International Myeloma Foundation

Dedicated to ~ improving the quality of life of myeloma patients while working on prevention and a cure

IMF & APMM

The IMF extends a heartfelt thank you to the patient Support Groups, the doctors and the

nurses who empower patients through education, and bring hope for a brighter future.

International Myeloma Foundation

Founded in 1990

Mission:“To improve the quality of life for myeloma patients while working toward prevention and a cure.”

Four areas of focus:EducationAdvocacyResearchSupport

International Myeloma Foundation

Membership – more than 230,000+ globally

Global reach - 120 countries

Scientific Advisory Board

72 world recognized experts

IMWG 162 members

Raised more than $60 million dollars

Growth Over 10 Years

IMF Around the World

IMF JapanEst. 1997Providing services to patients throughout JapanWeb site in Japanese www.myeloma.gr.jp

IMF Latin AmericaEst. 2005 - Office in Sao Paulo, Brazil Providing services to patients and physicians throughout Latin AmericaWeb sites in Spanish and Portuguese www.myeloma.org.br

IMF IsraelEst. 2005 - Office in Tel AvivProviding services to patients and physicians throughout IsraelWeb site in Hebrew www.amen.org.il

IMF Europe Est. 2006Providing services to patients and physician throughout Europe

IMF China/Chinese Health Promotion Foundation Est. 2011

IMF Around the World

IMF Europe

Greg Brozeit - IMF Europe /Nordic RegionAustriaCzech RepublicDenmarkFinland GermanyNorway SlovakiaSwedenThe Netherlands

Established Regional Community Workshops for patients and doctors

IMF Europe / Middle East

Nadia ElkebirIMF Europe / Middle East

ItalyJordanKuwaitSaudi Arabia SpainTurkeyUnited Arab Emirates

IMF Education Myeloma Minute

In German, the Myelom Merkur

In Italian, the Il Messaggero di Mieloma

In Spanish, the Mensajero del Mieloma

In French the Messager du Myèlome

IMF Publications

129 publications including:Patient HandbookConcise ReviewUnderstanding SeriesMyeloma MatrixTip CardsCitings for Physician

And…We speak your language!Guten MorgenBuon GiornoBonjourBuenos Dias

Europe - 2012

11 Patient Seminars – Est. 1,875 attendeesParis, France – June - 125 Wurzburg, Germany – June - 182Munich, Germany – June - 162Vienna, Austria – June - 125Nyborg, Denmark – Sept. - 152Trondheim, Norway – Sept. - 85Lazne Belohard, Czech Republic – Sept. -125Catania, Italy – Sept. - 90Torino, Italy – Sept. - 150Liptovsky Jan, Slovakia – Sept. - 125Heidelberg, Germany – Sept. ?

Europe - 2012

10 Regional Community Workshops – 844 attendeesFlorence, Italy – March - 50

Berlin, Germany – 3 workshops – May - 55, June – 54 Oct - tbd

Munster, Germany – June - 150

Brno, Czech Republic – May - 54

Koblenz, Germany – June - 55

Leipzig, Germany – 2 workshops – June - 91, November - tbd

4 Doctor Community Workshops – 160 est. attendeesBerlin, Germany – July - 34Odense, Denmark – Oct. est. 75Lund, Sweden – Oct. – est. 30 Oslo, Norway – Oct. est. 30

2012 Highlights10 Steps To Better Care®

1. Diagnosis – 15,060 page views2. Tests – 35,148 page views3. Initial Treatment Options – 15,467 page views4. Supportive Care – 6,518 page views5. Transplant – Yes? No? – 9,484 page views6. Response assessment – 4,617 page views7. Consolidation or maintenance? – 4,095 page views8. Monitoring – 4,271 page views9. Relapse – what to do? – 6,627 page views10. New trials – 20,758 page views

122,045 views!

2012 HighlightsMyeloma Post – iPad app

2012 HighlightsIMWG Conference Series

2012 BIG Idea!IMWG Conference Series – Making Sense of Treatment

Live Streamed from Amsterdam and live audience.Viewers day of 2,801Post conference viewer1,231Total viewers to date4,032!

Myeloma Has No Boarders

Myeloma affects people all over the world Every race Every religion Everywhere

Myeloma is a Global program

It’s going to take a global solution

The solution is -

Working together we can…

Find a cure

Find a Cure – How?

Collaboration is the key

To unlock the door to the cure

We’re Getting There!

Here’s how!

International Myeloma Working Group

165 Members – 32 CountriesEurope /Middle East

Austria Belgium Czech Republic

Denmark France Germany

Greece Israel Italy

Netherlands Norway Poland

Portugal Spain Sweden

Switzerland Turkey UK

International Myeloma Working Group

160 Members – 32 CountriesLatin America/North America/Africa

ArgentinaBrazilVenezuela

CanadaUnited States

South Africa

International Myeloma Working Group

160 Members – 32 CountriesAsia Pacific

ChinaHong KongJapanSingaporeS. Korea

AustraliaNew Zealand

ResearchTranslational / Lab

ResearchTranslational / Lab

Junior / Senior Grants IMWG Annual Summit Global Clinical Trials Forum Focus Groups Tissue & Molecular Testing Project – Phase II Global Epidemiology Project – AMN 2nd Cancer & Molecular Testing Project Asian Myeloma Network Canadian Myeloma Network Latin American Myeloma Network

Thank you for your attention ~The IMF Team