Daniel Jacoby, MD, FACC

Access To Care: HCM Roundtable 2021

June 8, 2021

Myokardia: Grants, Steering Committee EXPLORER

Cytkonetics: Consulting

Propria LLC: Patented technology for pre-clinical diagnostics in HCM, patent ownership (self)

and company ownership (spouse)

Disclosures

1

Access to specialty care is unequal and changes outcome

2

Thomas and Jacoby, J Am Heart Assoc. 2020

Does resource use explain differential outcome?

3

Similarly, disease expression and outcomes diverge by race

4

Eberly and Lakdawala, JAMA Cardiol. 2020

Referrals and access

5

Outcomes studies and referrals

The impact of innovative therapies and technology are likely to be complex

6

Masri and Heitner, JAMA Card

2020Telehealth

Ko and Noseworthy, JACC

2020

Under-representation has adverse consequences

7

Clinical trials and gene testing

Table 1, EXPLORER HCMOlivotto and Jacoby, Lancet 2020

Manrai and Kohane, NEJM 2016

Goals and associated process metrics are required

8

Improve access to specialty

care for allImprove representation of

minority patients in clinical

trials and outcome studies

Educate providers and develop

tools to diagnose patients

Train next generation of

providers

9

Questions

Thank you