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Annual Report 2009
DISEASE FOUNDATION
The mission of the Parkinson's Disease Foundation® (PDF®) is two-fold: to understand and find the cure to Parkinson's disease and related
movement disorders; and, for as long as this search continues, to ensurethat those individuals and families who live with Parkin son's are able
to achieve and maintain the best possible quality of life.
Funded $5 million through our diverse research programs to support the best scientific invest-ments in Parkinson’s, including
three leading Parkinson’s research centersand 24 individual investigators.
Continued our commitment totraining future leaders in Parkinson’sthrough our Fellowship and CareerDevelopment Programs, which
supported 42 fellowships for researchers, clinicians and students.
Advised, through our NationalHelpLine and Ask the Expert service,thousands of people with Parkin-son’s, family members and health
care professionals on issues relating to diagnosis, treatment, caregiving and more.
Awarded $300,000 in emergencybridge funding to four leadingParkinson’s disease scientists andsupported the promising Longi-
tudinal and Biomarker Study in PD (LABS-PD) Project.
Prepared our next class of 38people with Parkinson's to become clinical research advo-cates through our Second
Clinical Research Learning Institute.
Launched a new series of onlineeducational programs to ensurethat all people with Parkinson’shave access to the latest informa-
tion from the leaders in the field.
Celebrated our fourth year workingwith the People with Parkinson’sAdvisory Council, a group of 13individuals who advise PDF on
its programs.
Distributed 50,000 free educationalpublications to people around the US and around the world, to ensurepeople with Parkinson’s disease are
armed with the facts and resources theyneed to live well.
Recommitted ourselves to our financial assistance program(established in 2008 with an annual $50,000 grant to the Melvin
Weinstein Parkinson's Foundation) to tem-porarily cover needs of people with PD.
Received a Four-Star Rating fromCharity Navigator, making PDF theonly Parkinson’s charity to receiveboth this award and the Charity
Seal of Approval from the Wise Giving Al-liance of the Better Business Bureau (BBB).
PDF Advances in 2009
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3 4
66
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99 10
PDF Annual Report 2009
2 Letter from Leadership
4 Advancing Research
12 Advancing Education
14 Advancing Advocacy
16 Financial Reports
18 Events that Support PDF
22 Recognition of Donors
Table of CONTENTS
Dear Friend of the Parkinson’s Disease Foundation:
With pleasure, we present to you this report of the work that the Parkinson’sDisease Foundation (PDF) was able to undertake — with your help — during 2009.
If there is a single common theme that runs through our work on behalf ofthe Parkinson’s community during the year — beginning with the “Top TenList” presented on the inside cover of this report — it is the role of PDF inproviding a dynamic and productive link between the science of Parkinson’sand the people who live with it.
A prime example can be found in our programs of information and educa-tion. From the heavily-used Parkinson’s Information Service to the innova-tive and popular PD ExpertBriefings online educational series, we arecommitted to transmitting authoritative scientific information from leadingresearchers directly to people who live with Parkinson’s and their families,in this country and around the world.
To ensure that all people with Parkinson’s have access to this information,we use a variety of communication channels — from the voices and key-boards of scientific authorities; to in-person educational events; to writtenmaterials; to the Internet. Whatever may be the particular medium that weuse, our goal is the same: to share the most important science with its mostdeserving audience— the people who live every day with Parkinson’s.
Another example of this link between science and people is the work we doin helping to advance new treatments for Parkinson’s. This includes our in-novative Clinical Research Learning Institute, through which 62 leaders ofthe lay community — selected competitively through a nationwide applica-tion process — have been prepared to serve as advocates within the clinicalresearch process. They are sharing their message in communities aroundthe United States.
LetterF R O M L E A D E R S H I P
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Robin Anthony ElliottExecutive Director
Lewis P. Rowland, M.D.President, Board of Directors
PDF Annual Report 2009
This link between science and people is evident even in the financial support weprovide to programs of scientific research. A special focus of our scientific grantsprogram is to prepare scientists early in their careers— many of whom go on to become leaders of the Parkinson’s research community, in the US and beyond — to undertake investigations that will advance our understanding of Parkinson’sscience and prepare and strengthen the infrastructure for the development of new treatments.
In all of these initiatives — from the post-residency Fellows whom we supportthrough PDF’s major research centers and professional associations, to the scientificand clinical grant proposals that are submitted under our International ResearchGrants and Fellowships Programs — the two watchwords of our approach are excellence, as attested to by the rigorous standards of professional peer review, and relevance to understanding and treating Parkinson’s.
We are proud of what we have been able to accomplish over the past year. It has not been easy; many thousands of non-profit organizations have felt the pinchof what has become known as the Great Recession, and PDF has not escaped this experience. But because of the resilient generosity of thousands of our donors during this difficult period, for whom Parkinson’s is such an important cause,we were able to maintain the quality, number and diversity of our programs.
For this, we thank you, and we hope that you will find in this report of our achievements during 2009 solid reason both for your trust of us in the past, and for your continuing confidence in us to serve the Parkinsons’ community in the future.
Sincerely yours,
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For more than a half century, the Parkinson's Disease Foundation (PDF) has remained committed to funding research of the highest caliber. The stories that follow demonstrate PDF’s unique capacity to be a consistent supporter of dedicatedParkinson’s disease (PD) programs, while also remaining nimble and responsive tonew opportunities. These efforts are guided by PDF’s Scientific Advisory Commit-tee, a group of leading, international Parkinson's researchers that is headed byStanley Fahn, M.D., PDF’s Scientific Director. Total expenditures on scientific research in 2009 reached almost $5.7 million, 57 percent of our total budget.
Investing in Leading Parkinson’s Research CentersThrough its Center Grants
Program, PDF provides funding
to select groups of scientists who
are committed to understanding
and solving Parkinson’s. Center
Grants allow a strong group of
talented scientists, working on
separate but related Parkinson’s
projects, the flexibility necessary
to collaborate and advance our
understanding of Parkinson’s
disease. PDF’s Research Centers are funded based on continuing excellent performance, as
attested to by peer review. In 2009, the Center Grants program accounted for more than
$3.2 million — more than 50 percent of our total research budget.
Currently, PDF awards Center Grants to the clinical and basic science research programs
at three prestigious institutions — Columbia University Medical Center in New York; Rush
University Medical Center in Chicago; and Weill Cornell Medical Center in New York.
Scientists Discover Most Common Genetic Risk Factor for Parkinson’s
Lorraine N. Clark, Ph.D., and Karen Marder, M.D., M.P.H., two scientists supported
through PDF’s Center Grant to Columbia University, have collaborated with a team led by
Ellen Sidransky, M.D., of the National Human Genome Research Institute, to create one of
AdvancingR E S E A R C H
Parkinson's disease is a progressive neurodegenerative disease in which neurons, like the one pictured here, die over time. This tissue from a part ofthe brain affected by Parkinson's, the substantia nigra, has been stained tohelp separate healthy neurons (golden yellow) from those that are dying (dark pigment).
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PDF Annual Report 2009
“Our results reflect theachievements of a teamof bright scientists, atvarious stages of theircareers, all intently focused on Parkinson’s.Their shared knowledge,creativity and collabora-tion advances our understanding of thedisease. I am grateful to PDF for helping tomake this possible.”
— Dr. Lloyd A. Greene, Columbia University Medical Center
Microscope slide containing brain slices from a transgenic mouse that carries a mutated form of the gene LRRK2. Because mutations in this gene can cause Parkinson's disease for some people, scientists hope to use this transgenic mouse as a new tool to understand the cause and progression of the disease.
the largest clinical investigations of the genetics
of Parkinson’s ever undertaken.
Results of the study, published in the New
England Journal of Medicine, demonstrated that
people who carry a mutation in a gene known as
GBA have a significantly increased risk — over
five-fold — for developing Parkinson’s. (Muta-
tions in the GBA gene have also been shown to
cause Gaucher’s disease.) This makes the newly
identified genetic risk factor for Parkinson’s the
most common among the dozen or so genetic
factors that have been identified to date. Mu ta -
tions in the GBA gene most likely increase suscep-
tibility to PD, which when combined with other
factors, results in disease. The mechanisms by
which this happens are not yet understood and
require further research.
New ToolWill Improve Testing of New Treatments
In PDF-funded labs at Weill Cornell Medical
Center and Columbia University Medical Center,
M. Flint Beal, M.D., and Robert Burke, M.D.,
have made progress in finding a new and power-
ful tool for testing new Parkinson’s therapies and
studying the underlying causes of the disease.
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Advancing RESEARCH
Working with Chenjian Li, Ph.D., at Weill Medical College and Tinmarla Francis Oo at
Columbia University, Drs. Beal and Burke have created a unique “mouse model” that ex presses
a mutated form of the LRRK2 gene — the gene most commonly implicated as a cause of Par -
kinson’s. Their results were published in Nature Neuroscience. Their model will help scientists
to create and test new Parkinson’s treatments in the lab.
Prior to this development, progress in Parkinson’s had been hampered because scientists
did not have a model that accurately mimicked the natural course of PD in humans.
Using MRI to Better Understand Cognitive Impairment
Cognitive impairment is a common and troublesome nonmotor complication in Parkin-
son’s that can range from mild dysfunction to advanced dementia. The impact of cognitive
impairment is felt both by people living with Parkinson’s and their care partners.
Jennifer Goldman, M.D., M.S., of Rush University Medical Center has developed a
research program that uses Magnetic Resonance Imaging (MRI) to examine whether there
are changes in the structure of the brain that may accompany mild cognitive impairment and
As a member of the group funded by PDF’s Center Grant to
Columbia University, Lloyd A. Greene, Ph.D., and his team are focused on under-standing both how neurons die in Parkinson’sdisease and how to prevent the process.
Recently, this team examined tens of thou-sands of genes in a laboratory model of Parkin-son’s and found that one gene — RTP801 —appeared more commonly than any of the oth-ers. They also noted that excess levels of thisgene blocks the activity of Akt, a key cellularenzyme, from doing its job of protecting neu-rons. At this point, their research intersectedwith that of their Columbia colleague Dr. RobertBurke, who found that in animals with a form ofAkt that was resistant to the actions of RTP801,
neurons were protected — even from a toxinthat mimics Parkinson’s. The convergence ofthese two pathways demonstrates the impor-tance of Akt as a target for PD therapeutics.
In related work with their Columbia col-leagues Serge Przedborski, M.D., Ph.D., and Vernice Jackson-Lewis, Ph.D., the team foundthat rapamycin, an immunosuppressant drugused to treat kidney transplant recipients,blocks RTP801 and protects dopamine neu-rons in experi mental animal models of Parkin-son’s. Although this approach may not bepractical as a PD therapy because rapamycinseverely compromises a person’s immunesystem, scientists hope that understandinghow rapamycin works may open the door to exploring other potential treatments.
FOCUS ON Research Synergiesthrough Center Grants
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Gammon Earhart, Ph.D., P.T.Washington University School of Medicine
David Park, Ph.D.University of Ottawa, Toronto
Hardy Rideout, Ph.D.Biomedical Research Foundation, Academy of Athens
Antonio Strafella, M.D., Ph.D., F.R.C.P.C.Centre of Addiction and Mental Health, Toronto
Peter Teismann, Ph.D.University of Aberdeen, Scotland
Christian Wider, M.D.Mayo Clinic Jacksonville
Cyrus Zabetian, M.D., M.S.University of Washington
International Research Grants Awardees
Fellowship Awardees
dementia in Parkinson’s. With PDF’s support,
she conducted a pilot study of 30 people with
Parkinson’s. Among those individuals who had
the greatest cognitive impairment, she found a
shrinkage in the brain regions that are implicated
in memory function.
By helping to identify those individuals
who are most at risk for developing dementia,
Dr. Goldman's research may provide leads to
developing new therapeutic interventions for
these people.
Supporting the Work of Individual Investigators
Through its external grants program,
PDF supports the work of promising scientists
throughout the world. One initiative is our
International Research Grants Program (IRGP),
which awards grants to scientists with novel
“high risk/high reward” proposals. These
awards allow scientists to test the feasibility of
their ideas, while generating the critical prelimi-
nary data that will lead to future funding from
major institutions such as the National Institutes
of Health.
In 2009, PDF increased the size of these
grants and doubled their duration from one to
two years. In all, $1.15 million was committed
to support the work of seven Parkinson’s
research scientists. The grant recipients were
chosen from a group of nearly 160 applicants by
members of PDF’s grants review subcommittee
led by Dr. Robert Burke of Columbia University
Medical Center.
PDF Annual Report 2009
Roy Alcalay, M.D.Columbia University Medical Center
Alessandra Chesi, Ph.D.University of Pennsylvania School of Medicine
Nancy Diaz, M.D.Columbia University Medical Center
Era Hanspal, M.D.Columbia University Medical Center
Navneet Ammal Kaidery, Ph.D.Weill Medical College of Cornell University
Sachin Kapur, M.D.Rush University Medical Center
Oren Levy, M.D.Columbia University Medical Center
Leila Maybodi, M.D.Columbia University Medical Center
Amie L. Peterson, M.D.Oregon Health Sciences UniversityPDF/PSG Mentored Clinical Research Award
Markos Poulopoulos, M.D.Columbia University Medical Center
Stefan Sandberg, Ph.D.University of Washington
Daniel Schneider, M.D.Columbia University Medical Center
Pedro Soldado, Ph.D.University of California, San Francisco
Aleksandar Videnovic, M.D., M.Sc.Northwestern UniversityPDF/AANF Clinician-Scientist Development Award
Ryan Walsh, M.D., Ph.D.University of Alabama at Birmingham
Tao Xie, M.D.Columbia University Medical Center
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Advancing RESEARCH
Creating a South American Genetics Consortium on Parkinson's Disease
Scientists have recently identified several genes that, when mutated, cause rare inherited
forms of Parkinson’s disease. However, most of these studies have been conducted in the US
and other economically-developed countries. Few large-scale Parkinson’s genetic studies have
been carried out among people from developing nations.
With IRGP funding, Cyrus Zabetian, M.D., M.S., of the University of Washington in
Seattle is creating a Latin American Research Consortium on the Genetics of Parkinson’s
Disease, which will include five institutions in Argentina, Brazil, Peru and Uruguay.
Dr. Zabetian and his colleagues are aiming to collect blood specimens for DNA extraction
as well as demographic, clinical, and environmental exposure data from 1,750 people with
Parkinson’s and 1,650 people without the disease. The samples and data, held in a consor-
tium coordinating center at the Seattle Institute for Biomedical and Clinical Research in
Washington state, will provide a unique resource for future genetic research on Parkinson’s.
Bridging Research Funding Gaps
As part of its efforts to support the best science, PDF remains nimble and responsive to the
needs of the research community. In 2009, PDF awarded one-time grants of $75,000 each to
four scientists whose grants were terminated when the source of their funding collapsed. This
bridge funding ensured that promising research would not be put on hold.
These researchers included J. Timothy Greenamyre, M.D., Ph.D., of the University of
Pittsburgh; Virginia M.-Y Lee, Ph.D., of the University of Pennsylvania; David Sulzer, Ph.D.,
of Columbia University; and D. James Surmeier, Ph.D., of Northwestern University.
Each project is pursuing a novel avenue of research that may shed light on new ways of
treating Parkinson’s. For example, Dr. Lee, along with John Q. Trojanowski, M.D., Ph.D., is
focused on drug discovery that targets the misfolding, or clumping, of a protein called alpha-
synuclein. This clumping is believed to contribute to the cell death that leads to Parkinson’s.
Clinical center locations for the Latin American Research Consortium on the Genetics of Parkinson’s Disease.
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Their team will test a variety of known com-
pounds to determine if any are effective in
preventing the protein clumping and will exam-
ine the most promising candidates for their
potential not only to treat Parkinson’s, but also,
theoretically, to slow its progression.
Supporting the Training of Young Scientists, Future Leaders
PDF’s mentored fellowships, training
opportunities and career development awards
generate interest in Parkinson’s research and
patient care among basic scientists and clinicians.
In the longer term, this can lead many of these
young scientists and clinicians to devote their
talents to the study of Parkinson’s for years, even
for their entire careers. In 2009, these awards
to 42 researchers totaled $1.2 million.
Understanding the Possible Impact of Vitamin D on Balance
Through the Parkinson’s Disease Founda-
tion/Parkinson Study Group (PSG) Mentored
Research Award, new investigators are funded
for a one-year project in patient-oriented
research in Parkinson’s under the mentorship of
an experienced investigator. Amie L. Peter son,
M.D., of Oregon Health Sciences University, the
2009 Award recipient, is focusing her fellowship
on an element of Parkinson’s that is troublesome
and risky to many living with the disease, but is
as yet underexplored: problems with falls,
strength and balance.
These issues can become serious in later-stage
Parkinson’s, yet no intervention has been found to
PDF Annual Report 2009
“With PDF’s help, we will be able to continue our research,the ultimate goal ofwhich is to expand the ‘pipeline’ of promising compoundsfor novel Parkinson’s disease therapies.”
— Dr. Virginia M.-Y Lee,University of Pennsylvania
successfully address them. And although research has shown that use of vitamin D supplements
may cause a decrease in falls among elderly people in general, this issue has not been looked at in
persons with Parkinson’s.
To address this under-studied area, Dr. Peterson began her research project, “A Pilot
Study of Balance and Vitamin D in Persons with Parkinson's Disease,” under the mentor-
ship of Jay Nutt, M.D., and Fay Horak, Ph.D. They are working with 40 people with
Parkinson’s and are measuring balance and vitamin D levels in each person.
Dr. Peterson will compare these levels in people who tend to fall versus those who do not
to see if there is any correlation between the two. She hopes that this study, if conclusive, will
lay the groundwork for a future study, investigating whether people who take a vitamin D
supplement find an improvement in balance and strength, and a decrease in their falls.
Investigating the Function of a Parkinson's Disease Gene
Scientists have identified several genes that, in rare cases, lead to an inherited form of
Parkinson's. One of these genes is called PARK9. Because yeast have a gene, called YPK9,
that is analogous to human PARK9, research into the function of this gene in yeast can have
direct implications for understanding the role of PARK9 in human health.
As a recipient of one of PDF’s Postdoctoral Fellowships for Basic Scientists, Alessandra Chesi,
Ph.D., and colleagues at the University of Pennsylvania School of Medicine dis cov ered last year
that the YPK9 protein neutralizes the toxicity of another protein — alpha-synuclein — that
builds up to toxic levels in the dopa mine neurons of people with Parkinson’s. YPK9 also
helped protect cells from environmental damage due to exposure to the metal manganese.
In humans, manganese exposure is linked to a Parkinson's-like syndrome.
This team is now investigating the mechanism through which this protection comes about,
beginning with studies in yeast and then expanding to mammalian cells. The scientists hope
that these studies will shed light on the interaction between genetic and environmental risk
factors for Parkinson's.
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Advancing RESEARCH
Yeast with a mutant PARK9 gene die when grown in the presence of manganese.
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Accelerating Research from “Bench to Bedside”Each year, PDF’s Advancing Parkinson’s Treatments (APT) Innovations Grant is awarded to novel
programs that attempt to remove the barriers that prevent treatments from reaching people with Parkin-
son’s. In 2009, $250,000 was allocated to this initiative.
Uric Acid and the Progression of Parkinson’s Disease
Uric acid, the chemical that at high levels can cause gout and kidney stones, may turn out to be a
“marker” for the progression of Parkinson’s. With funding in part from PDF, investigators led by Al-
berto Ascherio, M.D., Dr.P.H., and Michael Schwarzschild, M.D., Ph.D., at Harvard University analyzed
samples of blood and cerebrospinal fluid (the body fluid that bathes the brain) that had been collected
from nearly 800 people with early-stage Parkinson’s in the 1980s as part of another clinical trial.
The investigators observed that people with PD who had high to normal levels of uric acid had a
slightly reduced risk of needing to take levodopa for their Parkinson’s than those individuals with lower
uric acid levels, suggesting that they may have a slower rate of Parkinson’s progression.
The relationship between uric acid and Parkinson’s progression is not yet fully understood. Many
researchers believe that oxidative stress plays a role in Parkinson’s and uric acid is a natural antioxidant
found in the body. Researchers suspect that uric acid could not only be a specific marker for the pro-
gression of Parkinson’s but may also alter the course of the disease. These hypotheses need further ex-
ploration. A clinical trial is now underway to examine the safety of inosine, a dietary supplement which
the body converts into urate, and its ability to elevate urate levels in the blood.
Finding a Biomarker for Parkinson's Disease
Doctors do not currently have the tools either to definitively establish a Parkinson’s diagnosis or to
measure the pace at which Parkinson’s develops. These challenges prompted the creation of the Longi-
tudinal and Biomarker Study in PD (LABS-PD). The goals of this study, under the auspices of the PSG
and supported by PDF, are to better understand the natural course of Parkinson’s motor and nonmotor
symptoms and to provide a database for the development of biomarkers — that is, chemical tests and
imaging technologies that track not only the progression of the disease but may also predict the risk for
developing it.
LABS-PD has nearly 600 participants — all of whom have previously participated in a clinical
trial — and is designed to enroll future participants from other completed trials and studies. Scientists
hope that this data will yield insight into progression of Parkinson’s symptoms, rate of progression and
connection between symptoms. More importantly, researchers will compare these findings to the bio-
logical samples they collect, tracking over time how any change in the body (as shown by the samples)
relates to changes in a person’s symptoms. By doing so, they hope to identify biomarkers, which could
lead to better individualized treatment of people living with Parkinson’s.
PDF Annual Report 2009
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Through its innovative educational programs, PDF remains a trusted source of accurate, accessible information about Parkinson’s disease. In 2009, PDF allocated $1.9 million or 18 percent of its total budget towards these efforts that ensure that the Parkinson’s community receives the information needed to better understand and manage the disease.
Offering the Community First-Hand Access to Parkinson's Experts PD ExpertBriefings, a six-part interactive online educational series that participants can
view from the comfort of their home, was launched in 2009. Each 60-minute ExpertBriefing
is presented by a leader in the field of Parkinson’s research and care. The online seminars
offer practical advice for living with Parkinson’s — on issues such as care partner support,
employment, nutrition and more — and discuss the latest scientific findings in Parkinson's.
Each seminar is archived for viewing on the PDF website for one year.
The series began in September 2009 and is scheduled to run on an every-other-month basis
until June 2010. More than 2,000 individuals participated in the first two events.
Developing a Centralized Source of Parkinson's ResourcesIn 2009, PDF produced the Parkinson's Disease Resource List, a 114-page print publica-
tion that provides information about more than 650 organizations, books and websites for the
Parkinson's community. Also available online, it includes national and local resources that
address employment concerns, insurance issues, financial assistance, legal matters and more.
The concept for the Resource List developed from conversations with PDF’s People with
Parkinson’s Advisory Council (PPAC), which asked us to put together a centralized resource
that would compile information from all sources that may be useful for people with Parkin-
son's, at all ages and stages of the disease.
Over 20,000 copies of this publication were distributed to individuals in all 50 states
and 18 countries around the world in 2009.
Answering the Community’s Questions About Parkinson's DiseaseThe introduction of new promotional tactics helped us to increase the reach of our na-
tional toll-free HelpLine and Ask the Expert online service of the Parkinson’s Information
AdvancingE D U C A T I O N
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Service (PINS). Almost 8,000 people with
Parkinson’s, care partners, allied health profes-
sionals and doctors throughout all 50 states used
these services in 2009.
A significant percentage of inquiries to PINS
involved requests for financial assistance. PDF
was pleased to be able to direct these individuals
to the Helen M. Lynch Direct Aid Fund of the
Parkinson’s Disease Foundation and the Melvin
Weinstein Parkinson’s Foundation. This fund,
which was established in 2008 with the help of a
private gift, offers assistance to cover such costs
as home healthcare and the purchase of medical
equipment for individuals who meet certain eligi-
bility requirements. In 2009, this fund served
114 people in 31 states.
Educating the Community on the Importance of Clinical Trials
It is estimated that less than one percent of
people with Parkinson's participate in clinical
trials — far fewer than are needed to discover
new ways to treat symptoms or find a cure for
the disease.
As the lead organization of the PDtrials na-
tional clinical studies education and awareness
campaign, PDF recently developed the PDtrials
Partners in Progress Toolkit in collaboration with
clinical research coordinators and people with
Parkinson's. Designed for motivated leaders like
the graduates of PDF’s Clinical Research Learning
Institute and the facilitators of support groups, the
toolkit’s multi-media resources provide the means
to raise awareness of the importance of Parkin-
son’s clinical research as well as offering informa-
tion on studies that are taking place locally.
PDF Annual Report 2009
“I signed on for thefirst two in your six-part series of PD ExpertBriefings and I want to thank you for this extremely educational and supportive program. I have learned so muchfrom this series andwill certainly sign on for the rest.”
– Barbara M.,Care Partner,Atlanta, GA
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Through its programs of public advocacy, PDF partners with people with Parkin-son’s, their families and care partners on initiatives that move the cause forward.In 2009, these efforts accounted for $495,000, or five percent of our budget.
Training Clinical Research Advocates In October 2009, 38 people living with Parkinson’s disease from around the country
participated in PDF’s second Clinical Research Learning Institute.
The three-day training educated participants about the ways in which people who live
with Parkinson’s can contribute to the development of new treatments and a cure for the
disease by becoming advocates within the clinical research process — that stage of science in
which potential therapies are tested in humans. The training included educational sessions
and break-out workshops directed by leading clinical researchers, study coordinators, govern-
ment and industry representatives and former Learning Institute graduates. Following the
training, ongoing educational and networking opportunities have allowed graduates to
regularly share knowledge and compare best practices.
More than 60 advocates from both graduating classes are now working in their commu-
AdvancingA D V O C A C Y
Carolyn Weaver, a 2008CRLI graduate, is taking herhome state of Michigan bystorm by initiating a campaignthat highlights the importance ofclinical research. Working withthe Michigan Parkinson Founda-
tion (MPF), Ms. Weaver is reaching out to 50support groups about the basics of clinical re-search, resources and tips for making informeddecisions about research participation. Accord-ing to Debby Orloff, CEO of MPF, “It is incredibleto see what she has accomplished in one year ineducating people about clinical research.”
James R. Wong, Ph.D.,a 2009 CRLI graduate, isusing his background as acell biologist and his experi-ence as an advocate to edu-cate others about clinicaltrials. As a member of theCalifornia Parkinson's Group, Dr. Wong speaks at events throughout thestate about the role people with Parkinson'scan play in the clinical research process. Dr. Wong has also been appointed as the first patient representative on the steering com-mittee of the PDF-funded Longitudinal Assess-ment and Biomarkers Study (LABS-PD), underthe auspices of the PSG.
Carolyn Weaver
James R. Wong, Ph.D.
The Advocate Report:Michigan & California
15
nities to increase knowledge of Parkinson’s clini-
cal research and study participation; to provide
the perspective of a person with Parkinson's in
the clinical research process (e.g., by giving input
to research sponsors and investigators on trial
design, implementation and evaluation) and to
provide a pool of participants for clinical re-
search review and advisory panels such as Insti-
tutional Review Boards and Data Safety
Monitoring Boards.
Supporting Washington, DC AdvocatesPDF’s grant of $200,000 in 2009 to the
Parkinson’s Action Network (PAN), the Wash-
ington-based public policy voice of the Parkin-
son's community, helped to support PAN
advocates in their efforts to address Parkinson’s-
related issues on a national level.
Their accomplishments included securing
$25 million in funding for the Neurotoxin Expo-
sure Treatment Parkinson's Research (NETPR)
program of the Department of Defense. In addi-
tion, advocates worked closely with US Military
Veterans with Parkinson's Disease to ensure that
Vietnam veterans who were exposed to Agent
Orange could receive needed benefits. PAN ad-
vocates also secured support of the National MS
and Parkinson's Disease Registries Act, a bill
which would create a Parkinson's registry in the
US. Finally, advocates worked to ensure that the
Cures Acceleration Network (CAN) Act of 2009,
introduced by Senator Arlen Specter with the
aim of speeding the development of new drugs
and therapies, was included in health care
reform legislation.
“I think the Clinical Research Learning Institute made it clear that we — people with Parkinson’s,doctors, researchers —are all on the same team. We all want to cure Parkinson's.”
– Claire Henchcliffe, M.D., D.Phil,Clinical Research Learning Institute Faculty
PDF Annual Report 2009
16
AssetsCash and cash equivalents
Contributions and other receivables
Other current assets
Investments, at fair value
Fixed assets, net
Other noncurrent assets
Investments — restricted as to use
Total assets
Liabilities and net assets
Accounts payable and accrued expenses
Grants payable
Deferred compensation plan
Total liabilities
Net assets
Unrestricted
Temporarily restricted
Total net assets
Total liabilities and net assets
$4,717,558
99,234
70,689
12,621,826
515,787
326,331
320,466
$18,671,891
$810,680
1,484,622
320,466
2,615,768
14,273,908
1,782,215
16,056,123
$18,671,891
$1,992,176
251,186
107,168
10,863,814
426,072
296,540
211,854
$14,148,810
$921,696
1,759,079
211,854
2,892,630
9,857,981
1,398,199
11,256,180
$14,148,810
June 30
20082009
Statement of Financial Position
In 2009, PDF was awarded both a four-star rating from Charity Navigator and the Charity Seal of Approval from the Wise Giving Alliance of the Better Business Bureau (BBB).
FinancialR E P O R T S
17
$1,178,996
-
-
-
(444,569)
734,427
-
-
-
-
-
-
-
$734,427
$6,168,203
7,026,187
465,748
720,000
-
14,380,138
5,961,509
2,327,566
8,289,075
576,549
1,441,925
2,018,474
10,307,549
$4,072,589
$4,500,280
2,729,727
298,439
780,000
-
8,308,446
5,734,045
2,406,201
8,140,246
549,159
1,423,220
1,972,379
10,112,625
($1,804,179)
$4,989,207
7,026,187
465,748
720,000
444,569
13,645,711
5,961,509
2,327,566
8,289,075
576,549
1,441,925
2,018,474
10,307,549
$3,338,162
$347,648
-
-
-
(731,664)
(384,016)
-
-
-
-
-
-
-
($384,016)
$4,152,632
2,729,727
298,439
780,000
731,664
8,692,462
5,734,045
2,406,201
8,140,246
549,159
1,423,220
1,972,379
10,112,625
($1,420,163)
Year ended June 30, 2008
Year ended June 30, 2009
UnrestrictedTemporarilyRestricted TotalUnrestricted
TemporarilyRestricted Total
Contributions
Bequests
Special events revenue — net
Budgeted drawdown from investments
Net assets released from restrictions
Total operating support and revenue
Operating expenses:
Program services:
Research
Public information/patient informationand referral services
Total program services
Supporting services:
Management and general
Fundraising
Total supporting services
Total operating expenses
Change in net assets
Statement of Activities
Operating support and revenue:
80%
Research
57
%
Adm
inistration
& Fundraising
20
%
Advocacy
5%
Education
18
%
HOW Our Funds Were Spent
2009Percentage of dollars spent
on our mission
PDF Annual Report 2009
Note: The statement of activities does not include actual investment results.
18
The Parkinson's Disease Foundation’s generous volunteers, who remain steadfast in their commitment to fighting Parkinson’s, helped to raise more than $845,000 in2009 through special events to support PDF’s programs of research, education and public advocacy.
Bal du Printemps Celebrates Philanthropists and MovementOn May 12, 2009, PDF welcomed over 300 guests to its annual gala, Bal du Printemps, at
New York City’s Pierre Hotel. Themed a ‘Celebration of Movement,’ the event honored long-
time PDF supporters, Evan and Sandra Stern and their children — Mark, Russell, Doug, Kyle
and Anna — with the 2009 Page and William Black
Humanitarian Award and raised over $700,000.
As noted by PDF Chairman, Page Morton Black,
“The tireless commitment, leadership and philan-
thropic efforts demonstrated by the Stern Family for
more than a decade has been invaluable to PDF and
has touched every aspect of our work.”
PDF thanks the 2009 gala leadership for making
this event possible: Honorary Co-Chairs: Page
Morton Black, Amy Goldman and Judith Sulzberger, M.D.; Gala Co-Chairs: Karen Burke
Goulandris, M.D., Ph.D., Isobel Robins Konecky and Arlene Levine; Dinner Co-Chairs:
Margo Catsimatidis and Stephanie Goldman-Pittel; Master of Ceremonies, Len Berman;
and the Drury Design Group.
Young New Yorkers Celebrate SpringOn April 23, more than 425 guests joined
PDF and the Young New Yorkers for the Fight
Against Parkinson’s committee for the second
annual Celebrate Spring event at New York
City’s Hudson Terrace. The event raised
$77,000, which was directed to a research
program identified by Lucien Côté, M.D., of
Columbia University.
Events thatS U P P O R T P D F
Stephanie Goldman-Pittel (left) and Margo Catsima-tidis (second from left) present the Page and WilliamBlack Humanitarian Award to Sandra and Evan Stern.
Celebrate Spring leadership and sponsors (left to right): WilliamB. Sheehan, G. Pennington Egbert III, Missy Egbert Sheehan,Georgina B. Schaeffer, Greg Romero and John Romero.
19
Co-chairs G. Pennington Egbert III, Missy Eg-
bert Sheehan and Georgina B. Schaeffer led the
event for the second year in a row, along with their
committee of nearly 100 New Yorkers dedicated
to advancing a cure for Parkinson’s.
The co-chairs, whose fathers both lived with
Parkinson’s, noted that their work over the past
two years has involved more than raising funds
for research. “The experience of having a loved
one with Parkinson’s is what brought our group
together and Celebrate Spring makes us realize
just how many lives are touched by this disease,”
observed Mr. Egbert.
PDF Raises the Stakes for ResearchOn November 11, 2009, more than 300 peo-
ple joined PDF for Raising the Stakes at New York
City’s Capitale. Honorary Chair Annie Duke,
poker icon and runner-up on NBC’s hit show
“Celebrity Apprentice”, started the night off with a
rousing speech dedicated to the nearly one million
people in the US who live with Parkinson’s disease.
The evening included dancing, dinner, cocktails,
casino games and prizes and raised nearly $70,000.
PDF thanks event co-chairs Jose Cruz, Peter
Dorn and Doug Stern and the host committee for
their hard work in making this event a success.
PDF Annual Report 2009
The Parkinson’s DiseaseFoundation is very grateful to the manysupporters and friendswhose generositymakes our advance-ments in PD research,education and publicadvocacy possible.
Honorary Chair Annie Duke, with event Co-Chairs JoseCruz (left) and Doug Stern (right), before playing a fewhands of poker that raised funds for PD research.
20
Community Fundraising in ActionPDF Champions are the dedicated individuals — people with Parkinson's as well as their
friends, family and colleagues — who give their time and energy to raise awareness for Parkin-
son's and funds for PDF in their local communities. In 2009, PDF Champions raised over
$278,000 by organizing bake sales, running marathons, participating in bike rides and walk-
a-thons, and more!
Pottery for Parkinson’s
For Ali Shapiro Cudby, art has been a big part of her family tradition. When she decided
to do something to honor both her mother Leslie Shapiro, a painter who lives with Parkinson’s
disease, and her late grandfather, who also lived with Parkinson’s for many years, she chose to
host an art show using 100 pieces of her own pottery. The event raised over $5,500!
Ms. Cudby emphasized that it is the impact
that Parkinson’s disease has had on two generations
of her family, that has made her passionate about
contributing to the cause.
She said, “My family has the unique perspective
of seeing the amazing progress we have made over
the years in treatments for Parkinson’s, from the
time my grandfather was alive until now. This is
why I believe it’s so important to raise funds for Parkinson’s research — to improve treatments
and find a cure not just for my mom, but for other people living with Parkinson’s across the US.”
Running for Parkinson’s
For Jennifer Iaccarino, the decision to run the 2009 New York
City Marathon as a PDF Champion came after witnessing the im-
pact that the disease had on several close friends who lived with it.
A former professional fundraiser, Jennifer worked hard to get
the word out by sending emails and letters to friends, family and
neighbors. Through her personal fundraising webpage on PDF’s
website, she raised over $3,500!
As she tells us, “I am amazed at how people have responded to
my outreach with such generosity. Everyone has realized just how badly
we need a cure for this disease and with donations from family and friends, I have far surpassed
my original goal. I hope my contributions bring us closer to beating Parkinson’s.”
Pottery for sale at PDF Champion Ali Shapiro Cudby’s Pottery for Parkinson’s Art Show.
Events that SUPPORT PDF
PDF Champion, Jennifer Iaccarinoand her family, after she completedthe 2009 ING NYC Marathon.
21
PDF Annual Report 2009
Champions In Action
Samantha AdamsAnn AffinitoPump It Up for Parkinson’s
Priscilla AguilaMatthew ArendtTara ArnoldVittoria d’Aste-SurcoufVittoria & Bam’s Wedding
Bob BenjaminLight of Day Concerts
Angela BerktoldLaura BishopCoral BrooksLaurel BurrillBig Mountain Run for Dad
Jerry CagleChristopher CastaldoCastaldo Walk
Elizabeth CollinsJohn ConsolazioChicago Marathon
Robbin CouchDanielle CrumplerAli CudbyPottery for Parkinson’s
Leslie DavidsonRoss DeJongDrucilla DornLauren DrakePancakes for Parkinson’s
Darla DudleyJeri DulaneyJocelyn FloresBrandi ForbesTom Forbes’ Memorial Fund
Linda A. GagnerCortney GawronLisa GermainSkate For Parkinson’s
Brian GilbartChicago Marathon
Linda Giorgilli (Rice)Clara GordonTerri HelregelDonald HennShelly HornerJennifer IaccarinoNew York City Marathon
Randi JacobsBruce JaggardCity of Oaks Marathon
Katherine JaggardCity of Oaks Marathon
Robin JumperGrand Gala Opening for Celebrate Creativity Art Show
Lindsay KaldorMiami Marathon
Elizabeth KeshishKatie LinehanMeghan LortieBoston Marathon
Jill MarkeyHolly Masters-StantonJames McDermottDavid MelilloZwick Pro Am Golf Tournament
Patty MikutisJennifer MillerAdam MitchinsonNew York City Marathon
Donna MondaniRobert MoneganGlam Divas Show
James MooreChicago Marathon
Kim MooreChicago Marathon
Robert and Jennifer Moore
Quinn MorlockThe Run for Parkinson’s
Charles NeelyJoseph NovelloPunch Out Parkinson’s
Elizabeth O’ConnorBoston Marathon
Charles O’DonnellJeff OppenheimJoseph OrtonShannon ParryJacqueline PaulNew York City Marathon
Crystal PenneyMaryJoan PiconeTom PieriniGreat Colorado Run
Vera RamacittiChristopher RappChip ReweyMolly RiddickPancakes for Parkinson’s
Sarah RobinsonRoy RodenSpin-a-Forge-a-thon
Craig RunnelsMashers Against Parkinson’s Golf Tournament
Marc RutherfordStephanie SchaeferJuan SerratoPablo’s Run for a Cause Marathon
Julie SilvaThomas SilverBerlin Marathon
Lani SkelleyNew Day New Hope Dance Show
Lauren SmithAlanna Steffen-Nelson
Carolyn StephensonLinda StorbeckFlip Flop Walk
Larry StraussSharon TariffMaisie TuckerSally Tumas-SkoricAnthony TumoloPamela WarfordDana WashingtonMelanie WebbDebbie WeberBig “M” Run
Cindi WeissblattAudrey WinthropParkinson’s Open Road Race
Gillian WoodsThomas ZackRockin’ on the River
The Parkinson's Disease Foundation applauds our grassroots fundraisers, whose efforts from July 1, 2008 to December 31, 2009 not only helped PDF to fund promising research, but also served to raise awareness in communities around the US about the impact of this disease.
22
Irving and Lorraine AaronColman and Nancy AbbeRobert W. AbelsRichard and Patricia AboiaLenora AbramowitzNorman and Mary AbramsMartin AbschutzStephen and Marsha Ackerman
Carol H. AdragnaMark A. AhlemannRichard and Sue AhlvinMr. and Mrs. Robert M. Aiken
Mr. and Mrs. Roger E. Ailes
Richard S. Aldrich, Jr.Thomas and Ann Alexander
Timothy AlexanderEthel Strong AllenGeorge and Jodie AllenGreg AllenHoward W. AllenRon Alterman, M.D.Mr. and Mrs. Jefferson Amacker
Paul AmidonMr. and Mrs. Richard Anastasi
Terry AncelJanet S. AndersenGary AppelGigi ArledgeDaniel ArmstrongFrederick W. ArndtJeffrey and Shari AronsonWalter E. ArpsJohn and Anne AthertonDr. Thomas AtkinsSharon BakerEvelyn S. BalikDr. and Mrs. Walter Ballinger
Roslyn BarashTerry Barnes
Thomas BarrPatricia BarrsRichard F. Barry, IIISamuel BarstSandi BartelDoris BatoPeter and Emily BauerLee and Dorothy Baumgarten
Sandra BealJohn and Virginia BeamanTeresa BeasleyMichael and Marcia BeckRonald BeckerBernie Beiser and Wendy Beiser
Frank M. and Ranlet BellAlfonso and Hilda BellancaDr. Gardner and Mrs. Patricia Bemis
Mr. and Mrs. Don BenderSusan BenedettoStephen BenjaminElizabeth and Robert Bennett
M. Sloan BentleyAlan BercowPaul and Michelle BergerJames and Suzanne Bergoffen
Mr. and Mrs. Melvin Berlin
Deborah Berman and Bruce Greenberg
Josh BernsteinPhilip BertoleDavid and Carol BerwindMr. and Mrs. David Bescherer
Louis BiglianiAndrea BillhardtDr. Maurice and Ms. Sarah Birdwell
Lewis BlackKyle BlackmonDavid and Mary Blair
Cliff and Arlene BlakerJames and Carol BlannSteven R. BlockSean and Rosanne Bloodwell
Theodore and Flora Blumenthal
James and Helen BoboBrian BockschRichard BohlenBenjamin and Betty BohrEdward and Patricia BoothCharles A. Bordner, Jr.Diana and Garrett BoutonDierdra BowditchRoger M. BowmanMr. and Ms. Paul C. BoydJohn BradyHelen P. BrennemanMichael and Tracess Brenner
Ruth and Martin BresslerRobert and Diane BroganArthur and Nancy BrollMichael BronderAngela and David BrownJoanna Welty BrownWilliam and Sally BrownVivienne BruckmanBunyan BryantAmy and Arthur BuckmanKlaus and Robyn Burckhardt
Dr. Robert Burke and Dr. Sharon Wardlaw
Kimberly L. Fehrle BurnsJames and Debbie BurrowsKaren J. BushawJudy BuyanMargery ByersRobert and Patricia Caldwell
William CameonMr. and Mrs. Peter Campbell
Mr. and Mrs. Joaquin Campo
Lourdes and Jose CamponJeff and Dieta CaoRobert and Mary CapaldiNorma M. CardinalJohn and Margo Catsimatidis
Marie CecilBernard and Linda ChalfinRaymond M. Champion, Jr.Adam ChasnowLois A. ChazenMr. and Mrs. Thomas Cherner
Charles ChernickSusan CherryMr. and Mrs. William B. Chiasson
Doris ChristmanRichard ChurchillAnthony and Patricia Cilluffo
Carol C. Clark, Ph.D. and Charles Parkhurst
Aaron and Wendy ClaytonMarlynn ClaytonA. Peter ClemRalph ClineTom CochranDayl CohenMendel CohenMichael and Eileen CohenRobert CohenGerard and Joan ColeKenneth ColemanJosephine CollinsRuth G. ConklinRobert and Keri CooneyAllan and Carey CooperArlene and Walter CooperKarl CooperThomas A. CooperKatharine T. CorneliusNorman and Helen Coulson
Individuals
The following are the names of individuals, families, foundations and corporations who have made cumulative gifts of $500 or more between July 1, 2008 and December 31, 2009.
Recognition of DONORS
Carol A. CowanJohn and Judith CraigDave and Andy CrossRev. Carol C. CruikshankJose R. CruzJudi and Gene CurryJohn CzarneckiDavid D’AmicoPhilip Danley and Mary Lahm
John DanstromBeverly DashevskyArthur and Patricia Davidson
Jeffrey and Louise DavisKenneth DavisMichael DavisMonty and Martha DavisNeil Davis and Judy Karver
Phyllis and CamillusDeCinces
Dr. Linton DeckThomas G. DeconcilisPatricia DegeorgesAnthony and Theresa Del Gatto
Guido D’eliaWilma DemlingDr. Opal M. DenekeRoberta B. DenningWalter DennisMr. and Mrs. Al DePaceMelissa DerflerDavid DeutschJerry DiamondsteinHorace L. Dickens, Jr.Mark DickinsonKevin DieterichE. Scott and Mary DillonDavid M. Dines, M.D., P.C.
Aida S. DishmanMichael and Barbara Ditzian
Thomas Doenitz
John F. Donahue, Jr.Barry DorfPeter J. DornTammy DoughertyChristine A. DoyleDavid and Lynette DrayChris and Jill DruryLuke and Ulana DubasBruce DummerAlfred and Joanna DunkleeJames DunnRoger C. DunnTerry DutcherScott EadsLeah EatonBrian and Karen EckhartMartha and Arthur Eldestein
W. EdwardsMrs. George P. Egbert, Jr.G. Pennington Egbert, IIISoral EglowsteinRoberta and Milton EhreDr. N. J. and Mrs. Elaine Ehrenkranz
Frances EhrlichHeather EileringCharlotte and Alan Einstein
Stafford N. EliasRobin A. Elliott and Dr. Sheila C. Gordon
Ernest EllisonRuss and Shirley EnnsGeorge EnsenatKathryn ErnstMr. and Mrs. Steven ErreraJeffrey and LeeAnn Ettinger
Uzi and Anat EvronMr. and Mrs. Terry EwardDr. Stanley and Mrs. Charlotte Fahn
Sal and Dolores FalcigliaJohn P. FalkSteven Farber
Joan E. FaroKenneth H. FastLeonard and Gloria FazioAnn FergusonGeorge FeskoDavid and Linda FinkCatherine FischerMr. and Mrs. Stanley Fishfader
Joseph H. FlomStephen and Cynthia FloodAnthony ForgioneAlan and Tatyana FormanJack FortinskyMargaret and Keith FowlerDr. Robert and Mrs. Carla Fox
Ronald and Donna FrankJonathan FranzenFamily of Thom and Carol Frazier
Avram and Rhoda Freedberg
Joan FreitasBarbara and Robert FremontAnne Fribourg, Ph.D.Diane D. FriebeWilliam and Sylvia FriendElizabeth FriouMr. and Mrs. Otto W. FritzCapt. Sam Gagliano and Carole Gagliano
Jeffrey GallinDavid H. GambrellSarah Belk GambrellRenee GantAlan and Marion GarfieldRamon and Elaine Garfinkel
Diane GarrettJeanne K. GersonAnthony GiambroneG.S. Beckwith GilbertRobert M. GilhooleyChristopher GillockAnthony and Susan Gilroy
Robert and Gail GinsbergCatherine and Mariano Giordano
Richard and Sally GiulianiBetty Glass and Max Rohrlich
Isabel GlassTeresa GlodeckMorton and Claire GoetzJeffrey GoldbergMichael and Anne GoldenReynold S. Golden, M.D.Amy GoldmanDavid GoldmanSteven GoldmanBenjamin and Susan Gomez
Jill S. GoodmanRichard GoodmanDr. Robert and Mrs. Sarah Goodman
Hon. Roy GoodmanMr. and Mrs. Robert Goodrow
George and Christine G. Goon
Allan GordonJames and Ann GordonKaren Burke, M.D., Ph.D., and Peter J. Goulandris
Thomas and Anne GraceStephen L. GraessleEllen M. GrafJoan GrahamFrances GranlundDr. Michael GranofJames GrayPhilip Green, Jr. and Dona Green
Mr. and Mrs. Alan C. Greenberg
Mr. and Ms. Nicholas P. Greville
Anne and J. Scott GriffinPete and Emily GrossD. G. GumpertzGeoffrey Gund
23
PDF Annual Report 2009
Sharyn and Charles Gunderson
Shelly GuoGene GurkoffJon and Stevi GurkoffAndrew GustinLydia GustinProf. Irene A. GutheilMark GuzziFrancis and Lois A. GwinnPaul and Lorrene HaasAlyce C. HalchakJohn and Athena HalkiasJeffrey HamerNorma HammondMr. and Mrs. Adam Handwerker
J. Alan and Karen HardingDr. Marion J. HardwickMarcia L. Mac HargWilliam HarlanSteven G. Harper, M.D.William H. HarrisonHenrietta H. HartPaul F. Hastall and Elaine Sclavos
Glenn and Sharon HawkinsMark and Jill HawkinsJimmie and Kurt HayekMarc HayesRear Admiral Kenneth G. Haynes, US Navy (Ret.)
Donald B. HeadleyArthur HeardJohn and Jean Kenna HeinsLois HeinsLewis and Madalyn Helfstein
John HeroldB. Lynn HerringtonStuart HerschMarvin HerskowitzHenry G. HerzingSteven and Sherry C. Hibshman
William and Mary Hicks
Richard HildboldLaura and Lane HillSara HillPaul J. HillmanAmanda and Bret HirshWanda HizerGeorge HobergBryan HockmanMonty HoefleinTerence HoganStephen and Margot Holland
Hon Family FundKatherine HopkinsSandy and Bruce HornRichard and Marie Hornstein
Elliot HorowitzDr. David HowardEdna F. HowellTimothy P. HubarttThomas and Anne Hubbard
Deborah and Alan HuberHarold Huberfeld and Pamela Berry
Helen HudgensSeth HuhnerkochNancy J. Huntsman, Ph.D.J. A. HutchisonDr. Sonia W. HymanRalph and Barbara ItalieAndrew IturbeWilliam and Judith JacksonMr. and Mrs. Albert Jacobowitz
Donald P. JacobsRandi S. JacobsSelwyn and Marjorie Jacobs
William and Ellen JenningsArthur and Joan JentoftCarlos JerdenDonald and Marian Johnson
Michael D. Johnson
Crandall D. JonesDavid and Carolyn JonesKristin and Lewis JonesNathaniel and Judith JonesPaul JonesEleanor N. JordanJames JordanJames E. JordonSheryl and Robert Josephson
Glenn and Jean JungTimothy KacmarLeslie KahnBeryl KammererAlan and Sharon KaneDaniel KanePatrick KaneZelma KangasWilliam and Joann KansierHenry and Rita KaplanGary and Rosalind KarlitzGeorge KarnoutsosRichard and Jane KarpHerbert KatzPaul KebabianMr. and Mrs. ChristopherKeber
David and Nell-Ann KellDr. David KellerElaine P. KendRobert and Elizabeth Kennedy
Arthur and Nancy Kesselhaut
Earl and Dolores KesslerDaniel M. KeyesDr. and Mrs. Karl KieburtzMary and Franklin KilgoreScott and Mary Beth KilreaAlbert Q. KingPhyllis KingLinda S. KinzelbergMark and Lisa KirbyNicholas and Lynda KisselCarol and Foster Kivel
Mary KiyonagaJoyce KleinStephen E. KleinSuzanne and Robert KleinDr. David L. Klionsky and Ms. Eva Youshock
Marlene R. KnowlandBryan KobelElaine KoenigsbergEdgar and Eileen KoernerMr. A. and Mrs. Barbara Kohn
Emanuel and Athena Kokkinakis
Bruce and Noreen KolmanRonald and Isobel KoneckyMr. and Mrs. William Konecky
William KorthHenry and Mary KramerJanet P. KramerRebecca KramerSeymour and Arline Kreshek
James KressJudie KrestonMark Kristof and Beth WardGloria KronenbergMichael KronenbergRhett KrullaDiane L. KurtzJin Kwock and Ngan Su Lee
Barbara KyseMr. and Mrs. John LabarLeonard La MannaCecelia LanceDiane LanconAlan and Linda LandisMark LaneSheila LangDon and April LangeDr. Nancy C. LankfordManuel LarramendiDr. and Mrs. Timothy Larson
Individuals
24
Recognition of DONORS
Robet O. LavenSarah Le SueurJeffery R. LeakeGene G. LearyPauline M. LecomteJin LeePrice M. LeeSo Young LeeSuzanne and Robert Leggett
Mark and Gaby LehrerMr. and Mrs. Michael LeinJill LeinbachLaurie Leiner and Morton Katz
Walter and Wilma LeinhardtSally W. LeungDr. Ilan and Dr. Barbara Levi
Dina L. LevinJerome and Arlene LevineJoe and Phyllis LewisMr. and Mrs. Adolf C. Lichtenstein
Mr. and Mrs. John LiguoriRuth V. LilleyWilliam and Marilyn Lindstaedt
Cara LipshieThe Liro-Hill Family FundMr. and Mrs. Joe LissMr. and Ms. William Lockeretz
Mary Ann LockhartPeggy and Marshall LoebRobert M. LofbergJudy LongMr. and Mrs. Robert LongCommander and Mrs. Phillip Lorber
Family of Clover LovellJean LovettW. Wilson Lowery, Jr.Leonard and Rita LowyKevin LynchJ. W. and Emily Maallister
Bruce and Joanne MacCallum
John MacDonaldDr. Leonard MadesHoward N. MagillGeorge and Linda Mahoney
William B. MahoneyKathi and Frank MaisanoWilliam MakinenBrian J. MalisonBurton and Marcia Mallory
Lawrence and Janis Malone
William and Cathrine Mandi
Ellen ManianLeo and Claire ManiattyAdam MargolisLinda MarkeloffLucille MarquezDr. Philip A. MarracciniTheresa and John MarranHomer and Kathy Martinson
Mary Ann and Dale Masher
Floyd and Yvonne MasonGeorge and Priscilla MatoukWilliam and Gail MattsonMichael and Jessica Mayerson
J. Robb MayoCharles and Anita McCarthy
Mary B. McCaskeyRobert and Marsha McClearySusanna McColleyMichael and Cynthia McConnell
Ellice and Rosa McDonaldPollie McFarlandMr. and Mrs. Thomas F. McGarry
John and Helen McGrath
Austin McGrealGerald McLaughlinGordon McLeanMichael McLindenJohn and Carolyn McMichael
W. McMillinMalcolm and Sandra McNeil
Angus and Mary McPhieIris M. McQuistionPeter M. McVeyMary MeehanPaulette Z. MeiselasMichael MelnickMary A. MerowMary MeyersAndres MezaStephen and Jeanette Mihaly
Robert and Gail MilhousDoug and Marcia MillarAlfred A. MillerDr. David MillerJoseph H. MillerRichard and Lois MillerRichard and Phyllis MillerMark MilsteinEugene and Barbara Miltenberger
Stuart and Linda MirvisDeanna L. MitchellGeorge P. MitchellEna E. Mocega, M.D.Gina ModicaAnita and Arlan MoffattElena MondiniMr. and Mrs. Joseph Monteleone
Christopher and Ruth Montgomery
William J. MontgorisGeorge and Mary MooreHoward and Ginger Morgan
Kip and Marie Morgan
Audrey MorrisFlorence MorrisRobert MorrisseyJay B. MorrowMatthew and MarthaMueller
Dr. Ramazwamy Murai and Ms. Christianna Strohbeck
Michael and Nicole Murphy
Frances F. MusserJean MyersJohn B. MyersGary M. NathPaul and Marcy NathanRichard and Marty NealonJames and Alison NeislossDennis Nelson, M.D. and Marybeth Nelson
June NewmarkDr. Neil and Carol NiadMrs. Magda NieuweboerGary Nigon and Melodee Johnston
Agnes E. NixonJames and Marla NockEdward J. NohaMelissa Van Meter NorenRobert S. NorthingtonSabato NotoJoseph NovelloEugene and Joellen NowellLawrence and Melanie Nussdorf
A. R. O’ConnellThomas and Patricia O’Donnell
Mary C. O’NeillDonald and Marion OlivaRobert OlshanskyJohn and Marnie OlsonLuke O’NeilRichard and Harriet Orkand
James OrsiniNeal Ortenberg
PDF Annual Report 2009
25
26
Tim and Debra OsburneMrs. Robert Paglia and Family
Arthur PalikTony PallagrosiMr. and Mrs. Ted ParkeMichael PasuitKathy PatrickMelba PearlsteinDr. Timothy PedleyGlenn PennyHarvey and Irene PessarMrs. Virginia W. PetersFrank and Mary PetittiGeorge PetrasJames Philbin IIIHarry PhillipsSusan G. PhillipsStephen and Patricia Pickering
Donna PickettDonald and Grace PierceAlan and Elisa PinesLouise PiperNina PlattGary PodellEugene A. PoelAnne L. PoirierDrs. John and Susan Pollack
Richard and Anita PollakWilliam and Carol PollakMr. and Mrs. Henry A. Pope, Jr.
Louisa and Henry PorterRoxanne PoveromoDr. Matthew PowerArjun PrabhuFrederick PrinceGail and Ephraim ProppRonald ProvostKerry PyrchThomas and Susan Racobaldo
W. Matt and Amelia RallsGerald and Barbara Ranzal
Cathy RaphaelJohn RaphaelCheryl RappTerrie L. RayMichael Reed and Kristin Toner Reed
Jonathan S. ReevesThomas RegerRuth A. ReiderRalph and Barbara ReisSamuel RensinLlewelyn RentelAsher W. ReshThe Revoir FamilyRichard and Ellen RichmanLaurose and Burton Richter
Mr. and Mrs. Robert Riefstahl
Karen RiemWilliam F. RingierRalph N. Robbins, D.D.S.Dana RobertsEleanor L. RobertsMr. and Mrs. Jeffrey Roberts
Thomas Brenda RobertsAndrew and Harriet Rockefeller
Betty RodgersRaymond RodgersRichard RoemerRobert and Elise RokoseRobert and Heddie Romanoff
The Romero FamilyPaul and Joan RomitiMr. and Mrs. Edward Rosenblum
Lyn RosensweigMelvin S. RosenthalDr. Robert RosenthalMr. and Mrs. David Rosinus
Stephen RossDr. Harley and Mrs. Sara Rotbart
Stanley and Patricia RothSteven and Linda RourkeDr. and Mrs. Lewis P. Rowland
Drs. Stephen and Marie Rozan
Hedda RublinCarrie E. RuleNatalie RuleDr. and Mrs. James RussellThomas and Esther Safranske
Marshal and Janet SalantBetsy B. SalingerSaul and Evelyn SalkaDr. and Mrs. Henry D. Salter III
Donn and Pauline SamuelsonBetty SandfordHellyn L. Sarek and Barbara Davis
Mr. and Mrs. Ron SargentEmil and Barbara SarpaDonald and Marian SavageJohn and Deborah ScanlonRobert and Heather Schaefer
Mr. and Mrs. Roy L. Scharer
Sheryl R. Martin and Anton Schermer
William S. SchermanKeith E. SchilderSusan SchindlerSchlauch-Jen Family FundGregory SchlegelDuane and Shirley Schleiger
Carole SchlessingerMrs. Burke L. SchlossLinda SchoenhalsPaul and Esther SchragCharles and Kathren Schreck
Blair SchrumEdward SchulerBrian and Kathy Schultz
Sue SchultzJeff and Iris SchwartzMartin SchwartzNancy and Max SchwartzMr. and Mrs. Sherwood Schwartz
Mr. and Mrs. Frederick E. Schwarzmann
Thelma and Robert ScottJoel and Kathy SegallRuth L. SeidmanEthel SeifeEdward and Cynthia Seretan
Vincent D. Sexton, Jr.Emily Eileen ShanksRonald and Evelyn ShapiroTheodore and Joanna Shapiro
Stephen E. ShayMissy Egbert Sheehan and William B. Sheehan
Sidney and Lorraine Sheinberg
Dr. Sam ShelanskiDavid H. SheltonPauline and Alex ShenderRoger and Ewanna Sherburne
Cindy ShermanJack and Paula ShermanJennifer ShotwellMichael ShrimmerRose L. ShureStanley SidelC. M. Sigmon, Jr.Dr. Sandra and Arthur SilerMr. and Mrs. Andrew SilverDavid SilvermanPaul SilvermanLawrence and Renee Simmons
Joseph and Jean SimonetMichael D. SimonetJ. and Linda SimsPhilip and Karen SirianniSamuel and Beverly Sirota
Individuals
Recognition of DONORS
Basil G. SkalkeasHerbert and Arline SlepoyJohn F. SlusserDr. Bernard and Mrs. Sheila Small
Shirley SmallAlexa SmithBrian SmithJames SmithKevin Smith and Laurel Johnson-Smith
Leland and Marion SmithLori and James SmithYoland SmithWallace SnipesFrank SnopkoEdwina SnowB. and Mary SnyderGlenn SnyderIra and Lisa SnyderPaul and Anna May SnyderDr. Babs SollerBenjamin and Joyce Solomon
Dr. and Mrs. Marvin Solomon
Douglas SpaniolJeffrey SpenceRuth R. SpoerriGary and Carol StackhousePatrick StanleyKenneth and Alice StarrEdward StebbinsCarol SteginkJoanna SteichenRita R. SteinbergPaul SteinerNormand and Elizabeth Steisel
Thomas and Eunice StephensDouglas and Lisa SternEvan and Sandra SternJonathan and Sydney SternMark and Elle SternJennifer and David StockmanPaul and Gayle Stoffel
Marie StrebelScott StricklandWarren and Frances StricoffJo Anna K. StrizicLynda Ann and Alberto Strulovic
Christopher and Mary Jo Studwell
Arthur SuekoffCharles and Vivian SukenikJames and June SwartzEdward SwensonHope F. SyversonJonathan TaitCharles TalcottGordon TannuraTerri TarinCarol and Melvin TaubMary TaylorLouis TeitelmanDavid A. TepperAnne TernesNancy and Paul TerragnoMary K. ThomasThomas P. ThomasAnn ThompsonWilliam and Nancy Thompson
Lars and Susanne ThomsenZane and Frances ToddMaureen TokarRhonda and Phil Tomashefsky
Betty TrullingerMarshall and Gloria Tucker
Jodie and Brian TunisFrancine TurkMark and Andrea UlinskiDr. Richard and Mrs. Gail Ullman
Johanna M. Merson UtrechtRussell and Whitney Van Nuis
Meredith VanderwarkerLeslie VanmeirCraig Varrelman
Richard VaughanRobert VerkerkRenzo VescioMarina ViardoEdward M. VietorGeorge and Fran VillereFernando VivancoJoseph and Wanda VolkJules and Florine WachterDoris C. WagesKaren WaisathAlan and Sadye WaldenbergBenjamin WallMary WardellAudrey WarfieldRaymond P. WarrellGeorge and Elizabeth Watkins
Mr. and Mrs. Malcolm R. Wattman
Eliot R. WaxBridget and John WeaverElizabeth WeberThomas WeberEvelene and Robert WechslerMr. and Mrs. Harlan J. Wechsler
Audrey and John WeeMarshall and Sherre WeeksJames and Pamela WeichertJudith and Daniel WeidenthalKenneth and Susan WeilNatalia WeinrebAndrew WeinrichHerbert and Judith Weintraub
Sally W. WeintraubArthur and Bernice WeisJack and Jane WeiselbergEdward and Betty Weisenfeld
Dr. James WeissRaymond WeissMarvin WeitzMrs. Aloah Welp and FamilyH. Frederick and Suzanne Wessler
J. B. White, D.V.M.Lawrence and Susan WhiteLeonard H. WhiteNell R. WhiteLisa A. WickhamMary WiebkeMr. and Mrs. Craig WierdaRobert and Carol WilderJeffrey and Lise WilksJames S. WilliamsMr. and Mrs. Kenneth Williams
Wendy WilliamsJames and Angela Williamson
Mr. and Mrs. George E. Willis
Kenneth R. WilsonRoy WilsonDorothy WinkeyA. T. WinterfieldAnn WolfeFred and Mary WoodliefJoe and Virginia WoodsMr. and Ms. James WuWayne WuJerome and Selma YagudaThomas and Joanne YatesHenry Y. YinBeverly YoderJeffrey YostSusan and Nathan YostBarbara YouderianLarry YoungPeter and Kelly YoungGordon M. YoungerJed and Brenda ZachsEdward and Gertie ZajacJames D. ZankelSam and Edythe ZaroLouis ZimmermanCynthia ZirinskyDonald and Lynn ZuckerDr. Howard and Mrs. Patricia Zusman
Susan Zwick
27
PDF Annual Report 2009
28
A. G. FoundationAbbott LaboratoriesAdvantage Testing, Inc.Aetna Giving CampaignKenneth Aidekman Family Foundation
Airtex Design Group, Inc.The Shana Alexander Charitable Foundation
Allay Home & Hospice, Inc.Allstate Giving CampaignThe Allyn Foundation, Inc.Amgen PAC Amicus TherapeuticsArcher Daniels Midland Company
Artisan Industries, Inc.The Atmos FoundationBank of AmericaBarish Family FoundationAlvin H. Baum Family Fund
Berner Charitable and Scholarship Foundation
Bernstein Foundation, Inc.The Mary Duke Biddle Foundation
Big Y Foods, Inc.Bisgeier Family FoundationPage & William Black Foundation
The David H. & Mary B. Blair Charitable Fund
Bloomberg L.P.Blum Family FoundationBoehringer Ingelheim Pharmaceuticals, Inc.
Bonner Family Private Foundation, Inc.
Borsky Wiesenfeld FundBoucher Charitable Foundation
Bowman, Monaco & Black, P.C.
BP Matching Fund Programs
Broadbridge Securities Processing Solutions, Inc.
Brown Charitable Foundation
The Elsie A. Brown Fund, Inc.
Cagney Insurance Network, Inc.
Campbell, Inc.Canata Family FoundationCardinal Health FoundationThe Carefree FoundationCaribbean Enterprises, Inc.Cars Helping America, L.L.C.Cassady, Schiller and Associates, Inc.
James & Nancy Casty Charitable Foundation
Cemex, Inc.Ceregene, Inc.The Dr. Lloyd & Kay Chapman Charitable Foundation
Charles River Ventures, Inc.Charlotte Pipe and Foundry Company
The Chase Fund, Inc.The Cimino Group, Inc.Citizens BankClayton Family Charitable Gift Fund
Louis & Virginia Clemente Foundation, Inc.
Coca-Cola Enterprises, Inc.Elizabeth Knight Cochran Fund of The Greater Cincinnati Foundation
The Betsy and Alan Cohn Foundation, Inc.
Columbia University Department of Neurology Endowment for Parkinson’s
Compass Wire Cloth Corp.Barbara Fatt Costikyan Fund
Karn Couzens and Associates, Inc.
Cox Communications, Inc.Jonathan C. S. Cox Family Foundation
The Cox Family Foundation
William and Sally Cross Charitable Fund
CSX CorporationEdna Williams Curl & Myron R. Cur
Customized Energy Solutions
Daffy’sDana and Jesse Lehman Foundation
Datacert, Inc.Deloitte & ToucheDeloitte ConsultingDeutsche Bank Americas Foundation
Dextra Baldwin McGonagle Foundation, Inc.
Diamantine Family Foundation, Inc.
Harriet Ford DickensonFoundation
Dinz, L.L.C.The Dopkin-Singer-Dannenberg Foundation, Inc.
Kenneth Douglas Foundation
Dreiseszun Family Foundation
Dupont Systems, Inc.Dyson FoundationEchlin FoundationEli Lilly & Company Foundation, Inc.
Elias Charitable FoundationElija Holdings, Inc.Elmwood Charity Fund, Inc.Epic Systems CorporationErnst Foundation, Inc.Essex OncologyExxon Mobil CorporationExxon Mobil FoundationFairchild Martindale Foundation
Arthur & Eve Fastenberg Philanthropic Fund
FBC Holdings, Inc.Edward J. Feiman, Ch.F.C., C.L.U. & Associates
Fercat Holdings, Inc.Feuerring FoundationMarian & Leon Finkle Foundation, Inc.
Firstgiving, Inc.Fisher Landau Center for ArtFocus On A CureForest Family FoundationThe Foundation – To Life, Inc.
Fox Family Charitable Trust
The Fremont FoundationGap, Inc.GE FoundationGerson & Gerson, Inc.Gilmon Holdings, Inc.GivingExpress Program from American Express
Ruth and Jack Glantz Family Foundation Inc.
Glencore, Ltd.Glickenhaus FoundationGolden Family Charitable Fund, Inc.
Jerome & Molly Goldstein Philanthropic Fund
The Samuel and Grace Gorlitz Foundation
Lee Gottlieb Fund, Inc.The Tom & Bonnie Grace Family Foundation
Grand Council Cryptic Masons
Eugene & Emily Grant Foundation
Greenberger Family Fund of the Jewish Communal Fund
Gwendolyn Halsey-Albertson Foundation
HarperThe Harte Auto GroupPhilip M. Hogan Family Fund
Foundations/Corporations/Organizations
Recognition of DONORS
Philip Holzer & Associates, L.L.C.
Syde Hurdus FoundationSheila & Milton Hyman Foundation
I Do FoundationInsurance Programmers, Inc.Isermann Family Foundation
Jack’s Glass, Inc.Jaffee FoundationJoel & Carol Jankowsky Foundation
Johnson & Johnson Family of Companies
J.P. Morgan & Co.The Kandell FundThe Max & Rose Katz Foundation, Inc.
The Kaufman FoundationHarry L. Kavetas Family Fund
The Kellogg Collection, Inc.
Kelly Family FoundationGeoffrey D. Kimball FundKit Kat Club, Inc.Sam W. Klein Charitable Foundation
The Max D. & Cecelia Knell Family Foundation
The Kohn-Claar Family Foundation
The Kortschak Family Foundation
The Kosher NoshDavid B. Kriser Foundation, Inc.
Dana and Jesse LehmanWilliam Lehrer Charitable Fund
The Leonida Family Foundation
Charles & Margaret Levin Family Foundation, Inc.
The Leon Levine FoundationToni Lieberman Family Charitable Trust
The Light of Day Foundation, Inc.
Litterman Family FoundationLitwin Foundation, Inc.Lawrence Livermore National Laboratory
Loeb & Loeb, L.L.P.Jane P. Long Fund of New York Community Trust
Lovinger Family Foundation
Lowenstein Sandler, P.C.M5, L.L.C.Mace / Mechanical Contractors, Inc.
Mahoney Donor FundAnn S. & Albert L. Maltz Foundation
Matich CorporationSamuel F. McCormack Co., Inc.
Meadors Charitable FundMedtronic, Inc.Merck Partnership For Giving
Merrill Lynch & Company Foundation
Microsoft, Inc.Midwest Groundcovers, L.L.C.The Harvey L. Miller Family Foundation
The Mirapaul FoundationEd Mobley Sunday School Class
Jeffrey Modell Foundation, Inc.
Morgan StanleyMotorola FoundationMuze, Inc.Isidore C. Myers-Joseph A. Erickson
Natcity Investments, Inc.Thomas Neal Foundation, Inc.
The Netter Foundation, Inc.New England Brokerage Company
THE JAMES PARKINSONLEGACY SOCIETYWe thank the following members ofthe James Parkinson Legacy Societywho have included PDF in their estate plans or have established acharitable gift annuity with us.
Edith Perman-AllenGertrude S. BellAila G. DaweJean DewdneyGuy EstesElizabeth A. GeiserMatilda GoodmanHarold F. JaegerAnnette KornViola B. MarshallMarie D. SchwartzMr. and Mrs. Robert W. SmithCharles L. ThomasJames B. Wittrock
29
PDF Annual Report 2009
If you have made estate plans whichinclude PDF or wish to establish a charitable gift annuity which provides you with income for life,please contact Eddie Pelto, Directorof Development at (800) 457-6676.
30
New York Times, Inc.George Harte NissanNovartis Pharmaceuticals Corporation
R. A. Novia & Associates, L.L.C.
The Calvin Flavia Oak Foundation, Inc.
Thomas P. & Patricia A. O’Donnell Foundation
Orange County Community Foundation
Richard & Harriet Orkand Charitable Foundation
The Parkinson Alliance, Inc.Parkinson’s Unity Walk, Inc.
Fred & Mabel R. Parks Foundation, Inc.
Hyman & Bessie Passman Family Charitable Foundation, Inc.
Pfizer FoundationP.G. & E. CorporationPolevoy Family FoundationThe Portmann Family Charitable Fund
Powmat, Ltd.The David C. & Jeannie Price Fund
Prince Charitable TrustsPropp Foundation, Inc.Prudential FoundationQuadel Consulting Corp.QualcommR. C. Bigelow, Inc.Raimonde Drilling Corporation
Ralph J. Duffie, Inc.Rashman CorporationRed Apple GroupThe Donald Reich Family Charitable Fund
The Robbins Family Foundation
Robert A. Romanoff Family Philanthropic Fund
Joseph Rosen Foundation
The Irene Herbert Ross & Harper Grant Ross Foundation
Royal Neighbors of America
Leon Rubach Family Foundation
SAD FoundationEdmond J. Safra Foundation
Sanky Communications, Inc.Santa Barbara FoundationSchering-Plough Corporation
Schoolhouse Records, L.L.C.The Jean & Thomas SchreiberPhilanthropic Fund
Arnold & Marie Schwartz Fund
The Ron Shapiro Charitable Foundation
Alexander Shashaty Family Foundation
Sherman Oaks Woman’s Club, Inc.
The Shubert Organization, Inc.
The Sidewater Family Foundation
Fred Siegel FoundationSiegel, O’Connor, O’Donnell & Beck, P. C.
Skadden, Arps, Slate, Meagher & Flom, L.L.P.
Snyder Watchorn Foundation, Inc.
Solvay Information Technologies, Inc.
The Spurlino FoundationSt. Lawrence NYSARCFrank & Domna Stanton Foundation, Inc.
STAR Sharing Time & Resources
John W. & Laura S. Stewart Foundation
The Dorothy Strelsin Foundation
The Sulzberger Foundation, Inc.
SVM FoundationAlexandra & Martin Symonds Foundation, Inc.
Sy Syms FoundationHenry & Marilyn Taub Foundation
Judy & Warren Tenney Foundation
Teva Neuroscience, Inc.The Ellen M. Violett & Mary P.R. Thomas Foundation
Thurston Foods, Inc.Tides FoundationTobias Bros., Inc.Toshiba America Information Systems, Inc.
Trudeau Institute TruistThe Trukenbrod Family Foundation
U.M.R. FoundationUCB, Inc.The Ullmann Family Foundation
United Refining CompanyVorst Family FoundationWachoviaWasily Family FoundationWeeds, Inc.Eric W. Weinmann Charitable Foundation
J. Weinstein Foundation, Inc.
Wellpoint Associate Giving Campaign
Wells Fargo Community Support Campaign
Wellspeak, Dugas & KaneShirley Waldbaum Witkin Foundation, Inc.
Diane & Howard Wohl Family Foundation
Mary & George H. Zimmerman Foundation
Zoe’s Best Friend, Inc.Zola Family Fund of the Community Foundation of New Jersey
Josephine AlbrechtMarie S. AtkinsThelma BeckerEmilia M. BittlesAdele S. BlankOpal E. BossHelen D. BusherLillian ColbertVera Gauthier DidierNelson C. Donald, Jr.Mary M. DuboisC. Edward DufresneJane C. DunnMargaret DuttonIrene E. FinkGeorge S. FlemisterLouise C. FruehlingErnest C. GeigerMatilda GoodmanMildred Ruth HarrellEmily M. HennerMary A. HrebicekDorothy Bauer JochemStephen KrutyFonda KurtzFlorence N. LiflandMary Helen LinderAshok MalhotraViola B. MarshallIrene M. MattoMary J. MeglinoFaith E. MessickLucille L. MillerMarga I. MooreEleanor NewmanMariano NofriDaniel F. NorthIsabel Perez TrustAnne S. RennieL. Millard RichmonJoann SchwartzHarry H. SpiegelEmerson M. WallaceCarla U. Wilkinson
Foundations/Corporations/Organizations
Recognition of DONORS
Estates
SUPPORT PDFThe Parkinson’s Disease Foundation (PDF)is a leading national presence in Parkinson’sdisease research, education and public advocacy. We are work ing for the nearlyone million people in the US living withParkin son’s by funding promising scientificresearch and supporting people with Parkin-son’s, their families and caregivers througheducational programs and support services.
Since its founding in 1957, PDF has fundedover $85 million worth of scientific research in Parkinson’s disease, supportingthe work of leading scientists throughoutthe world.
There are many ways in which individualscan support PDF’s es sential work.
We welcome:
• Online donations made with a credit cardon our secure website at www.pdf.org;
• Contributions by fax, phone or mail tothe PDF office at 1359 Broad way, Suite1509, New York, NY 10018;
• Tribute gifts to remember a per son whohas passed away or to honor a friend orloved one;
• Gifts of stock, bonds and mutual funds;
• Planned gifts, including be quests, chari - table trusts and charitable gift annuities;
• Monthly giving through a recurring giftautomatically charged to your credit card;
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For more information on ways to give toPDF, please call (800) 457-6676 or visitwww.pdf.org.
31
Evelien Auerhamer TrustSatia Jenkins Bernen Revocable Trust
Bessemer TrustDorothy M. Booth Charitable Trust
Gladys S. Borrus TrustDorothy E. Bradford TrustElizabeth Butterworth TrustRaymond W. Carlin Family Trust
Goerge J. Chute Living TrustGus DuBois Living TrustGladys Field Charitable Lead Annuity Trust
Robert T. Follic Revocable Trust
Margaret C. Glosser Irrevocable Trust
Miriam C. Goldman TrustSol Goldman Charitable Trust
Golub Charitable TrustHal Headley TrustHel Lyn TrustMary C. Holman TrustHortley G. Leblang Charitable Trust
Hudston Charitable TrustBetty J. Ingledew TrustFrances H. Katz TrustJane E. Kerbey TrustRobert W. Knight TrustRuth M. Kroon TrustAdolph Kutner Inter Vivos Trust
Ken Larson TrustThe May F. Leeds Revocable Trust
Toni Lieberman Family Charitable Trust
Margaret D. Lienemann Charitable Trust
Minow Charitable Lead Trust
Betty Mueller TrustReva H. Newman Irrevocable Trust
The Melba M. O’Connell Trust
Isabel Perez TrustElizabeth J. Rasmussen Revocable Trust
Regions Morgan Keegan Trust
Edith Reichman TrustEsther Ruddick TrustLuxcille D. Sloan TrustThe David Tepper Charitable Lead Annuity Trust
Sophia Tomich Living TrustEric W. Weinmann Charitable Trust
Roger I. Wilkinson TrustEugenia V. Winward Revocable Trust
Woodstra Family TrustEsther Wright Trust
PDF Annual Report 2009
Trusts
OfficersPage Morton Black
Chairman
Lewis P. Rowland, M.D.President
Timothy A. Pedley, M.D.Vice President
Stephen AckermanTreasurer
Isobel Robins KoneckySecretary
Stanley Fahn, M.D.Scientific Director
DirectorsConstance Woodruff Atwell, Ph.D.Karen Elizabeth Burke, M.D., Ph.D.
Margo CatsimatidisBarbara CostikyanPeter Dorn
George Pennington Egbert IIIStephen B. Flood, Esq.Sarah Belk GambrellDaniel Gersen, Esq.Arlene LevineMarshall Loeb
Howard DeWitt MorganMarie D. Schwartz
Domna Stanton, Ph.D.Sandra Feagan Stern, Ed.D.
Melvin S. TaubMartin Tuchman
BOARD OF DIRECTORS
Carey ChristensenJoy Dryfoos
David Eger, Ph.D.Melinda Hermanns, Ph.D.
Rhona JohnsonDaniel Kiefer, J.D.
Jo-Anne Lazarus, Ph.D.Meredith Mucha, M.D. Michael O'LearyLillian Snyder
Joanna Steichen, M.S.W. Bruce Talbot Ann Wasson
Executive DirectorRobin Anthony Elliott
PEOPLE WITH PARKINSON'SADVISORY COUNCIL
J. Timothy Greenamyre, M.D., Ph.D.Oleh Hornykiewicz, M.D. J. William Langston, M.D. G. Frederick Wooten, M.D. Anne B. Young, M.D., Ph.D.
SCIENTIFIC ADVISORYCOMMITTEE
The artwork included in this publication was created by people with Parkinson’s disease and is part of PDF’s Creativity and Parkinson’s Project. This initiative seeks toexplore the therapeutic value of creativity in Parkinson’sdisease. Additional artwork from over 250 people with Parkinson’s can be viewed at www.pdf.org/en/creativity.
Main Office1359 Broadway, Suite 1509New York, NY 10018P: (212) 923-4700F: (212) 923-4778
Columbia University Office710 West 168th StreetNew York, NY 10032
Artwork Credits: Cindy DeLuz; Carol Blann; Lewis Gordon: Cover; Joseph Dawley: p. 5; Steve Retterer: p. 16
Photo Credits: Courtesy of Dr. Robert Burke: p. 4; Janet Charles: p. 5;
Courtesy of Dr. Lloyd Greene: page 6; Courtesy of Dr. Alessandra Chesi: p. 10; Janet Charles: p. 12; Patrick McMullan Company: p. 18 (top and bottom);
Janet Charles: p. 18 (center); Ricky Cheung: p. 19
© 2010 Parkinson’s Disease Foundation
(800) 457-6676 | info@pdf.org | www.pdf.org