Caregivers Via Telehealth Technologiesmargaretmurphycenters.org/download/telehealth_challenges... · 2019. 10. 25. · Comparison of FA and FCT data Participants from Houston

Our Current & Recently Completed Projects

Page 14: Training Caregivers Via Telehealth Technologiesmargaretmurphycenters.org/download/telehealth_challenges... · 2019. 10. 25. · Comparison of FA and FCT data Participants from Houston

http://www.worldometers.info/world-population/population-by-country/

Country, BCBAs, Population

USA

32,000 BCBAs

327 million

Russia

12 BCBAs

144 million

Africa

17 BCBAs

1.293 billion

South

America

43 BCBAs

424 million

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Loukia Tsami, M.A., BCBA

Research Associate

University of Houston, Clear Lake

Özlem Toper-Korkmaz, Ph.D.

Assistant Professor, Special Education

Uludağ University

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Telehealth ABA World Project

Founder and Director: Loukia Tsami, BCBA

Page 17: Training Caregivers Via Telehealth Technologiesmargaretmurphycenters.org/download/telehealth_challenges... · 2019. 10. 25. · Comparison of FA and FCT data Participants from Houston

Telehealth ABA World Project Interpreters

Areli Barajas

Spanish

Irina Shutts

Russian

Sarah Alsaleh

Arabic

Maria Quadri

Urdu Dieu Truong

Vietnamese

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Grace Shay

Mandarin Chinese

Naomi Alphonso

Hindi

Prisca Deliperi

French

Andrew Bennett

French

Telehealth ABA World Project Interpreters

Page 19: Training Caregivers Via Telehealth Technologiesmargaretmurphycenters.org/download/telehealth_challenges... · 2019. 10. 25. · Comparison of FA and FCT data Participants from Houston

Linh Đào

Vienamese

Trang Tran

Vietnamese

Anna Amagou

French

Telehealth ABA World Project Interpreters

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Interpreter in behavior analyst’s location

Mexico

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Interpreter in separate (third) location

Pakistan

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Interpreter in third location

Russia

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Translator (Spanish) with Family Translator (Arabic) with Behavior Analyst

T a n g i b l e

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Interpreter (Russian) in Third Location

A T T

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F a d i n g

Page 26: Training Caregivers Via Telehealth Technologiesmargaretmurphycenters.org/download/telehealth_challenges... · 2019. 10. 25. · Comparison of FA and FCT data Participants from Houston

◼ Coached Directly by Behavior Analysts

FA: M = 97% (93% - 100%)

FCT: M = 99% (98% - 100%)

◼ Interpreters

FA: M = 96% (89% - 100%)

FCT: 98% (97% - 100%)

Parent Procedural Integrity

Page 27: Training Caregivers Via Telehealth Technologiesmargaretmurphycenters.org/download/telehealth_challenges... · 2019. 10. 25. · Comparison of FA and FCT data Participants from Houston

Families Served:

◼ 47 Families (children aged 3 -13 years)

◼ 22 Countries Greece, 10

Turkey, 2

Mexico, 5

Saudi Arabia, 4

Costa Rica, 1

Russia, 1

Outcomes to Date

Ukraine, 1

Vietnam, 3

China, 1

Cameroon, 2

Ghana, 1

Morocco, 3

Algeria, 1

Egypt, 2

Pakistan, 4

Oman, 1

Nepal, 1

England, 1

Spain, 1

Iran, 1

India, 1

Nigeria, 1

Page 28: Training Caregivers Via Telehealth Technologiesmargaretmurphycenters.org/download/telehealth_challenges... · 2019. 10. 25. · Comparison of FA and FCT data Participants from Houston

Treatment Outcomes:

◼ 27 completed treatment successfully

◼ 5 in currently in treatment

◼ 15 did not complete treatment

4 – problem behavior no longer a concern

1 – could no longer afford internet

2 – scheduling conflicts (up to 12 hr time difference)

8- inadequate internet speed (Countries in Africa: Morocco 3, Ghana 1, Algeria 1, Egypt 1,

Countries in Asia: Nepal 1, Pakistan 1)

Outcomes To Date

Page 29: Training Caregivers Via Telehealth Technologiesmargaretmurphycenters.org/download/telehealth_challenges... · 2019. 10. 25. · Comparison of FA and FCT data Participants from Houston

32 Houston Participants

◼ Ages: 2 – 11 years

◼ Settings: 31 Clinic-Home,

1 Clinic-Clinic

◼ Languages: 2

◼ Interpreters: 1

Comparison of FA and FCT data

Participants from Houston vs 13 countries

29 International Participants

◼ Ages: 3 – 13 years

◼ Settings: 28 Clinic-Home,

1 Clinic-Clinic

◼ Languages: 10

◼ Interpreters: 17 (7 at BCBA’s

location, 1 with family, 8 in a

third location)

Page 30: Training Caregivers Via Telehealth Technologiesmargaretmurphycenters.org/download/telehealth_challenges... · 2019. 10. 25. · Comparison of FA and FCT data Participants from Houston

32 Houston Participants

◼ 30 differentiated FAs

◼ 2 - no PB (6%)

◼ 0 FA Modifications

Comparison of FA data

All FAs: 5-min sessions

Conditions included: Attention, Escape, Tangible*, Play

29 International Participants

◼ 26 differentiated FAs

◼ 3 – no PB (10%)

◼ 1 FA Modification (escape from touch)

Page 31: Training Caregivers Via Telehealth Technologiesmargaretmurphycenters.org/download/telehealth_challenges... · 2019. 10. 25. · Comparison of FA and FCT data Participants from Houston

Houston Participants: 30 FAs

◼ Tangible + Escape: 10 (33%)

◼ Tangible: 7 (23%)

◼ Attention + Tang + Escape: 6 (20%)

◼ Attention: 3 (10%)

◼ Attention + Tangible: 2 (7%)

◼ Escape: 1 (3%)

◼ Automatic: 1 (1%)

◼ Attention + Escape: 0

FA Results

International Participants: 26 FAs

◼ Tangible: 8 (31%)

◼ Escape: 7 (27%)

◼ Tangible + Escape: 4 (15%)

◼ Attention + Tang + Escape: 3 (12%)

◼ Attention: 1 (4%)

◼ Attention + Tangible: 1 (4%)

◼ Attention + Escape: 1 (4%)

◼ Escape from Touch: 1 (4%)

◼ Automatic: 0

Page 32: Training Caregivers Via Telehealth Technologiesmargaretmurphycenters.org/download/telehealth_challenges... · 2019. 10. 25. · Comparison of FA and FCT data Participants from Houston

Houston Participants: 23

◼ 20 completed (87%)

100% met criterion

◼ 3 withdrew (13%)

Functional Communication Training

International Participants: 26

◼ 21 completed (91%)

100% met criterion

◼ 2 withdrew (9%)

Page 33: Training Caregivers Via Telehealth Technologiesmargaretmurphycenters.org/download/telehealth_challenges... · 2019. 10. 25. · Comparison of FA and FCT data Participants from Houston

International Participants:

Average 13 appointments

Range: 8-30 appointments

Houston Participants:

Average 19 appointments

Range: 5-31 appointments

Treatment Duration

Page 34: Training Caregivers Via Telehealth Technologiesmargaretmurphycenters.org/download/telehealth_challenges... · 2019. 10. 25. · Comparison of FA and FCT data Participants from Houston

International Participants:Houston Participants:

Acceptability Rating (1-7):

◼ How acceptable do you find the treatment to be

regarding your concerns about your child?

Item on

Questionnaire

PRE POST

Treatment 6.9 (4-7) 6.6 (4-7)

Item on

Questionnaire

PRE POST

Treatment 6.5 (5-7) 6.7 (6-7)

Page 35: Training Caregivers Via Telehealth Technologiesmargaretmurphycenters.org/download/telehealth_challenges... · 2019. 10. 25. · Comparison of FA and FCT data Participants from Houston

32 Houston Participants

◼ 20 (63%)

◼ 6 (19%)

◼ 5 (16%)

◼ 1 (3%)

Hardware

29 International Participants

◼ 17 (59%)

◼ 6 (21%)

◼ 3 (10%)

◼ 3 (10%)

Devices

◼ Phone

◼ Laptop

◼ iPad

◼ Desktop

Page 36: Training Caregivers Via Telehealth Technologiesmargaretmurphycenters.org/download/telehealth_challenges... · 2019. 10. 25. · Comparison of FA and FCT data Participants from Houston

International Participants: 320 Appointments, 26 Participants

Houston Participants: 424 Appointments, 29 Participants

Connectivity Ratings

86%

1.6% 5%

Page 37: Training Caregivers Via Telehealth Technologiesmargaretmurphycenters.org/download/telehealth_challenges... · 2019. 10. 25. · Comparison of FA and FCT data Participants from Houston

International Participants:356 Appointments, 29 Participants

Houston Participants:476 Appointments, 31 Participants

Cancelled Appointments

10.6%

Page 38: Training Caregivers Via Telehealth Technologiesmargaretmurphycenters.org/download/telehealth_challenges... · 2019. 10. 25. · Comparison of FA and FCT data Participants from Houston

Educational Series for Caregivers and Professionals:

19 countries, 55 presentations, ~2,880 attendees❑ Greece (Veroia, Naoussa)

❑ Mexico

❑ Russia

❑ Nigeria (Asaba, Kaduna, Port Harcourt)

❑ Nepal

❑ Morocco

❑ Pakistan (Karachi, Peshawar, Kashmir,

Islamabad, Rawalpindi, Lahore)

❑ Cameroon

❑ Liberia

Outcomes To Date

❑Saudi Arabia

❑Namibia

❑South Africa

❑France

❑Vietnam

❑Ghana

❑Jamaica

❑Ivory Coast

❑Philippines

❑Bangladesh

Page 39: Training Caregivers Via Telehealth Technologiesmargaretmurphycenters.org/download/telehealth_challenges... · 2019. 10. 25. · Comparison of FA and FCT data Participants from Houston

Prince Sultan Military Medical FacilityRiyadh, Saudi Arabia

Karachi, Pakistan

Private School

Kaduna, Nigeria

Private School

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https://www.facebook.com/TelehealthABA/

Like our Facebook page and follow us on twitter

Help us #savetheworldwithaba

Telehealth ABA World Project

Page 42: Training Caregivers Via Telehealth Technologiesmargaretmurphycenters.org/download/telehealth_challenges... · 2019. 10. 25. · Comparison of FA and FCT data Participants from Houston

The Wild Frontier:

Telehealth ABA Service Challenges

and Some Potential Solutions

Page 43: Training Caregivers Via Telehealth Technologiesmargaretmurphycenters.org/download/telehealth_challenges... · 2019. 10. 25. · Comparison of FA and FCT data Participants from Houston

Matthew J. O’Brien1, Leslie Neely2, Nathan A. Call3,

Loukia Tsami4, Kelly M. Schieltz1, Wendy K. Berg1, Jessica

Graber5, Pei Huang1, Todd Kopelman1,

and Linda J. Cooper-Brown1

1University of Houston, Clear Lake; 2University of Iowa;

3University of Texas at San Antonio; 4Marcus Institute;

and 5Autism Treatment Center of San Antonio

My Collaborators

Page 44: Training Caregivers Via Telehealth Technologiesmargaretmurphycenters.org/download/telehealth_challenges... · 2019. 10. 25. · Comparison of FA and FCT data Participants from Houston

◼ Leslie Neely, Ph.D. – University of Texas at San Antonio

and Jessica Graber, Ph.D. – Autism Treatment Center

◼ Transfer of parent training skills from in-person to remote

modalities

◼ Three behavior analysts – 2 years experience

Do BCBAs Need Specialized Training?

Page 45: Training Caregivers Via Telehealth Technologiesmargaretmurphycenters.org/download/telehealth_challenges... · 2019. 10. 25. · Comparison of FA and FCT data Participants from Houston

0

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B e t ty

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Fidelity Checklist =

14 “core items”

Fidelity Checklist =

14 core + 9 suppl items

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◼ Identify challenges and possible solutions

◼ Empirically evaluate solutions

◼ Develop competences/goals

◼ Develop training curriculum

What Can We Do?

Page 47: Training Caregivers Via Telehealth Technologiesmargaretmurphycenters.org/download/telehealth_challenges... · 2019. 10. 25. · Comparison of FA and FCT data Participants from Houston

◼ 18 practitioners (1-20 years of experience [0-6 telehealth])

◼ Four different sites (Texas, Iowa, Georgia)

◼ 237 families (January 2015 and April 2019)

Children: 1.7 – 16 years old

◼ 2,242 total appointments

◼ FA/FCT

Method

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VERSUS

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Technical Issues

Categories of Challenges

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Challenges with Remote Viewing

Categories of Challenges

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Disruptions in Client’s Environment

Categories of Challenges

Page 52: Training Caregivers Via Telehealth Technologiesmargaretmurphycenters.org/download/telehealth_challenges... · 2019. 10. 25. · Comparison of FA and FCT data Participants from Houston

Other Issues Related to Client Behavior

Categories of Challenges

Page 53: Training Caregivers Via Telehealth Technologiesmargaretmurphycenters.org/download/telehealth_challenges... · 2019. 10. 25. · Comparison of FA and FCT data Participants from Houston

Issues Related to Caregiver Behavior

Categories of Challenges

Page 54: Training Caregivers Via Telehealth Technologiesmargaretmurphycenters.org/download/telehealth_challenges... · 2019. 10. 25. · Comparison of FA and FCT data Participants from Houston

Issues at the Practitioner’s (Host) Site

Categories of Challenges

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Technical Issues

◼Hardware unavailable Loaners; alt. facility

◼Connectivity issues Upgrade; reduce # devices

Challenges and Potential Solutions

Page 57: Training Caregivers Via Telehealth Technologiesmargaretmurphycenters.org/download/telehealth_challenges... · 2019. 10. 25. · Comparison of FA and FCT data Participants from Houston

86%

9%

2%1%

2%

US (Texas) Participants N=52, 564 Appointments

>92%

73%-91%

55%-72%

20%-54%

<20%

Percentage

of Appt

Completed

Page 58: Training Caregivers Via Telehealth Technologiesmargaretmurphycenters.org/download/telehealth_challenges... · 2019. 10. 25. · Comparison of FA and FCT data Participants from Houston

Technical Issues

◼Hardware unavailable Loaners; alt. facility

◼Connectivity issues Upgrade; reduce # devices

◼Difficulty using software TA; instruct via phone

◼Hardware/software failures Backups

Challenges and Potential Solutions

Page 59: Training Caregivers Via Telehealth Technologiesmargaretmurphycenters.org/download/telehealth_challenges... · 2019. 10. 25. · Comparison of FA and FCT data Participants from Houston

◼ For HIPAA Compliance:

Software license must include Business Associate

Agreement (BAA)

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Challenges with Remote Viewing

◼ Client not always in view

Challenges and Possible Solutions

31% of 289 appointments

IOWA

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Challenges with Remote Viewing

◼ Client not always in view

Page 64: Training Caregivers Via Telehealth Technologiesmargaretmurphycenters.org/download/telehealth_challenges... · 2019. 10. 25. · Comparison of FA and FCT data Participants from Houston

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sess io ns in th e in itia l lo ca tion (liv in g ro o m ) and a fte r

re - lo ca tin g sess io n s to a p lay ro o m

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Challenges with Remote Viewing

◼ Difficulty seeing/hearing client behavior

◼Difficulty hearing practitioner

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Disruptions in Client’s Environment

Challenges and Possible Solutions

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5 1 0 1 5 2 0

0

1

2

3

4

S e s s io n s

Re

sp

on

se

s

Pe

r M

inu

te

(Pro

ble

m B

eh

av

ior)

T o m m y

A lte rn a tiv e

I te m s A v a ila b le

A l l I te m s R e s t r ic te d

(T a n g ib le C o n d i t io n )

T a n g ib le

P la y

E s c a p e

A tte n tio n

F u n c tio n a l A n a ly s is

F ig u re 3 . R e sp o n ses p e r m in u te o f T o m m y 's p ro b lem

b eh av io r d u rin g th e in ita l se ss io n s o f th e fu n ctio n al

an aly sis an d afte r item s w ere restr ic ted in the tan g ib le

co n d itio n o f th e fu n c tio n a l an a ly s is

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Disruptions in Client’s Environment

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Disruptions in Client’s Environment

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1 0 2 0 3 0 4 0 5 0

0

1

2

3

S e s s io n s

Re

sp

on

se

s

Pe

r M

inu

te

(Oth

er

Fa

mil

y M

em

be

rs E

nte

rin

g R

oo

m)

B r ia n

F a th e r a b s e n t

F a th e r p re s e n t

F ig u re 4 . R esp o n ses p e r m in u te o f fam ily

m em b ers en te rin g th e ro o m d u rin g B rian 's

sess io n s w h en h is fa th e r w as p resen t v e rsu s

ab sen t in th e h o m e

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Other Issues Related to Client Behavior

◼Escalation in problem behavior

Challenges and Possible Solutions

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Other Issues Related to Client Behavior

◼Escalation in problem behavior

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Other Issues Related to Client Behavior

◼Reactive effects of camera

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Other Issues Related to Client Behavior

◼Reactive effects of camera

Possible Solutions

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5 1 0 1 5 2 0 2 5

0

2 0

4 0

6 0

8 0

1 0 0

S e s s io n s

Pe

rce

nta

ge

of

10

-s I

nte

rva

ls

(Re

ac

tiv

ity

)

G e o r g e

V id e o /A u d io O n

V id e o /A u d io O f f

F ig u re 5 . P ercen tag e o f 10 -s in te rv a ls w ith

G eo rg e 's re a c tiv e re sp o n se s d u r in g se ss io n s

w ith th e v id eo an d a u d io fee d tu rn ed o n v e rsu s

o ff

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Issues Related to Caregiver Behavior

Challenges and Possible Solutions

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Issues Related to Caregiver Behavior

◼ Insensitivity to vocal instructions

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1 0 2 0 3 0 4 0

0

2 0

4 0

6 0

8 0

1 0 0

Pe

rce

nta

ge

of

10

-s I

nte

rva

ls

(Pro

ble

m B

eh

av

ior)

S e s s io n s

C a lv in

0

2 0

4 0

6 0

8 0

1 0 0

Pe

rc

en

tag

e o

f S

tep

s

Im

ple

me

nte

d C

orr

ec

tly

E X T F C T + E X T

F a th e r

M o th e r

F ig u re 6 . P e rcen tag e o f trea tm en t s tep s

im p lem en ted co rrec tly b y C alv in 's fa th e r v e rsu s

m o th e r ( to p p an e l) a n d p e rcen ta g e o f 1 0 -s

in terv a ls w ith p ro b lem b eh av io r fo r C alv in

(b o tto m p a n e l) ac ro ss tre a tm e n t se ss io n s

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Issues at the Practitioner’s (Host) Site

Categories of Challenges

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◼ Schedule initial troubleshooting session

Send written guidelines in advance

Initially work with caregiver alone

Troubleshoot with play/leisure sessions, preference

assessment

General Recommendations

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◼ Tailor terms of service

Expectations and roles

Agreements about loaners

Limitations of remote services

Potential limits to confidentiality

◼ Recruit IT professional for team

◼ Maintain phone contact with caregiver

◼ Video record all sessions

General Recommendations

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◼ Fidelity Checklist – 9 supplementary items

Arranges for phone contact

Checks connection prior to session

Checks speaker, mic, and camera prior to session

Prepares room for optimal visibility and professionalism

Prepares environment for confidentiality

Begins session with check of systems

Provides extra time during pauses in conversation

Provides enhanced verbal descriptions

Makes modifications to limit reactivity as necessary

Training Curriculum…. A Beginning

Drs Neely and Graber

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◼ But we still need to determine

Who is appropriate for telehealth services?

What types of ABA services are appropriate?

Training Curriculum…. A Beginning

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QUESTIONS?


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